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Wednesday 24 September 2025, 1pm-2pm
This is an online seminar only. Please register here.
Trinity Research in Childhood Centre invites you to join our 2025/26 seminar series. Chaired by Prof Imelda Coyne, the next seminar will be held via Zoom on Wednesday 24th September at 1pm. Presented by Lily Collison, the seminar will focus on Impact versus achievement in paediatric research: A cerebral palsy advocate's perspective.
The seminar will cover:
- Life's circuitous journey
- Gillette Children's Healthcare Series
- Irish Cerebral Palsy Programme
- Children and research
- Your "power of one"
About the Presenter
Lily Collison is a globally recognised advocate for individuals with cerebral palsy (CP) whose work has significantly impacted the field of CP research and healthcare. Motivated by her son’s diagnosis of spastic diplegia, Lily has been dedicated to improving outcomes for those affected by CP. She has played a pivotal role in helping to establish three major research hubs at UCC, TCD and RCSI and to revolutionise the landscape of CP care in the country.Lily is the author of Spastic Diplegia–Bilateral Cerebral Palsy, a groundbreaking resource for families and healthcare professionals and co-author of Pure Grit: Stories of Remarkable People Living with Physical Disability. These books not only provide critical insights into disability, but all proceeds support research. Her first book led to the Gillette Children’s Healthcare Series, a collection of nine books focused on childhood-acquired physical and neurological conditions. Each book provides a detailed medical explanation of the condition and the evidence-based, best-practice treatments and includes the lived experience of families. Lily is a Board member of the Health Service Executive. She was awarded Honorary Doctorate in Medicine by UCC this year.
Monday 15th September 2025, 1pm-2pm
View the recording here.
Trinity Research in Childhood Centre invites you to join our 2025/2056 seminar series. Chaired by Prof Imelda Coyne, the first seminar of the new academic year will be held via Zoom on Monday 15th September 2025 at 1pm. Presented by Prof John Massie, Clinical Director of the CBC and senior consultant in the Department of Respiratory and Sleep Medicine, RCH, the seminar will focus on making decisions with children.
In his clinical role, John looks after children with neuro-disability requiring ventilator support and also works in the RCH cystic fibrosis clinic. At the CBC, John provides clinical leadership, liaison with clinical staff, ethics advice to RCH executive and supports the CBC building capacity in bioethics across the campus. John has a particular interest in decision-making with children. He has published a number of papers and book chapters relating to ethical issues in paediatric respiratory medicine and the medical humanities. John is the host of the CBC podcast show, Essential Ethics.
Deciding with Children in Pediatrics: Children’s Participation in Healthcare Decision-Making (1st edition, published October 22, 2024) — edited by John Massie, Georgina Hall, and Lynn Gillam — offers both the ethical foundation and practical guidance needed to meaningfully include children in decisions affecting their healthcare. This essential resource empowers clinicians to elevate a child’s voice in clinical decision-making, ensuring their values and perspectives are acknowledged—or providing clear ethical justification when that’s not possible. By integrating theory with real-world case studies across diverse pediatric contexts, the book bridges philosophy and clinical ethics to support better care for children—both now and as future decision-makers.