SPIRE: Severe neurological imPairment in IREland

The SPIRE studies aim to advance understanding of children with SNI with particular focus on the prevalence of SNI across Ireland, the healthcare utilisation of this group, and baseline data including nutrition and dental health, in the hope that this will lead to better health outcomes. We aim to inform a programme of healthcare delivery to children with SNI that is individualised, pro-active and responsive.  The focus is on supporting care on an ambulatory basis and minimising hospital contact and inpatient stays. This will be achieved through better understanding the trajectory of care and using this understanding to anticipate and manage expectantly episodes of acute illness. Central to SPIRE is exploring parental experience and the involvement of parents as partners in research.

Funder

Children’s Health Ireland Research and Innovation

Research Team & Collaborators

Dr Siobhan McCormack, Prof Denise McDonald, Dr Joanne Balfe, Prof Nicholas Allen, Dr Aoife Mahony, Dr Emma Curtis, Dr Aedin Collins, Prof Anne O’ Connell, Dr Robyn Crowley, Dr Charlotte Wilson, Ms Stephanie Kelly, Ms Aisling Dunphy and Dr Anna Delahunt.