PPI Projects
Prof. Eleanor Molloy leads these PPI Projects.
Down Syndrome (DISCO)
- The HAPPY Programme
The HAPPY programme is a health literacy programme that has been devised for teenagers with Down syndrome in collaboration with teenagers at The Down Syndrome Centre. Learn more about the HAPPY Programme.
- Down Syndrome PSP - Trinity College Dublin and James Lind Alliance Partnership
The DS PSP aims to develop a global Top Ten of research uncertainties determined by the wider Down Syndrome community. This would provide evidence to funders of which health areas need more research. Learn more about the Down Syndrome PSP.
Neonatal Encephalopathy (NE)
- NEPTuNE programme
The HRB funded Neonatal Encephalopathy PhD training network, NEPTuNE, completed its 6-year journey in May 2024. The programme consisted of a partnership between Trinity, the University of Galway, UCC’s Infant Centre and, PPI partner, the Irish Neonatal Health Alliance (INHA). Learn more about the NEPTuNE Programme.
Traumatic Brain Injury (TBI)
- TBI – Paediatric Concussion group
The TBI – Paediatric Concussion group meets regularly to progress efforts to improve player welfare and tackle the impact of concussive injury in sport. Academic experts, Professor Colin Doherty, Professor Brian Lawlor, and Professor Jim Meaney have presented research related to brain health and impact of concussion to the Brain Health in Sport advocacy group that is led by Professor Mick Molloy. The advocacy group met separately several times to determine their objectives and held public meetings in March 2025 and March 2026.
- UTOPIA - Understanding Traumatic Brain Injury and Biomarkers in Paediatrics
This project aims to improve understanding of traumatic brain injury (TBI) and concussion in children and young adults. By collecting blood samples and health information, researchers will identify biomarkers linked to injury severity, recovery, and persistent symptoms. The findings may help predict outcomes, monitor treatment responses, and support development of new therapies.