Publications 2025

Exploring Novel Assessment Approaches in Health Policy Management using GenAI – Using GenAI in Teaching, Learning and Assessment in Irish Universities Carlos Bruen 

Book chapter from Using GenAI in Teaching, Learning and Assessment in Irish Universities Dr Ana Elena Schalk Quintanar (Editor) and Dr Pauline Rooney (Editor) 

Long-term care of older people in residential care settings in Ireland during waves 1 and 2 of the COVID-19 pandemic: Lessons (still to be) learned Sara Burke, Katharine Schulmann, Virpi Timonen, Eimir Hurley 

Book chapter from Long-Term Care and Older People in Western Europe, Lessons From the COVID-19 Pandemic Edited by Eloísa del Pino and Francisco Javier Moreno-Fuentes  

Health system reform in the context of COVID-19: a policy brief outlining lessons from Ireland’s journey towards the goal of universal healthcare Sarah Parker, Katharine Schulmann, Carlos Bruen & Sara Burke  

Mapping barriers, enablers and implementation determinants to shared models of care for physical health and sexual wellbeing among young people with mental health difficulties using the Consolidated Framework for Implementation Research: A scoping review protocol llyson J Gallant, John Paul Lyne, Karen O'Connor, Greg Sheaf, Shaakya Anand-Vembar, Donal O'Keeffe, Caroline Wilson, Yulia Kartalova- O'Doherty, Louise Doyle, Mary Cannon, Leona Ryan, Gary Donohoe, David McEvoy, David Cotter, Olivia Longe, Colm McDonald, Agnes Higgins, Rebecca Murphy, Sara Burke, Catherine D Darker  

Modelling the impact of changes to prescription medicine cost-sharing schemes among middle aged and older adults James Larkin, Ciaran Prendergast, Logan T. Murry, Michelle Flood, Barbara Clyne, Sara Burke, Conor Keegan, Fiona Boland, Tom Fahey, Nav Persaud, Rose Anne Kenny, Frank Moriarty  

Care leavers: 10 years on, a narrative rapid review. Eavan Brady, Janet Boddy, Lynne Cahill, Robbie Gilligan, Stephanie Holt, & Sarah Parker  

Exploring health related quality of life for women with breast cancer in Ireland and Québec, Canada throughout the COVID-19 pandemic Charlotte Myers, Kathleen Bennett, Caitriona Cahir, Josée Savard & Sophie Lauzier  

Through Their Eyes: Defining ‘good life’ in dementia for health economics and outcomes research Irina Kinchin, Erin Boland, Iracema Leroi, Joanna Coast  

Addressing Age-Related Complexity in Intellectual Disability (AARC-ID): an economic analysis of different support models. Study protocol. Ashleigh Gorman, Tony O'Brien, Peter May, Irina Kinchin, Philip McCallion, Mary McCarron, Caitriona Ryan, Helena Connors, Sarah Craig, Louise Daly, Alison Harnett, Fintan Sheerin, Mei Lin Yap, Samantha Smith, Mary-Ann O'Donovan, Martin McMahon  

How and why do health system factors influence general dentists’ participation in publicly funded, contracted primary dental care services: A realist review Paul Leavy, Sophie Mulcahy Symmons, David Mockler, Pádraic Fleming, Blánaid Daly, John Ford, Sara Burke  

Global Health Governance and Accountability Carlos Bruen 

Book Chapter from Handbook of Global Health Kickbusch, I., Ganten, D., Moeti, M. (eds) 

 Primary prevention in hospitals in 20 high-income countries in Europe–A case of not “Making Every Contact Count”?  Bernd Rechel, Béatrice Durvy, Gonçalo Figueiredo Augusto, Isabelle Aujoulat, Daiga Behmane, Anne-Carole Bensadon, Sara Burke, Melissa D'Agostino, Krisztina Davidovics, Mark Dayan, Antonio Giulio De Belvis, Judith de Jong, Katarzyna Dubas-Jakóbczyk, Inês Fronteira, Elena Gabriel, Giuseppe Greco, Peter Groenewegen, Signe Smith Jervelund, Marios Kantaris, Madelon Kroneman, Jerneja Farkas-Lainscak, Benjamin Maurice, Luisne Mac Conghail, Liubove Murauskiene, Mircha Poldrugovac, Zsuzsa Rákosy, Silvia Gabriela Scintee, Christoph Sowada, Frédéric Turblin, Desislava Vankova, Zita Velkey, Cristian Vladescu, Dorja Vocanec, Karsten Vrangbæk, Johannes Wünscher, Tuija Ylitörmänen 

Primary oral healthcare in Ireland: a health systems analysis of publicly funded contracted services delivered by the general dental practitioner workforce  Paul Leavy, Pádraic Fleming, Blánaid Daly, Sarah Barry & Sara Burke 

A Comparative Study of Health and Well-Being Measures in Ireland Using EQ Health and Well-Being (EQ-HWB) and its Short Version, EQ-5D-5L, and ICEpop Capability Measure for Adults (ICECAP-A)  Irina Kinchin PhD, Lidia Engel PhD, Fanni Rencz PhD 

What are the policy options for regulating private equity involvement in health care? A review of policies implemented or considered in seven high-income countries  Matthew Tracey, Katharine Schulmann, Florian Tille, Thomas Rice, Julien Mercille, Rob Timans, Sara Allin, Alexis Dottin, Sanna Syrjälä, Tiia Sotamaa, Ilmo Keskimäki, Bernd Rechel 

The Progressivity of Health Care Revenue Financing in 29 Countries: A Comparison  Andres Võrk, Peter Pažitný, Ruth Waitzberg, Sara Allin, Daiga Behmane, Nicolas Bouckaert, Damien Bricard, Lucie Bryndová, Antoniya Dimova, Fidelia Cascini, Péter Gaál, Katharina Habimana, Marios Kantaris, Ewa Kocot, Madelon Kroneman, Liubovė Murauskienė, Zeynep Or, Carlo de Pietro, Ingrid S Saunes, Steve Thomas, Karsten Vrangbæk, Thomas Rice 

Barriers and facilitators to international universal health coverage reforms: a realist review Liz Farsaci, Padraic Fleming, Louise Caffrey, Sara Van Belle, Catherine O’Donoghue, Arianna Almirall-Sanchez, David Mockler, Steve Thomas 

Multiple Symptoms Study 3-An extended-role general practitioner clinic for patients with persistent physical symptoms: a Randomised Controlled Trial Christopher Burton, Cara Mooney, Laura Sutton, David White, Jeremy Dawson, Kate Fryer, Monica Greco, Michelle Horspool, Aileen Neilson, Gillian Rowlands, Tom Sanders, Ruth Thomas, Steve Thomas, Cindy Cooper, Jonathan Woodward, Emily Turton, Waquas Waheed, Pavi Kumar, Katie Ridsdale, Ellen Mallender, Vincent Deary 

Health System Resilience Challenged by a Financial Crisis: The Case of Ireland Steve Thomas, Catherine O'Donoghue, Liz Farsaci, Arianna Almirall-Sanchez, Padraic Fleming 

                Book chapter from: Health Systems Resilience. Understanding Complex Adaptive Systems Edited by Karl Blanchet 

Cumulative Legacies and Crisis Decision-Making in Shocks to the Irish Health System: A Mixed Methods Analysis Steve Thomas, Catherine O’Donoghue, Arianna Almirall-Sanchez, Liz Farsaci 

Unmet need, under-met need and public financing of home care in England Fei Wang, Katy Tobin, Steve Thomas, Rachael Lowe, Emily R Adrion 

Healthcare pathways and social experiences of Lewy body dementia and Alzheimer's disease in Ireland Jayne Conlon, Irina Kinchin, Iracema Leroi 

From data to dialogue in setting research priorities for Lewy body dementia Irina Kinchin, Rachel L Fitzpatrick, Grigorios Papageorgiou, Joseph Kane, Panagiotis Alexopoulos, Polychronis Economou, Jayne Conlon, Petya Grigorova, Ken Greaney, Iracema Leroi 

A Comparative Study of Health and Well-Being Measures in Ireland Using EQ Health and Wellbeing (EQ-HWB) and its Short Version, EQ-5D-5L, and ICEpop Capability Measure for Adults (ICECAP-A) Irina Kinchin, Lidia Engel, Fanni Rencz 

Breathlessness intensity recorded in general practice is associated with shorter times to unplanned hospital admissions and longer lengths of stay: a UK cohort study  Urvee Karsanji, Vanessa N Brunelli, Claire A Lawson, Alex Bottle, Magnus Ekström, Irina Kinchin, Slavica Kochovska, Diana Ferreira, Jennifer K Quint, Michael C Steiner, Rachael A Evans, David C Currow 

Feasibility Study for Implementing Disease-Modifying Therapies in Alzheimer's Disease: Process Measures and Patient Pathways across Ireland  Eliza Georgiou, Petya Grigorova, Sevinc Elif Sen, Anne-Marie Miller, Antoinette O'Connor, Irina Kinchin, Iracema Leroi 

Does context matter? A discrete choice experiment investigating the impact of palliative context on EQ-5D-5L health state valuation  Irina Kinchin, Peiwen Jiang, Deborah Street, Richard Norman, David Currow, Meera Agar, Charles Normand, Bridget Johnston, Peter May, Rosalie Viney, Brendan Mulhern 

A common outcome set for trials in dementia with Lewy bodies (DLB COS)  Joseph PM Kane, Rachel L Fitzpatrick, Sara Betzhold, Gillian Daly, Emily Kalfas, Irina Kinchin, Dag Aarsland, Ken Greaney, Emilia Grycuk, AnnKristin Folkerts, Elke Kalbe, Federico RodriguezPorcel, Ian J Saldanha, Valerie Smith, JohnPaul Taylor, Rachel Thompson, Kathryn WymanChick, Iracema Leroi, DLB COS Delphi Group 

Self-reported quality of life in progressive cognitive decline—let’s not throw the baby out with the bathwater  Irina Kinchin 

Mapping Lived Experiences of Lewy Body Dementia Care in Ireland Preprint, Jayne Conlon, Irina Kinchin, Iracema Leroi 

Health care coverage and access for displaced persons from Ukraine: Assessing the implementation of the Temporary Protection Directive across EU Member States  Nicole Mauer, Cristina Hernandez-Quevedo, Astrid Eriksen, Giada Scarpetti, Ewout van Ginneken and Network of HSPM and country experts Anita Gottlob, Timmy van Dijck, Antoniya Dimova, Mincho Minev, Maja Banadinovic, Iva Lukačević Lovrenčić, Elena Gabriel, Marios Kantaris, Lenka Šlegerová, Jana Votápková, Signe Smith Jervelund, Viktoriia Vereshchakina, Karsten Vrangbæk, Kaija Kasekamp, Kristina Köhler, Kaisa Kontunen, Dr. Outi Linnaranta, Dr. Natalia Skogberg, Marie-Camille Lenormand, Julie Galodé, Miriam Blümel, Lefteris Papagiannakis, Krisztina Davidovics, Viktória Szerencsés, Gergely Varga, Prof Sara Burke, Dr Liz Farsaci, Luisne Mac Conghail, Jo Greene, Antonio Giulio de Belvis, Giuseppe Greco, Daiga Behmane, Alina Dūdele, Laura Miščikienė, Juliane Winkelmann, Alexia Bezzina, Kenneth Grech, Karen Vincenti, Madelon Kroneman, Iwona Kowalska-Bobko, Gonçalo Augusto, Inês Fronteira, Silvia Gabriela Scîntee, Cristian Vlădescu, Peter Pažitný, Pia Vracko, Ester Angulo-Pueyo, Enrique Bernal-Delgado,Clara Lindberg, Ingrid Schmidt 

Publications 2024  

Cardiovascular disease and the risk of incident falls and mortality among adults aged ≥ 65 years presenting to the emergency department: a cohort study from national registry data in Denmark Aisling M. O’Halloran, Jolien Cremers, Karsten Vrangbæk, Lorna Roe, Robert Bourke, Laust H. Mortensen, Rudi G. J. Westendorp & Rose Anne Kenny 

Examining universal access to acute hospital care in Ireland during the first three months of COVID-19: Lessons from the policy process Luisne Mac Conghail, Sarah Parker, Sara Burke 

How and why do financial incentives contribute to helping people stop smoking? A realist review Rikke Siersbaek, Paul Kavanagh, John Ford, Sara Burke & Sarah Parker 

Lifecycle evaluation of medical devices - supporting or jeopardizing patient outcomes? A comparative analysis of evaluation Kathleen R Harkin, Jan Sorensen, Steve Thomas 

Place of Death for Adults Receiving Specialist Palliative Care in Their Last 3 Months of Life: Factors Associated With Preferred Place, Actual Place, and Place of Death Congruence Samantha Smith, PhD, Aoife Brick, PhD, Bridget Johnston, PhD, Karen Ryan, MB Bch BAO, Regina McQuillan, MB, MA (Ethics), Sinead O’Hara, MA, Peter May, PhD, Elsa Droog, PhD, Barbara Daveson PhD, R. Sean Morrison, MD, Irene J. Higginson, PhD and Charles Normand, DPhil 

Primary data on symptom burden and quality of life among elderly patients at risk of dying during unplanned admissions to an NHS hospital: a cohort study using EuroQoL and the integrated palliative care outcome scale Bridget M. Johnston, Mary Miller, Charles Normand, Magnolia Cardona, Peter May & Aoife C. Lowney 

The impact of a new approach to family safeguarding in social care: Initial findings from an analysis of routine data Dulcie Irving, Ruta Buivydaite, Apostolos Tsiachristas, Steve Thomas, Hannah Farncombe, Rafael Perera-Salazar, Charles Vincent 

Dissonance in the face of Alzheimer's breakthroughs: Clinician and lay stakeholder acceptance, concerns and willingness to pay for emerging disease-modifying therapies Irina Kinchin, Sharon Walsh, Rachel Dinh, Margaret Kapuwa, Sean P Kennelly, Ann-Marie Miller, Ann Nolan, Sean O'Dowd, Laura O'Philbin, Suzanne Timmons, Iracema Leroi 

Lessons learned from COVID-19: improving breast cancer care post-pandemic from the patient perspective Charlotte Myers, Kathleen Bennett , Caitriona Cahir  

Mitigating the regressivity of private mechanisms of financing healthcare: An Assessment of 29 countries Ruth Waitzberg, Sara Allin, Michel Grignon, Åsa Ljungvall, Katharina Habimana, Marios Kantaris, Steve Thomas, Thomas Rice 

Navigating the future of Alzheimer's care in Ireland - A service model for disease-modifying therapies in small and medium-sized healthcare systems Iracema Leroi, Helena Dolphin, Rachel Dinh, Tony Foley, Sean Kennelly, Irina Kinchin, Rónán O'Caoimh, Sean O'Dowd, Laura O'Philbin, Susan O'Reilly, Dominic Trepel, Suzanne Timmons 

Prevalence, severity and impacts of breathlessness in Indian adults: An exploratory, nationally representative, cross-sectional online survey Slavica Kochovska ,Rajam Iye, Sungwon Chang, Diana Ferreira,  Vanessa N. Brunelli, Irina Kinchin, Danny J. Eckert, Joseph Clark, Jacob Sandberg, Magnus Ekström, David Currow, Sujeet Rajan 

State of Long-term Care in Ireland WHO Regional Office for Europe, in collaboration with the Department of Health of Ireland. Principal report writers:  Stefania Ilinca and Cassandra Simmons (WHO Regional Office for Europe), along with Katharine Schulmann (Trinity College Dublin), under the guidance of Natasha Azzopardi-Muscat and Tomas Zapata (WHO Regional Office for Europe) 

Support needs of Australians bereaved during the COVID-19 pandemic: A cross-sectional survey study Serra E Ivynian, Fiona Maccallum, Sungwon Chang, Lauren J Breen, Jane L Phillips, Meera Agar, Annmarie Hosie, Jennifer Tieman, Michelle DiGiacomo, Tim Luckett, Jennifer Philip, Ann Dadich, Christopher Grossman, Imelda Gilmore, Janeane Harlum, Irina Kinchin, Nicholas Glasgow, Elizabeth A Lobb 

The high cost of care and limited evidence on cost-effective strategies for Lewy body dementia: systematic review of evidence Erin Boland, Rachel Fitzpatrick, Dearbhail Ryan, Joseph Kane, Sara Betzhold, Iracema Leroi, and Irina Kinchin 

The palliative care experience in Irish nursing homes during the COVID-19 pandemic: a survey of residents, family, and staff Owen Doody, John Lombard, Tara Delamere & Mary Rabbitte 

The role of governance in shaping health system reform: a case study of the design and implementation of new health regions in Ireland, 2018–2023. Katharine Schulmann, Carlos Bruen, Sarah Parker, Rikke Siersbaek, Luisne Mac Conghail, Sara Burke 

Understanding the legacies of shocks on health system performance: Exploring Ireland's management of recent crises and its implications for policy Liz Farsaci, Padraic Fleming, Arianna Almirall-Sanchez, Catherine O'Donoghue, Steve Thomas 

Defining and quantifying population-level need for children’s palliative care: findings from a rapid scoping review Tara Delamere, Joanne Balfe, Lorna K. Fraser, Greg Sheaf & Samantha Smith 

Does a palliative medicine service reduce hospital length of stay and costs in adults with a life-limiting illness?—a difference-in-differences evaluation of service expansion in Ireland Soraya Matthews, Eimir Hurley, Bridget M. Johnston, Pauline Kane, Karen Ryan, Eoin Tiernan, Charles Normand, Peter May 

 How many people will live and die with serious illness in Ireland to 2040? Estimated needs and costs using microsimulation Peter May, Charles Normand, Samantha Smith, Frank Moriarty, Mark Ward, Karen Ryan, Bridget M. Johnston, Roman Romero-Ortuno, Rose Anne Kenny, R. Sean Morrison, Bryan Tysinger 

Mirtazapine to alleviate severe breathlessness in patients with COPD or interstitial lung diseases (BETTER-B): an international, multicentre, double-blind, randomised, placebo-controlled, phase 3 mixed-method trial Prof Irene J Higginson, FFPHM, Sarah T Brown, MScc ∙ Adejoke O Oluyase, PhD ∙ Peter May, PhD, Prof Matthew Maddocks, PhD, Massimo Costantini, MD, Sabrina Bajwah, PhD, Prof Charles Normand, DPhil, Prof Claudia Bausewein, PhD, Prof Steffen T Simon, PhD, Prof Karen Ryan, MD, Prof David C Currow, PhD, Prof Miriam J Johnson, MD, Simon P Hart, PhD, Hannah Mather, MSc, Prof Malgorzata Krajnik, PhD, Silvia Tanzi, PhD, Luca Ghirotto, PhD, Prof Charlotte E Bolton, MD, Piotr Janowiak, PhD, Elena Turola, PhD, Caroline J Jolley, PhD, Geraldine Murden, MSc, Andrew Wilcock, DM, Prof Bobbie Farsides, PhD, Prof Julia M Brown, MSc, BETTER-B consortium 

Protocol: Use of telephone follow-up with text or WhatsApp message summary versus telephone follow-up alone to trial participants to improve trial retention. SWAT 232 People to show as the source of this idea: Professor Anne Hickey, Dr. Carlos Bruen, Dr. Catherine Moran 

Reimagining Health and Care to Tackle the Rising Tide of Inequity, Multimorbidity, and Complex Conditions Irene J. Higginson, OBE, BMedSci, BMBS, PhD, FMedSci, FRCP, FFPHM, FKC, Jenny Shand, PhD, MPH https://orcid.org/0000-0002-4899-795X, Glenn Robert, PhD, MSc, Annette Boaz, PhD, MSc, Catherine French, PhD, Msc, Andreia Carvalho N’Djai, PhD, Mary Malone, PhD, RN, RM, PGDip HV, Ingrid Wolfe, OBE, BSc, MBBS, MSc, PhD, FRCPCH, FFPH, Charles Normand, BA(Hons), MA, DPhil, and Matthew Hotopf, CBE, BSc, MBBS, MSc, PhD, FRCPsych, FMedSci 

Relevance and Premises of Values-Based Practice for Decision Making in Brain Health Panagiotis Alexopoulos, Iracema Leroi, Irina Kinchin, Alison J. Canty, Jayashree Dasgupta, Joyla A. Furlano, and Aline Nogueira Haas 

Co-producing evidence to inform universal health coverage implementation in Ireland: 2019-2024 S Burke, S Parker, C Bruen, K Schulmann, R Siersbaek, L Mac Conghail 

Co-producing research on universal health system reform in the context of COVID-19 P Crowley, S Burke, S Parker, K Schulmann, C Bruen 

Dual Training Specialties of Medicine Workforce in Ireland 2024-2038 Ali McDonnell, Andrew Malone, Bridget Johnston, Veronica Segerstrom, Tom Pierse, Aimee Maguire, Eddie Staddon, Leah O’Toole, Prof Anthony O’Regan 

Edward Elgar Handbook of Health System Resilience Edited by Steve Thomas and Padraic Fleming 

Chapter 1: Introduction: health system resilience - a concept whose time has come Steve Thomas, Padraic Fleming   

Chapter 3: Economics insights into shocks and health system resilience Steve Thomas 

Chapter 15: Learning from the economic shock - health system resilience in Ireland Sara Burke, Sarah Parker, Catherine O’Donoghue, Steve Thomas, Sarah Barry and Padraic Fleming 

Chapter 29: Conclusions: so what have we learned? Steve Thomas, Liz Farsaci, Catherine O’Donoghue, Arianna Almirall-Sanchez, Lucy Gilson, Stephanie M. Topp, Alastair Ager, Laura C. Rosella, Lynn Unruh, Shu-Ti Chiou, Marco Antonio Catussi Paschoalotto, Brian Baigrie, Sarah Barry, Sara Burke, Riya D. Doshi, Charalampos Economou, Paddy Enright, Astrid Eriksen, Michelle Fernandez, Moytrayee Guha, Laura Kihlström, José R. Repullo, Dell D. Saulnier, Malabika Sarker, Ewout van Ginneken, Karsten Vrangbæk, and Gemma A. Williams 

Governance and health system reform: a case study of new health regions in Ireland, 2018-2023 K Schulmann, C Bruen, S Parker, R Siersbaek, L Mac Conghail, S Burke 

How can we engage the public health community in innovative solutions to public health challenges? Monica-Georgiana Brînzac, Jinane Ghattas, Charlotte Myers, Domitilla Marconi and Sophie Christine Eicher 

How to not revert to type: learnings from the pandemic response for universal health system reform S Parker, S Burke, L Mac Conghail, R Siersbaek 

Lessons learned from COVID-19: improving breast cancer care post-pandemic from the patient perspective Charlotte Myers, Kathleen Bennett, Caitriona Cahir 

Primary prevention in hospitals in 20 high-income countries in Europe – A case of not “Making Every Contact Count”? Bernd Rechel, Béatrice Durvy, GonçaloFigueiredo Augusto, Isabelle Aujoulat, Daiga Behmane, Anne-Carole Bensadon, Sara Burke, Melissa D'Agostino, Krisztina Davidovics, Mark Dayan, Antonio Giulio De Belvis, Judith de Jong, Katarzyna Dubas-Jakóbczyk, Inês Fronteira, Elena Gabriel, Giuseppe Greco, Peter Groenewegen, Signe Smith Jervelund, Marios Kantaris, Madelon Kroneman, Jerneja Farkas-Lainscak,  Benjamin Maurice, Luisne Mac Conghail, Liubove Murauskiene, Mircha Poldrugovac ,  Zsuzsa Rákosy, Silvia Gabriela Scintee, Christoph Sowada, Frédéric Turblin, Desislava Vankova, Zita Velkey, Cristian Vladescu, Dorja Vocanec, Karsten Vrangbæk, Johannes Wünsche, Tuija Ylitörmänen 

Surgery Medical Workforce in Ireland 2024-2038 Prof. Anthony O’Regan, Roisin Morris, Tom Pierse, Dr. Consilia Walsh, Hugo Nolan, Ciara Hughes, Sharon Casey, Ali McDonnell, Veronica Segerstrom, Padraic Fleming 

Using Collective Intelligence to Develop Design Requirements for a Complex Intervention for Advance Care Planning in the Community Monika Pilch, Catherine B Hayes, Owen Harney, Frank Doyle, Stephen Thomas, Victoria Cooper Lunt, Michael Hogan