Autism and Associated Rare Genetic Conditions Registry

European Autism Genomics Registry (EAGER)

We are currently recruiting autistic individuals and individuals with a rare genetic condition associated with autism to sign up to a registry so they can be contacted in the future to take part in studies or clinical trials based on their preferences.

People who are interested in taking part in future genetic studies or trials will provide a blood or saliva sample, and their genome will be mapped out in a process called whole-genome sequencing. They will also answer a series of questionnaires on mental and physical health and quality of life, and share their thoughts on research priorities.

If you are interested in signing up to the registry or finding out more please email our team at: