THRIVE - Early Detection and Identification of Infants at High Risk of Cerebral Palsy at Children’ Health Ireland

The Early Detection and Identification (EDI) project at CHI aims to improve outcomes for infants at high risk of cerebral palsy (CP) through earlier diagnosis and timely intervention. This cohort represents a complex neonatal population, including infants who may have required multiple surgeries, prolonged ventilation, or extended hospitalisation who face elevated risks of adverse neurodevelopmental outcomes.

The project implements evidence-based pathways to support early recognition of neurodevelopmental needs. Standardised neurological assessments and structured clinical observations are embedded within routine neonatal and developmental follow-up services, enabling earlier and more accurate identification of at-risk infants and timely referral to intervention services. Family engagement is prioritised through clear communication, education, and shared decision-making.

As a national tertiary service, CHI supports infants and families from across Ireland. The EDI project forms part of a national network of centres across Cork, Dublin, and Waterford, ensuring equitable access to early detection and intervention pathways. Infants meeting High Risk of Cerebral Palsy (HRCP) criteria are invited to dedicated follow-up clinics, particularly where local services are still developing.

Ultimately, the EDI project aims to reduce delays in diagnosis, enhance access to early intervention, and optimise developmental outcomes, improving long-term quality of life for children and their families.

Funder

Cerebral Palsy Foundation 

Research Team & Collaborators

Infant Centre at University College Cork

Discipline of Paediatrics, Trinity College Dublin & Trinity Research in childhood centre (TRICC)

Professor Eleanor Molloy, Neonatology & Neurodisability, Children’s Health Ireland; Discipline of Paediatrics, Trinity College Dublin & Trinity Research in childhood centre (TRICC)

Elaine Mc Mahon, Clinical Specialist Occupational Therapist, Neonatology, Children’s Health Ireland; Research Coordinator, Discipline of Paediatrics, Trinity College Dublin & Trinity Research in childhood centre (TRICC).