Professor Mary Mc Carron

Professor Mary Mc Carron

Professor of Ageing & Intellectual Disab, School of Nursing & Midwifery

3531896 4880/2698http://people.tcd.ie/mccarrm

Biography

Professor Mary McCarron, PhD RNID RGN BNS FTCD is Professor of Ageing and Intellectual Disability, Director of the Trinity Centre for Ageing and Intellectual Disability (TCAID) and Executive Director of the National Intellectual Disability Memory Service. She has held many senior leadership roles in Trinity College including Dean of the Faculty of Health Sciences and Head of the School of Nursing and Midwifery. Professor McCarron is the founder and Principal Investigator for IDS-TILDA, the longitudinal comparative study on ageing in persons with intellectual disability including persons with Down syndrome, a global first. IDS-TILDA increases understanding about how lives and chronic conditions change over time for this population, drives changes on healthcare practice and national health policy. Professor McCarron has also led a longitudinal cohort study of dementia in people with Down syndrome spanning over 25 years, which has led to the development of Ireland's first dedicated National Memory Service for people with an intellectual disability, where she serves as Executive Director. A champion of patient and public involvement in research (PPI) McCarron is Principal Investigator of PPI Ignite Programme at Trinity College Dublin, part of the national network among universities in Ireland funded by the HRB. She received the inaugural HRB Impact Award. She is co-applicant on the HRB's Clinical Research Network Awards for Dementia Trials Ireland (DTI), a world-class clinical trials' infrastructure to support and grow dementia intervention studies. In addition, she is the Irish Lead on the H21 Consortium working on Clinical and trial outcome measures for dementia in individuals with Down Syndrome, Professor McCarron has been a key advisor on ageing and policy issues to various governmental and other groups at a national and international level and an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD).

Publications and Further Research Outputs

  • Burke, E., McCallion P., & McCarron, M., Advancing Years, Different Challenges: Wave 2 IDSTILDA Findings on the ageing of people with an intellectual disability, Trinity College, September, 2014, p1 - 178Report, 2014, DOI , TARA - Full Text
  • McCarron, M., McCausland, D., Keenan, P., Griffiths, C., Hynes, G., McCallion, P. , A Collaborative Initiative to Implement Person Centred Practice. Report., 2013Report, 2013
  • Mac Giolla Caoimhin, P; McCallion, P., Nunn, J., Burke, E., McGlinchey, E., Cleary, E., McCarron, M, Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Gerondontology, 75, (2), 2013, p101 - 108Journal Article, 2013
  • McCarron M, Carroll R, Kelly C, McCallion P, Mortality Rates in the General Irish Population Compared to those with an Intellectual Disability from 2003 to 2012., Journal of applied research in intellectual disabilities, 28, (5), 2015, p406 - 413Journal Article, 2015, DOI
  • McCausland, D., McCallion, P., Cleary,E., McCarron, M, Social Connections for Older People with Intellectual Disabilities in Ireland: Results from Wave 1 of IDS-TILDA, Journal of Applied Research in Intellectual Disabilities, 29, (1), 2015, p71 - 82Journal Article, 2015, DOI
  • MacGiolla Phadraig C., McCarron M. , Burke E., Cleary E., McGlinchey E., McCallion P., Nunn., J., Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Journal of Public Health Dentistry, , 75, (2), 2015, p101 - 108Journal Article, 2015, DOI
  • Brennan D. Murphy R. McCallion P & McCarron M, Understanding Family Strategies the Enable long term and sustainable home environments for older people with intellectual disability, Trinity College, 2016Report, 2016
  • McCausland, D., Brennan, D., McCallion, P., McCarron, M, Challenging Community Policy for people with intellectual disabilities, 12th Conference of the European Sociological Association, Prague, 25-28 August, 2015Conference Paper, 2015
  • The challenges of palliative care policy implementation in acute care in, Giving Voice in a Multi-Voiced environment , London, MacMillian Publishers Ltd, 2014, pp133 - 134, [Hynes, G., Coghlan, D. McCarron, M]Book Chapter, 2014
  • McCarron, M, Meeting the needs of people with intellectual disability and dementia , Dementia: Putting strategies and research into practic, Ljubljana, Slovenia , 2-4 September, 2015Conference Paper, 2015
  • McCarron, M, Implications for Hospice, Palliative Care and Intellectual Disability Services, Kaleidoscope Conference Invitation, Dublin Castle , 13 May, 2015Conference Paper, 2015
  • McCarron, M, Understanding the usefulness of Frailty Indices for People with Intellectual Disabiliaty as they age, IAAG-ER 2015 Conference, Dublin, 24-25 April, 2015Conference Paper, 2015
  • McCarron, M, A Data Driven Approach to Understanding Ageing-focused Support and Services for People with Disabilities , Department of Health, Hawkins house, Dublin 2, 5 March, 2015Oral Presentation, 2015
  • McCarron, M, The Irish Context, , International Exploratory Workshop Palliative Care for People with Intellectual Disability in Europe, Zürich, 23-25 February, 2015Oral Presentation, 2015
  • McCarron, M, Perspectives on Ageing with Intellectual Disability, International Conference , Dortmund, 21-22 march, 2014Oral Presentation, 2014
  • McCarron M, Will Older People with Intellectual Disability unlock the Determinants of  Cardiovascular Disease' Preliminary findings from IDS TILDA, Cardiovascular Nurses Scientific Conference, Killarney, 8 September, 2015Oral Presentation, 2015
  • Ling J, Payne S, Connaire K & McCarron M, Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model, Child: Care Health and Development, 42, (1), 2015, p51 - 59Journal Article, 2015, DOI
  • McCausland, D., McCallion, P., Cleary, E., MCCarron, M, Social Connections for Older People with Intellectual Disability in Ireland: Results from Wave 1 of IDS-TILDA, Journal of Applied Research in Intellectual Disability, 29, (1), 2016, p71 - 82Journal Article, 2016, URL
  • Sexton, E; O'Donovan, M-A; McCallion, P; McCarron M, Whose quality of life? Measures of emotional wellbeing and self-determination in research with older adults with and without intellectual disabilities,Special Issue of the Journal of Intellectual and Developmental Disability on Quality of Life, Journal of Policy and Practice in Intellectual Disabilities, 13, (4), 2016, p261 - 268Journal Article, 2016, DOI
  • Hynes G, Stokes A, McCarron M. , Informal care-giving in advanced chronic obstructive pulmonary disease:, Informal care-giving in advanced chronic obstructive pulmonary disease: Lay knowledge and experience, 21, (7-8), 2012, p1068 - 1077Journal Article, 2012, DOI
  • Burke, E; McCallion, P., Walsh, J.B., McCarron, M., An exploration of the bone health of older adults with an intellectual disability in Ireland, Journal of Intellectual Disability Research, 16, (2), 2017, p99 - 114Journal Article, 2017, DOI , TARA - Full Text
  • O'Dwyer, M., Pekler, J., McCallion, P., McCarron, M., Henman, M, Factors associated with polypharmacy and excessive polypharmacy in older people with Intellectual Disability differ from the general population; a cross-sectional observational nationwide study, British Medical Journal Open, 6, (4), 2016Journal Article, 2016, DOI , URL , TARA - Full Text
  • Ramsay, H., Mulryan, N., McCallion, P., McCarron, M, Geographical barriers to mental health service care among individuals with intellectual disability in the Republic of Ireland, Journal of Policy and Practice in Intellectual Disabilities, 13, (4), 2016, p261 - 268Journal Article, 2016, DOI
  • Mac Giolla, Phadraig C., El-Helaali, R., Nunn, J H., Burke, E., McCallion, P., McGlinchey, E., McCarron, M , National levels of reported difficulty in tooth and denture cleaning among an ageing population with intellectual disabilities., 15, (3), 2014, p48 - 53Journal Article, 2014, DOI
  • Supporting families who have ageing members with disabilities.P.N Walsh, A., Carr, G. O'Reilly, & J. McEvoy (Eds.) Handbook of Intellectual Disability and Clinical Psychology Practice. 2nd Edition. in, Handbook of Intellectual Disability and Clinical Psychology Practice, 2016, [McCarron, M., & McCallion, P.]Book Chapter, 2016
  • People with disabilities entering the Third Age. In E.G. Iriarte, R. McConkey, & R Gilligan, & (Eds.) Disability and Human rights: Global perspectives. in, Disability and Human Rights: Global Perspectives, London, Palgrave McMillan, 2015, pp217 - 230, [McCallion, P., McCarron, M]Book Chapter, 2015
  • Successful implementation of a strategic planning process to address services system wide Dementia needs for people with an Intellectual Disability and their Caregivers in, Intellectual Disability & Dementia, Kingsley London, K Watchman, 2014, [McCarron, M., McCallion, P., Reilly, E., & Mulryan, N]Book Chapter, 2014
  • Mulryan, N., McCarron, M, Mental Health Factors Associated with Subjective Sleep reports in an older Irish population with intellectual Disability - Results from IDS-TILDA, Journal of Policy and Practice in Intellectual Disabilities, 2016Journal Article, 2016
  • Ramsay, H., Mulryan, N., McCallion, P., McCarron, M, Geographical barriers to mental health service care among individuals with an intellectual disability in the Republic of Ireland, Journal of Policy and Practice in Intellectual Disabilities, 37, (4), 2015, p566 - 578Journal Article, 2015
  • Tuffrey-Wijne I., Wicki M., Heslop P., McCarron M., Todd S., Oliver D., de Veer A., Ahlström G., Schäper S., Hynes G., O'Farrell J., Adler J., Riese F., Curfs L, Developing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique, BioMed Central Palliative Care, 15, (36), 2016, p1 - 11Journal Article, 2016, DOI , URL
  • Responding to the Challenges of Service Development to address Dementia needs for People with an Intellectual Disability in, Intellectual disability and dementia: Research into practice', London, Jessica Kingsley Publishers , 2014, pp241 - 269, [McCarron M, McCallion, P., Reilly E., Mulryan, N.,]Book Chapter, 2014, URL
  • McCarron, M, Burke, E, McCallion, P, Swinburne J, Carroll, M, What people with an intellectual disability say about growing older and retirement in Ireland, Dortmund, March, 2014Oral Presentation, 2014
  • Sexton, E., O'Donovan, M.A., McCallion, P., McCarron, M, A comparison of measures of self-determination and emotional wellbeing in research with older adults with and without intellectual disabilties, Journal of Intellectual & Developmental Disabilities, 41, (4), 2016, p324 - 337Journal Article, 2016, DOI
  • O'Dwyer, C., McCallion, P., McCarron, M, Prevalence and Associated Factors of Challenging Behaviour in older adultes with an intellectual disability in Ireland, PSI Early Graduate Group Conference, Trinity College, 29th February, 2016Poster, 2016
  • O'Donovan, M-A., McCarron, M, Moving in later life: What is the impact on older people with intellectual disability?, Sphere Network Conference, Dublin, 2015Poster, 2015
  • O'Donovan, M-A., McCarron, M, Participants who had moved residence since wave 1 and the process involved in moving: A profile of the population and the types of challenges and supports relevant to them., Health Research Board ( Housing Committee), Dublin, 2015Oral Presentation, 2015
  • O'Donovan, M-A., McCarron, M, Transitions in living arrangement; Insights into the process of moving for older people with an intellectual disability, Department of Health: Value for Money, Dublin , 2015Oral Presentation, 2015
  • Caoimhin MacGiolla, Phadraig., McCarron, M, Why do older adults with intellectual disabilities not wear dentures, 23rd iADH Congress in conjunction with SCDA 28th Annual Meeting, Chicago, 16th April, 2016Poster, 2016
  • Caoimhin MacGiolla, Phadraig., McCarron, M, The relationship between diet, nutrition and dentate status among older adults with disabilities, 23rd iADH Congress in Conjuction with the SCDA 28th Annual Meeting, Chicago, 17th April, 2016Oral Presentation, 2016
  • McCarron, M, Palliative Care for People with Intellectual Disability in Europe: The Irish Context, International Exploratory Workshop, Zurich, 24th February, 2015Oral Presentation, 2015
  • Burke, EA., Carroll, R., Walsh, JB., McCallion, P., McCarron, M, Examining the risk factors for bone fragility among of older adults with an intellectual disability in Ireland, WCO-IOF -ESCEO, Milan, 23rd - 29th May, 2015Poster, 2015
  • Burke, E., McCallion, P., Walsh, JB., McCarron, M, The Bone Status of Adults with Intellectual Disability: Results from the Second Wave of IDs-TILDA, IAGG-ER 8th Conference, Dublin, 23rd April, 2015Poster, 2015
  • Burke, E., McCarron, M., Walsh, JB., McCallion, P, The feasibility of utilising quantitative ultrasound as a method of objectiviely measuring bone status among older adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015Poster, 2015
  • McDermott, A., Burke, E., McCallion, P., McCarron, M, A descriptive quantitative study into the prevalence of constipation in people with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 25th April, 2015Poster, 2015
  • McGlinchey, E., McCarron, M., Carroll, R., O'Donovan, M-A., McCallion, P, Changes in the level of personal choice in older adults in Ireland in Intellectual Disability: Results from the IDS-TILDA, IAGG-ER 8th Conference, Dublin, 24th April, 2015Poster, 2015
  • Caoimhin MacGiolla, Phadraig., McCallion, P., Nunn, J., McCarron, M.,, Dentate status of older people in Ireland with and without Intellectual Disability, IAGG-ER 8th Conference, Dublin, 25th April, 2015Poster, 2015
  • Burke, S., McCarron, M, Predicting onset of Osteoporosis and anxiety in adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015Poster, 2015
  • Shivers, C., McCarron, M, Healthy eating similarities and differences among individuals with Intellectual Disabilities and the general Irish population, IAGG-ER 8th Conference, Dublin, 26th April, 2015Poster, 2015
  • O'Donovan, M-A., McCarron, M, Moving in later life: What is the impact on older people with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015Poster, 2015
  • O'Dwyer, M., Belton, A, Burke, E., Mulryan, N., Pekar, J., McCallion, P, McCarron, M., Henman, M, Antipsychotics in older people with ID: Prevalence and associated risks, IAGG-ER 8th Conference, Dublin, 25th April, 2015Oral Presentation, 2015
  • McCarron, M, Dementia & Ageing Services Manageables, National Federadion Voluntary Bodies, 2nd June, 2015Oral Presentation, 2015
  • O'Dwyer, M., Peklar, J., Maidment, I, Bennett, K., McCallion, P., McCarron, M, Factors associated with high anticholinergic burden in ageing adults with Intellectual Disabilities: A cross-sectiontal study, Pharmacoepidemiology and Drug Safety, Boston, 24th - 26th August, (25), 2015, pp377 - 378Poster, 2015, DOI
  • O'Dwyer, M., McCarron, M., McCallion, P, Henman, M, Prevalence and factors associated with high anticholinergic burden in ageing people with Intellectual Disabilities in Ireland, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015Poster, 2015
  • McGlinchey, E., McCallion, P., McCarron, M, Cognitive reserve: Implications for research in dementia for people with down syndrome, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015Poster, 2015
  • Mac Giolla, Phadraig C., Burke, E., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in ireland, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015Poster, 2015
  • Burke, EA., Walsh, J B., McCallion, P., McCarron, M.,, An examination of the bone status of adults with Intellectual Disability, results from the second wave of IDS-TILDA, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015Poster, 2015
  • McCarron, M., Caroll, R., Burke, E., O'Dwyer, M, Frailty indices for people with Intellectual Disability as they age, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015Poster, 2015
  • Burke, S., Carroll, R., Burke, E., McCallion, P., McCarron, M, Predicting onset of Osteoporosis and anxiety in adults with Intellectual Disability, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015Poster, 2015
  • McDermott, A., Burke, E., Carroll, R., McCallion, P., McCarron, M, Examining the prevalence of constipation in older adults with an intellectual disability, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015Poster, 2015
  • McCallion, P., Carroll, R., McCarron, M, Type II disbetes in people with intellectual disability as they age, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015Poster, 2015
  • Burke, EA., McCarron, M, The IDS-TILDA Study - An overview with focus on speech and language, Masterclass for speech and language master students, School of Speech and Language, Trinity College, 9th October, 2015Oral Presentation, 2015
  • O'Dwyer, M., J. Peklar, N. Mulryan, P. McCallion, M. McCarron, and M. Henman, Patterns of Antiepileptic drug use in the ageing population with epilepsy and Intellectual Disability, ESCP Annual Symposium, Lisbon, 23 - 28 October, 38(2), Internatational Journal of Clinical Pharmacy , 2015, pp589 - 589Poster, 2015
  • Foran, S., McCarron M, Associations between use of equipment in the performance of activities of daily living and falls in older adults with intellectual disability:, 16th Healthcare Interdisplinary Research Conference, Trinity College, Dublin, 5th November, 2015Oral Presentation, 2015
  • Burke, EA., McCarron, M, Results form the IDS-TILDA study wave 2: Determinants of health among adults with an intellectual disability, Speech and Language Department Seminar, Trinity College, Dublin, 24th November, 2015Oral Presentation, 2015
  • Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Examining the bone health of older adults with intellectual disability, Irish Gerontological Society PhD Conference, Education Centre, Our Lady's Hopice, Harolds Cross, Dublin 6, 2015Oral Presentation, 2015
  • Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M, Similarities and differences in older life stages of people with intellectual disability compared to other citizens, Dortmund, March, 2014Oral Presentation, 2014
  • Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Developing a baseline picture of the bone health status of older adults with an Intellectual disability in Ireland, WCO_IOF ESCEO Seville, March, 2014Poster, 2014
  • McCausland, D., McCarron, M, A study of social participation for older people with an Intellectual Disability in Ireland, Tung Wah Group Visit, Trinity College, Dublin, May , 2014Oral Presentation, 2014
  • Burke, E., McCarron, M, A Preliminary examination of the bone healt of older adults with intellectual disability in Ireland - IDS-TILDA Wave 1, Tung Wah Group Visit, Trinity College, Dublin, May, 2014Oral Presentation, 2014
  • Burke, E., McCallion, P., Walsh, JB., McCarron, , Bone health and the older adult with Intellectual Disability in Ireland - preliminary results from IDS-TILDA, HSE & DOH, June , 2014Oral Presentation, 2014
  • O,Donovan, M-A., McCarron, M, Social Issues - Living transitions, HSE &DOH, Dublin, June, 2014Oral Presentation, 2014
  • McCausland, D., McCarron, M, Social engagement, HSE & DOH, June, 2014Oral Presentation, 2014
  • O'Dwyer, M., McCarron, M, Medication and policy implication, HSE & DOH, June, 2014Oral Presentation, 2014
  • McCallion, P., McCarron, M., Burke, E, A comprehensive approach to health and health care for people with intellectual disability as they age, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • McCallion, P., McCarron, M, Understanding the potential of re-diabetes screening to predict future type 2 diabetes among people with intellectual diabilities, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Griffiths, M., McCarron, M., McCallion, P., Doherty, S., Cleary, E, Exploring the differences in carer strain in sibling and parent carers of older people with an intellectual disability in Ireland, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Caoimhe MacGiolla, P., McCallion, P., Burke, E., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in Ireland, IASSID, Vienna, July , 2014Oral Presentation, 2014
  • O'Farrell, J., McCarron, M, Palliative care for adults with intellectual disabilities in Europe, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • McCarron, M, Carroll, R., Kelly, C., McCallion, P, To understand differing patterns of age of death by gender and level of intellectual disability for people with intellectual disability in Ireland, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • McCarron, M, Unlocking the determinants of successful ageing: The intellectual disability supplement to the Irish Longitudinal study on Ageing, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • McCarron, M., Carroll, R., McGlinchey, E., Cleary, E., McCallion, P, Utility of a frailty index in older adults with an intellectual disability: Preliminary findings for the Irish Longitudinal Study on Ageing (IDS-TILDA), IASSID, Vienna, July, 2014Oral Presentation, 2014
  • McCarron, M, Buuilding longitudinal prevalence - overview, IASSID, Vienna, July , 2014Oral Presentation, 2014
  • McCarron, M., Carroll, C., Kelly, C., McCallion, P, Variations in age of mortality by gender and level in intellectual disability: A population level study of mortality among people with intellectual disabilities in Ireland, IASSID, Vienna, July , 2014Oral Presentation, 2014
  • Burke, E., McCallion, P., McCarron, M, Bone health and people with an intellectual disabilty, IASSID, Vienna, July, 2014Poster, 2014
  • Burke, E., McCarron, M., Walsh, JB., McCallion, P, Structured feedback from older adults with an intellectual disability on the experience of attending for a heatlh assessment: Results form a pilot study, IASSID, Vienna, July, 2014Poster, 2014
  • Burke, E., McCallion, P., Walsh, JB., McCarron, M, Supporting older adults with intellectual disabilities to engage in Health Screening: Lessons learned from the intellectual disability supplement to the Irish longitudinal study on ageing, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Burke, E., McCarron, M., Walsh, JB., McCallion, P, Debeloping a baseline picture of the bone health status of older adults with intellectual disabilities in Ireland, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Cleary, E., McCallion, P, McCarron, M, Dual sensory impairment among older people in Ireland: Comparison between a cohort of people with intellectual disabilities and a cohort of people aged 50 years and older, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • McGlinchey, E., McCarron, M., McCallion, P, Cognitive reserve: Implications for research in dementia for people with down syndrome, IASSID, Vienna, July, 2014Poster, 2014
  • McGlinchey, E., McCarron, M., McCallion, P, Examining the usefulness of measures of executive function in individuals with down syndrome: A comparative review, IASSID, Vienna, July, 2014Poster, 2014
  • McCausland, D., Carroll, R., McCarron, M., McCallion, P, Social participation for older people with intellectual disabilities living in different residential settings in Ireland: Results from wave 2 of the IDs-TILDa study on ageing, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Shivers, C., McCarron, M., McCallion, P, Literacy and numeracy in an ageing population of individuals with intellectual and developmental disabilities, IASSID, Vienna, July, 2014Poster, 2014
  • O'Farrell, J., McCarron, M, Exploring carers' experience of end of life for people with intellectual disabilities as they age, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Mulryan, N., Cleary, E., Carroll, R., Lawlor, B., McCallion, P., McCarron, M, Comparison of sleep parameters and associated factors in a matched nationally representative population sample in persons with and without intellectual disabilities, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Mulryan, N., Cleary, E., Carroll, R., Lawlor, B., McCallion, P., McCarron, M, IDS-TILDA Wave II: First report of mental health variables, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • McCallion, P., Hastings, P., McCarron, M, Understanding increasing longevity for people with intellectual disability: Findings from New York state administrative data, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Shivers, C., McCarron, M., McCallion, P, Acceptability of a multimedia life stories platform in a residential home for individuals and dementia and intellectual disability, IASSID, Vienna, July, 2014Poster, 2014
  • Dunne, P., McCarron, M, When ageing in place is no longer viable - Transitions to a higher support home for persons with an intellectual disability and dementia, IASSID, Vienna, July, 2014Oral Presentation, 2014
  • Heladi, R., MacGiolla, P., McCallion, P., Burke, E., McGlinchey, E., Nunn, J., McCarron, M, DIs-TILDA: Older adults with intellectual disabilities reported difficulty regarding oral hygiene, TCD Research Education Day, Trinity College Dublin, October, 2014Poster, 2014
  • O'Dwyer, M, Belton, A., Peklar, J., Maidment, I., McCallion, P., McCarron, M., Henman, M, Anticholinergic burden in older adults with intellectual disability: Relations ships with multimorbidity and adverse effects, IGS 62nd Annual and Scientific Meeting, Radisson Blu Hotel, Galway, 9 - 11 October, 2014Poster, 2014
  • Mac Giolla, P., McCallion, P., McGlinchey, E., Nunn, J., Burke, E., McCarron, M, Older adults in Ireland have poorer oral heatlh outcomes if they have intellectual disabilities, GERR, November, 2014Poster, 2014
  • McCarron, M., Carroll, R., McGlinchey, E., Cleary, E., McCallion, P, Contributing toward policy inplications and emerging health and social issues, NDA, Dublin, November, 2014Oral Presentation, 2014
  • Burke, E., McCarron, M, A Changing health profile, NDA, Dublin, November, 2014Oral Presentation, 2014
  • O'Donovan, M-A., McCarron, M, Sovial Issues - Living transitions, NDA, Dublin, November, 2014Oral Presentation, 2014
  • McCausland, D., McCarron, M, Social engagement, NDA, Dublin, November, 2014Oral Presentation, 2014
  • McGlinchey, E., McCarron, M., McCallion, P, Developing an understanding of executive functioning in adults with down syndrome: What is its impact on the ageing brain, 15th Healthcare Interdisciplinary Research Conference & Student Colloquim, November, 2014Oral Presentation, 2014
  • O'Farrell, J., Ryan, K., McCallion, P., McCarron, M, Equality and inclusion in palliative care: Pathways at end of life for older people in an intellectual disability, 15th Healthcare Interdisciplinary Research Conference & Student Colloquium, November, 2014Oral Presentation, 2014
  • O'Dwyer, M., Peklar, J., Henman, M., McCarron, M., McCallion, P, Patterns of psychotropic drug use and psychotropic polypharmacy in an ageing population with intellectual disability, 4th Year Student Colloquium, November, 2015Oral Presentation, 2015
  • Mac Giolla, P., McCarron, M, Effective skills for the maintenance of oral health in people with intellectual disability, 4th Year Student Colloquium, November, 2014Oral Presentation, 2014
  • Burke, E., McCarron, M., Carroll, R., Cleary, E., McCallion, P, Health concerns for adults with intellectual disability as they grow older, 4th Year Student Colloquium, November, 2014Oral Presentation, 2014
  • Burke, EA., McCallion, P., Walsh, JB., McCarron, M, An investigation into the bone health and bone quality among older adults with an intellectual disability in Ireland., Annual Medical Conference, Irish Osteoporosis Society , Trinity College, 31st October, edited by Dublin , 2015Oral Presentation, 2015
  • Burke. EA., McCarron, M., McCallion, M, I'm not ready yet, what people with an intellectual disability say about growing older and retirement in Ireland, Royal College of Surgeons, Dublin, June, 2014Oral Presentation, 2014
  • Burke, EA., McCallion, P., McCarron, M., , Bone health and people with intellectual disability. A comprehensive approach to health and health care for people with intellectual disabilities as they age, IASSIDD Academy on Education, Teaching and Research, Vienna, July, 2014Oral Presentation, 2014
  • Burke, EA,. McCarron, McGlinchey, E., McCallion, P, Exploring a picture of ageing for people with an intellectual disability in Ireland, Research and practice seminar, St Michael's House, Dublin, November, 2013Oral Presentation, 2013
  • Burke, EA., McCarron, M., Swinburne, J., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., McCallion, P, Solcial connectedness and social participation of older adults with an intellectual disability in Ireland 2011: First results from IDS-TILDA, Irish Nurses and Midwives Organisation Education Day,, Dublin, November, 2011Oral Presentation, 2011
  • Burke, EA., McCarron, M, The intellectual disability supplement to the Irtish Longitudinal study on ageing; Research among older adults with intellectual disability., 4th Year RNID Student Nurses, Trinity College, Dublin, 2014Oral Presentation, 2014
  • Burke, EA., McCallion, P., McCarron, M, Osteoporosis and people with Down syndrome: A preliminary descriptive examination of the IDS-TILDA Wave 1 results (Winning entry), Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, Internation Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston, September, 2013Oral Presentation, 2013
  • O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence, patterns and indications for medicine use among an ageing population with intellectual disability in Ireland, 14th HJIRC, School of Nursing, Trinity College, Dublin, November, 2013Poster, 2013
  • O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, The anticholinergic burden of medicines use in an ageing population with intellectual disability in Ireland, All Ireland School of Pharmacy Conference, Trinity College, Dublin, 2014Poster, 2014
  • O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence and patterns of medicine use in ageing people with intellectual disability., Irish Gerontology Society, Harold's Cross, 23rd May, 2014Oral Presentation, 2014
  • McCausland, D., McCarron, M., McCallion, M., Brennan, D, Social relationships for older people with an intellectual disability , 'Somebody to love' Seminar MSc in Disability Studies, Trinity College, 25th April, 2014Oral Presentation, 2014
  • McCarron, M., Swinburne, J., McGlinchey, E., Burke, E., McCallion, P, Patterns of multimorbidity in an ageing population of people with an intellectual disability: Results from the intellectual disability supplement of the Irish Longitidinal study on Ageing (IDS-TILDA), 61st Annual and Scientific meeting of the Irish Gerontological Society, 2013Oral Presentation, 2013
  • McCausland, D., McCarron, M., McCallion, P., Brennan, D, An exploration of the experiences of community for older people with intellectual disability in Ireland, 14th Helathcare interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College, November, 2013Oral Presentation, 2013
  • McCausland, D., McCarron, M., McCallion, P., Brennan, D, An exploration of the experiences of community for older people with intellectual disability in Ireland, 14th Helathcare interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College, November, 2013Oral Presentation, 2013
  • O'Farrell, J., McCallion, P., Ryan, K., Connaire, K., McCarron M.,, Exploring end of life experiences of older adults with an intellectual disability in Ireland, Irish Gerontological Society, Harolds Cross, Dublin, 2014Oral Presentation, 2014
  • Wormwald, A., McCallion, P., McCarron, M, An examination of loneliness and its health effects as experienced by older people with an intellectual disability, Irish Gerontological Society, Harolds Cross, Dublin, 2014Oral Presentation, 2014
  • O'Farrell, J., McCallion, P., Ryan, K., Connaire, K., McCarron, M, Understanding equality and inclusion in palliative care: Identifying and addressing the needs of people with intellectual disability., 8th World Congress of the European Association for Palliative Care, 2014Poster, 2014
  • Supporting families with ageing members who have intellectual disability in, editor(s)Carr, A., Linehan, C., O'Reilly, G., Walsh, P. N., McEvoy, J , The Handbook of Intellectual Disability and Clinical Pshchology Practice, UK, Routledge, 2016, pp760 - 787, [McCarron, M., McCallion]Book Chapter, 2016
  • People with Disabilities Entering the Third Age in, editor(s)Edurne, G., McConkey, R., Gilligan, R , Disability and Human Rights: Global Perspectives, Palgrave, 2016, pp217 - 228, [McCallion, P., McCarron]Book Chapter, 2016
  • O'Donovan, M-A., Mannian, H., McCallion, P., McCarron, M., Byrne, E, Health for all (except if you have ID?) Examining extent to which national health policy is equitable, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016Oral Presentation, 2016
  • McCausland, D., Brennan, D., McCarron, M, Using the WHO's ICF as a theoretical framework for the study of social participation for older people with intellectual disability, IASSID Congress, Melbourne, Australia, 15th - 19th August, 2016Oral Presentation, 2016
  • McGlinchey, E., McCarron, M., McCallion, P, Findings in relation to change in EF scores, IASSID Congress, Melbourne, Australia, 15th - 19th August, 2016Oral Presentation, 2016
  • Burke, EA., McCarron, M.,Walsh, JB., Carroll, R and McCallion, P, Prevalence and predictors of osteoporosis risk among older adults with intellectual disability n Ireland, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016Conference Paper, 2016
  • Murphy, R., Brennan, D., McCallion, P., McCarron, M, Questioning the feasibility of the implementation of contemporary policy in Ireland: The narratives of family caregivers supporting older people with an Intellectual Disability, IASSIDD Congress, Melbourne, Australia, 15-19 August, 2016Conference Paper, 2016, URL
  • Murphy, R., Brennan, D., McCarron, M, Love labour and caring for older people with an Intellectual Disability within the family home environment, IASSIDD Congress, Melbourne, Australia, 2016Meeting Abstract, 2016
  • Mulryan, N., McCarron, M, Sleep problems and associated health variables in Older Irish population with Down Syndrome: Results from the Intellectual Disability Supplement to the Irish Longitudinal study on Ageing, IASSIDD Congress, Melbourne, Australia, 2016Meeting Abstract, 2016
  • Daly, L., Hynes, G., Braken-Scally, M., Ciblis A., Kennelly, B., Keogh, B., McCarron, M., Brady, A-M., Evaluation as process: Evaluating the Genio Dementia Programme - overview and progress to date, Sonas apc ltd. 8th National Dementia Conference: New developments, Innovative practice, City West Hotel, Dublin, 16th - 17th May, 2016Poster, 2016
  • McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Examining the area of employment in older adults with an intellectual disability in Ireland, Joyrnal of Applies Research in Intellectual Disabilities, 26, (4), 2013, p335 - 343Journal Article, 2013
  • O'Dwyer, M., Maidment, I., Bennett, K., Peklar, J., Mulryan, N., McCallion P., McCarron, M., Henman, M, Association of Anticholinergic burden with adverse effects in older people with Intellectual Disabilities in Ireland: An observational cross-sectional study, British Journal of Psychiatry, 209, 2016, p504 - 510Journal Article, 2016, DOI , TARA - Full Text
  • O'Donovan, M., McCarron, M, Core human rights concepts in Irish health and housing policy documents: in search of equity for people with Intellectual Disability, Divisions of Population Health Sciences, Royal College of Surgeons, Dublin, 15th June, 2016Oral Presentation, 2016
  • Daly L., Bracken-Scally M., Hynes G., Ciblis A., Keogh B., Kennelly B., McCarron M. and Brady Anne-Marie, Using Inter-level Dynamics As An Interpretive Lens When Employing The RE-AIM Framework To Evaluate The Development Of Integrated Dementia Care, Age and Ageing, Irish Gerontological Society 64th Annual and Scientific Meeting. Developing Cultures of Excellence in Ageing and Exploring the Needs of Marginalised Groups, The Malton Hotel, Killarney, 29.09.16-01.10.16, 45, (Supp 2), Oxford University Press, 2016, ppii4-Published Abstract, 2016, URL
  • King, E., Okodogbe, T., Burke, E., McCarron, M., McCallion, P., O'Donovan, MA, Activities of daily living and transition to community living for adults with intellectual disabilities, Scandinavian Journal of Occupational Therapy, 24, (5), 2016, p357 - 365Journal Article, 2016, DOI
  • Kirley A, Lowe N. Mullins C, McCarron M, Daly G, Waldman I, Fitzgerald M, Gill M, Hawi Z, Phenotype studies of the DRD4 gene polymorphisms in ADHD: Assocaition with opportional defiant disorder and positive family history., American Journal Of Medical Genetics Part B-Neuropsychiatric Genetics, 131B, (1), 2004, p38 - 42Journal Article, 2004, DOI , URL
  • O'Dwyer, M; Maidment, I; Bennett K; Peklar, J; Mulryan, N; McCallion, P; McCarron, M; Henman, C;, Association of anticholinergic burden with adverse effects in older people with intellectual disabilities: An observational cross-sectional study, The British Journal of Psychiatry, 209, (6), 2016, p504 - 510Journal Article, 2016, DOI
  • Brennan, D., Murphy, R., McCallion, P., Griffiths, M & McCarron, M, Understanding Family Strategies that enable Long Term and Sustainable Home Environments for Older People with Intellectual Disability. Final Report - September 2016, Dublin, 2016, 1-72Report, 2016, URL , TARA - Full Text
  • O'Donovan, M-A., Byrne, E., McCallion, P., McCarron, M, Measuring choice for adults with an intellectual disability - a factor analysis of the adapted daily choice inventory scale, Journal of Intellectual Disability Research, 65, (5), 2017, p471 - 487Journal Article, 2017, URL
  • Burke, E., McCallion, P., McCarron, M, "Men's Bones Matter Too; Fracture risk and associated osteoporosis among older men with intellectual disability, Health SIRG 2017 , Belfast, 19th June, 2017Poster, 2017
  • McCausland D., McCallion, P., Brennan, D., McCarron, M, Interpersonal relationships of older adults with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 31, (1), 2017, p140 - 153Journal Article, 2017, DOI
  • O'Dwyer M., O'Connell J., Donegan C., Burke E., McCarron M., McCallion P., Henman M., Drug burden index to define functional and cognitive effects in older adults with intellectual disabilities: an observational cross sectional study. , International Journal of Clinical Pharmacy, European Society of Clinical Pharmacy Annual Symposium, Oslo, October 2016, 39(1), 2017, pp312 - 312Poster, 2017, DOI
  • Martin Henman , Hadiah Almutiari , Maire O ' Dwyer , Mary McCarron , Philip McCallion, Characteristics of the use of proton pump inhibitors among older people with intellectual disability, International Journal of Clinical Pharmacy, PCNE Working Conference, Bled, Slovenia, March 2017, 10.1007/s11096-017-0, 2017, pp8-Oral Presentation, 2017, DOI
  • McCallion, P., Hogan, M., Santos, F H., McCarron, M., Service, K., Stemp, S., Keller, S., Fortea, J., Bishop, K., Watchman, K., Janicki, M.P., , Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to End-of-life Care in Advanced Dementia, Journal of Applied Research in Intellectual Disability, 55, (5), 2017, p338 - 346Journal Article, 2017
  • Brennan, D., Murphy, R., McCallion, P., & McCarron, M, Family Strategies for Care Giving for Older People with Intellectual Disability (ID), within 'post-institutional' Ireland, 13th Conference of the European Sociological Association, Athens, Greece, 29 Aug - 1 Sept, 2017Oral Presentation, 2017, URL
  • Burke, E., McCarron, M.,, Physical health and older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017Oral Presentation, 2017
  • O'Dwyer, C., Wormald A., McCarron, M, Mental Health, challenging behaviour and loneliness in older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017Oral Presentation, 2017
  • O'Dwyer, M., McCarron, M, Medication and Polypharmacy in older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017Oral Presentation, 2017
  • O'Donovan, M., O'Dwyer, M., McCarron, M., McCallion P, An exploration of medication use patterns for adults with intellectual disability who transition to new living arrangements, Health SIRG 2017 , Belfast, 19th June, 2017Poster, 2017
  • McCarron, M., McCallion, P., Watchman, K., Janicki, M., Coppus, A., Fortea, J., Hogan, M., Reilly, E., Stemp, S, Quality Care for people with Intellectual Disability and Advanced Dementia: Guidance on Service Provision, British Medical Journal, 2017, p1 - 22Journal Article, 2017
  • McCarron, M., Cleary, E., McCallion, P, Health and Health-Care Utilization of the Older Population of Ireland: Comparing the Intellectual Disability Population and the General Population, Research on Aging, 39, (6), 2017, p693 - 718Journal Article, 2017, DOI
  • King E., O'Donovan M., Brangan, A., McCallion, P., McCarron, M, An Occupational Therapy Perspective on the Environment and Supporting Engagement for People Ageing with Intellectual Disabilities, IASSIDD Health Sirg, Belfast, 19th - 21st June, 2017Poster, 2017
  • Wormald, A., McCarron, M., McCallion, P.,, The influence of loneliness on age related decline in older people with an Intellectual Disability (ID) , IASSIDD Health Sirg, Belfast, 19th - 21st June, 2017Poster, 2017
  • O'Connell J., O'Dwyer, M., Henman, M., McCarron, M., , Addressing the complexity of medication use in people with Intellectual Disability, Irish Gerontological Society, Postgraduate Study Day in Ageing Research, Dublin, April, 2017Oral Presentation, 2017
  • O'Dwyer, M., Peklar, J., Mulryan, N., McCallion, P., McCarron, M., & Henman, M. C., Prevalence, patterns and factors associated with psychotropic use in older adults with intellectual disabilities in Ireland, Journal of Intellectual Disability Research, 61, (10), 2017, p969 - 983Journal Article, 2017, DOI
  • Brennan, D., Murphy, R., McCallion, P., McCarron, M, "What's going to happen when we're gone?" Family caregiving capacity for older people with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 31, (2), 2017, p226 - 235Journal Article, 2017, DOI
  • O'Connell J., O'Dwyer, M., Burke, E; Henman, M., McCarron, M., McCallion, P;, Drug Burden Index and Physical Function Measures in Older Adults with Intellectual Disabilities, ESCP International Symposium , Germany, 9th - 11th October, 2017Conference Paper, 2017
  • Peklar, J., Kos, M., O'Dwyer, M., McCarron, M., McCallion, P., Kenny, R., Henman, M, Medication and supplement use in older, PLOS , (1), 2017, p1 - 15Journal Article, 2017, DOI
  • Peklar, J., Kos, M., O'Dwyer, M.,McCarron, M., McCallion, P., Kenny, R.A., Henman, M.C., Medication and supplement use in older people with and without intellectual disability: An observational, cross-sectional study, PloS one, 1, 2017, p1 - 15Journal Article, 2017, DOI , URL , TARA - Full Text
  • Belton, A., O'Dwyer, M.,Peklar, J., Mccallion, P., Mccarron, M., & Henman, M., Medication use and health screening in an ageing adult population with Down Syndrome in Ireland: A descriptive study" for publication in the Journal of Policy and Practice in Intellectual Disabilities, Journal of Policy and Practice in Intellectual Disabilities, 15, (2), 2018, p145 - 154Journal Article, 2018, DOI
  • O'Dwyer, M., O'Connell, J., O'Dwyer, C., Mulryan, N., Burke, E., Donegan, C., Mccallion, P., Mccarron, M., & Henman, M., Drug Burden Index and Physical and Cognitive Function in Older Adults with Intellectual Disabilities: A Cross-Sectional Study, Pharmacoepidemiology and Drug Safety, Annual Meeting International Society of Pharmacoepidemiology, Montreal, Canada, 26, (2), 2017, pp478 - 478Oral Presentation, 2017, DOI
  • Brennan, D., Murphy, R., McCallion, P., & McCarron, M, Future Care Planning Amongst Parent and Sibling Carers with Ageing Family Member with an Intellectual Disability, Irish Gerontological Society - 65th Annual & Scientific Meeting, Wexford, 28th-30th September, 2017Poster, 2017, URL
  • McCarron, M, Ageing with an Intellectual Disability in Ireland, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20/09/17, 2017Oral Presentation, 2017
  • McGlinchey, E., McCarron, M, Cognitive Training with Adults with Down syndrome, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017Oral Presentation, 2017
  • Burke, E., McCarron, M.,, An exploration of the bone health of older adults with an intellectual disability, 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017Oral Presentation, 2017
  • O'Dwyer, M., McCarron, M, Medication use and polypharmacy in older adults with intellectual disabilities, 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017Oral Presentation, 2017
  • O'Donovan, M., McCarron, M, Transitions and choice for older people with ID , 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017Oral Presentation, 2017
  • McCausland, D., McCarron, M, Social and community participation of older people with intellectual disabilities , 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017Oral Presentation, 2017
  • Wormald, A., McCallion, P., McCarron, M, Loneliness in older people with an Intellectual Disability, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017Oral Presentation, 2017
  • Brennan, D., McCarron, M, Family Care Giving, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017Oral Presentation, 2017
  • Mac Giolla, Phadraig C., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Communication-based behavior support for adults with intellectual disabilities receiving dental care: A focus group study exploring dentists' decision-making and communication., Journal of Intellectual Disability Research, 23, (4), 2019, p526 - 540Journal Article, 2019
  • O'Dwyer, C., McCarron, M., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M O'Connell, J., , Prevalence and Associated Factors of Behaviours which Challenge Among Older Adults with Intellectual Disability in Ireland, Research in Developmental Disabilities , 61, (10), 2017, p969-983Journal Article, 2017
  • O'Dwyer, M., Henman, M., McCarron, M., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M O'Connell, J., , Prevalence and Patterns of antiepileptic medication use in the treatment of epilepsy in older adults with Intellectual Disabilities, Journal of Intellectual Disability Research , 62, 2018, p245 - 261Journal Article, 2018, DOI
  • Pittalis C., Kennelly B., Brady A.M., Daly L., Hynes G., Bracken-Scally M., Ciblis A., Keogh B. and McCarron M, Analysing the Burden of Care of Informal Carers of People with Moderate or Severe Dementia, Changing Perspectives in Gerontology - the Next 65 Years, Clayton Whites Hotel, Wexford, 29th and 30th Septem, 2017Poster, 2017
  • Kennelly B., Brady A.M., Hynes G., Bracken-Scally M., Daly L., Keogh B., Ciblis A. and McCarron M., Better off at home or in long term care? A balance-of-care analysis of people with advanced dementia, Age and Ageing, 65th Annual and Scientific Meeting of the Irish Gerontological Society, Wexford, Ireland, 29-30 September 2017, 46, (Supp 3), 2017, ppiii1 - iii12Published Abstract, 2017, URL
  • Pittalis C., Kennelly B., Brady A.M., Daly L., Hynes G., Bracken-Scally M., Ciblis A., Keogh B. and McCarron M., Analysing the Burden of Care of Informal Carers of People with Moderate or Severe Dementia, Age and Ageing, 65th Annual and Scientific Meeting of the Irish Gerontological Society, Wexford, Ireland, 29-30 September 2017, 46, (Supp 3), 2017, ppiii13 - iii59Published Abstract, 2017, URL
  • McCausland, D., Carroll, R., McCallion, P., McCarron, M.3 , Engagement in Community by Older People with an Intellectual Disability in Ireland , 65th Annual and Scientific Meeting of the Irish Gerontological Society, Clayton Whites Hotel, Wexford, 29th and 30th Septem, 2017Poster, 2017
  • Brady, A-M., Bracken-Scally, M., Daly, L., Ciblis, A., McCarron, M., Kennelly, B., Keogh, B., & Hynes, G., Learning from the development of Integrated Care Projects in Dementia, International Journal of Integrated Care, ICIC17 - 17th International Conference on Integrated Care, Dublin, Ireland, 8-10 May 2017, 17, (5), 2017, ppA89-Published Abstract, 2017, URL
  • Brady, A-M., Hynes, G., Daly, L., Bracken-Scally, M., Ciblis, A., McCarron, M., Kennelly, B., & Keogh, B., Responsive community care for people with dementia & their families: Evaluating a person centred and integrated care model, International Journal of Integrated Care, ICIC17 - 17th International Conference on Integrated Care, Dublin, Ireland, 8-10 May 2017, 17, (5), 2017, ppA92-Published Abstract, 2017, URL
  • O'Connell, J., Burke, E., Mulryan, N., O'Dwyer, C., Donegan, C., McCallion, P., McCarron, M., Henman, M., O'Dwyer, M, Drug Burden Index to Define the Burden of Medicines in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study , British Journal of Clinical Pharmacology, 84, 2018, p553 - 567Journal Article, 2018, DOI , TARA - Full Text
  • De Moraes A., O'Donovan, M., Gormley, J., McCallion, P., Burke, E., McCarron, M, Physical activity in an older population of persons with an intellectual disability: Results from Wave 2 of the Intellectual Disability Supplement to the Irish longitudinal study on Ageing (IDS-TILDA), British Journal of Sports Medicine, 2017Journal Article, 2017
  • Mac Giolla Phadraig C, Griffiths C, McCallion P, McCarron M, Nunn J., Communication based behaviour support for adults with intellectual disabilities receiving dental care: a focus group study exploring dentists' decision making and communication., Journal of Intellectual Disabilities, Online First, 2017Journal Article, 2017, DOI , URL , TARA - Full Text
  • Bracken-Scally, M., Brady, A., Daly, L., Hynes, G., Keogh, B., Kennelly, B., McCarron, M, Flexibility and reablement in home care in dementia, International Journal of Integrated Care, 18th International Conference for Integrated Care 2018, Netherlands, 23rd - 25th May, 18, (S2), 2018, pp314-Meeting Abstract, 2018, URL
  • O'Connell, J., O'Dwyer, M., Burke, E., Henman, M. C., McCallion, P., McCarron, M, Factors associated with Drug Burden Index in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study, 39th All Ireland Schools of Pharmacy Conference, University College, Cork, April, 2017Oral Presentation, 2017
  • O'Donovan, M-A., McGlinchey, E., Haigh, M., McCarron, M.,, Ageing with an intellectual disability in Ireland, The American Association on Intellectual and Developmental Disabilities, Dublin, 13th October, 2017Oral Presentation, 2017
  • O'Dwyer, M., Burke, E., Oppewal, A., Foran, S, McCarron, M.,, Medication use in older adults with intellectual disabilities, Falls, Fraility, Bone Health Conference, Dublin, November, 2017Oral Presentation, 2017
  • Foran, S., McCallion, P., McCarron, M, The prevalence and predictors of falls and fear of falling among participants in the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing., European Congress on Falls Frailty and Bone Health, Dublin, November, 2017Oral Presentation, 2017
  • O'Dwyer, M., O'Connell, J., McCarron, M., McCallion, P., Henman, M, Medication use in older adults with intellectual disabilities, IASSIDD Health Sirg, Belfast, June, 2017Oral Presentation, 2017
  • Burke, E, A., Foran, S., Oppewal, A., O'Dwyer, M., McCarron, M, The impact and relationship between musculoskeletal health, falls, medication and physical activity on older adults with intellectual disabilities from a Dutch and Irish perspective, European Congress on Falls Frailty and Bone Health, Dublin, 9th November, 2017Oral Presentation, 2017
  • Burke, E, A., Carroll, R., McCallion, P., Walsh, J B., McCarron, M, An exploration of the bone health of older adults with an intellectual disability, European Congress on Falls Frailty and Bone Health, Dublin, 9th November, 2017Oral Presentation, 2017
  • O'Dwyer, M., McCarron, M, Anticholinergic medicines in Older Adults with intellectual Disabilities, Faculty of Psychiatry of Intellectual Disability Annual Conference RCPI, Dublin, 6th October, 2017Oral Presentation, 2017
  • McCarron, M., Haigh, M., McCallion, P., Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA), School of Nursing and Midwifery,Trinity College Dublin, December, 2017, p1 - 136Report, 2017, URL , TARA - Full Text
  • Mot, H., McCarron, M, Laxative use by older people with intellectual disability, All-Ireland Schools of Pharmacy Conference, Cork, April, 2017Poster, 2017
  • Brennan, D., Murphy, R., McCallion, P., McCarron, M, Caregiving capacity and future care planning for older people with an intellectual disability, Age and Ageing, 45, 2016Journal Article, 2016
  • McCarron, M., McCallion, P., Fleming, S., Bourke, E., An Investigation of Dependency Levels of Ageing Persons with Intellectual Disability (ID) and the Implications from a Care and Resource Perspective, Dublin, December , 2004, pvi - 102Report, 2004
  • Bowman, S., McCarron, M, Developing a Strategic Public Engagament Plan, Sphere Conference, RCSI Dublin, 11th January, 2018Poster, 2018
  • Choice as people age with intellectual disability - an Irish perspective in, editor(s)Roger J. Stancliffe, Michael L. Wehmeyer, Karrie A. Shogren, Brian H. Abery, , Choice, preference and disability: Promotiing self-determination across the lifespan, Springer Books, 2020, [O'Donovan, M-A., McCausland, D., McCallion, P., McCarron, M]Book Chapter, 2020
  • O'Donovan, M.A., Mannan, H., McVeigh, J., McCarron, M., McCallion, P., Byrne, E., Core human rights concepts of in Irish health and housing policy documents: in search of equity for people with ID , Journal of Policy and Practice in Intellectual Disabilities, 15, (4), 2018, p307 - 313Journal Article, 2018, DOI , URL
  • Mac Giolla Phadraig C, Griffiths C, McCallion P, McCarron M. Donnelly-Swift E and Nunn J, Pharmacological behaviour support for adults with intellectual disabilities: Frequency and predictors in a national cross-sectional survey., Community Dentistry and Oral Epidemiology, 2018, p1-7Journal Article, 2018, DOI
  • O'Connell, J., O'Dwyer, M., Donegan, C., Henman, M., McCarron, M., McCallion, P., Development of the Drug Burden Index tool for use in an Irish population of older people with intellectual disability, 45th ESCP (European Society of Clinical Pharmacy) Symposium, Oslo, Norway, October 2016, 2016Poster, 2016
  • Galvin, M., Doyle, J., Murphy, E., Hannigan, C., Brady, A.M., McCarron, M., Bowman, S., Smith, S. and Dinsmore, J., The role of design thinking in the application of PPI within the ProACT project, SPHeRE Network 4th Annual Conference 2018, Dublin, Ireland, 2018Poster, 2018
  • Burke, E, A., McCarron, M., McCallion, P., Bowman, S, Building Inclusive Communities: Learning from the world, Involving Older Adults in Research - Lessons from 10 Years of IDS-TILDA, USA, November 2018, 2018Oral Presentation, 2018
  • McCarron, M., McCallion, P., Coppus, A., Fortea, J., Stemp, S., Janicki, M., Watchman, K, Supporting Advanced Dementia in people with Down syndrome and other intellectual disabilities: Consensus Statement of the International Summit on Intellectual Disability and Dementia, Journal of Intellectual Disability Research, 62, (7), 2018, p617 - 624Journal Article, 2018, DOI
  • MacGiolla Phadraig, C., Nunn, J., McCallion, P., McCarron, M, Prevalence of edentulism among adults with Intellectual Disabilities: a narrative review informed by systematic review principles" in its current form for publication in Special Care in Dentistry, Special Care in Dentistry , 38, (4), 2018, p191 - 200Journal Article, 2018, DOI
  • Ouellette-Kuntz, H., Martin, L., Burke, E., McCallion, P., McCarron, M., McGlinchey, E., Sandberg, M., Schoufour, J., Shooshtari, S., Temple, B, How best to support individuals with IDD as they become frail: Development of a Consensus Statement, Journal of Applied Research in Intellectual Disabilities , 32, (1), 2018, p35 - 42Journal Article, 2018, URL
  • Physical Health of Older Adults with Intellectual Disability in, editor(s)V.P Prasher and Matt Janicki , Physical Health of People with Intellectual Disability, Springer International, Springer International , 2019, [Burke E.A., O'Dwyer M, McGlinchey E, Foran S, MacGiolla Phadraig C, Carroll R, McCallion P and McCarron M]Book Chapter, 2019, DOI
  • O'Dwyer, M., O'Connell., J., O'Dwyer C.,Mulryan, N., McCallion, P., McCarron, M. and Henman, M.C.,, Patterns and indications for antipsychotic utilisation in older adults with intellectual disability: a cross sectional study, International Journal of Pharmacy Practice, Health Services Research and Pharmacy Practice Conference, Newcastle, April 2018, 26(1), 2018, pp7 - 8Oral Presentation, 2018, DOI , URL
  • O'Dwyer, C., McCallion, P., McCarron, M. , Medication Use and Potentially Inappropriate Prescribing in Older Adults with Intellectual Disabilities: A neglected area of research. Therapeutic Advances in Drug Safety., Journal of Intellectual Disability Research, 9, (9), 2018, p535 - 557Journal Article, 2018, DOI
  • Almutari, H., O'Dwyer, M., Burke, E., McCarron, M., McCallion, P., & Henman, M. , Laxatives Use and Constipation among Intellectually Disabled Older People, Prevalence, Pattern and Association: A Cross-Sectional Observational Study., Alimentary Pharmacology and Therapeutics Journal , 2018Journal Article, 2018
  • McCarron, M., McCallion, P., Coppus, A., Fortea, J., Stemp, S., Janicki, M., & Watchman, K. , Defining advanced dementia in people with Down syndrome and other intellectual disabilities: consensus statement of the International Summit on Intellectual Disability and Dementia, Journal of Palliative Medicine, 2018Journal Article, 2018
  • O'Dwyer, C., McCallion, P., McCarron, M., Prevalence and Associated Factors of Challenging Behaviours among Older Adults with Intellectual Disability in Ireland, Research in Developmental Disabilities, 80, 2018, p192 - 204Journal Article, 2018, DOI
  • O'Dwyer, M. McCarron, P. McCallion & M. Henman , Medication Use and Potentially Inappropriate Prescribing in Older Adults with Intellectual Disabilities: A neglected area of research, Therapeutic Advances in Drug Safety , 2018Journal Article, 2018, DOI
  • Almutari, H., O'Dwyer, M., Burke, E., McCarron, M., McCallion, P., Henman, M, 1. Laxatives Use and Constipation among Intellectually Disabled Older People, Prevalence, Patterns and Association: A Cross-Sectional Observational Study, Drugs and Aging, 2018Journal Article, 2018
  • O Connell J., Burke E., Donegan C., McCallion P., McCarron M., Henman M., O'Dwyer M., , Effect of Drug Burden Index on Physical Function Measures in Older Adults with Intellectual Disabilities: An Observational Cross-sectional Study, BMC, 2018Journal Article, 2018
  • McCarron, M., Burke, E., White, P., O'Dwyer, C., Ryan, K., O'Farrel, J., McCallion, P, He'd mind you, you mind him" Experiences of end of life care for people with an intellectual disability as perceived by staff carers., 2017, p1 - 63Report, 2017
  • Almutari, H., O'Dwyer, M., McCarron, M., McCallion, P., & Henman, M. , The Use of Proton Pump Inhibitors Among Older Adults with Intellectual Disability: A Cross Sectional Observational Study., Saudi Pharmaceutical Journal, 26, (7), 2018, p1012 - 1021Journal Article, 2018, DOI , TARA - Full Text
  • Brady, A-M. Bracken, M. Keogh, BJ, Daly, L, Hynes, G. Kennelly , B, Mc Carron M, Learning from a Parallel Process Evaluation of Dementia Care Services , 25th Research & Education Conference, School of Nursing, University of Maribor, Slovenia , 7th June, 2018Conference Paper, 2018
  • O'Dwyer M, Galvin N, McCallion P, McCarron M, Henman M, O'Connell J. , Use of High Risk Medicines in Older Adults with Intellectual Disabilities: A cross-sectional study , Journal of Applied Research in Intellectual Disabilities, IASSIDD European Congress, Athens , 31, (4), 2018, pp544 - 544Conference Paper, 2018, DOI
  • O'Dwyer M, Hughes J, McCallion P, McCarron M, Henman M., Psychotropic drug use in older adults with intellectual disabilities who have dementia in Ireland , Journal of Applied Research in Intellectual Disabilities, IASSIDD European Congress, Athens, 31, (4), 2018, pp544-Conference Paper, 2018, DOI
  • O'Dwyer M, Burke E, Foran S, McCarron M, McCallion P. , Associations of medicine use with falls and bone health in older adults with intellectual disabilities, Journal of Applied Research in Intellectual Disabilities, IASSIDD European Congress, Athens, 31, (4), 2018, pp544-Conference Paper, 2018, DOI
  • Daly L.,Brady A.M., Keogh B., Bracken-Scally M., Ciblis A., Kennelly B., Hynes G., Pittalis C., Drury A. and McCarron M., Achieving inclusiveness: Suggestions to overcome challenges to accessing the perspective of people living with dementia , 19th International Nursing Ethics Conference and 4th International Ethics in Care Conference , Catherine McAuley School of Nursing and Midwifery, University College Cork, 1-2 September , 2018, pp16 - 17Oral Presentation, 2018, URL
  • McCausland, D., McCallion, P., Brennan, D., and McCarron, M., The exercise of human rights and citizenship by older adults with an intellectual disability in Ireland, Journal of Intellectual Disability Research, 62, (10), 2018, p875 - 887Journal Article, 2018, URL
  • McCarron M, Lombard-Vance R, Murphy E, O'Donovan MA, Webb N, Sheaf G, McCallion P, Stancliffe R, Normand C, Smith V, May P, Quality of life outcomes and costs associated with moving from congregated settings to community living arrangements for people with intellectual disability: An evidence review, Dublin, Health Research Board, September, 2018, 94Report, 2018, URL
  • Keogh B, Daly L, Brady AM, Bracken-Scally M, Hynes G, Kennelly B, Ciblis A, Pittalis C, & Mc Carron M. , Key Stakeholders Perceptions of Assistive Technology to Support People with Dementia living at home., 28th Alzheimer Europe Conference: "Making dementia a European priority"., Barcelona , 29 to 31 Oct, 2018Poster, 2018, TARA - Full Text
  • Bracken-Scally, M., Brady, A-M., Daly, L., Keogh, B., Kennelly, B., Hynes, G. & McCarron, M., Use of a consortium approach in integrating dementia care services in acute hospitals, National Forum on Integrated Care in Ireland, University College Dublin, 5 December 2018, 2018Poster, 2018
  • McCarron, M., McCallion, P., Watchman, K., Janicki, M.P., Coppus, A., Service, K., Fortea, J., Hogan, M., Reilly, E., Stemp, S. , Quality Care for People with Intellectual Disability and Advanced Dementia: Guidance on Service Provision, Journal of Palliative Medicine, 21, (9), 2018, p9 - 10Journal Article, 2018, URL
  • O'Dwyer, C., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M., McCarron, M., Prevalence and associated factors of problem behaviours among older adults with intellectual disabilities in Ireland, Research in Developmental Disabilities, 80, 2018, p192 - 204Journal Article, 2018, URL
  • Burke, E.A., Carroll, R., Walsh, J.B., McCallion, P., McCarron, M. , Using Chi-Squared Automatic Interaction Detection (CHAID) Modelling To Identify the Risk Factors of Osteoporosis among Older Adults with Intellectual Disability, Osteoporosis International , WCO-IOF-ESCEO 2017 World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases, Florence, Italy, 23-26 March, 2017, 28, 2017, ppS620 - S620Poster, 2017
  • O'Connell, J., O'Dwyer, M., Burke, E., Henman, M., Donegan, C., McCarron, M., McCallion, P., Mulryan, N., Association of Drug Burden Index with Physical Function in Irish Older Adults with Intellectual Disability, Age & Ageing, 65th Annual and Scientific Meeting of the Irish Gerontological Society: Changing Perspectives in Gerontology- The Next 65 Years. , Wexford, Ireland, 29-30 Sept 2017, 46, 2017, pp1Poster, 2017
  • McCarron, M., McCallion, P., Reilly, E., Dunne, P., Carroll, R., Mulryan, N., A prospective 20‐year longitudinal follow‐up of dementia in persons with Down syndrome, Journal of Intellectual Disability Research , 61, (9), 2017, p843 - 852Journal Article, 2017, URL
  • O'Connell, J. Burke, E., Henman, M., McCallion, P., McCarron, M., O'Dwyer, M., A comparison of drug burden measures on physical function scores in a cohort of older adults with Intellectual Disabilities, Journal of Applied Research in Intellectual Disability, Fifth International IASSIDD Europe Congress , Athens, Greece, 17-20 July, 2018 , 31, (4), 2018, pp553 - 553Poster, 2018
  • Burke, E., Carroll, R., O'Dwyer, M., Walsh, J., McCallion, P., McCarron, M., sing chi-square automatic interaction detection modelling to identify predictors of osteoporosis among adults with Intellectual Disability, Journal of Applied Research in Intellectual Disability, Fifth International IASSIDD Europe Congress , Athens, Greece, 17-20 July, 2018 , 31, (4), 2018, pp554 - 554Oral Presentation, 2018
  • O'Dwyer, M., Galvin, N., McCallion, P., McCarron, M., Henman, M., O'Connell, J. , Patterns of antipsychotic utilization and associations with behaviours, with challenges in older adults with intellectual disability: a cross sectional study, Journal of Applied Research in Intellectual Disability, Fifth International IASSIDD Europe Congress , Athens, Greece, 17-20 July, 2018 , 31, (4), 2018, pp544 - 544Oral Presentation, 2018
  • Bond, L., Carroll, R., Mulryan, N., O'Dwyer, M., O'Connell, J., Monaghan, R., Sheerin, F., McCallion, P., McCarron, M., The association of life events and mental ill health in older adults with intellectual disability: results of the wave 3 Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing, Journal of Intellectual Disability Research, 63, (5), 2019, p454 - 465Journal Article, 2019, DOI
  • Wormald, A., McCallion, P., & McCarron, M., The Antecedents of Loneliness in Older People with an Intellectual Disability., Research in Developmental Disabilities., 85, 2019, p116 - 130Journal Article, 2019, DOI
  • Mac Giolla, Phadraig, C., McCallion, P., Nunn, J., McCarron, M., Total tooth loss without denture wear is a risk indicator for difficulty eating among older adults with intellectual disabilities., Journal of Oral Health, 46, (2), 2018, p170 - 178Journal Article, 2018, DOI
  • Changes across the lifespan, in, editor(s)Barr, O & Gates, B , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Bradley, A., Crickmore, D., Dearing, M., Marsh, L., McCallion, P., McCarron, M., & Read, S.]Book Chapter, 2019
  • Mental health and emotional wellbeing. in, editor(s)Barr, O & Gates, B , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Chaplin, E., Francis, R., McCallion, P., McCarron, M., Read, S., Taggart, L., & Ward, G.]Book Chapter, 2019
  • Accessing general health services. in, editor(s)Barr, O & Gates, B. , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Barr, O., Bell, T., Bromley, J., Chaplin, E., Francis, R., Marsh, L., McCallion, P., McCarron, M., O'Neill, E., Read, S., Russ, L., Scott, J., & Sowney, M.]Book Chapter, 2019
  • Epidemiological issues. in, editor(s)V.P. Prasher, & M.P. Janicki , Physical Health of Adults with Intellectual Disabilities, London: Wiley, 2019, pp9 - 26, [McCallion, P., Ferretti, L., Beange, H., & McCarron, M.]Book Chapter, 2019
  • Important Physical Health Issues in, editor(s)V.P. Prasher, & M.P. Janicki , Physical Health of Adults with Intellectual Disabilities, London: Wiley, 2019, pp27 - 52, [Burke, E., O'Dwyer, M., McGlinchey, E., Foran, S., MacGiolla Phadraig, C., Carroll, R., McCallion, P & McCarron M.]Book Chapter, 2019, DOI
  • McCarron, M., Haigh, M., & McCallion, P. (Eds.), Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland. Wave 3 IDS-TILDA., Dublin: School of Nursing & Midwifery, Trinity College Dublin, 2017Report, 2017
  • McCarron, M., Burke, E., White, P., O'Dwyer, C., Ryan, K., O'Farrell, J., McCallion, P., "He'd mind you, you mind him": Experiences of end of life care for people with an intellectual disability as perceived by staff carers., School of Nursing and Midwifery, Trinity College Dublin, 2017Report, 2017, URL , TARA - Full Text
  • Claire O'Dwyer; Martin Henman; Mary Mc Carron; Eva O'Leary; Philip McCallion; Eilish Burke; Juliette O'Connell; Maire O'Dwyer, Prevalence and patterns of antipsychotic use and their associations with mental health and problem behaviours among older adults with intellectual disabilities, Journal of Applied Research in Intellectual Disabilities , 32, (4), 2019, p981 - 993Journal Article, 2019, DOI
  • Burke, EA., Carroll, R., O'Dwyer, M., Walsh, JB., McCallion, P., McCarron, M., A quantitative examination of the bone health status of older adults with intellectual and developmental disability in Ireland: a cross sectional nationwide study., British Medical Journal, 2019Journal Article, 2019, DOI , TARA - Full Text
  • O'Dwyer M, Peklar J, Mulryan N, McCallion P, McCarron M, Henman MC, Prevalence and patterns of anti-epileptic medicationprescribing in the treatment of epilepsy in older adults with intellectual disabilities, Journal of Intellectual Disability Research, 62, (3), 2018, p245 - 261Journal Article, 2018, DOI
  • McCarron, M., Lombard-Vance, R., Murphy, E., O'Donovan, M-A., Webb, N., Sheaf, G., McCallion, P., Stancliffe, R., Normand, C., Smith, V., May, P., Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review, BMJ Open, 2019Journal Article, 2019, DOI
  • Bracken-Scally M., Brady A-M., Daly L. , Hynes G. , Keogh B. , Kennelly B. and Mc Carron M. , Methodological lessons learned from a parallel dementia process evaluation, Trinity Health and Education International Research Conference (THEconf2019, School of Nursing and Midwifery, Trinity College Dublin, 6-7 March , 2019Oral Presentation, 2019, URL
  • Burke, EA., Carroll, R., Walsh, JB., McCallion, P. and McCarron, M., Bone health, grip strength and older men with intellectual disability , THE WORLD CONGRESS OF THE INTERNATIONAL ASSOCIATION FOR THE SCIENTIFIC STUDY OF INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, Glasgow , August 2019, 2019Conference Paper, 2019, DOI
  • McCarron M, Lombard-Vance R, Murphy E, May P, Webb N, Sheaf G, McCallion P, Stancliffe R, Normand C, Smith V, O'Donovan MA, Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review, BMJ Open, 2019Journal Article, 2019, DOI , TARA - Full Text
  • McGlinchey, E., McCarron, M., Holland, A., & Mccallion, P., Examining the Effects of Computerised Cognitive Training on Levels of Executive Function in Adults with Down syndrome., Journal of Intellectual Disability Research. , 63, (9), 2019, p1137 - 1150Journal Article, 2019, DOI
  • Bracken-Scally M. Keogh B., Daly l., Pittalis C., Kennelly B.,Hynes G., Gibb M., Cole N., McMahon G., Lawlor B., MCCarron M. & Brady AM, Assessing the Impact of Dementia Inclusive Environmental Adjustment in the Emergency Department, Dementia, 20, (1), 2021, p28 - 46Journal Article, 2021, DOI
  • O'Dwyer M, Finnerty S, Henman M, Carroll R, McCallion P, McCarron M. , Prevalence and treatment of dementia in older adults with Intellectual Disability (ID) in Ireland, Journal of Intellectual Disability Research, IASSIDD World Congress, Glasgow, August 2019, 63, (7), 2019Conference Paper, 2019, DOI
  • Bond L, Carroll R, Mulryan N, O'Dwyer M, O'Connell J, Monaghan R, Sheerin F, McCallion P, McCarron M. , The association of life events and mental ill health in older adults with intellectual disability: results of the wave 3 intellectual disability supplement to the Irish longitudinal study on ageing (IDS ]TILDA), IASSIDD World Congress, Glasgow, August 2019, 63, (7), 2019Conference Paper, 2019, DOI
  • O'Connell J, Henman MC, Burke É, Donegan C, McCallion P, McCarron M, O'Dwyer M, Association of Drug Burden Index with grip strength, timed up and go and Barthel index activities of daily living in older adults with intellectual disabilities: an observational cross-sectional study, BMC Geriatrics, 19, (1), 2019, p173-Journal Article, 2019, DOI
  • F Sheerin, P McCallion, N Mulryan, E McCann, M McCarron, Is depressive symptomatology affected by physical activity and vitality in a cohort of older Irish adults with intellectual disabilitity?, Journal of Intellectual Disability Research, World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6-9 August, 2019, 63, (7), Wiley, 2019, pp646 - 646Published Abstract, 2019, DOI
  • McGlinchey, E., McCallion, P,, McDermott, S., Foley, M., Burke, E.A., O'Donovan, M-A., McCausland, D., Gibney, S., McCarron, M. , Positive Ageing Indicators for People with an Intellectual Dsiability 2018, Dublin: Trinity Centre for Ageing and Intellectual Disability, 2019Report, 2019, URL
  • O'Donovan, M-A., McCarron, M., Lynch, L., & McCallion, M., Pathways to health for older people with intellectual disability - Conceptualising a framework to understand access, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019Oral Presentation, 2019
  • O'Donovan, M-A, McCallion, P., Byrne, E., & McCarron, M. , Housing mobility for older people with an intellectual disability, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019Oral Presentation, 2019
  • Sheerin, F., McCallion, P., & McCarron, M., Finding hope and comfort: Religion and spirituality in the lives of older Irish adults with intellectual disability. , The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019Oral Presentation, 2019
  • Burke, E., McCallion, P., McCarron, M., Bowman, S. & Gallagher, S.E. , .The use of massive open online courses to improve the healthcare service for adults with intellectual disability. , The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019Oral Presentation, 2019
  • Ouellette, Kuntz, H., Martin, L, Burke, E., McCallion, P., McCarron, M., McGlinchey, E., Sandberg, M., Shooshtari, S., & Temple, B. , Development of a consensus statement on how best to support individuals with IDD as they become frail., The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019Oral Presentation, 2019
  • McCausland, D., Carroll, R., McCallion, P., McCarron, M. , The nature and quality of friendships of older people with intellectual disabilities in Ireland, Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019Oral Presentation, 2019, URL
  • McGlinchey, E., McCallion, P. & McCarron, M., Inclusion of people with Down syndrome in dementia research: Awareness, engagement and attitudes., Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019Oral Presentation, 2019, DOI
  • Ryan, J., McCallion, P., McCarron, M., Burke, E., Obesity and health burden in adults with an intellectual disability, a comparative study. , Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019Oral Presentation, 2019
  • McCallion, P., McCarron, M., & Burke, E. , Irish findings on quality in life and death for people with ID. , Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019Conference Paper, 2019, DOI
  • McCarron, M., Carroll, R., McCallion, P., Ageing of People with intellectual disabilities: Building the samples and research questions for IDS-TILDA's next decade. , Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019Oral Presentation, 2019, DOI
  • Reilly, E., McCarron, M., McCallion, P., Carroll, R., & Burke, E, The Impact of Ageing for People with Down syndrome over the Age of 40-years Living in Ireland. A 10-Year Longitudinal Follow-up., Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019Oral Presentation, 2019
  • Dunne P., Reilly E., Judge R., Lowe F., McCarron M., Giving Meaning to Life - the role of digital life stories in supporting people with intellectual disability and dementia, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019Oral Presentation, 2019
  • Al Mutairi HK, O'Dwyer M, McCarron M, McCallion P, Burke E, Henman MC., Laxative use among older adults with intellectual disability: A cross-sectional observational study, International Journal of Clinical Pharmacy, 42, 2019, p88 - 99Journal Article, 2019, DOI
  • McCausland, D. Murphy, E. McCallion, P. McCarron, M., Assessing the impact of person-centred planning on the community integration of adults with an intellectual disability, Dublin, National Disability Authority, 2019Report, 2019, URL
  • Murphy, E, McCausland, D, Carroll, R., McCallion, P. McCarron, M., Technology use and social inclusion for older adults with an intellectual disability:Lessons learnt from the IDS-TILDA study, DOCTRID V: "Transitions across the Lifespan for People Living with Autism and/or Intellectual Disability", Galway, September 21, 2019Poster, 2019, DOI
  • McCausland, D., Brennan, D., McCallion, P., & McCarron, M., Balancing personal wishes and caring capacity in future planning for adults with an intellectual disability living with family carers , Journal of Intellectual Disabilities, 23, (3), 2019, p414 - 431Journal Article, 2019, DOI
  • McCausland, D., McCallion, P., Brennan, D., McCarron, M., In pursuit of meaningful occupation: Employment and occupational outcomes for older Irish adults with an intellectual disability, Journal of Applied Research in Intellectual Disabilities, 33, (3), 2020, p386 - 397Journal Article, 2020, DOI
  • McCausland, D., Stancliffe, R.J., McCallion, P., McCarron, M., Longitudinal use and factors associated with public transport and other travel options for older people with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 33, (3), 2020, p442 - 456Journal Article, 2020, DOI
  • Smith, M., Manduchi, B., Burke, E., Carroll, R., McCallion, P. & McCarron, M., Communication difficulties in adults with Intellectual Disability: Results from a national cross-sectional study, Research in Developmental Disabilities, 97, (103557), 2020, p1-12Journal Article, 2020, DOI , TARA - Full Text
  • O' 'Connell, J., Burke, E., McMahon N, McCallion, P., McCarron, M, Henman, M., O'Dwyer M, Medication Burden and Frailty in Older Adults with Intellectual Disability: An Observational Cross-Sectional Study, Pharmacoepidemiology and Drug Safety, 29, (4), 2020, p482 - 492Journal Article, 2020, DOI
  • Z. Hawi, M. McCarron, A. Kirley, G. Daly, M. Fitzgerald and M. Gill, No association of the dopamine DRD4 receptor (DRD4) gene polymorphism with attention deficit hyperactivity disorder (ADHD) in the Irish population, American Journal of Medical Genetics Part A, 96, (3), 2000, p268 - 272Journal Article, 2000, DOI , URL
  • J. Tyrrell, M. Cosgrave, M. McCarron, J. McPherson, J. Calvert, A. Kelly, M. McLaughlin, M. Gill and B. A. Lawlor, Dementia in people with Down's syndrome, International journal of geriatric psychiatry, 16, (12), 2001, p1168-1174Journal Article, 2001, DOI , URL
  • M. McCarron, M. Gill, B. Lawlor and C. Begly, A pilot study of the reliability and validity of the Caregiver Activity Survey - Intellectual Disability (CAS-ID), Journal of Intellectual Disability Research, 46, (8), 2002, p605-612Journal Article, 2002, DOI , URL
  • Z. Hawi, D. Foley, A. Kirley, M. McCarron, M. Fitzgerald and M. Gill, Dopa decarboxylase gene polymorphisms and attention deficit hyperactivity disorder (ADHD): no evidence for association in the Irish population, Molecular Psychiatry, 6, (4), 2001, p420 - 424Journal Article, 2001, DOI , URL , TARA - Full Text
  • A. Kirley, Z. Hawi, G. Daly, M. McCarron, C. Mullins, N. Millar, I. Waldman, M. Fitzgerald and M. Gill, Dopaminergic system genes in ADHD: toward a biological hypothesis, Neuropsychopharmacology, 27, (4), 2002, p607-619Journal Article, 2002, DOI , TARA - Full Text
  • McGlinchey, E., McCallion, P., McCarron, M., Down syndrome and Dementia: Advances in the field, Current Opinion in Psychiatry, 33, (3), 2020, p278 - 283Journal Article, 2020, DOI
  • Dementia and Intellectual Disability: Prevalence, Assessment and Post-Diagnostic Support in, editor(s)Johnny Matson , Handbook of Intellectual Disabilities, Springer , 2019, pp965 - 986, [Eimear McGlinchey, Evelyn Reilly, Philip McCallion, Pamela Dunne, Niamh Mulryan, Mary McCarron]Book Chapter, 2019, URL
  • Burke, EA., Walsh, JB., McCalion, P. and McCarron, M., A descriptive examination of the link between men with intellectual disabilities, bone health and grip strength., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, March 2020, 2020Poster, 2020
  • O'Donohoe, N., McCallion, P., McCarron, M and Burke E., Engaging people with intellectual disability in research, a novel approach., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020Conference Paper, 2020
  • Burke, EA., Bowman, S., McCallion, P., McCarron, M. and Gallagher, S., The use of massive open online courses to improve the healthcare service for adults with intellectual disability, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020Conference Paper, 2020
  • Burke, EA., Bowman, S., Murphy, E., Oppewal, A., McCallion, P., and McCarron M., Get Wise About Your Health, Supporting people with intellectual disability to be health savvy: Sharing preliminary findings from public engagement and involvement in research , Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020Conference Paper, 2020
  • Brennan, D., McCausland, D., O'Donnovan, M-A., Eustace-Cook, J., McCallion, P., & McCarron, M., Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review, Journal of Applied Research in Intellectual Disabilities, 33, (6), 2020, p1221 - 1233Journal Article, 2020, DOI
  • Manduchi B, Walshe M, Burke E, Carroll R, McCallion P, McCarron M , Prevalence and risk factors for choking in adults with intellectual disability: Results from a national cross sectional study. , Journal of Intellectual and Developmental Disability , 46, (2), 2020, p126 - 137Journal Article, 2020, DOI , TARA - Full Text
  • O'Dwyer M, McCallion P, McCarron M, O'Connell J, Henman M., Measuring drug burden in older adults with intellectual disabilities: Critical issues for consideration in finding the optimal measure to improve safety of medicines use. , Expert opinion on drug safety, 19, (6), 2020, p649 - 652Journal Article, 2020, DOI
  • Bond L, Carroll R, Mulryan N, O'Dwyer M, O'Connell J, Monaghan R, Sheerin F, McCallion P, McCarron M., Biopsychosocial factors associated with depression and anxiety in older adults with intellectual disability: results of the wave 3 Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., Journal of intellectual disability research : JIDR, 64, (5), 2020, p368-380Journal Article, 2020, DOI
  • Burke, EA., Walsh, BJ., McCallion, P., & McCarron, M., Making Reasonable Adjustment to Enable and Support People With Intellectual Disability Engage in Objective Health Measures in a Research Study-The Health Fair in the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Inclusion, 8, (2), 2020, p124 - 137Journal Article, 2020, DOI
  • Aging with Intellectual Disability: Dementia and Cognitive Decline in, editor(s)Matson, E , Handbook of Dual Diagnosis, Switzerland, Springer Nature, 2020, pp331 - 330, [Sheerin, F., McCallion, P., McGlinchey, E., O'Dwyer, M., Reilly, E., & McCarron, M. ]Book Chapter, 2020, DOI , URL
  • Responding to Changing Workforce Realities: One Profession's Experience in, editor(s)Putnam, & C. Bigby (Eds.), , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, pp323 - 336, [Sheerin, F., McCallion, P. & McCarron, M. ]Book Chapter, 2021, DOI
  • Health and wellness among persons ageing with intellectual disability in, editor(s)M. Putnam, & C. Bigby (Eds.) , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, pp229 - 239, [McCausland, D., McCallion, P., & McCarron, M. ]Book Chapter, 2021
  • The emergence of aging with long-term disability populations in, editor(s)M. Putnam, & C. Bigby (Eds.) , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, pp219 - 228, [McCallion, P., Ferretti, L.A., & McCarron, M. ]Book Chapter, 2021
  • Keogh B., Ting To, W., Daly L., Hynes G., Kennelly S., Lawlor B., Timmons S., O'Reilly S., Bracken-Scally M., Ciblis A., Cole N., Drury A., Pitalis C., Kennelly B., McCarron M. and Brady A.M., Acute hospital staff's attitudes towards dementia and perceived dementia knowledge: a cross-sectional survey in Ireland, BMC Geriatrics, 20, (376), 2020Journal Article, 2020, DOI , URL , TARA - Full Text
  • King, E., Brangan, J., McCarron, M., McCallion, P., O'Donovan, MA., Bavussantakath, F.R., Predictors of Productivity and Leisure for People aging with Intellectual Disability. , Canadian Journal of Occupational Therapy, 2021Journal Article, 2021, DOI
  • Monaghan R, O'Dwyer M, Mulryan, Luus R, McCarron M, McCallion P, Henman M, Antiepileptic drugs, occurrence of seizures and effect of co-administration of potential seizure threshold lowering psychotropic drugs in adults with intellectual disability who have epilepsy , Journal of Applied Research in Intellectual Disabilities, 34, (3), 2021, p816 - 829Journal Article, 2021, DOI
  • O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E. and McCarron M., The prevalence, awareness, treatment, and control of hypertension in older adults with an intellectual disability in Ireland: a cross sectional study, European Journal of Cardiovascular Nursing, 20, (4), 2021, p315 - 323Journal Article, 2021, DOI , URL
  • McCausland, D., McCallion, P., Carroll, R., & McCarron, The nature and quality of friendship for older adults with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 2020Journal Article, 2020, DOI
  • Hunt, K., Bernal, J., Worth, R., Shearn, J., Jarvis, P., Jones, E., Lowe, K., Padden, P., Barr, O., Forrester-Jones, R., Kroll, T., McCarron, M., Read, S., & Todd, S., End-of-life care in intellectual disability: a retrospective crosssectional study, BMJ Supportive & Palliative Care, 2019, p469 - 477Journal Article, 2019, DOI
  • McCallion, P., Shi, J., Ferretti, L., & McCarron, M. , Utilizing the China Health and Retirement Longitudinal Study (CHARLS) to Understand the Aging of People Living in the Community with Intellectual and Developmental Disabilities, Health, 13, (1), 2021, p47 - 59Journal Article, 2021, DOI
  • Health and wellness among persons ageing with intellectual disability in, editor(s)M. Putnam, C. Bigby , Handbook on Aging with Disability, Routledge, 2021, [McCausland, D.; McCallion, P.; McCarron, M.]Book Chapter, 2021
  • Flannery, F., Sheerin, F., McCallion, P., Eustace-Cook, J., The impact of COVID-19 on the mental health and well-being of adults with an intellectual disability, THEconf2021: Transforming healthcare in a changing world: new ways of thinking and working, Trinity College Dublin, 10th and 11th March , 2021Oral Presentation, 2021
  • Fallon, M., McGlinchey, E., McCallion, P., & McCarron, M., Developing a biopsychosocial model of cognitive decline in people ageing with intellectual disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March , 2021Oral Presentation, 2021, URL
  • Wormald, A., McCallion, P., & McCarron, M., A life without loneliness: What results from the IDS-TILDA tell us is the best way to avoid loneliness in the lives of older people with an intellectual disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • McCarron, M., McCausland, D., Allen, A., Luus, R., & McCallion, P., The impact of the COVID-19 crisis for older people with an intellectual disability in Ireland, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • McCausland, D., McCallion, P., Murphy, E., Luus, R., & McCarron, M., The impact of the COVID-19 crisis on the social inclusion and well-being of older people with an intellectual disability in Ireland, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • Molloy, R., Burke, E., McCallion, P., & McCarron, M., A descriptive quantitative exploration of the foot health status of older adults with intellectual disability in Ireland over 10 years., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • Lynch, L., McCarron, M., McCallion, P. & Burke, E.,, Sedentary behaviour levels in adults with an intellectual disability: a systematic review, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', 9th - 11th March, 2021Oral Presentation, 2021, URL
  • McGlinchey, E., McCallion, P., & McCarron, M., Patterns of onset of dementia and epilepsy in adults with Down syndrome: Findings from IDS-TILDA., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • Monaghan, R., O'Dwyer, M., McCallion, P., McCarron, M., & Henman, M., The relationship between anti-epileptic drug load and behaviours that challenge in older adults with intellectual disability and epilepsy., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021
  • Monaghan, R., O'Dwyer, M., Luus, R., Mulryan, N., McCallion, P., McCarron, M., & Henman, M., Anti-epileptic drugs, seizures and effect of co-administration of potential seizure threshold lowering psychotropic drugs in adults with epilepsy & intellectual disability., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 2021Oral Presentation, 2021, URL
  • McDermott, S., O'Donovan, M-A., McCarron, M., McCallion, P., Lynch, L., & Burke, E., Training Older Adults with intellectual disabilities (ID) as Physical Activity leaders 2020 (PPALS2), Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • Murphy, E., McCausland, D., Korfage, I., Flygare Wallen, E., Koster, R., McCallion, P., & McCarron, M., Digi-ID: Digital Skills education to support better health and well being and social inclusion outcomes for adults with intellectual disabilities (ID), Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., & McCarron, M., Exploring a Social Conceptualisation of Frailty among Older Adults with an Intellectual Disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • Burke, E., Carroll, R., Walsh, J., McCallion, P., & McCarron, M., An exploration of the association between bone health and hand grip strength among older men with intellectual disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • Reilly, E., Carroll, R., McCallion, P., McCarron, M., & Burke, E., The impact of ageing for people with down syndrome over the age of 40-years living in Ireland. A 10-year longitudinal follow-up, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021Oral Presentation, 2021, URL
  • McCallion, P., & McCarron, M., Aging and Intellectual disabilities: A review of recent literature., Current Opinion in Psychiatry, 17, (5), 2004, p349 - 352Journal Article, 2004, DOI
  • Burke E, Dennehy H, Bakker A, Bowman S, Murphy E, Maes-Festen D., McCallion, P., McCarron, M, and Oppewal A., The Methodological Approach to the Co-Creation of Online Health Education with and for Individuals with Intellectual Disability, Global Journal of Intellectual & Developmental Disabilities, 7, (5), 2021Journal Article, 2021, DOI , URL , TARA - Full Text
  • Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P and McCarron M., Factors associated with the progression of deficit accumulation frailty among adults with an intellectual disability: a systematic review revealing research gaps, HRB Open Research, 2021Journal Article, 2021, DOI
  • Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Using Health Psychology Theory to inform research into Cognitive Decline in People with Intellectual Disability, Psychology, Health and Medicine , University College Cork, 12th-14th May 2021, 2021Poster, 2021, URL
  • Todd, S., Bernal, J., Worth, R., Shearn, J., Brearley, S., McCarron, M., & Hunt, K., Hidden lives and deaths: the last months of life of people with intellectual disabilities living in long-term, generic care settings in the UK, Journal of Applied Research in Intellectual Disabilities, 2021, p1 - 10Journal Article, 2021, DOI , URL
  • Tuffrey-Wijne, I., Dhollander, N., Forrester-Jones, R., Westergård, B-E., Karbasi, C., Oliver, D., Abu-Saad Huijer, H., Uitdehaag, M., Echteld, M., Groot, M., McCarron, M., McCallion, P., Schäper, S., Todd, S., Wark, S., Roemer, A. & Previous, K., Palliative and End-of-life Care, People with IDD & Covid-19 (PEPIC-19): an international survey, Journal if Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress Value Diversity, Virtual, 6th July - 8th July, 34, (5), Blackwell Publishing LTD, 2021, pp1468 - 1371Oral Presentation, 2021, DOI , URL
  • Mac Giolla, Phadraig C., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Non-restrictive support strategies for adults with intellectual disabilities: A focus group study exploring dentists decision making and communication., 2019Journal Article, 2019
  • McCausland, D., Carroll, R., McCallion, P., & McCarron, M. , Friendship for older people with intellectual disabilities in Ireland., TTrinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • Murphy, E., McCausland, D., McCallion, P., & McCarron, M. , Technology use and social inclusion for older adults with an intellectual disability in Ireland., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • McCarthy, C., McCallion, P., & McCarron, M., Providing optimum end of life care to people with an intellectual disability living in residential care., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • O'Connell, J., O'Dwyer, M., McCallion, P., McCarron, M., & Henman, M,, Frailty and its association with medication use in older adults with intellectual disability: an observational cross-sectional study, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • Sheerin, F., Mulryan, N,, McCallion, P., & McCarron, M., Is depressive symptomology affected by physical activity and vitality in a cohort of older Irish adults with intellectual disability? Results from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., & McCarron, M., Factors associated with frailty among older adults with an intellectual disability: a systematic review of the literature, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • McDermott, S., O'Donovan, M-A., McCarron, M., McCallion, P., Lynch, L., & Burke, E., Older adults with intellectual disabilities (ID) as physical activity leaders in Ireland and Spain, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • Monaghan, R., O'Dwyer, M., McCallion, P., McCarron, M., & Henman, M., Patterns of anti-epileptic drug use, seizures and co-administration of proconvulsive psychotropic drugs in older adults with epilepsy and intellectual disability in Ireland, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • Wormald, A., McCallion, P., & McCarron, M., A complete model of loneliness in the ageing intellectual disability population, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • McGlinchey, E., McCallion, P., & McCarron, M., Engaging the Down syndrome community in dementia prevention research, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020Oral Presentation, 2020, URL
  • Al Shuhaimi L, Henman M, McCallion P, McCarron M, O'Dwyer M, The impact of long-term exposure to anticholinergics among people with intellectual disabilities: a scoping review protocol. , HRB Open Research, 4, (62), 2021Journal Article, 2021, DOI
  • O'Dwyer M, Watkins L, Henman M, McCallion P, McCarron M, Shankar R., Optimising Medicines Use in Older Adults with Intellectual Disability who have epilepsy: Challenges and Perspectives, Therapeutic Advances in Drug Safety, 12, 2021, p1 - 5Journal Article, 2021, DOI
  • McCausland, D., Luus, R., McCallion, P., Murphy, E., & McCarron, M., The impact of COVID-19 on the social inclusion of older adults with an intellectual disability during the first wave of the pandemic in Ireland, Journal of Intellectual Disability Research, 2021Journal Article, 2021, DOI
  • Donohoe, N., McCarron, M., McCallion, P. and Burke, E., A novel approach to engaging people with intellectual disability as contributors in research, IASSIDD 6th European Congress, Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 2021, IASSIDDInvited Talk, 2021, DOI , URL
  • Molloy, R., McCarron, M., McCallion, P. and Burke, E., A longitudinal exploration of the foot health status of older adults with intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371Oral Presentation, 2021, DOI , URL
  • Chen, S., McCarron, M., McCallion, P. and Burke, E., The use of Timed up and Go: Identifying mobility issues amongadults with intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371Oral Presentation, 2021, DOI , URL
  • Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., and McCarron, M., Social frailty among older adults with an intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371Poster, 2021, DOI , URL
  • Lynch, L., McCallion, P., McCarron, M. and Burke, E., Examining the sedentary behaviour levels among older adults withintellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371Oral Presentation, 2021, DOI , URL
  • Lynch L, McCarron M, McCallion P and Burke E., Sedentary behaviour levels in adults with an intellectual disability: a systematic review and meta-analysis, HRB Open Res, 4, (69), 2021Journal Article, 2021, DOI , URL
  • Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Developing A Biopsychosocial Model of Cognitive Decline in People Ageing with Intellectual Disability, IASSIDD Virtual 2021, Amsterdam, the Netherlands, 6-8th July 2021, 2021Conference Paper, 2021, URL
  • Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Developing A Biopsychosocial Model of Cognitive Decline in People Ageing with Intellectual Disability, IASSIDD Virtual 2021, Amsterdam, the Netherlands, 6-8th July 2021, 2021Oral Presentation, 2021, URL
  • Monaghan R, O'Dwyer M, Luus R, Mulryan N, McCallion P, McCarron M, Henman MC, The relationship between antiepileptic drug load and challenging behaviors in older adults with intellectual disability and epilepsy, Epilepsy & Behavior, 122, 2021Journal Article, 2021, DOI , URL , TARA - Full Text
  • Darker CD., Mullin M., Doyle L., Tanner M., McGrath D., Doherty L., Dreyer-Gibney K., Barret EM., Flynn D., Ivers J, Burke E, Ryan M., McCarron M., Murphy P., et alia, Developing a healthy university campus in Trinity College Dublin - overview and an outline process evaluation , Health Promotion International, 2021Journal Article, 2021, DOI , URL
  • McCarron, M., Allen, A., McCausland, D., Haigh, M., Luus, R., Bavussantakath, F.R., Sheerin, F., Mulryan, N., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey., HRB Open Research, 4, (95), 2021Journal Article, 2021, DOI
  • McCarron, M., McCausland, D., Luus, R., Allen, A., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of coronavirus disease 2019 (COVID-19) on older adults with an intellectual disability during the first wave of the pandemic in Ireland, HRB Open Research, 4, (93), 2021Journal Article, 2021, DOI
  • Exploring the intellectual disability data landscape for policy and service directions: An Irish perspective in, editor(s) i ka, J. & Beadle-Brown, J. , The Development, Conceptualisation and Implementation of Quality in Disability Support Services, Prague, Karolinum Press, 2021, [O'Donnovan, M-A., Craig, S., McCallion, P., McCarron, M. & Byrne, E.]Book Chapter, 2021, URL
  • Maguire, E., Mulryan, N., Sheerin, F., McCallion, P. & McCarron, Autism Spectrum Disorder in Older Adults with Intellectual Disability - A Scoping Review, Irish Journal of Psychological Medicine , 2021, p1 - 14Journal Article, 2021, DOI , URL
  • O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E., and McCarron, M., Reflections about hypertension in older adults with an intellectual disability: the importance of Home Blood Pressure Monitoring (HBPM)-Authors' reply,, European Journal of Cardiovascular Nursing, 20, (4), 2021, p391Journal Article, 2021
  • Ryan, J., McCallion, P., McCarron, M., Luus, R., Burke, E.A., Overweight/obesity and chronic health conditions in older people with intellectual disability in Ireland, Journal of Intellectual Disability Research, 2021Journal Article, 2021, DOI , URL
  • McCarron, M., McCallion, P., Burke, E., & Timmins, F., End of Life Care for People with an Intellectual Disability a Qualitative Exploration of Staff Carers' Experiences, BMC Palliative Care, 2021Journal Article, 2021, DOI , URL
  • Burke. E., Carroll, R., Ding, AW., Yaman, M., Walsh, JB., McCallion P and McCarron M., Men's Bones Matter Too, a Cross Sectional Study Examining Bone Health among Men with Intellectual Disability in Ireland., OBM Geriatrics , 5, (4), 2021Journal Article, 2021, DOI , URL , TARA - Full Text
  • Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19 in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of life and people with intellectual and developmental disability: Contemporary issues, challenges, experiences and practice, Switzerland, Palgrave Macmillan Cham, 2022, pp235 - 264, [McCarron, M., Kelly, K., McCallion, P., Burke, E., Haigh, M. and Wormald A.]Book Chapter, 2022, DOI
  • Sheerin, F., Allen, A.P., Fallon, M., McCallion, P., McCarron, M., Mulryan, N., Chen, Y., Staff Mental Health while Providing Care to People with Intellectual Disability during the Covid-19 Pandemic, British Journal of Learning Disabilities, 2022Journal Article, 2022, URL
  • McCarron, M., McCausland, D., McGlinchey, E., Bowman, S., Foley, M., Haigh, M., Burke, E. & McCallion, P., Recruitment and retention in longitudinal studies of people with intellectual disability: A case study of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Research in Developmental Disabilities, 124, 2022Journal Article, 2022, DOI
  • Byrne, K., MacGiolla Phadraig, C., Daly, B., McCarron, M. & McCallion, P., The Oral Health Status of Older People with Intellectual Disabilities in Ireland. Initial Findings., International association of disability and oral health (IADH) , Paris, France, 24th - 26th August, 2022Poster, 2022
  • Lynch, L., McCarron, M., Eustace-Cook, J., McCallion, P. & Burke, E. , Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review, Journal of Intellectual Disabilities, 2022, p1 - 27Journal Article, 2022, DOI , URL
  • Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M., End of Life and People with Intellectual and Developmental Disability. Contemporary Issues, Challenges, Experiences and Practice., 1, Switzerland, Palgrave Macmillan Cham, 2022, XXXIV - 519ppBook, 2022, DOI , URL
  • Experience of End-of-Life Issues by People with Intellectual Disability in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp29 - 57, [Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M.]Book Chapter, 2022, DOI , URL
  • Living and Dying Well with Dementia in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp179 - 209, [McCarron, M., Allen, A.P., Mulryan, N., Leigh, M., O'Reilly, L., McCarthy, C., Dunne, P., Reilly, E. & McCallion, P.]Book Chapter, 2022, DOI , URL
  • Building Shared End-of-Life Supports and Cross-Training for Hospice/Palliative and Intellectual Disability Services Providers in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp211 - 233, [Ferretti, L.A., McCarron, M. & McCallion, P.]Book Chapter, 2022, DOI , URL
  • Accessible Funerals and People with Intellectual Disability in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp265 - 296, [Forrester-Jones, R., McCallion, P., McCarron, M., Stancliffe, R.J. & Wiese, M.Y.]Book Chapter, 2022, DOI , URL
  • Use of Do-Not-Resuscitate Orders in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp407 - 434, [McCallion, P., Ferretti, L.A. & McCarron, M.]Book Chapter, 2022, DOI , URL
  • Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice in, End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp435 - 463, [Wiese, M.Y., Stancliffe, R., McCallion, P. & McCarron M.]Book Chapter, 2022, DOI , URL
  • Kirwan, R., Sheerin, F., McGlinchey, E., McCallion, P. & McCarron, M., Functional loss in older adults with intellectual disabilities and dementia, Learning Disability Practice, 2022Journal Article, 2022, DOI
  • Wormald, A., McCallion, P., Lynch, L., Kelly, K. & McCarron, M., Quality care at end-of-life: comparing reported delivery to European consensus norms for palliative care of people with an intellectual disability., IASSIDD: Virtual 2022 International Conference Series, VIrtual, 6th November 2022, 2022Oral Presentation, 2022, URL
  • Brennan, D., D'eath, M., Dunne, N., O'Donovan, M-A., McCallion, P., & McCarron, M., ). Irish Social Policy to Family Carers of Adults with an Intellectual Disability: A critical analysis, Journal of Intellectual Disability, 2022Journal Article, 2022, DOI
  • McCarron, M., Wark, S. & Maes-Fenton, D., People with Intellectual disabilities aging successfully across the globe'., IASSIDD: Virtual 2022 International Conference Series, Virtual, Friday, 20th May, 2022Oral Presentation, 2022, URL
  • Dennehy H., Allen A.P., McGlinchey E., Buttery N., Garcia-Dominguez L., Chansler R., Corr C., Dunne P., Kennelly S., Daly L. McCallion P. and McCarron M., A scoping review of post-diagnostic dementia supports for people with intellectual disability, Aging and Mental Health, 2022Journal Article, 2022, URL
  • Chen Y, Allen A P, Fallon M, Mulryan N, McCallion P, McCarron M and Sheerin F, The challenges of mental health of staff working with people with intellectual disabilities during COVID-19 - A systematic review, Journal of Intellectual Disabilities, 2022Journal Article, 2022
  • Gorman, A., Odalovi", M., McCallion, P., Burke, EA., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M, Examining Quality, Use and Impact of Psychotropic (Use) in older adults with intellectual disabilities: study protocol, HRB Open Research, 5, (71), 2022Journal Article, 2022, DOI
  • O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E-A. & McCarron, M., Hypertension in Older Adults. The prevalence, awareness, treatment and control of hypertension in older adults with an Intellectual Disability: a cross sectional study., JBI Evidence Synthesis , 20, (7), 2022Journal Article, 2022, DOI , URL
  • McCausland, D., McCarron, M. & McCallion, P., Use of technology by older adults with an intellectual disability in Ireland to support health, well-being and social inclusion during the COVID-19 pandemic, British Journal of Learning Disabilities., 2022, p1 - 16Journal Article, 2022, DOI
  • Wormald A, McGlinchey E, D'Eath M, Leroi I, Lawlor B, McCallion P, McCarron M, O'Sullivan R. & Chen Y., Impact of COVID-19 Pandemic on Caregivers of People with an Intellectual Disability, in Comparison to Carers of Those with Other Disabilities and with Mental Health Issues: A Multicountry Study., International Journal of Environmental Research and Public Health. , 20, (4), 2023Journal Article, 2023, DOI , TARA - Full Text
  • Kelly, K., Haigh, M., McCarron, M., McCallion, P., Burke, E-A. & Wormald, A-D., Moral distress in carers for people with an intellectual disabilitywho died during the COVID-19 pandemic, a template analysisextending the Barlem and Ramos model of moral distress., Journal of Applied Research in Intellectual Disabilities, 2023, p1 - 9Journal Article, 2023, DOI , TARA - Full Text
  • Andrew Wormald, The antecedents of loneliness on older people with an intellectual disability, The antecedents of loneliness on older people with an intellectual disability, 85, 2019, p116 - 130Journal Article, 2019, URL
  • Wormald, A.D, McCarron, M. & McCallion, P., Loneliness, isolation and social asymmetry in older people with an intellectual disability., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March., 2023Oral Presentation, 2023, URL
  • Timmins, F., McCausland, D., Brennan, D., Sheerin, F., Luus, R., McCallion, P., & McCarron, M. , A national cohort study of spiritual and religious practices of older people with intellectual disability, A national cohort study of spiritual and religious practices of older people with intellectual disability, 0, 2023, phttps://doi.org/10.1177/174462Journal Article, 2023, URL
  • Ganley, B., McCausland, D., McCallion, P, McCarron, M. and Burke, E., Choice and people with an intellectual disability as they age., Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin, 8-10 March 2022, 2022Oral Presentation, 2022, URL
  • Burke, E., McCallion, P., McCarron, M. and Foran, S., Falls and fear of falls among older adults with intellectual disability, Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin, 8-10 March 2022, 2022Oral Presentation, 2022, URL
  • Chen, S., McCallion, P., McCarron, M. and Burke, E., A descriptive quantitative exploration of the factors associated with mobility limitations in adults with intellectual disability in Ireland, Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin., 2022Oral Presentation, 2022, URL
  • Epidemiological Issues in Intellectual Disability and Aging Research. in, editor(s)V.P. Prasher, & M.P. Janicki. , Physical Health of Adults with Intellectual and Developmental Disabilities, Switzerland., 2019, pp9 - 26, [McCallion, P., Ferretti, L-A., Beange, H & McCarron, M.]Book Chapter, 2019, DOI
  • Odalovic, M., Gorman, A., McCallion, P., Burke, E., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M., Psychotropic drug use among adults with intellectual disabilities in Ireland: trend analysis for 10-year period., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023Poster, 2023, URL
  • McCausland, D., McCallion, P. & McCarron, M., Use of technology by older adults with an intellectual disability in Ireland to support health, well-being and social inclusion during the COVID-19 pandemic., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023Oral Presentation, 2023, URL
  • Odalovic, M., Gorman, A., McCallion, P., Burke, E., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M., Prevalence and pattern of psychotropic use among older adults with intellectual disabilities in Ireland: What"s changed between two time points, 2010 and 2020?., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023Oral Presentation, 2023, URL
  • Al Shuhaimi, L., O'Dwyer, M., Henman, M., McCarron, M. & McCallion, P., Long-term exposure to anticholinergics among people with intellectual disabilities: a longitudinal cohort study., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023Oral Presentation, 2023, URL
  • McMahon, M., Wormald, A., McCallion, P. & McCarron, M., Cancer deaths in older adults with intellectual disability in Ireland, Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023Oral Presentation, 2023, URL
  • Fitzpatrick, D., McCallion, P., McCarron, M. & Burke, E., Epidemiology of constipation and its associated risk factors in an ageing population of people with intellectual disability in Ireland: A cross-sectional study., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March., 2023Oral Presentation, 2023
  • Gnann, U., Ryan, C., Paul, A., McCarron, M., McCallion, P.. & Burke, E., A cross-sectional exploration of the prevalence and impact of urinary incontinence among ageing adults with intellectual disability in Ireland., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 2023Oral Presentation, 2023, URL
  • Abdullah, Z., Paul, P., Pavithra, P., McCallion, P., McCarron, M. & Burke, E., The prevalence of epilepsy and osteoporosis in those with intellectual disability., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023Oral Presentation, 2023, URL
  • Lynch, L., McCarron, P., McCallion, P. & Burke, E., A longitudinal exploration of self-reported TV behaviours as a surrogate for sedentary behaviour in older adults with an intellectual disability., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023Oral Presentation, 2023
  • Sheerin, F., Fleming, S., May, P., McCallion, P., McCarron, M., Naseer, A., Lalor, G. & D'Eath, M., Challenges in Care and Service Provision for Older Adults with Intellectual Disabilities and Complex Age-Related Conditions in Ireland, British Journal of Learning Disabilities, 2024Journal Article, 2024, TARA - Full Text
  • McMahon M, Wormald A, Eustace-Cook J, McCarron M, McCallion P and Smith V, Prevalence and incidence of cancer amongst adults with intellectual disability " a systematic review and meta-analysis protocol, HRB Open, 2024Journal Article, 2024, DOI , TARA - Full Text
  • O'Brien, F., McCallion, P., Ryan, C., Paul, A., Burke, É., Echiverri, S., & McCarron, M., Does Arterial Stiffness Predict Cardiovascular Disease in Older Adults With an Intellectual Disability?., Journal of Cardiovascular Nursing, 2023Journal Article, 2023, DOI , TARA - Full Text
  • From Adulthood to Older Age - Ageing and Intellectual Disability. in, editor(s)Sheerin, F. & Doyle, C. , Intellectual Disabilities: Health and Social Care Across the Lifespan., Switzerland., Springer Cham., 2023, pp147 - 158, [McCallion, P. & McCarron, M.]Book Chapter, 2023, DOI
  • McDermott, S., McCarron, M., Burke, EA., McCallion, P. and O'Donovan, MA., Enabling older adults with intellectual disability to become physical activity leaders in their community: Pilot study, Journal of Intellectual Disability Research, 2023Journal Article, 2023, DOI
  • Allen, A-P., McGlinchey, E., Fallon, M., McCallion, P. & McCarron, M., Cognitive reserve and dementia risk management in people with an intellectual disability., International Journal of Geriatric Psychiatry, 2023Journal Article, 2023, DOI , TARA - Full Text
  • Brennan, D., D'eath, M., McCallion, P. & McCarron, M., Health and well-being of sibling carers of adults with an intellectual disability in Ireland: Four waves of data., British Journal of Learning Disabilities., 2023Journal Article, 2023, DOI , TARA - Full Text
  • McCarron, M., PPI and Intellectual Disability. A Case Study from the IDS-TILDA Study, R2D2-MH, the Horizon Europe: Public and Patient Involvement: What it is and how to do it, Online, 7th February, 2023, R2D2-MHInvited Talk, 2023
  • McCausland, D., McCallion, P., Carroll, R. & McCarron, M., Barriers to Community Participation for Adults Aging With an Intellectual Disability in Ireland: A Longitudinal Study, Inclusion, 11, (3), 2023, 204, p217Journal Article, 2023, DOI , TARA - Full Text
  • Fitzpatrick, D., McCallion, P., McCarron, M., and Burke, EA., Epidemiology of constipation and its associated factors in an ageing population of people with an intellectual disability in Ireland: A cross-sectional study., Journal of Intellectual & Developmental Disability, 2023Journal Article, 2023, DOI , TARA - Full Text
  • Louise Lynch, Mary McCarron, Jessica Eustace-Cook, Philip McCallion, Eilish Burke, Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review, Journal of Intellectual Disabilities, 2022Journal Article, 2022, URL , TARA - Full Text
  • Lynch, L., McCarron, M., McCallion, P. and Burke, E. A., A longitudinal exploration of self-reported TV behaviours as a surrogate for sedentary behaviour in older adults with an intellectual disability from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA) study, Journal of Intellectual Disabilities, 2024Journal Article, 2024, TARA - Full Text
  • Odalovic, M., Gorman, A., Paul, A., McCallion, P., Burke, E.A., MacLachlan, M., McCarron, M., Henman C, M., Moran, M., O"Connell, J., Walsh, M., Shankar, R., Ryan, C. & O"Dwyer, M., Psychotropic medicines' prevalence, patterns and effects on cognitive and physical function in older adults with intellectual disability in Ireland: longitudinal cohort study, 2009-2020, BJPsych Open, 10, (2), 2024Journal Article, 2024, TARA - Full Text
  • McCausland, D.,Haigh, M., McCallion, P. & McCarron, M., IRB challenges in multisite studies: A case report and commentary from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA)., HRB Open Research., 7, (3), 2024Journal Article, 2024, DOI
  • Fallon, M.,McCallion, P., McCarron, M. & McGlinchey, E., An Exploration of Biopsychosocial Risk Factors for People Ageing with Down syndrome in Ireland, 5th International Conference of the Trisomy 21 Research Society, Rome, 5th - 8th June, 2024Oral Presentation, 2024
  • King, E., Cremin, K., McCallion, P., McCarron, M. and Burke, EA., Supporting adults ageing with intellectual disabilities to complete measures of sensory processing, THEConf2024 Trinity Health and Education International Research Conference, Dublin, ireland, 5-7 March 2024, 2024Oral Presentation, 2024
  • Kibsgaard Larsen, F., Asaad Baksh, R.,McGlinchey, E., Melbye Langballe, E., Benejam, B., Beresford-Webb, J., McCarron, M., Coppus, A., Falquero, S., Fortea, J., Levin, J., V.Loosli, V., Mark, R., Rebillat, A-S., Zaman, S. & Strydom, A., Age of Alzheimer's disease diagnosis in people with Down syndrome and associated factors: Results from the Horizon 21 European Down syndrome consortium, The Journal of the Alzheimer's Association, 2024Journal Article, 2024, DOI , TARA - Full Text
  • McGlinchey, E., Daly, L., Allen, A., Dennehy, H., Buttery, N., Corr, C., McCallion, P., Kennelly, S., Dunne, P., McCarron, M., Developing Best Practice Guidelines for Post-Diagnostic Dementia Support for People with an Intellectual Disability, 33rd Alzheimer Europe Conference, Helsinki, 16-18 October 2023, 2023Oral Presentation, 2023
  • Fitzpatrick, DJ., McCallion, P., McCarron, M., and Burke, EA., Constipation severity and its progression in older people with an intellectual disability in Ireland: A longitudinal study., Trinity Health and Education International Research Conference (THEconf2024):, Trinity College Dublin, March 6th - 7th, 2024Conference Paper, 2024, URL
  • Lynch, L., McCarron, M., McCallion, P. and Burke, EA., To identify and compare objectively measured and self-reported activity levels among older adults with an intellectual disability., Trinity Health and Education International Research Conference (THEconf2024):, Trinity College Dublin, 5-7th March 2024, 2024Conference Paper, 2024
  • Power, A., McCarron M., McCallion, P., and Burke, EA., Bone Health Screening in People with Intellectual Disability, Trinity Health and Education International Research Conference (THEconf2024):, Trinity College Dublin, 5-7th March, 2024Conference Paper, 2024, URL
  • Synnott Faria, I., McCarron, M., McCallion, P., Burke, EA and McCausland, D., Building circles of support: a project demonstrating case studies of good practice for people with intellectual disabilities, Trinity Health and Education International Research Conference (THEconf2024), Trinity College Dublin, 5-7th March 2024, 2024Conference Paper, 2024
  • Corrigan, S., McCallion, P., McCarron, M. and Burke, EA., The impact of menopause on the mental health of women with an intellectual disability: a scoping review, Trinity Health and Education International Research Conference (THEconf2024), Trinity College Dublin, 2024Conference Paper, 2024
  • Burke, EA., Carroll, R., Walsh, JB., McCallion, P. and McCarron, M., Ageing, osteoporosis, and intellectual disability; risks differ, and diagnosis can be missed, British Journal of Learning Disabilities, 2024Journal Article, 2024, URL
  • Judy Ryan, Overweight and ovesity in older adults with an intellectual disability, Trinity College Dublin, 2024Thesis, 2024
  • Hillerstrom, H.,Fisher, R.,P. Janicki,M.,Chicoine, B., T. Christian, B., Esbensen, A., Esralew, L., Fortea, J., Hartley, S., Hassenstab, J., M. Keller, S., Krinsky-McHale, S., Lai, F.,Levin, J.,McCarron, M., McDade, E., Sophie Rebillat, A., Diana Rosas, H., Silverman, W., Strydom, A., H. Zaman, S. & Zetterberg, H., Adapting prescribing criteria for amyloid-targeted antibodies for adults with Down syndrome, The Journal of Alzheimer's Association, 2024Journal Article, 2024, DOI
  • McCallion, P., McCarron, M., & Force, L.T. , A Measure of Subjective Burden for Dementia Care: The Caregiving Difficulty Scale-Intellectual Disability, Journal of Intellectual Disability Research, 49, (5), 2005, p365 - 371Journal Article, 2005, DOI
  • McCallion, P., Nickle, T., & McCarron, M., A comparison of reports of caregiver burden between foster family care providers and staff caregivers of persons in other settings, Dementia, 4, (3), 2005, p401 - 412Journal Article, 2005, DOI
  • Cosgrove, M., Tyrrell, J., McCarron, M., Gill, M., Lawlor, B., A Five Year Follow up Study of Dementia in Persons with Down's Syndrome: Early Symptoms and Patterns of Deterioration., Irish Journal of Psychological Medicine 17(1) 5-11., 17, (1), 2000, p5 - 11Journal Article, 2000
  • McCarron, M., Tyrell, J., Cosgrave, M., Lawlor, B., Gill, M.J., Influence of APO-E alleles on risk for dementia in Down's syndrome., American Journal Medical Genetics, 96, (4), 2000, p178-Journal Article, 2000
  • McCarron, M. , Some Issues in Caring for persons with the dual diagnosis of Alzheimer's dementia and Down's syndrome, Journal of Learning Disability for Nursing Health and Social Care, 3, (3), 1999, p123 - 129Journal Article, 1999
  • Cosgrove, M., Tyrrell, J., McCarron, M. , Gill, M., Lawlor, B, Age at onset of dementia and age of menopause in women with Down's syndrome., . Journal of Intellectual Disability Research, 43, (6), 1999, p461 - 465Journal Article, 1999, DOI
  • Cosgrave M, Tyrrell J, McCarron M, Gill M, Lawlor, BA, Determinants of aggression, and adaptive and maladaptive behaviour in older people with Down's syndrome with and without dementia., Journal of Intellectual Disability Research, 43, (5), 1999, p393 - 399Journal Article, 1999, DOI
  • Intellectual disabilities and dementia in, editor(s)K. Doka , Living with Grief: Alzheimer's disease, Washington, DC, Hospice Foundation of America, 2004, pp67 - 84, [McCallion, P., & McCarron, M. ]Book Chapter, 2004
  • Nurses Roles in Supporting Aging Persons with Intellectual Disability and Mental Health Problems: Challenges and Opportunities for Care in, editor(s)P. Davidson, V. Prasher, & M.P. Janicki , Mental Health, Intellectual Disabilities and the Aging Process., London, Blackwell, 2003, [McCarron M. & Griffiths, C]Book Chapter, 2003
  • Building Supports for Women with Intellectual Disabilities Across the Lifespan: A Nursing Perspective with Practical Considerations in, editor(s)P.N. Walsh, & T. Heller , Health of Women with Intellectual Disabilities, London, Blackwell, 2002, pp190 - 203, [McCarron M. and Service K. P. ]Book Chapter, 2002
  • McCarron M, Gill M, McCallion P, Begley C. , Health co-morbidities in ageing persons with Down Syndrome and Alzheimber's dementia., Journal of Intellectual Disability Research, 49, (7), 2005, p560 - 566Journal Article, 2005, DOI , URL
  • McCarron M, Gill M, Lawlor B, Begley C. , Time spent caregiving for persons with the dual disability of Down syndrome and Alzheimer's dementia: Preliminary findings. , Journal of Learning Disabilities, 6, (3), 2002, p263 - 279Journal Article, 2002, DOI
  • Nolan, L., McCarron, M., McCallion, P. and Murphy-Lawless, J. , Presentation of the findings of Stigma in dementia: an exploratory study', The Right to be Heard, The Alzheimer Society of Ireland, Annual National Conference 2006, Sligo Park Hotel, 18th November , 2006Conference Paper, 2006
  • Nolan, L., McCarron, M., McCallion, P., & Murphy-Lawless, J., Perceptions of Stigma in Dementia: An exploratory study, Dublin, The Alzheimer Society of Ireland, September, 2006, p1 - 116Report, 2006, URL
  • McCarron, M., Assessment of Dementia in Persons with Intellectual Disability: Challenges and Opportunities, The Frontline of Learning Disability, 64, (Winter), 2005, p24 - 27Journal Article, 2005
  • Supporting Families who have Aging Members with Disabilities. in, Walsh, P.N., Carr, A.,O'Reilly, G. ,& McEvoy, J. , The Handbook of Intellectual Disability and Clinical Psychology Practice, London: Routledge., 2007, pp867 - 899, [McCarron, M., & McCallion, P. ]Book Chapter, 2007
  • McCallion P., & McCarron M, Perspective on Quality of Life in Dementia Care. , Intellectual and Developmental Disabilities, 45, (1), 2007, p56 - 59Journal Article, 2007, DOI
  • The Test for Severe Impairment. in, editor(s)NY: Springer. , Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities. , 2009, [Mulryan, N., Tyrrell, J., Cosgrave, M., Reilly, E. McCallion, P., & McCarron, M. ]Book Chapter, 2009, DOI
  • Fealy, G., McCarron, M., O'Neill, D., McCallion, P., Clarke, M., Small, V., O'Driscoll, A., & Cullen, A. , Effectiveness of gerontologically informed nursing assessment and referral interventions for older persons attending the emergency department: systematic review, Journal of Advanced Nursing, 65, 2009, p934-945.Journal Article, 2009, DOI , TARA - Full Text
  • Hynes, G. & McCarron, M., Identifying Palliative Care Needs of Patients with COPD. , Irish Journal of Medical Science, , 177, 2008Journal Article, 2008
  • Lambert, V., Glacken, M., McCarron, M, Visible-ness?: The nature of communication for children admitted to a specialist paediatric hospital in the Republic of Ireland, Journal of Clinical Nursing, 17, 2008, p3092 - 3102.Journal Article, 2008, DOI
  • McCarron, M. & McCallion, P. , ) End of Life Care Challenges for Persons with Intellectual Disability and Dementia: Making Decisions About Tube Feeding, Intellectual and Developmental Disabilities, 45(2) , 2007, p128-131.Journal Article, 2007, DOI
  • McCarron, M, & McCallion, P, A Revised Stress and Coping Framework , Journal of Policy and Practice in Intellectual Disabilities, 2, 2005, p139 - 148Journal Article, 2005, DOI
  • Lambert, V., Glacken, M., McCarron, M., A protection-participation dichotomy: communicating with children in healthcare. 1st International Children's Conference. Children and Young People in a Changing World., Queens University Belfast., 23rd-24th April 2009, 2009Meeting Abstract, 2009
  • Lambert, V., Glacken, M. and McCarron, M., Communicating with Children in Health Care: A Sociological Perspective. 9th Annual Interdisciplinary Research Conference.Transforming Healthcare through Research Education and Technology, School of Nursing and Midwifery Studies. Trinity College Dublin. , 05-NOV, 2008Meeting Abstract, 2008
  • Lambert, V., Glacken, M. and McCarron, M., , Getting to grips with Ethnography., 3rd Symposium on Current Developments in Ethnographic Research in the Social and Management Sciences, University of Liverpool. , 03-SEP, 2008Meeting Abstract, 2008
  • Lambert, V., Glacken, M., McCarron, M, Communicating with Children in Health Care: Children as Human Becoming and/or Human Beings, 2nd International Conference. Re-presenting Childhood and Youth,, University of Sheffield , 08-JUL, 2008Meeting Abstract, 2008
  • Lambert, V., Glacken, M., McCarron, M., , The challenge of communicating with children in a technological age, 10th International Paediatric and Child Health Nursing Conference, Darwin, Northern Territory, Australia , 30-APR-08 -02-MAY-08, 2008Meeting Abstract, 2008
  • Lambert,V., Glacken, M. & McCarron, M, , Visible-ness": The degree to which children are included or excluded in the communication process. Participatory Methods Seminar, Researching Children's Worlds: Sharing Knowledge to Improve Action. Training Event,, Galway , 08-FEB-08 -08-FEB-08, 2008Meeting Abstract, 2008
  • Lambert, V. Glacken, M. & McCarron, M, Being at or brought to the forefront: one dimension of the nature of communication for children admitted to a specialist paediatric hospital in the Republic of Ireland., 3rd International Congress on Pediatric Nursing. Children and Young Peoples Nursing: Looking Forward, Athens, Greece. , 24-AUG-07 -25-AUG-07, 2007Meeting Abstract, 2007
  • Lambert, V., Glacken, M. & McCarron, M, Being overshadowed: one aspect of the process of communication between children and health care professionals in a paediatric hospital setting, RCN International Nursing Research Conference, Dundee, Scotland. , 01-MAY-07 -04-MAY-07, 2007Meeting Abstract, 2007
  • McCarron, M, Fahey-McCarthy, E., Connaire, K., McCallion, P , Role and Timing of Palliative Care in Supporting persons with Intellectual Disability and Advanced Dementia. , Embracing the Challenge: Citizenship and Dementia. , The Dementia Services Development Centre Northern Ireland. Stormont Hotel. , 6th -8th May 2008, 2008Meeting Abstract, 2008
  • McCarron, M, Fahey-McCarthy, E., Connaire, K., McCallion, P , Palliative Care and Persons with Intellectual Disability and Dementia: Recent Innovations and Developments. , 7th Annual Kaleidoscope Conference Pearls and Promises: The changing face of Palliative Care Practice, Dublin Castle , 11TH -12TH June 2008, 2008Meeting Abstract, 2008
  • Neenan, K .,McCarron, M, Connaire, K., Cox, K, Day in Day out. Echoes of Hospice Day Care. 7th Annual Kaleidoscope Conference Pearls and Promises: The changing face of Palliative Care Practice. , Dublin Castle, 11TH -12TH June 2008, 2008Meeting Abstract, 2008
  • Neenan K Mc Carron M Connaire K Cox K , Challenges encountered while researching end of life care in a specialist Palliative Care Hospice Day Service in the Republic of Ireland. Royal College of Surgeons in Ireland., Annual International Nursing and Midwifery Research Conference, Royal College of Surgeons in Ireland, 20th-21st Feb, 2008Meeting Abstract, 2008
  • Neenan K Mc Carron M Connaire K Cox K , Precious Moments in Hospice Day Care , The 8th International Conference, The Social Context of Death, Dying and, Bath UK., 12-15 September 2007, 2007Meeting Abstract, 2007
  • Neenan K Mc Carron M Connaire K Cox K , Precious Moments in Hospice Day Mortality , Supplement vol 12 , 2007Meeting Abstract, 2007
  • Neenan K Mc Carron M Connaire K Cox K , Day by Day Patients' experiences of Hospice Day Care., School of Nursing and Midwifery Trinity College Dublin 8th Annual Interdisciplinary Research Conference Transforming Healthcare through Research, Education and Technology , 7th - 9th Nov 2007, 2007Meeting Abstract, 2007
  • Nolan, L. McCarron, M., McCallion, P. and Muprhy-Lawless, J., , 'Stigma in dementia' - reality or myth, supportive or non-supportive? , Irish Journal of Medical Science - Conference Proceedings of 55th Annual Scientific Meeting of the Irish Gerontological Society,, 176, (S6), , 2006, pppS256 - S257.Conference Paper, 2006
  • McCarron M, Nolan, L., McCallion, P. and Murphy-Lawless, J, Loss of Place-Understanding Dementia Related Stigma from and Irish Perspective, 17th Alzheimer's Europe Conference -Estoril Spain , Estoril Spain , 9th -12th May 2007, 2007Meeting Abstract, 2007
  • McCarron, M., McCallion, P., Reilly, E., & McLaughlin, M. , Encouraging earlier assessment of dementia, IASSID Europe Conference, Maastricht, Holland., 2006Conference Paper, 2006
  • McCallion, P., & McCarron, M. , ). Dementia and Carer Burnout: Usefulness of the MBI. IASSID , Europe Conference, Maastricht, Holland, 2006Conference Paper, 2006
  • McCallion, P., Maniccia, D., Bashant, J., & McCarron, M. , Systematic Literature Review and a Meta-Analysis of Intervention Effectiveness Findings Addressing Quality of life for Nursing Home Residents with Dementia., Gerontological Society of America Annual Scientific Meeting, Orlando, Florida., 2005Conference Paper, 2005
  • McCarron, M., McCallion, P., & McLaughlin, M, Findings from a Memory Clinic for Persons with Intellectual Disabilities and Dementia., Gerontological Society of America Annual Scientific Meeting, Orlando, Fl., 2005, 2005Conference Paper, 2005
  • McCarron, M., McCallion, P., O'Brien, J. & Lane J. , Risk factors and impact on survival of tube feeding in persons with Down syndrome and dementia. , 15th Alzheimer's Europe Conference, Killarney, Ireland. , 2005Conference Paper, 2005
  • McCarron, M., & McCallion, P, Pain scale for persons with intellectual disabilities and dementia., 15th Alzheimer's Europe Conference, Killarney, Ireland, 2005Conference Paper, 2005
  • McCarron, M., McCallion, P., & McLaughlin, M, A Memory Clinic for Persons with Intellectual Disabilities and Dementia, 15th Alzheimer's Europe Conference, Killarney, Ireland., 2005, 2005Conference Paper, 2005
  • McCallion, P., Maniccia, D., Bashant, J., & McCarron, M. , Systematic literature review and a meta-analysis of intervention effectiveness findings. , 15th Alzheimer's Europe Conference, Killarney, Ireland., 2005Conference Paper, 2005
  • McCarron, M., McCallion, P., & Fleming, S , Dependency levels among aging persons with Intellectual Disability (ID) and their care and resource implications, Gerontological Society of America Annual Scientific Meeting, Washington, DC, 2004Conference Paper, 2004
  • McCallion, P., McCarron, M., & Fleming, S, The Pain Symptom Checklist for Persons With Intellectual Disabilities and Advanced Dementia., Gerontological Society of America Annual Scientific Meeting, Washington, DC., 2004Conference Paper, 2004
  • McCarron, M., Fleming, S., Bourke, E., & McCallion, P, ). Pain in Persons with Intellectual Disabilities and Advanced Dementia: Development and validation of a pain assessment instrument. Conference Proceedings,, , 5th Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2004Conference Paper, 2004
  • Fleming, S., McCarron, M., Bourke, E., & McCallion, P. , Dependency levels among aging persons with Intellectual Disability (ID) and their care and resource implications. Conference Proceedings, 5th Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2004Conference Paper, 2004
  • McCarron, M. , Alzheimer's Dementia in persons with Down syndrome. , Centennial Conference of the Irish Association of Directors of Nursing and Midwifery, Tullamore. , 2004Conference Paper, 2004
  • McCallion, P., & McCarron, M, Assessment of Dementia in Persons with Developmental Disabilities, National Alzheimer's Disease Education Conference, Philadelphia, PA., 2004Conference Paper, 2004
  • McCarron, M., & McCallion, P, Longitudinal follow-up of persons with Down syndrome (DS) and Dementia: Risk factors and impact on survival of tube feeding, World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004Conference Paper, 2004
  • McCallion, P., & McCarron, M., Best practice in end of life care for persons with intellectual disability (ID) and dementia., World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004Conference Paper, 2004
  • McCarron, M., & McCallion, P, Staff caregivers of persons with intellectual disabilities (ID) and dementia. A revised stress and coping framework, World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004Conference Paper, 2004
  • McCarron, M., & McCallion, P. , Programming Models in Dementia Care: Lessons from the Intellectual Disabilities Care Field, Gerontological Society of America Annual Scientific Meeting, San Diego, CA., 2003Conference Paper, 2003
  • McCallion, P., & McCarron, M, Quality of Life as a Guide to Program Development in Dementia Care: Issues in Definition and Measurement, Gerontological Society of America Annual Scientific Meeting, San Diego, CA., 2003Conference Paper, 2003
  • McCarron, M., Gill, M., McCallion, P. Lawlor, B., & Begley, C, Alzheimer's dementia in persons with Down syndrome, Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2003Conference Paper, 2003
  • McCallion, P., & McCarron, , Subjective burden among staff caregivers of persons with ID and dementia., Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2003Conference Paper, 2003
  • McCallion, P., & McCarron, M. , Objective and subjective burden: Empowering staff to address dementia challenges, National Alzheimer's Disease Education Conference, Chicago, Il., 2003Conference Paper, 2003
  • McCarron, M., & McCallion, P., Dementia and Persons with Developmental/ Learning Disabilities: Caring and Being Cared For. , Special Olympics Scientific Symposium, Belfast, N. Ireland., 2003Conference Paper, 2003
  • McCallion, P., & McCarron, M, Burden experiences among staff caregivers of persons with ID and dementia., International Roundtable on Aging and Developmental Disabilities, Volos, Greece., 2003Conference Paper, 2003
  • McCallion, P., & McCarron, M., Objective and Subjective Burdens/ Difficulties Working with Persons with Intellectual Disabilities and Dementia, Alzheimer's Disease International Conference, Barcelona, Spain., 2002Conference Paper, 2002
  • McCarron, M, Gill, M, Tyrrell J, Cosgrave M, Lawlor B, ApoE e4 is a risk factor for dementia and premature death: Findings from a longitudinal study on persons with Down's syndrome:, World Genetics Conference. Brussels. , 2002Conference Paper, 2002
  • McCallion, P., & McCarron, M. , Subjective burdens/difficulties working with persons with intellectual disabilities and dementia, IASSID Europe Conference, Dublin, Ireland., 2002Conference Paper, 2002
  • Tyrrell J, McCarron M, Cosgrave M, Gill M, Lawlor B. , A longitudinal study of 289 people with Down's syndrome: results at year three., IASSID Europe Conference, Dublin, Ireland., 2002Conference Paper, 2002
  • McCarron, M, Gill, M, Lawlor, B, Tyrrell, J, Cosgrave, M, Begley, C. , The Influence of Alzheimer's dementia on Time Spent Caregiving in persons with Down syndrome., IASSID Europe Conference, Dublin, Ireland., 2002Conference Paper, 2002
  • McCarron, M, Cosgrave, M, Tyrrell, J, Gill, M, Lawlor, B, Association between Age at Onset of Dementia and Age of Menopause in Women with Down's Syndrome. , IASSID Europe Conference, Dublin, Ireland., 2002Conference Paper, 2002
  • Lawlor, B, McCarron, M, Cosgrave, M, Tyrrell, J, Gill, M, , Responding to dementia care needs in persons with Intellectual Disability., IASSID Europe Conference, Dublin, Ireland., 2002Conference Paper, 2002
  • McCarron, M, Gill, M, Lawlor, B, Begley, C. , A pilot study of Reliability and Validity of the Caregiving Activity Survey-Intellectual Disability (CAS-ID), 11TH IASSID International Roundtable on Aging and Intellectual Disabilities. Luxembourg. , 2001Conference Paper, 2001
  • McCarron, M, Gill, M, Lawlor, B, Begley, C. , The social and economic impact of caring for persons with the dual disability of Alzheimer's dementia and Down syndrome, Transforming Healthcare Through Research, Education &Technology Research Conference. Trinity College, Dublin. Ireland. , 2001Conference Paper, 2001
  • McCarron, M , The impact of caring for persons with a dual disability of Down syndrome and Alzheimer's dementia, 4th Annual Irish Conference Dementia Care- Journal of Dementia Care and DSIDC, Dublin, Ireland., 2001Conference Paper, 2001
  • McCarron M, Tyrell J, Cosgrave M,et al , Influence of APO-E alleles on risk for dementia in Down's syndrome, World Genetics Conference. Paris., 2000Conference Paper, 2000
  • Hawi Z, McCarron M, Kirley A, et al., No association of the dopamine DRD4 receptor (DRD4) gene polymorphism with attention deficit hyperactivity disorder (ADHD) in the Irish population., World Genetics Conference. Paris., 2000Conference Paper, 2000
  • McCarron, M , Alzheimer's dementia and Down syndrome: Emerging Challenges for Professional Caregivers', An Bord Altranais Annual Mental Handicap Seminar - Dublin, Ireland. , 2000Conference Paper, 2000
  • McCarron, M , Adults' Dementia Care Challenges and needs: are we meeting them?, 'Annual Conference of Social Workers in Intellectual Disability- Dundalk. Ireland., 2000Conference Paper, 2000
  • McCarron, M , Alzheimer's Dementia in persons with Down syndrome: Implications for carers and service delivery, Annual Nurse Managers Association (Intellectual Disability) -Limerick. Ireland. , 2000Conference Paper, 2000
  • McCarron, M. , Down's syndrome and dementia, 2nd Annual Irish Conference Dementia Care- Journal of Dementia Care and DSIDC, Dublin, Ireland. , 1999Conference Paper, 1999
  • McCarron, M, Issues in Caring for Persons with the dual diagnosis of Alzheimer's dementia and Down syndrome. , Alzheimer's Down syndrome Conference. Trinity Centre for Health Sciences, St. James's Hospital, Dublin, Ireland., 1999Conference Paper, 1999
  • McCarron, M , Alzheimer's Dementia and Down's Syndrome, All Hallows Conference Centre, Drumcondra, Dublin. Ireland. , 1998Conference Paper, 1998
  • Hynes, G., Stokes, A., McCarron, M, Informal Care-giving in Advanced COPD: Lay knowledge and experience, Ireland, Trinity College Dublin, 2008Report, 2008
  • Begley C, McCarron M, Huntley-Moore S , Developing research capacity in academic nursing and midwifery National Association for the Integration of Teaching and Learning , Bologna and staff development conference, Trinity College Dublin, 2008, 9-10Report, 2008
  • Lambert, V, Glacken, M, McCarron, M, 'Visible-ness': the nature of communication for children admitted to a specialist children's hospital in the Republic of Ireland., Journal of clinical nursing, 17, (23), 2008, p3092-3102Journal Article, 2008, DOI , TARA - Full Text
  • McCarron, M, McCallion, P, End-of-life care challenges for persons with intellectual disability and dementia: making decisions about tube feeding., Intellectual and developmental disabilities, 45, (2), 2007, p128-131Journal Article, 2007, DOI
  • Fahey-McCarthy, E., McCarron, M., Connaire, K., McCallion, P., , Developing an Education Intervention for Staff Supporting Persons With an Intellectual Disability and Advanced Dementia, 6, (4), 2009, p267-Journal Article, 2009, DOI
  • McCarron, M., McCallion, P., Fahey-McCarthy, E., & Connaire, K. , Staff Perceptions of Essential Pre-requisits Underpinning End-of-Life Care for Persons with Intellectual Disabilitiy and Advanced Dementia, Journal of Policy & Practice in Intellectual Disabilities, 7, (2), 2010, p143 - 152Journal Article, 2010, DOI
  • Older people with intellectual disabilities in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B (Ed)]Book Chapter, 2009
  • Dementia (in people with intellectual disability) in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B (Ed)]Book Chapter, 2009
  • Dementia nurse specialists in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B ]Book Chapter, 2009
  • Hynes, G., Coghlan, D., McCarron, M., The Heteroglot of Practice in an Action Research Project. 26th European Group of Organizational Studies Colloquium, Lisbon, July 2010, 2010Meeting Abstract, 2010
  • Hynes, G., McCarron, M., Coghlan, D, ddressing Heteroglot in Action Research. Annual Nursing and Midwifery Research Conference. Faculty of Nursing and Midwifery, RCSI, RCSI Dublin, February 2010, 2010Meeting Abstract, 2010
  • Hynes, G., Stokes, A., McCarron, M, Informal Care-giving in Advanced Chronic Obstructive Pulmonary Disease (COPD): Current Experiences in the Irish Context, Irish Thoracic Society Meeting Limerick. 2009: November, 2009Meeting Abstract, 2009
  • McCarron M. Breen, M., Cronin, P. , Hynes, G., McCallion, P., Between Worlds: The Experiences and Needs of Former Family Carers. School of Nursing & Midwifery, Trinity College Dublin, 2011Report, 2011, TARA - Full Text
  • Cecily Begley, Mary McCarron, Sylvia Huntley-Moore, Developing Research Capacity in Academic Faculty, INMED Conference, Flexner 100 years on - a return to core principles,, Trinity College Dublin, 18-20 May, 2011Meeting Abstract, 2011
  • Begley C, McCarron M, Huntley-Moore S., Research capacity building in academic nursing and midwifery, 10th Annual Research Conference, School of Nursing and Midwifery, Trinity College Dublin, November, 2009, pp14 - 14Oral Presentation, 2009
  • McCarron M. & McCallion, P. , The first wave findings of the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA). , , 2nd International Conference. Building a Picture of Ageing in Persons with Intellectual Disability: Future Directions for Ageing Well. , Trinity College Dublin, September, 2011Meeting Abstract, 2011
  • Lambert V, Glacken M, McCarron M, Employing an ethnographic approach: key characteristics, Nurse Researcher, 19, (1), 2011, p17 - 24Review Article, 2011, DOI , TARA - Full Text
  • McCarron M, McCallion P, Fahey-McCarthy E, Connaire K, The Role and Timing of Palliative Care in Supporting Persons with Intellectual Disability and Advanced Dementia., Journal of Applied Research in Intellectual Disabilities, 24, (3), 2010, p189 - 198Journal Article, 2010, DOI
  • McCarron M, Reflections of a Life in Residential Care., Frontline, Summer, 1990Review Article, 1990
  • Meeting the End of Life Needs of Older Adults with Intellectual Disabilities in, editor(s)E. Chang & A. Johnson , Contemporary and Innovative Practice in Palliative Care. , Rijeka, Croatia: Intech, 2012, pp255 - 270, [McCallion, P., McCarron, M., Fahey-McCarthy, E., & Connaire, K.]Book Chapter, 2012
  • Hynes G, Coghlan D, McCarron M, Developing Practice in Healthcare: The contribution of Building to Negotiating the Tensions among practical, Professional and Organisational Knowing., International Journal of Action Research, 8, (2), 2012, p159 - 184Journal Article, 2012, DOI
  • Glacken, M., Higgins, A., Sharek, D., McCann, E., Sheerin, F., Breen, M. & McCarron, M. , Older LGBT People's Pathways to Coping and Support. , All Ireland Gerontological Nurses Association 4th Annual Conference, Silver Springs Hotel, Cork, 7th June, 2012Oral Presentation, 2012
  • Hynes G, Coghlan D & McCarron M, Participation as a multi-voiced process: Action research in the acute hospital environment. , Action Research , 10, 2012, p293 - 312Journal Article, 2012, DOI
  • Lambert, V., Glacken, M., McCarron, M, Using a range of methods to access children's voices. , Journal of Research in Nursing, 18, (7), 2013, p601 - 616Journal Article, 2013, DOI , TARA - Full Text
  • Burke, E., McCarron, M., Swinburne, J., McGlinchey, E., Carroll, R., McCallion, P, What it's like to grow older: The ageing perceptions of people with intellectual disability in Ireland. , Journal of Applied Research in Intellectual Disability, 52, (3), 2014, p205 - 219Journal Article, 2014, DOI
  • McCallion P, Burke E, Swinburne J, McGlinchey E, Carroll R & McCarron M, Influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., Health, 5, (4), 2013, p749 - 756Journal Article, 2013, DOI , TARA - Full Text
  • Glackin, M., Higgins, A., Sharek, D., McCann, E., Sheerin, F., Breen, M., and McCarron, M, 'You should live for yourself': Older LGBT people's pathways to coping and support'. All Ireland Gerontological Nurses Association 4th Annual conference , Active Ageing for Mental Health: Promoting Positive Attitudes." , Silver Springs Hotel, Cork, Ireland, 7 June, 2012Conference Paper, 2012
  • May, P., Hynes, G., McCallion, P., Payne, S., Larkin, P., Higgins, A., & McCarron, M., Implementation challenges in increasing equity in palliative care in Ireland, European Journal of Palliative Care, 20, (3), 2013, p130 - 133Journal Article, 2013
  • McCarron., M, Swinburne, J., McCallion, P., , IASSID World Congress Key Note Speaker: Building Longitundinal prevalence figures: Findings from IDS-TILDA, IASSID World Congress, Halifax, Canada, July , 2012Meeting Abstract, 2012
  • McCarron, M., Reilly, E., Mulryan, N. & McCallion, P., A Prospective Fourteen-year Longitudinal follow-up of Dementia in persons with Down Syndrome., IASSID World Congress, Halifax, Canada, July, 2012Meeting Abstract, 2012
  • McCarron, M. & McCallion, P, Understanding roles in the Community: Findings from the Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing., IASSID World Congress, Halifax, Canada, July, 2012Meeting Abstract, 2012
  • McCarron, M., Swinburne. J., Burke. E., McGlinchey, E., & McCallion, P, Physical health and multiple morbidity in Irish people with an intellectual disabiltiy as they age., IASSID World Congress, Halifax, Canada, July , 2012Oral Presentation, 2012
  • McGlinchey, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., Life Long Learning and Employment in Older Irish Adults with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July, 2012Oral Presentation, 2012
  • McCallion, P., Swinburne, J., Burke, E., McGlinchey,E., Carroll, R., McCarron, M., Health Care Utilisation by Adults with an Intellectual Disability Ageing in Ireland., IASSID World Congress, Halifax, Canada, July, 2012Oral Presentation, 2012
  • Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., I'm Not Ready Yet: What people with an Intellectual Disability say about growing older and retirement in Ireland., IASSID World Congress, Halifax, Canada, July, 2012Meeting Abstract, 2012
  • McGlinchey, E., McCallion, P., Swinburne,J., Carroll, R., McCarron, M., Behavioural health of older adults with an Intellectual Disability: Findings from the Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing., IASSID World Congress, Halifax, Canada, July, 2012Meeting Abstract, 2012
  • Mulryan, N., Lawlor, B., McCallion, P., McCarron, M., Depressive Symptomatology and Sleep Patterns in an Older Irish Population with Intellectual Disability., IASSID World Congress, Halifax, Canada, July 2012, 2012Meeting Abstract, 2012
  • Foran. S, McCallion. P, McCarron, M., Fear of falling in older people with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July, 2012Meeting Abstract, 2012
  • Mulryan, N., Lawlor, B., McCallion, P., McCarron, M., Prevalence of Mental Health Issues in Older Adults with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July 2012, 2012Meeting Abstract, 2012
  • McCallion, P., Burke, E., McCarron, M., Hopes for the Future: The impact of caring for a family member with an Intellectual Disability who is ageing., IASSID World Congress, Halifax, Canada, July 2012, 2012Meeting Abstract, 2012
  • Daly, L., McCarron, M., Higgins, A., McCallion, P, 'Sustaining Place' - a grounded theory of how informal carers of people with dementia manage alterations to relationships within their social worlds., Journal of Clinical Nursing, 22, (3-4), 2013, p501 - 512Journal Article, 2013, DOI
  • Foran, S., McCarron, M., & McCallion, P, Expanding assessment of fear of falling among older adults with an intellectual disability, International Scholarly Research Notices , 2013, 2013, p9Journal Article, 2013, DOI , TARA - Full Text
  • McCallion, P., Burke, E., Swinburne, J., McGlinchey, E., Carroll, R., McCarron, M, The influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., The Health Well, 4, 2013, p749 - 756Journal Article, 2013, DOI , TARA - Full Text
  • McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Exploring the Issue of Employment for Adults with an Intellectual Disability in Ireland, Journal of applied research in intellectual disabilities, 26, (4), 2013, p335 - 343Journal Article, 2013, DOI
  • Lambert, V., Glacken, M., McCarron, M, Meeting the information needs of children in hospital, Journal of child health care, 17, (4), 2013, p338-353Journal Article, 2013, DOI , TARA - Full Text
  • McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Carroll, R., McCallion, P, Patterns of multimorbidity in an older population of persons with an intellectual disability: results from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA)., Research in developmental disabilities, 34, (1), 2013, p521 - 527Journal Article, 2013, DOI , TARA - Full Text
  • Hynes G, Stokes A, McCarron M, Informal care-giving in advanced chronic obstructive pulmonary disease: lay knowledge and experience., Journal of clinical nursing, 21, (7-8), 2012, p1068-77Journal Article, 2012, DOI
  • Lambert V, Glacken M, McCarron M, Communication between children and health professionals in a child hospital setting: a Child Transitional Communication Model., Journal of advanced nursing, 67, (3), 2011, p569-82Journal Article, 2011, DOI
  • McCarron M, Lawlor BA, Responding to the challenges of ageing and dementia in intellectual disability in Ireland., Aging & mental health, 7, (6), 2003, p413-7Journal Article, 2003, DOI
  • Kirley A, Lowe N, Hawi Z, Mullins C, Daly G, Waldman I, McCarron M, O'Donnell D, Fitzgerald M, Gill M, Association of the 480 bp DAT1 allele with methylphenidate response in a sample of Irish children with ADHD., American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics, 121B, (1), 2003, p50-4Journal Article, 2003
  • Lawlor BA, McCarron M, Wilson G, McLoughlin M, Temporal lobe-oriented CT scanning and dementia in Down's syndrome., International journal of geriatric psychiatry, 16, (4), 2001, p427-9Journal Article, 2001, DOI
  • Cosgrave MP, McCarron M, Anderson M, Tyrrell J, Gill M, Lawlor BA, Cognitive decline in Down syndrome: a validity/reliability study of the test for severe impairment., American journal of mental retardation : AJMR, 103, (2), 1998, p193-7Journal Article, 1998, DOI
  • May P, Hynes G, McCallion P, Payne S, Higgins A, Larkin P, McCarron, M, Challenges in increasing regional equity in palliative care service provision in Ireland , European Journal of Palliative Care, 20, (3), 2013, p130 - 133Journal Article, 2013
  • McCarron, M., McCallion, P., Reilly, E., Mulryan, N, A prospective 14-year longitudinal follow-up of dementia in persons with Down Syndrome., Journal of intellectual disability research , 58, (1), 2014, p61 - 70Journal Article, 2014, DOI
  • Low JN, Storey EJ, McCarron M, Wardell JL, Ferguson G, Glidewell C, , Conformational preferences in 2-nitrophenylthiolates: interplay between intra- and intermolecular forces; structures of (E)-1-(4-methyl-2-nitrobenzenethiolato)-2-phenylethene, S-(2-nitrophenyl)-benzenecarbothiolate and 1-(2-nitrophenylthio)-2,5-pyrrolidinedione, Acta crystallographica. Section B, Structural science, 56, (1), 2000, p58 - 67Journal Article, 2000, TARA - Full Text
  • Begley, C., McCarron, M., Huntley-Moore, S., Condell, S., Higgins, A, Successful research capacity building in academic nursing and midwifery in Ireland: an exemplar. , Nurse Education Today , 34, (5), 2014, p754 - 760Journal Article, 2014, DOI , TARA - Full Text
  • Understanding the similarities and differences in aging with an intellectual disability: Linking Irish general population and intellectual disability datasets in, editor(s)R. Urbano , Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families , New York, Academic Press, 2013, pp206 - 233, [McCallion, P., Swinburne, J., Burke, E., McGlinchey, E., McCarron, M.]Book Chapter, 2013, DOI
  • McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., McCallion, P, Patterns of multimorbidity in an ageing population of people with an intellectual disability: Results from the intellectual disability supplement to the Irish longitudinal study on ageing (IDS-TILDA), Irish Journal of Medical Science , 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 2013, 182, (6), 2013, pp179-296Published Abstract, 2013, DOI , TARA - Full Text
  • O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence and Patterns of Psychotropic Drug Use and Psychotropic, Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, Irish Journal of Medical Science , 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September 2013, 182, (6), 2013Oral Presentation, 2013, DOI
  • McCausland, D., Burke, E., McGlinchy, E., Swinburne, J., Cleary, E., McCarron, M., McCallion, P , Use of Transport for Older People with Intellectual Disability: Results from Wave 1 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Irish Journal of Medical Science, 61st Annual&Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September 2013, 182, (6), 2013Poster, 2013
  • McCarron, M., McGlinchey,E., Burke, E., O'Dwyer, M., McCallion, P., Epidemology of epilepsy in Older Adults with an Intellectual Disability, Irish Journal of Medical Science Volume 182 Supplement 6 DOI 10.1007/s11845-013-0985-z, 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September, 2013Poster, 2013
  • O'Dwyer ,M., Peklar, J., Henman, M., McCallion, P., McCarron, M, Patterns and Prevalence of Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, 4th Annual International College of Mental Health Pharmacy Conference, Hinckley, United Kingdom, October, 2013Oral Presentation, 2013
  • O'Dwyer, M., Peklar, J., Henman, M., McCallion, M., McCarron, M., Patterns and Prevalence of Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, Doctoral Colloquium of the Annual Interdisciplinary Research Conference, School of Nursing and Midwifery, Trinity College Dublin, 2013Oral Presentation, 2013
  • O'Dwyer, M., Peklar, J., Henman, M., McCallion, P, McCarron, M, Patterns ,Prevalence and Appropriateness of Medicine Use in an Ageing Population with Intellectual Disability in Ireland, Pharmaceutical Care Network Europe Working Conference, , Berlin, February, 2013Poster, 2013
  • O'Dwyer, M., Peklar, J., Henman, M., McCallion P., McCarron, M, Patterns and Prevalence of Medicines Use in an Ageing Population with Intellectual Disability in Ireland, All-Ireland Schools of Pharmacy Conference, Belfast, 2013Poster, 2013
  • O'Dwyer, M., Peklar, J., Henman, M., McCallion, P, McCarron, M., Patterns, Prevalence and Indications for Medicine Use among an Ageing Population with Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013Meeting Abstract, 2013
  • McCarron, M., McCausland, D., Keenan, P., Griffiths, C., Hynes, G., McCallion, P, A Collaborative Initiative to Implement Person Centred Practice, School of Nursing & Midwifery, Trinity College Dublin, 2013Report, 2013
  • Burke, E., McCallion, P., & McCarron, M., Osteoporosis and people with Down syndrome; a preliminary descriptive examination of the IDS-TILDA Wave 1 results, . Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, September, 2013Oral Presentation, 2013
  • Griffiths, M., McCallion, P., & McCarron, M., Sibling Caregivers of Adults Aging with Intellectual or Developmental Disabilities, Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, September, 2013Oral Presentation, 2013
  • O'Donovan, M. A., McCallion, P., & McCarron, M. , Residence and health service utilization of older people with an intellectual disability, Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, 2013Poster, 2013
  • McCarron, M, Embedding the needs of people with intellectual disability within national dementia policies, Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, 2013Oral Presentation, 2013
  • Griffiths C, Keenan P, McCausland D, Hynes G, McCarron M and McCallion P, My Needs, My Wants, My Aspirations. The findings of a collaborative initiative to implement person-centred care in a service for people with intellectual disability: A case study. , 13th Annual Research Conference, The Catherine McAuley School of Nursing and Midwifery, University College Cork. Ireland. , University College Cork. Ireland, 8th November 2013, 2013Meeting Abstract, 2013
  • McCarron, M, A Picture of Oral Health in Older Adults with an Intellectual Disability in Ireland: Policy & Educational Implications, 3rd Research Week - International Symposium of College of Oral Medicine, Taiwan, May, 2013Oral Presentation, 2013
  • McCarron, M., McCausland, D., Developing an Understanding of 'Community' for Older People with Intellectual Disability (ID): What can we learn from the Sociological and Equality Literature? , 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013Meeting Abstract, 2013
  • McGlinchey, E., McCallion, P., Burke, E., McCarron, M., Examining the area of Employment for Adults with an Intellectual Disability, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013Oral Presentation, 2013
  • McCarron, M., McGlinchey, E., Burke, E., O'Dwyer, M., McCallion, P, Prevalence of Epilepsy in Older Adults with an Intellectual Disability in Ireland: Associations and Service Implications, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013Meeting Abstract, 2013
  • Burke, E., McCallion, P., McGlinchey, E., McCarron, M., , The Ageing Perceptions of Older Adults with an Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November 2013, 2013Conference Paper, 2013
  • Burke, E., McCarron, M., McCallion, P. , The Silent Thief of Bone: Developing a baseline picture of the bone health of adults with an intellectual disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013Meeting Abstract, 2013
  • Amado, A.N., Stancliffe, R.J., McCarron, M., McCallion, P, Social Inclusion and Community Participation of Individuals with Intellectual/Developmental Disabilities, Intellectual & Developmental Disabilities. Intellectual and Developmental Disability, 51, (5), 2013, p360 - 375Journal Article, 2013, DOI
  • McCarron, M., Reilly, E. & Dunne, P,, Achieving Quality Environments for Person Centred Dementia Care, No, Trinity College Dublin , 2013Book, 2013
  • May, P., Hynes, G., McCallion, P., Payne, S., Larkin, P., McCarron, M, Policy analysis: Palliative care in Ireland, Health Policy, 115, (1), 2014, p68 - 74Journal Article, 2014, DOI , TARA - Full Text
  • McCarron, M., McCallion, P., Fahey-McCarthy, E., Connaire, K., Dunn-Lane, J., Supporting persons with down syndrome and advanced dementia: Challenges and care concerns, Dementia, 9, (2), 2010, p285-298Journal Article, 2010, DOI
  • Nurse Roles in Supporting Aging Persons with Mental Health Problems in, , Mental Health, Intellectual Disabilities, and the Aging Process, 2008, pp223-237 , [Mccarron, M., Griffiths, C.]Book Chapter, 2008, DOI
  • Kirley, A., Hawi, Z.Dr., McCarron, M., (...), Fitzgerald, M., Gill, M., A review of attention deficit hyperactivity disorder and dopamine system candidate, American Journal of Medical Genetics - Neuropsychiatric Genetics, 105, (7), 2001, p634Journal Article, 2001
  • Griffiths, C., Keenan, P., McCausland, D., Hynes, G., McCarron, M., McCallion, P, Engineering change in the culture and practices of a service for people with intellectual disability., Journal of Applied Research in Intellectual Disabilities, Pathways to Inclusion 4th International IASSIDD Europe Regional Congress, Vienna, 14th-17th July 2014, 27, (4), 2014, pp359 - 359Conference Paper, 2014
  • O'Dwyer, M., Peklar, J., Belton, A., McCallion, P., McCarron, M., Henman, M, Prevalence and Predictors of Multiple Medicines Use among an Ageing Population with Intellectual Disability in Ireland., Journal of Applied Research in Intellectual Disabilities., 4th IASSID (International Association for the Scientific Study of Intellectual and Developmental Disabilities) European Congress, Vienna, July, 2014, edited by Oulette-Kuntz H, Murphy G. , 27, (4), 2014, pp297-Oral Presentation, 2014, DOI
  • O'Dwyer, M., Peklar, J., Maidment, I., McCallion, P., McCarron, M., Henman, M , Prevalence and factors associated with high anticholinergic burden among an Ageing Population with Intellectual Disability in Ireland, Journal of Applied Research in Intellectual Disabilities., 4th IASSID (International Association for the Scientific Study of Intellectual and Developmental Disabilities) European Congress, Vienna, July, 2014, edited by Oulette-Kuntz H, Murphy G. , 27, (4), Wiley Blackwell, 2014, pp325 - 335Oral Presentation, 2014, DOI
  • Cronin, P., Hynes, G., Breen, M., McCarron, M., McCallion, P., & O'Sullivan, L. , Between worlds: the experiences and needs of former family carers, Health & Social Care in the Community, 23, (1), 2015, p88 - 96Journal Article, 2015, DOI , TARA - Full Text
  • Mac Giolla Phadraig, C., Burke, E., McCallion, P., McGlinchey, E., McCarron, M., Nunn, J, Dental attendance among older adults with intellectual disabilities in Ireland., Special Care in Dentistry, 34, (6), 2014, p265 - 272Journal Article, 2014, DOI
  • McCarron, M., O'Dwyer, M., Burke, E., McGlinchey, E., & McCallion P, Epidemiology of Epilepsy in older adults with an intellectual disability in Ireland: Associations and Service Implications, American Journal on Intellectual & Developmental Disabilities, 119, (3), 2014, p253 - 260Journal Article, 2014, URL
  • Serving an Elderly Population. In M. Agran, F. Brown, C. Hughes, C. Quirk, & D. Ryndak. Equality & Full Participation for Individuals with Severe Disabilities in, A Vision for the future, Baltimore, Paul H Brookes, 2014, pp319 - 348, [Bigby, C., McCallion, P., & McCarron, M]Book Chapter, 2014
  • McCallion, P., & McCarron, M., Commentary: Deaths of people with intellectual disabilities in the UK, The Lancet, 383, 2013, p853 - 855Journal Article, 2013, DOI
  • Higgins A, Sharek D, McCann E, Glacken M, Breen M, McCarron M, Sheerin F, Visible Lives Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland, Dublin, Gay and Lesbian Equality Network (GLEN), 2011, p1 - 191Report, TARA - Full Text
  • McCarron, M, Understanding Person Centred Dementia Care , Federation Catholic Voluntary Nursing Homes , Hallows College , 28 May, 2015Invited Talk
  • McCarron, M, Responding to Early onset Dementia in Persons with Down Syndrome, DSIDC 2014 Annual Conference - Young Onset Dementia, Dublin Castle , 20th November, 2014Invited Talk
  • McCarron., M, Disabilities: Unlocking the Determinants of Successful Ageing: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, European Conference of International Association for the Scientific Study of Intellectual & Developmental Disabilities , Vienna, 14-17 July, 2014Invited Talk
  • McCarron, M, Understanding dementia in persons with an intellectual disability: Service models and Good Practice, CARDI, 15 Interventions to support people with dementia, Trinity College Dublin, 23 September, 2015Invited Talk
  • McCallion P, McCarron M,, Deaths of people with intellectual disabilities in the UK, 383, (9920), 2014, p853 - 855Journal Article, DOI
  • Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Bracken-Scally, M., McCarron, M, ). Evaluation of the Genio Dementia Programme 2014-16 Cork Integrated Dementia Care Across Settings (Cork-IDEAS) Initiative: Early Findings., School of Nursing and Midwifery, , Trinity College Dublin, 2015Report
  • Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Bracken-Scally, M., McCarron, M, Evaluation of the Genio Dementia Programme 2014-16 'Memory Matters' Initiative Implemented by the Carlow/Kilkenny Service Provider Forum: Early Findings. , School of Nursing and Midwifery, , Trinity College Dublin, 2016Report
  • Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Bracken-Scally, M., Ciblis, A., McCarron, M. , Evaluation of the Genio Dementia Programme 2014-16 Community Outreach Dementia Project Leitrim: Early Findings, School of Nursing and Midwifery, , Trinity College Dublin, 2015Report
  • McCarron, M, Empowerment and inclusion of people with intellectual disability as research partners - practical strategies and not just words., Public and Patient Involvement (PPI) in Research conference, Working as partners, making a difference, 27th April , 2016, Health Research BoardInvited Talk
  • McCarron, M, IDS-TILDA Results in Wave 1 and Wave 2, Ability West, Galway, 15th June, 2015Invited Talk
  • Burke, EA., McCarron, M, Unlocking the determinants of ageing and bone health among adults with an intellectual disability, Disability Research Seminar, Dublin, 3rd November, 2015Invited Talk
  • Burke, EA., McCarron, M, The lives and needs of older people with learning disabilities in Ireland, The BILD 2015 International Ageing Well Research and Practice Conference, Aston University, Bermingham, 4th December, 2015Invited Talk
  • Burke, EA.,, Health, well-being and community participation: IDS-TILDA, Camphill Community National Conference, Kilkenny, July, 2015Invited Talk
  • McCarron, M, Understanding Dementia in Persons with Down Syndrome: Implications for Hospics, Palliatve Care and Intellectual Disability Services, Intellectual Disabilities and Palliative Care Working together, Milford Care Centre, Limerick, 5th May, 2016Invited Talk
  • Timmins, F. Glacken, M., Grogan, A. McCarron, M. Keilthy, P. and McDaid, O., National Consultation With Service Users And Healthcare Providers Regarding Home Care Nursing Services For People With State-Acquired HCV. , Dublin, 2010Report
  • McCarron, M; Burke, E;, Engaged Research Report, Mansion House Dublin, 13th January, 2017, Campus EngageInvited Talk
  • McCarron, M, Health conditions associated with ageing in people with Down syndrome, New Horizons in Down's Syndrome, Kildare Street, Dublin, 1st February, 2017, Royal College Physicians of IrelandInvited Talk
  • McCarron, M, Dementia, End of Life and People with Intellectual Disabilities, Last days of life conference, Cardiff, 1st March, 2017Invited Talk
  • McCarron, M, NI Conference on Dementia, Belfast, 8th March, 2017, Alzheimers SocietyInvited Talk
  • McCarron, M.,, Empowering the RNID - Future Proofing the Undergraduate Programme for Changing Models of Service Delivery , INMO - Registered Nurse Intellectual Disability Section, Dublin, 22nd November, 2016Invited Talk
  • McCarron, M., Burke, E, To ensure 'nothing about us without us', Engaged Research: Society& Higher Education Working Together to Address Grand Societal Challenges, Mansion House, Dublin, 13th January, 2017, Irish Research Council & Campus EngageInvited Talk
  • Burke, E., McCarron, M, Bone health and older adults with intellectual disability., Research Study Day, Dublin, November, 2016, Daughters of CharityInvited Talk
  • Burke, E., McCarron, M, IDS-TILDA, An overview from the beginning, Research Study Day, Dublin, January, 2017, St John of GodInvited Talk
  • Burke, E., McCarron, M, Ageing and the changing needs of people with an intellectual disability, International Occupational Therapy Group from Singapore, St James Hospital, February, 2017Invited Talk
  • McCarron, M, Pushing the Boundaries in Research and Service Transformation, Clinical Leadership Programme for staff from ID services forum day , Dublin, 31st May, 2017, Leadership and Innovation Centre for Nursing and MidwiferyInvited Talk
  • McCarron, M, Alzheimer's Dementia and Down syndrome: Awareness, Hope and Service Transformation, Session 9 GBHI Conference, Barcelona, 2017Invited Talk
  • McCarron, M, Overview of IDS-TILDA, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017Oral Presentation
  • McCarron, M, Down Syndrome & Dementia. Findings from a longitudinal research study, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017Oral Presentation
  • McCarron, M, The needs of people living with Down's Syndrome and dementia, Meeting of The All-Party Oireachtas Group on Dementia, Leinster House , 15th June, 2017, The Alzheimer Society of IrelandInvited Talk
  • McCarron, M, Dementia in People with Down syndrome, All-Party Oireachtas Group on Dementia, Kildare Street, 15th June , 2017, Dementia CommitteeInvited Talk
  • McCarron, M;, IDS-TILDA Ageing in Intellectual Disability, Faculty of Psychiatry of Intellectual Disability Annual Conference , Dublin, 6th October, 2017, Royal College of PsychiatristsInvited Talk
  • McCarron, M;, Ageing and Intellectual Disabilty: Lessons learned from IDS TILDA, Faculty of Psychiatry of Intellectual Disability Annual Conference , Dublin, 6th October, 2017, Royal College of PsychiatristsInvited Talk
  • McCarron, M, Older Persons: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing , Comparative Joint Seminar: Matched presentations across the life-cycle from Ireland and US/Canada, Ashling Hotel, Dublin, 16th October, 2017, The American Association on Intellectual and Developmental Disabilities (AAIDD); National Federation of Voluntary Bodies; St. Michael's House and KAREInvited Talk
  • Brennan D., McCarron, M., McCallion, P.,, Caring Capacity in the Domestic Space: Current and Future Challenge, , Irish Association of Social Workers and Social Care Ireland - National Conference, Our Lady's Hospice, Dublin, September 22nd, 2017Invited Talk
  • McCarron, M.,, Dementa and Down syndrome, 8th March, NI Conference on Dementia, Belfast, 2017Oral Presentation
  • McCarron, M, Dementia: transforming the journey - prevention, treatment and quality of life., Hilton Hotel, Templepatrick, Co. Antrim, 17th May, 2018Invited Talk
  • Bowman, S., McCarron, M, HRB-IRC, HRB-IRC PPI Ignite Programme, TBSI, 12th January, 2018Invited Talk
  • Bowman, S., McCarron, M, Advancing Public & Patient Involvement in Health Research, HRB-IRC PPI Ignite Programme, TBSI, 12th January, 2018Invited Talk
  • McCarron, M, Round Table 1: What can mortality data tell us about health inequalities at end of life? "Older adults who have died across the first 10 years of IDS-TILDA", 5th IASSIDD Europe Congress 2018, Athens Greece, 18 - 20 July, 2018Invited Talk
  • Brady, A-M., Bracken-Scally, M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Pittalis, C., & McCarron, M., Evaluation of the Community Outreach Dementia Project Leitrim, Dublin, Ireland, Trinity College Dublin, 2017Report, URL
  • Brady, A-M., Ciblis, A., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Bracken-Scally, M., & McCarron, M., Evaluation of the Memory Matters Carlow/Kilkenny Community Dementia Project, Dublin, Ireland, Trinity College Dublin, 2017Report, URL
  • McCarron, M., , Ten years of data: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, IASSIDDS's 5th European Congress, Athens Greece, 18 - 20 July, 2018Oral Presentation
  • McCarron, M, Dementia and Down syndrome: Awareness, hope and service transformation , Dementia: transforming the journey - prevention, treatment and quality of life., Castle Upton Suite Hilton Templepatrick Golf & Country Club, Co Antrim, Thursday 17 May , 2018Invited Talk
  • McCarron, M, Supporting people with Intellectual Disability and Advanced Dementia: Complexities in End of Life Care, All Ireland Seminar on Palliative Care and disabilities: Impact of legislation to improve quality of life and realise human rights, Ashling Hotel, Dublin, Tuesday 12th June , 2018, ALLPHCInvited Talk, URL
  • McCarron, M, Discovering the Future of Holistic Care for Older People with Intellectual Disabilities: What 10 Years of Ageing Research in Ireland is Teaching Us , 8th Hong Kong International Nursing Forum cum 2018 ICOWHI Congress, Hong Kong, 17th - 18th December, 2018Invited Talk
  • Mary McCarron, Philip McCallion, Rachael Carroll, Eilish Burke, Eimear McGlinchey, Mary-Ann O'Donovan, Darren McCausland, Fintan Sheerin, Maire O'Dwyer, Sinead Foran, Caoimhin MacGiolla Phadraig, Niamh Mulryan, Juliette O'Connell and Judy Ryan., Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 3 IDS-TILDA, Trinity College Dublin, 2017Report, DOI , TARA - Full Text
  • McCarron, M., Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland, Department of Health, Dublin 2, 23rd May, 2018Invited Talk
  • McCarron, M, the National Indicators for people with an intellectual disability, The National Indicators for people with an intellectual disability, Portlaoise, 22nd September , 2018, Down Syndrome IrelandInvited Talk
  • McCarron, M, CEOL Midlands Network meeting , Mullingar Park Hotel, Thursday 14th June, 2018Invited Talk
  • Bracken-Scally, M., Brady, A-M., Keogh, B., Hynes, G.,Kennelly, B., Drury, A., Daly, L., & McCarron, M., Evaluation of the Connolly Hospital Dementia Pathways Project: Preliminary findings, Connolly Hospital Dementia Pathways Partnerships in Care Seminar, Connolly Hospital, Blanchardstown, Dublin, 20 September 2018, 2018Invited Talk
  • McCarron, M., A Woman's Place is in the Academy: My life as a woman in science, Irish Nutrition and Dietetic Institute 60th Anniversary Celebration, Royal Irish Academy, Dublin, 4th Oct, 2018, Irish Nutrition and Dietetic InstituteInvited Talk
  • Brady A.M., Daly L., Keogh B., Kennelly B., Ciblis A., Drury A., Hynes G., Bracken-Scally M., Pittalis C. and McCarron M., Evaluation of the Cork Integrated Dementia Care Across Settings (Cork-IDEAS) Project, Dublin, Ireland, School of Nursing and Midwifery, Trinity College Dublin, 2018, p1 - 109Report, URL
  • Brady, A-M., Bracken-Scally, M., Keogh, B., Kennelly, B., Daly, L., Hynes, G., Pittalis, C., Drury, A., Ciblis, A. & McCarron, M., Evaluation of the St. James's Hospital DemPath Integrated Care Pathway Project, Dublin, Ireland, School of Nursing and Midwifery, Trinity College Dublin, 2018Report, URL
  • McCarron, M., Intellectual Disabilities: The Opportunities for Global Brain Health, GBHI Network Symposium, Dublin, 8th May, 2019, GBHIInvited Talk
  • McCarron, M., Living with Dementia in Rural Ireland, 4TH Annual Conference - Disability and Human Rights with Dementia, Kings House, Boyle, Co.Roscommon, 27th May, 2019Invited Talk
  • McCarron, M., Positive Ageing Indicators for People with an Intellectual Disability., Launch of the Healthy and Positive Ageing Initiative (HaPAI) Positive Ageing Indicators Report 2019, Department of Health, Dublin 2, 29th May, 2019, Department of HealthInvited Talk
  • McCarron, M., Understanding key issues in ageing for people with an intellectual disability: Ten years of data from IDS-TILDA, Peamount Hospital, 20th August, 2019Invited Talk
  • McCarron, M., Understanding the Determinants of Health and Well-being for People Ageing with an Intellectual Disability: Key insights from Longitudinal Studies, DOCTRID IV Conference, National University of Ireland, Galway, 19th -20th September, 2019Invited Talk
  • McCarron, M., Ageing and Dementia in people with ID: Challenges and Opportunities in Care , Inaugural meeting of the MLM CHO Dementia Strategy Steering Group, Mullingar Park Hotel, Mullingar, Co. Westmeath, 24th September, 2019Invited Talk
  • McCarron, M., Positive Ageing Indicators for People with an Intellectual Disability, Brothers of Charity, Roscommon, 26th September, 2019Invited Talk
  • McCarron, M., Positive Ageing Indicators for People with an Intellectual Disability, Advancing the Role of the Registered Nurse in Intellectual Disability., Ashling Hotel, Dublin 7, 16th October, 2019, HSEInvited Talk
  • McCarron, M., Understanding the Determinants of Health and Well-being for People Ageing with an Intellectual Disability: Key insight from Longitudinal Studies., London-wide Down syndrome seminar series., Kings College London, 6th November, 2019Invited Talk
  • McCarron, M., 10 Years of IDS-TILDA: Key Findings & Emerging Opportunities., 29th Annual Research Conference., Stillorgan, Dublin, 12th November, 2019, St. John of God Hospitaller ServicesInvited Talk
  • McCarron, M., Health and Well-being for Women Ageing with an Intellectual Disability: Insights from IDS-TILDA., Women's Health Taskforce, Department of Health, Dublin 2, 13th November, 2019, Department of HealthInvited Talk
  • McCarron, M., Destination Unknown: How IDS-TILDA had to make its own roadmap, Irish Research Nurses Network (IRNN) 12th Annual Conference , River Lee Hotel, Cork, 14th November, 2019, IRNNInvited Talk
  • McCarron, M., Understanding key issues in ageing for people with an intellectual disability: Ten years of data from IDS-TILDA, St. Michaels House, Ballymun, 21st January, 2020Invited Talk
  • McCarron, M., Longitudinal Studies: Dealing with Missing Data , Duke University School of Nursing, 4th February, 2020Invited Talk
  • McCarron, M., Recruitment and Retention in Longitudinal Studies: Building the samples and research questions for IDS-TILDA's next decade, Duke University School of Nursing, 4th February, 2020Invited Talk
  • McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS-TILDA), Duke University School of Nursing, 5th February, 2020Invited Talk
  • McCarron, M., Building a Successful Career in the Academy: Navigating Multiple Priorities , Duke University School of Nursing, 6th February, 2020Invited Talk
  • McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS TILDA): Major Findings and Implications for Care , Trinity College Dublin School of Nursing and Midwifery, 18th February, 2020Invited Talk
  • McCarron, M., Understanding key issues in ageing for people with an intellectual disability:Ten years of data from IDS-TILDA, COPE Foundation Services, Cork, 25th February, 2020Invited Talk
  • McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS TILDA): Major Findings and Implications for Care, Camphill Community, Kilcullen, 29th February, 2020Invited Talk
  • McCarron, M., Women in Science - Building an enabled world to foster equality, Royal College of Physicians of Ireland, Kildare Street, 9th March, 2020Invited Talk
  • McCarron, M., Down syndrome and Dementia - Inclusion and Equity, Dementia Care Conference, Online, 29th September, 2020Invited Talk
  • McCarron, M., Ageing and Intellectual Disability: What it may mean for some people in retirement, Retirement Planning Council of Ireland, Online, 14th October, 2020Invited Talk
  • McCarron, M., Responding to Early onset Dementia in Persons with Down Syndrome: Award-winning Approaches to Assessment and Care, CLE Wednesdays; Clinical and Lived Experiences (GBHI), Online, 28th October, 2020, GBHIInvited Talk
  • McCarron, M., COVID-19 and Older Adults with an Intellectual Disability: A TCAID Perspective, SJOG: Online Research Study Day, Online, 18th November, 2020, SJOGInvited Talk
  • McCarron, M., McCausland, D., Allen, A.P., Luus, R., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F., & McCallion, P., THE IMPACT OF COVID-19 on People Ageing with an Intellectual Disability in Ireland 2020 - Evidence from Wave 4 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Dublin, December, 2020Report, URL
  • K Kiely, Prevalence and patterns of anti-epileptic medication, 2018Journal Article
  • McCarron, Mary; McCausland, Darren; Allen, Andrew; Luus, Retha; Sheerin, Fintan; Burke, Eilish; McGlinchey, Eimear; Flannery, Fidelma; McCallion, Philip, The impact of COVID-19 on people ageing with an intellectual disability in Ireland, Dublin, December, 2020Report, DOI , URL , TARA - Full Text
  • McCarron, M., Physical Health issues for older adults with an Intellectual Disability: Evidence form the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing(IDS TILDA) , Physical health in people with intellectual disability: Current perspectives and future directions, Virtual, 25th May, 2021, The Royal Society of MedicineInvited Talk, URL
  • McCarron, Mary; Swinburne, Janet; Burke, Eilish; McGlinchey, Eimear; Mulryan, Niamh; Andrews, Vicky; Foran, Sinead; McCallion, Philip, 'IDS-TILDA Wave 1: Main Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, 2011, -Protocol or guideline, URL , TARA - Full Text
  • McCarron, Mary; Burke, Eilish; McGlinchey, Eimear; McCausland, Darren; Carroll, Rachael; Mulryan, Niamh; Cleary, Eimear; O'Donovan, Mary-Ann; Shivers, Carolyn; McCallion, Philip, 'IDS-TILDA Wave 2: Main Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Dublin, Trinity College Dublin, 2014, -Protocol or guideline, URL , TARA - Full Text
  • McCarron, Mary; Burke, Eilish; McGlinchey, Eimear; McCausland, Darren; Carroll, Rachael; Mulryan, Niamh; Cleary, Eimear; O'Donovan, Mary-Ann; Shivers, Carolyn; McCallion, Philip, 'IDS-TILDA Wave 2: Pre-Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Dublin, Trinity College Dublin, 2014, -Protocol or guideline, URL , TARA - Full Text
  • McCarron, Mary; Haigh, Margaret; Burke, Eilish; McGlinchey, Eimear; McCausland, Darren; Carroll, Rachael; O'Donovan, Mary-Ann; Sheerin, Fintan; O'Dwyer, Maire; Foran, Sinead; MacGiolla Phadraig, Caomhin; Mulryan, Niamh; O'Connell, Juliette; Ryan, Judy; McCallion, Philip, 'IDS-TILDA Wave 3: Main Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Dublin, Trinity College Dublin, 2017, -Protocol or guideline, URL , TARA - Full Text
  • McCarron, Mary; Haigh, Margaret; Burke, Eilish; McGlinchey, Eimear; McCausland, Darren; Carroll, Rachael; O'Donovan, Mary-Ann; Mulryan, Niamh; Sheerin, Fintan; O'Dwyer, Maire; Foran, Sinead; MacGiolla Phadraig, Caomhin; O'Connell, Juliette; Ryan, Judy; McCallion, Philip, 'IDS-TILDA Wave 3: Pre-Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Dublin, Trinity College Dublin, 2017, -Protocol or guideline, URL , TARA - Full Text
  • Darren McCausland, Andrew P. Allen, Margaret Haigh, Fintan Sheerin, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Niamh Mulryan, Philip McCallion and Mary McCarron, Overcoming Adversity: The Continuing Impact of COVID-19 on People Ageing with an Intellectual Disability in Ireland. Findings from the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) COVID-19 Sub-Study, Trinity College Dublin, December, 2021Report, DOI , URL , TARA - Full Text
  • Mary McCarron, Philip McCallion, Rachael Carroll, Eilish Burke, Eimear Cleary, Darren McCausland, Eimear McGlinchy, Mary Ann O'Donovan, Niamh Mulryan, and Carolyn Shivers, Advancing Years, Different Challenges: Wave 2 IDS-TILDA. Findings on the ageing of people with an intellectual disability., Dublin, 2014Report
  • Byrne, K., MacGiolla Phadraig, C., Daly, B., McCarron, M. & McCallion, P., The Oral Health Status of Older People with Intellectual Disabilities in Ireland. Initial Findings., Irish Society for Disability and Oral Health (ISDH) , The Lyrath Estate Hotel, Kilkenny, 23rd June, 2022Oral Presentation
  • McCarron, M., Addressing Inequity in Healthcare for People with Intellectual Disabilities: Improving the Patient Journey., Academic Primary Care Centre (APCC) Lecture , Russell Centre, Cookstown Way, Tallaght, Dublin 24, Thursday, 26th May, 2022, Faculty of Health SciencesInvited Talk, URL
  • McCarron, M., Leadership in Health Research and Health Care - My Journey , Local Network Orientation for Atlantic Fellows, GBHI, Lloyd Institute, 7th September, 2022, GBHIInvited Talk
  • Sheerin, F., Fleming, S., McCarron, M., McCallion, P., May, P., Lalor, G. & D'eath, M. Fleming, S., The Care of Older Adults with Intellectual Disabilities and Complex Age-Related Conditions, National Disability Authority, January, 2023Report, URL
  • McCarron, M., Developing Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability., Dementia Research-Bridging the gap between research, policy and practice., Radisson Blu Royal Hotel, Golden Lane, Dublin., 22/02/2023, 2023, The Alzheimer Society of Ireland.Invited Talk
  • McCarron, M., IDS TILDA 10 years on, Shaping the Future of Intellectual Disability Nursing in Ireland Conference 2023 and Beyond"A Partnership Approach., Killashee House Hotel Naas, Co. Kildare., Wednesday 24th May., 2023, HSE Office of Nursing and Midwifery Services Director.Invited Talk
  • Fallon, M., McGlinchey, E. & McCarron, M., Modifiable lifestyle factors associated with age of dementia diagnosis., Horizon 21 Consortium F2F Meeting., Munich, Germany., 15th - 16th June, 2023Oral Presentation
  • McGlinchey, E., Bray, F., Fortea, J., Yap, M-L., Kennelly, S. & McCarron, M., Complex Joy: A Celebration of Brain Health in People with Down Syndrome, Creative Brain Week 2023, Science Gallery, Trinity College Dublin, 9th March, 2023Oral Presentation
  • McCarron, M., Data from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), National Statistics Board Meeting: Statistics, data and information on disability and related areas, Department of the Taoiseach, Dublin, 29th March, 2023, Central Statistics OfficeInvited Talk
  • McCarron, M., Data Driving policy, Practice and healthcare change: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, FHM&S Postgraduate Research Symposium, Online, 1st June, 2023, University of Chester, UKInvited Talk
  • McCarron, M., Haigh, M., Dann, G., & McCallion, P. (Eds.), Longitudinal Dynamics in the Ageing of People with an Intellectual Disability: Evidence from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 5, 2023Report, DOI , URL , TARA - Full Text
  • McCarron, M, Burke, E-A. & Wormald, A., Building a Better Future for People Ageing with an Intellectual Disability - The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing., Trinity Centre for Ageing and Intellectual Disability/Brother's of Charity Services Ireland Synposium., The Clarion Hotel, Steamboat Quay, Dock Rd, Limerick City., 29th September 2023, 2023Invited Talk
  • McCarron, M., Data Driving policy, Practice and healthcare change: The Intellectual disability Supplement to the Irish Longitudinal Study on Ageing., Clinician's Day at St. Michael's House., St. Michael's House, HQ, Ballymun., 3rd October 2023., 2023, St. Michael's House.Invited Talk
  • McCarron, M., Daly, L., McCallion, P., Allen, A.P., Buttery, N., Dennehy, H., Kennelly, S., Corr, C., Dunne, P., McGlinchey, E., Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability, 17, Trinity College Dublin, March, 2024Report, TARA - Full Text
  • McCarron, M., Allen, A.P., Buttery, N., Dennehy, H., Kennelly, S., Corr, C., Dunne, P., Daly, L., McCallion P., McGlinchey, E., Voices of Experience: Building Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability. Brief Report, 5, Trinity College Dublin, January, 2024Report, DOI , TARA - Full Text
  • McCarron, M., Mc Causland D., Wormald, A., McGlinchey, E., MacGiolla Phadraig, C., Brennan, D., and Burke, EA, Longitudinal Dynamics in the Ageing of People with an Intellectual Disability: Evidence from IDS-TILDA, Data and Knowledge Sharing and Dissemination, Department of Children, Equality, Disability, Integration and Youth, Dec 8th 2023, 2023, IDS-TILDA and Department of Children, Equality, Disability, Integration and YouthInvited Talk
  • Lambert V, Using a range of methods to access children's voices, Health4Life, Dublin City University, May, 2006Conference Paper
  • McCarron, M., McCallion, P., Fleming, S., & Bourke, E., An Investigation of Dependency Levels of Ageing Persons with Intellectual Disability (ID) and the Implications from a Care and Resource Perspective, Dublin, School of Nursing & Midwifery, Trinity College Dublin, 2005Report
  • McCarron, M., McCallion, P., & McLaughlin, M., Overview of dementia issues in intellectual disability , The Frontline of Learning Disability, 64, (Winter), 2005, p14 - 15Journal Article
  • McCallion, P., & McCarron, M. , Environmental modification and dementia: key recommendations., The Frontline of Learning Disability, 64, (Winter), 2005, p28 - 29Journal Article
  • McCallion, P., & McCarron, M., Some resources on intellectual disability and dementia., The Frontline of Learning Disability, 64, (Winter), 2005, p29 - 29Journal Article
  • McCarron, M., Fahey-McCarthy, E., Connaire, K, McCallion, P , Supporting Persons with Intellectual Disability and Dementia. Fusing the Horizons of Intellectual Disability, Palliative and Person Centred Dementia Care, 2008Report
  • Fahey-McCarthy, E., McCarron, M. Connaire, K, McCallion, P , Supporting Persons with Intellectual Disability and Dementia. Fusing the Horizons of Intellectual Disability, Palliative and Person Centred Dementia Care. An Introductory Education and Training Programme., (Including Trainers Manual, CD ROMS, Student Reflective work book. , 2008Report
  • McCarron, M , Supporting Persons with advanced and terminal dementia. 1st North Mayo Dementia 28th February 2009 , 28th February 2009 , 2009Invited Talk
  • McCarron, M , Caring for Persons with Intellectual Disabilities; From student Nurse to International Research and Leadership. 5th Positive Choices Conference University College Cork April 24th 2009 , April 24th 2009 , 2009Invited Talk
  • McCarron, M , Ageing and Dementia: Opportunities and Challenges in Care. Transforming Learning Disability Nursing Practice to Address Health Inequalities. 5th Annual National Network for Learning Disability Nurses. Trinity College Dublin. Plenary Paper. , 2008Invited Talk
  • McCarron, M , Developing a Strategic Plan to Address the Needs of person with Intellectual Disability and Dementia. Brothers of Charity Service, Bawnmore Limerick. (May 20th) Workshop. , May 20th 2008, 2008Invited Talk
  • McCarron, M , Supporting persons with Advanced Dementia: Palliation and End of Life Care. Older People With Learning Disability and Dementia Conference. Dementia Services Development Centre Northern Ireland. Armagh City Hotel. April 9th. (Paper), April 9th 2008, 2008Invited Talk
  • McCarron, M , An Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing. The Irish College of Psychiatrists Spring Meeting. Grand Hotel Malahide. , April 4th 2008, 2008Invited Talk
  • McCarron, M , Dementia Assessment and Care Approaches in Persons with an Intellectual Disability. The Irish Psychological Society (1 Day Workshop) Ardilaun Hotel Galway , 27th March 2008, 2008Invited Talk
  • McCarron, M , How can we promote health and well-being in persons with Down syndrome who are deeply forgetful and living with Dementia? New Ideas-New approaches Supporting Innovation in Services and Supports to people with Intellectual Disability. National Federation of Voluntary Bodies., Silver Springs Hotel. Kilkenny, 23rd and 24th of Oct, 2007Invited Talk
  • McCarron, M , How can we promote health and well-being in persons with Down syndrome who are deeply forgetful and living with Dementia? New Ideas-New approaches Supporting Innovation in Services and Supports to people with Intellectual Disability. National Federation of Voluntary Bodies. (, Silver Springs Hotel. Kilkenny, 23rd and 24th of Oct, 2007Invited Talk
  • McCarron, M , Challenges and Opportunities -Developing Services for the Future. Learning Disability & Dementia Forum. Belfast Health and Social Care Trust. , 10th October 2007, 2007Invited Talk
  • McCarron, M , Palliative Care: Important Care Considerations when supporting people with Advanced Dementia. Developing Supports for People with Intellectual Disabilities and Dementia. St. John of God Hospitaller Services. Stillorgan. (4th October 2007), 4th October, 2007Invited Talk
  • McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Understanding Person Centred Dementia Care. (A Workshop) Brothers of Charity Galway. Days Hotel (June 2007). , June 2007, 2007Invited Talk
  • McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Care and Service Provision. International Conference The Way Forward: Choice and Challenges. COPE Foundation. Sliver Springs Hotel Cork. (May 2007)., May 2007, 2007Invited Talk
  • McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Care and Service Provision. International Conference The Way Forward: Choice and Challenges. COPE Foundation. Sliver Springs Hotel Cork. (May 2007)., May 2007, 2007Invited Talk
  • McCarron, M , Enhancing Quality of Life for Older people with a Disability in Ireland. National Conference. Session Chair -Connectedness, Companionship, Recreational Activities. Croke Park Conference Centre (May 2007), May 2007, 2007Invited Talk
  • McCarron, M , Ageing and Dementia in Persons with Intellectual Disability. A Workshop. Irish Nurses Organisation Dublin. (March 2007). , March 2007, 2007Invited Talk
  • McCarron, M , Dementia in Persons with Intellectual Disability; Understanding Critical End of Life Care. Palliative Care in Persons with Intellectual Disability Conference. Peamount Intellectual Disability Service. Newcastle. Dublin. (March 2007), Newcastle. Dublin., March 2007, 2007Invited Talk
  • McCarron, M , Caring for Persons with Advanced Dementia: Developing Commissioning Strategies. Facing End of Life Conference. NHS North East. Middlesbrough. UK. (February). , NHS North East. Middlesbrough. UK., February 2007, 2007Invited Talk
  • Mc Carron M Neenan K Connaire K Mc Conville U, Stepping Stones: The role of hospice day care in the care of patients with terminal illness., Dublin, 2010Report, TARA - Full Text
  • McCarron , M. , Toward a 21st Century Model of Supports for Persons with Disabilities. , International Conference Active Citizenship & Disability, Centre for Disability Law and Policy National University of Ireland Galway, October, 2011Invited Talk
  • McCarron , M. , Understanding Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Communication , IASLT Adult Intellectual Disability , St. John of Gods Service Stillorgan Dublin, October, 2011, St. John of Gods Service Stillorgan DublinInvited Talk
  • McCarron M. , Working with generalist health care and palliative care services to support people with ID as they age. . , The 20th Roundtable of the IASSID Special Interest Research Group on Ageing with an Intellectual Disability, Trinity College Dublin, September, 2011, IASSID Special Interest Research Group on AgeingInvited Talk
  • McCarron M. & McCallion, P. , Plenary Paper - The first wave findings of the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA), 2009Working Paper
  • Higgins, A., Sharek, D., McCann, E., Sheerin, F., Glacken, M., Breen, M., and McCarron, M., Visible Lives: Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland, Dublin, Gay and Lesbian Equality Network, 2011, 1, 212Report
  • McCarron. M., Swinburne. J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., & McCallion. P., Growing Older with an Intellectual Disability in Ireland 2011; First Results from the The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., 2011Report, DOI , TARA - Full Text
  • McCarron M, Alzheimer's Dementia in Persons with Intellectual Disability: Common Questions and Concerns - Information Booklet, 2003, -Miscellaneous
  • McCarron M, McCallion, P & Service, K, Day to day care activities for persons with ID and dementia. A two cd-rom training package produced in conjunction with the NYS Developmental Disabilities Planning Council. , 2002, -Miscellaneous
  • McCarron M, Assisting people with a Mental Handicap Cope with the loss of Family and Friends. , Frontline, 1996Review Article
  • McCarron, M & O'Reilly, O, Reflections and Visons. Report on European Year of Older People and Solidarity between Generations, Conference Proceedings, 1993Review Article
  • McCarron, M, Keynote Speaker, DSQIID-CV Seminar Working Group, Hong Kong,China, July, 2013Invited Talk
  • McCarron, M, Ageing&Intellectual Disability, NTU Department of Social Work, Cheng-Chung University,Chia-Yi,Taiwan, July, 2013Invited Talk

Research Expertise

An international expert in the field of ageing and intellectual disability, Professor Mary McCarron is the founder and Principal Investigator of the first longitudinal study on ageing in people with an intellectual disability (IDS-TILDA) to be conducted within the EU and the only study, to date, with the potential to compare the ageing process in people with intellectual disability with the general population (TILDA). The recipient of the inaugural Health Research Board 2019 Impact Award, Prof McCarron's research excellence and translational activities have been recognised as exemplary. Her sustained efforts in including people with intellectual disabilities in all aspects of research was instrumental in securing an institutional Public, Patient Involvement award from the Health Research Board and Irish Research Council for Trinity College. Leading a research team focused upon ageing, intellectual disability, dementia, end of life and palliative care, Professor McCarron's work is at the forefront of addressing health and care inequities. Funded by the Health Research Board, Irish Hospice Foundation, The Atlantic Philanthropies, Department of Health, Irish Research Council, National Disability Authority, EIT Health and others, Professor McCarron's areas of focus are: Longitudinal epidemiological studies tracking the key determinants of health and wellbeing of adults with an intellectual Disability as they age. . Develop interventions models targeted at preventing secondary disability and improving quality of life and longevity for people with ID. . Longitudinal studies tracking over 20+ years the incidence, prevalence and risk factors associated with dementia in people with Down syndrome. . Working with relevant agencies to establish the first National Memory Clinic for people with ID with satellite services throughout the country with a focus on building capacity for assessment of symptoms of dementia and the standardization of assessment and diagnostic protocols. . Using a concerted and collaborative approach develop the infrastructure and networks required to establish and run large scale primary and secondary clinical trials. Work with international collaborators and the Global Brain Health Institute (GBHI) to develop and validate clinical trials outcome measures, and to develop pre dementia disease models by accumulating clinical and biomarker data with a focus on disease prevention and treatment in people with Down syndrome. . Work with people with ID and relevant agencies and policy makers to develop post diagnostic supports for people with ID and dementia and their caregivers and assess cost and quality of life issues in dementia care and end of life care. . Extending palliative care to persons with advanced and terminal dementia and other non-malignancies . Award-winning approaches to environmental design for those ageing with dementia;

  • Title
    Loneliness as experienced by people with an intellectual disability (LEID); Theoretical framework development to support future intervention studies.
    Summary
    Funding Agency
    Faculty of Health Sciences, Trinity College Dublin
    Date From
    1st January 2023
    Date To
    31st December 2023
  • Title
    National Indicators of Positive Ageing for People with Intellectual Disabilty
    Summary
    This project is developing a set of national indicators of positive ageing for people with ID to mirror those collected for the non-ID population. Using a Delphi process, it will include people with ID, academics in the field of ID and ageing, policymakers and carers in order to agree the final indicator set. IDS TILDA, it is predicted, will be the primary data source for the indicators.
    Funding Agency
    Dept of Health's HaPAI programme (Healthy and Positive Ageing Indicators) and the HSE
    Date From
    01/03/2018
    Date To
    01/09/2019
  • Title
    Registrar's Civic Engagement Award
    Summary
    Funding Agency
    Trinity College Dublin
    Date From
    June 2019
  • Title
    Qualitative research study on the lived experiences of service users in Community Health Organisation Area 1
    Summary
    Funding Agency
    Health Service Executive
    Date From
    February 2020
    Date To
    February 2021
  • Title
    ADM Impact on Real Life: Expectations for People with Intellectual Disabilities (ADMIRE)
    Summary
    Funding Agency
    Faculty of Health Sciences
  • Title
    The CANDID study: CANcer incidence, prevalence, diagnosis, treatment, risk factors and outcomes in older adults with intellectual disabilities
    Summary
    Funding Agency
    Health Research Board
  • Title
    Follow-up on the experience of Covid-19 among People with Intellectual Disabilities, An At-risk and Vulnerable group
    Summary
    Funding Agency
    Health Research Board/Department of Health
    Date From
    January 2021
    Date To
    September 2021
  • Title
    The Post-Caring Experience: An Assessment of the Needs of former Family Carers.
    Summary
    Funding Agency
    IRCHSS and Care Alliance
    Date From
    Dec 2009
    Date To
    Dec 2010
  • Title
    Prevent Dementia DS
    Summary
    Funding Agency
    GBHI/Alzheimer's Org/Alzheimer's Society Deans Research Initiative Wellcome Trust ISSF Assistant P
    Date From
    September 2020
    Date To
    March 2023
  • Title
    Best and most cost effective day service models to support the transition of adults with intellectual disabilities (ID) into old age.
    Summary
    PI: Laurence Taggart, McCarron M, McCallion P
    Funding Agency
    Ulster University & Northern Ireland Research & Development Office
    Date From
    2012
    Date To
    2015
  • Title
    Development of OPTIMA-ID: Optimising Pharmaco-Therapy and Improving Medication for Ageing with Intellectual Disability.
    Summary
    Funding Agency
    Faculty of Health Sciences, Trinity College Dublin
    Date From
    January 2022
    Date To
    December 2022
  • Title
    Getting the Message to the people that Matter; Innovation in Research Dissemination.
    Summary
    Funding Agency
    IRCHSS Award
    Date From
    December 2011
    Date To
    May 2012
  • Title
    Dean's Award Proposal 'Questions of Inclusion'
    Summary
    Funding Agency
    Faculty of Health Sciences, Trinity College Dublin
    Date From
    February 2020
    Date To
    February 2021
  • Title
    ProACT (Integrated Technology Systems for ProACTive Patient Centred Care)
    Summary
    Funding Agency
    TCD-Faculty of Health Sciences - Dean's Research Initiative Fund
    Date From
    September 2016
    Date To
    June 2018
  • Title
    ProACT (Intergrated Technology Ecosystems for ProACTive Patient Centred Care)
    Summary
    PI: Dr. John Dinsmore. TCD Team: Prof. Mary McCarron, Dr. Anne-Marie Brady, Dr. Joan Cahill. Development of proactive integrated care technology ecosystems to support multimorbidity disease management (including detection of early onset cognitive decline/dementia) in an ageing population. Involves 12 partners across 6 EU member states. Trial sites in Ireland, Belgium and Italy. Award secured August 2015.
    Funding Agency
    European Commission - Horizon 2020 under Call SC1-PHC25-2015
    Date From
    01/01/2016
    Date To
    01/07/2019
  • Title
    An investigation of dependency levels of ageing persons with Intellectual Disability (ID)
    Summary
    McCarron, M (PI), McCallion, P, Fleming, S.
    Funding Agency
    HSE Peamount Intellectual Disabilities Service
    Date From
    January 2004
    Date To
    July 2006
  • Title
    National Key Indicators of Positive Ageing for People with ID
    Summary
    A bolt on study to IDS TILDA to develop National Key Indicators of Positive Ageing for People with ID
    Funding Agency
    Department of Health
    Date From
    March 2017
    Date To
    December 2018
  • Title
    The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 5
    Summary
    The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) researches ageing among people with an intellectual disability (ID) aged 40+ years in the Republic of Ireland. The first of its kind in Europe, IDS-TILDA through alignment with The Irish Longitudinal Study on Ageing (TILDA), remains the only study able to directly compare ageing among people with ID with ageing among the general population.
    Funding Agency
    Health Research Board
    Date From
    1st November 2022
    Date To
    31st December 2024
  • Title
    Care of Older Adults with Intellectual Disability and Complex Age-Related Conditions
    Summary
    Funding Agency
    National Disability Authority
    Date From
    April 2020
    Date To
    November 2021
  • Title
    Cost effectiveness and Quality of Life in Service Delivery for Persons with the dual disability of Down syndrome (DS) Alzheimer's Dementia (AD).
    Summary
    Responding to dementia needs is a new challenge for intellectual disability service providers and particularly pressing when consumers present with Down syndrome. New models of service are called for and are being attempted. This study will assess the relative cost and impacts on quality of life of four different care options: community and campus based group homes, aging settings and dementia specific settings.
    Funding Agency
    Health Research Board
    Date From
    Sept 2004
    Date To
    Sept 2007
  • Title
    The last months of life of people with LD living in Wales over a 12 month period.
    Summary
    Stuart Todd
    Funding Agency
    Dunhill Medical trust grant NISCHR (WAG)
    Date From
    2015
    Date To
    2016
  • Title
    Brain Training in persons with Down syndrome
    Summary
    Funding Agency
    Down syndrome Ireland
    Date From
    March 2015
    Date To
    March 2017
  • Title
    The impact of the menopause on the mental health of women with intellectual disability
    Summary
    Funding Agency
    Irish Research Council
  • Title
    National PPI Network 2021
    Summary
    Funding Agency
    HRB
    Date From
    2021
    Date To
    2025
  • Title
    A collaborative initiative to implement person-centred practice in residential care settings for children and adults with intellectual disability.
    Summary
    McCarron M(PI), McCallion, P., Keenan, P., Griffiths, C., Rolfe G.
    Funding Agency
    Stewarts Hospital
    Date From
    October 2011
    Date To
    February 2013
  • Title
    Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland and recommending positive ageing strategies and actions to promote their full participation and inclusion in Irish society.
    Summary
    Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland and recommending positive ageing strategies and actions to promote their full participation and inclusion in Irish society
    Funding Agency
    GLEN
    Date From
    Nov 2009
    Date To
    Dec 2010
  • Title
    Way2Be - Stewarts Care
    Summary
    Funding Agency
    Dormant Accounts
    Date From
    December 2019
    Date To
    December 2020
  • Title
    National Intellectual Disability Dementia Diagnostic Centre
    Summary
    Funding Agency
    National Dementia office/Department of Health
    Date From
    February 2019
    Date To
    February 2021
  • Title
    PPALs: People with Intellectual Disabilities with Physical Activities Leaders in the Community
    Summary
    P-PALs is a project to encourage people with ID to take a leadership role in promoting physical activity among their peers. Working with Age & Opportunity's Go for Life programme, it encourages adults with ID to learn how to lead a group in physical activities and games and to encourage that group to become more physically active.
    Funding Agency
    EIT Health
    Date From
    January 2018
    Date To
    December 2018
  • Title
    Stigma and Alzheimer's disease
    Summary
    A qualitative study of the expereince of stigma by persons with dementia and their families
    Funding Agency
    Alzheimer's Society of Ireland
    Date From
    March 2006
    Date To
    September 2006
  • Title
    Understanding the contributors to better integration and community participation by persons with severe and profound intellectual disability
    Summary
    A Time to Move On from Congregated Settings: A Strategy for Community Inclusion (HSE, 2011) recommends a model of community inclusion to support people with an intellectual disability currently living in congregated settings to move to dispersed housing in ordinary communities. However, there is insufficient data on how successful community inclusion and community participation may be achieved for people with severe and profound intellectual disability. As a means of filling this gap, the research team, working with Inclusion Ireland conducted in-depth interviews with carers and service managers of older people with severe and profound intellectual disability to discern best practices, develop training and capacity building, and inform public policy.
    Funding Agency
    Irish Research Council
    Date From
    January 2015
    Date To
    December 2016
  • Title
    Assessing the impact of person centred planning (PCP) on community integration for adults with intellectual disabilities.
    Summary
    Funding Agency
    National Disability Authority Research Promotion Scheme
    Date From
    March 2018
    Date To
    February 2019
  • Title
    Our Voices
    Summary
    Our Impact (Knowledge Exchange and Dissemination Scheme Wave 3)
    Funding Agency
    HRB
    Date From
    December 2017
    Date To
    November 2018
  • Title
    Quality of life outcomes and cost changes associated with providing support to people with intellectual disability who move form congregared settings to community living arrangements
    Summary
    Researchers McCarron, M., May, P., O'Donovan, M., McCallion, P., Smith, V., Cunniffe, A, Stancliffe, R., Normand, C
    Funding Agency
    HRB
    Date From
    August 2017
    Date To
    February 2018
  • Title
    Evaluation of the Programme to support Palliative and Hospice Care in the Republic of Ireland
    Summary
    Funding Agency
    Atlantic Philanthropies
    Date From
    March 2010
    Date To
    March 2011
  • Title
    Health Assessment and People with Intellectual Disability
    Summary
    Funding Agency
    EIT Health
    Date From
    October 2017
    Date To
    January 2018
  • Title
    ASSISTID (Assistive Technologies for People with Intellectual Disability and Autism
    Summary
    PI: Prof. Brian Harvey. Core TCD Team: Prof. Mary McCarron, Dr. John Dinsmore. Study Title: Assistive Technology Development for Autism and Intellectual Disability. Role: TCD PI (presently supporting TCD applicants in the process of targeting fellows and pushing submissions with one successful and 4 applications in progress) Proportion direct to TCD will be determined in 2016. To date 2 DOCTRID ASSISTID Fellows at €171,832 per fellow have been secured under the programme
    Funding Agency
    European Commission - Marie Curie FP7 Co-Fund
    Date From
    15/05/2014
    Date To
    15/05/2019
  • Title
    Wave IV An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
    Summary
    Funding Agency
    Health Research Board & Department of Health
    Date From
    Nov 2018
  • Title
    KNOWLEDGE EXCHANGE AND DISSEMINATION SCHEME 2017 KEDS-2017-021
    Summary
    Funding Agency
    HRB
    Date From
    01/01/18
    Date To
    01/01/19
  • Title
    Including best practices and the voices of experience in developing post-diagnostic dementia support guidelines for people with an intellectual disability
    Summary
    Funding Agency
    Alzheimer's Society of Ireland and Health Research Board
    Date From
    November 2020
    Date To
    December 2023
  • Title
    Working with the Research Community: Training & Toolkit for Patients and Members of the Public
    Summary
    Funding Agency
    Health Research Board
    Date From
    December 2018
    Date To
    December 2020
  • Title
    HRB Impact Award
    Summary
    This award recognised Prof Mary McCarron, who has made, or is making, an outstanding contribution to research that has had a significant impact on people's health or on health policy or practice. Research impact has been defined as 'an identifiable benefit or positive influence on society, public policy, quality of life and/or the economy'. This award will help increase recognition of the value of integrating health research into practice and policy to create a lasting impact on people's health. It should also provide an opportunity to showcase Ireland's position as a leader in health research internationally.
    Funding Agency
    Health Research Board
    Date To
    February 2019
  • Title
    Community inclusion for people with and intellectual disability
    Summary
    Funding Agency
    Irish Research Council
    Date From
    March 2015
    Date To
    December 2015
  • Title
    A Participatory action research pilot study to enhance long term care planning for older people with an Intellectual Disability (ID) in Ireland and their families
    Summary
    This is a 'bolt-on' project to IDS-TILDA, which builds on the NDA funded project "Understanding Family Strategies that Enable Long Term and Sustainable Home Environments for Older People with an Intellectual Disability".
    Funding Agency
    IRC
    Date From
    01/03/2017
    Date To
    01/03/2018
  • Title
    Engaging the Brain through Cognitive Stimulation Therapy
    Summary
    Funding Agency
    Avista
    Date From
    1st March 2024
    Date To
    28th February 2025
  • Title
    Evaluation of the Genio Dementia Programme 2014 - 2016
    Summary
    An Evaluation for the Genio Dementia Programme
    Funding Agency
    Genio
    Date From
    July 2014
    Date To
    December 2019
  • Title
    National Consultation with Service Users and Healthcare Providers regarding Home Nursing Services for People with State Acquired Hepatitic C Virus (HCV)
    Summary
    Timmins, F, (PI) Glacken, M, Grogan, A. Frazer, K., McCarron, M
    Funding Agency
    HSE
    Date From
    May 2008
    Date To
    November 2008
  • Title
    Understanding family strategies that enable long term and sustainable home environments for older people with an Intellectual Disability
    Summary
    The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) is the first and most extensive such study to be conducted in Ireland or in the EU, and it is recognised internationally as pioneering in this field. This study provides the definitive and most nationally representative sample of older people with an ID. Within this study the now completed "Carer's Self-Completion Questionnaire" has a sample of 62 carers of older people with an ID living within family settings. The key methodology employed in this study entailed qualitative focus groups and interviews with these families. All focus group discussions were transcribed and data inputted into NVIVO with data analysed and mined to extract key themes and concepts. Objectives: . Describe the decision making process within families caring for an older person with an ID 1. Describe strategies for long term care planning within families 2. Describe patterns of transfer of care (parent to sibling, sibling to sibling etc) 3. Describe key family, economic, environmental, and social factors influencing strategies for long term family care . Illuminate barriers and enablers for families with an older person with ID 1. Identify pressure points for these families 2. Identify strategies, supports and enablers which sustain older people with ID within the family and community setting including the role of caregiving networks and supportive neighbours and communities . Identify best practice for supporting families with an older person with ID 1. Identify gaps between family experiences and the aspirations of contemporary ID social policy 2. Articulate the perceptions of families with regard to future policy 3. Propose models of support that facilitate family engagement and capacity in sustaining older people with an ID within the community
    Funding Agency
    National Disability Authority
    Date From
    March 2015
    Date To
    March 2016
  • Title
    People with disabilities experiencing homelessness
    Summary
    Funding Agency
    National Disability Authority
    Date From
    02 December 2019
    Date To
    31 July 2020
  • Title
    St Ita's moving to community Settings
    Summary
    This project is independently evaluating change in the lives of 29 residents in St Joseph's Intellectual Disability Services, St Ita's Hospital, Portrane, Co Dublin, following a transition from current residence, using the IDS-TILDA framework. The first phase acted as a baseline and with data from the second phase, collected post-move, used to evaluate change.
    Date From
    Aug 2017
    Date To
    March 2018
  • Title
    Measuring and evaluating outcomes at the end of life for people with learning disabilities
    Summary
    Funding Agency
    Baily Thomas Trust
    Date From
    August 2012
    Date To
    February 2015
  • Title
    Effective family support models during the transition of adults with intellectual disabilities into old age
    Summary
    Co. P.I McCallion, P., McCarron, M
    Funding Agency
    Research and Development Office, Belfast
    Date From
    Nov 2012
  • Title
    Wave III An Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing TILDA. Wave III
    Summary
    An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
    Funding Agency
    Health Research Board & Department of Health
    Date From
    Nov 2015
    Date To
    Dec 2018
  • Title
    Clinical Nursing Research Fellow, Investigating the 'influence of Alzhjeimer's Dementia on Time Spent Caregiving for persons Down syndrome and Alzheimer's dementia'
    Summary
    MCarron, M (PI and Doctoral Student), Begley, C Gill M.
    Funding Agency
    Health Research Board
    Date From
    Nov 1999
    Date To
    Oct 2002
  • Title
    SOOTHE
    Summary
    Funding Agency
    EIT Health
    Date From
    January 2020
    Date To
    December 2020
  • Title
    Developing respiratory practice to address palliative care needs of patients with chronic obstructive pulmonary disease (COPD): exploring the lay carer expert knowledge and experience.
    Summary
    Hynes, G -Doctoral Student McCarron, M (PI) Cox, K
    Funding Agency
    Irish Hospice Foundation
    Date From
    August 2007
    Date To
    October 2008
  • Title
    KEDS
    Summary
    Funding Agency
    Health Research Board
    Date From
    December 2015
    Date To
    December 2016
  • Title
    Shaping the Future of Intellectual Disability Nursing in Ireland.
    Summary
    Funding Agency
    Health Services Executive Ireland/Trinity College Dublin.
    Date From
    November 2013
    Date To
    April 2015
  • Title
    Seed funding to explore the impact of caring for persons with the dual disability of Alzheimer's Dementia and Down Syndrome
    Summary
    McCarron, M (PI)
    Funding Agency
    All-Ireland Research Fellowship grant from An Bord Altranais and the National Board of Nursing
    Date From
    Nov 1998
    Date To
    Nov 1999
  • Title
    Get Wise About Your Health
    Summary
    Funding Agency
    EIT Health
    Date From
    1st January 2020
    Date To
    31st December 2020
  • Title
    PPALS2
    Summary
    Funding Agency
    EIT Health
  • Title
    CANcer incidence, prevalence, Diagnosis, treatment, risk factors and outcomes in older adults with Intellectual Disabilities
    Summary
    Funding Agency
    Health Research Board
  • Title
    CA21123 - Cancer- Understanding Prevention in Intellectual Disabilities (CUPID)
    Summary
    Funding Agency
    EU Cost Action
    Date From
    01/01/2023
    Date To
    31/12/2023
  • Title
    Translating the HS E's National Health Promotion Strategic Framework into an accessible format to support individuals with communication challenges, to support and empower all Individuals with communication challenges with their own health and wellbeing in a person centred manner
    Summary
    Funding Agency
    Avista
    Date From
    1st March 2024
    Date To
    28th February 2025
  • Title
    End of Life Care
    Summary
    palliative and end of life care for older adults with intellectual disability in Ireland, through a social justice lens, in association with the IDS-TILDA study
    Funding Agency
    AIIHPC
    Date From
    Jan 13
    Date To
    Dec 16
  • Title
    Residents of St Joseph's Moving to Community Settings: Understanding the changes in their lives
    Summary
    Funding Agency
    Health Service Executive
    Date From
    August 2017
    Date To
    August 2021
  • Title
    MOOC
    Summary
    Funding Agency
    EIT Health
    Date From
    1st September 2017
    Date To
    31st December 2017
  • Title
    Visiting Professors Fund
    Summary
    Funding Agency
    Faculty of Health Sciences, Trinity College Dublin
    Date From
    January 2020
    Date To
    December 2020
  • Title
    Knowledge Transfer Exchange
    Summary
    Activities associated with the Palliative Care research Network work package. Identifying and addressing the needs of people with intellectual disability
    Funding Agency
    AALPHC
    Date From
    June 2017
    Date To
    October 2017
  • Title
    Digi-ID (Digital  skills education to support health and social inclusion for adults with intellectual disabilities)
    Summary
    Funding Agency
    EIT Health
    Date From
    January 2021
    Date To
    December 2021
  • Title
    An investigation of the Role of Hospice Day Care in the Care of Patients with Life Limiting Illness
    Summary
    McCarron, M, (PI), Neenan, K, (Doctoral Student), Ryan, F, McCann, M, Connaire, K, Cox, K,
    Funding Agency
    Irish Cancer Society
    Date From
    September 2006
    Date To
    September 2008
  • Title
    BEADS
    Summary
    Brain Exercise for Adults with Down Syndrome
    Funding Agency
    Down Syndrome Ireland
    Date From
    July 2015
    Date To
    March 2017
  • Title
    WayFinding
    Summary
    PI: Dr. John Dinsmore. To pilot a smart watch navigation application for people with intellectual disability/mild cognitive impairment
    Funding Agency
    TCD Faculty of Health Sciences Award - Dean's Research Initiative Fund
    Date From
    01/05/2016
    Date To
    01/02/2017
  • Title
    What are the respite needs and experiences of family's caring for a child with a life-limiting condition requiring palliative care?
    Summary
    Ling, J-Doctoral Student and HRB Clinical Research Fellow McCarron, M (Principal Supervisor)
    Funding Agency
    Health Research Board
    Date From
    October 2010
    Date To
    September 2013
  • Title
    Forgotten Lives and hidden Deaths; people with Ld living in non LD care settings
    Summary
    Funding Agency
    Dunhill Medical Trust
    Date From
    October 2016
    Date To
    September 2018
  • Title
    Wave II An Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing TILDA. Wave II.
    Summary
    An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
    Funding Agency
    Health Research Board & Department of Health
    Date From
    November 2012
    Date To
    October 2015
  • Title
    Family Strategies that Enable Long Term and Sustainable Home Environments for Older People with ID
    Summary
    Funding Agency
    National Disability Authority
    Date From
    May 2016
    Date To
    May 2017
  • Title
    EQUIP: Examining Quality, Use and Impact of Psychotropic (Use) in older adults with intellectual disabilities
    Summary
    The project will use longitudinal medicines data from ten years of the IDS-TILDA and from the HSE national prescribing database to examine quality and changes in psychotropic medicines use among older adults with intellectual disabilities. The project will use longitudinal data analysis to examine the long-term side effects of these medicines and if a move to the community meant a reduction in medicines. The findings will be used by the HSE and College of Psychiatrists of Ireland to develop guidelines to improve medicines use.
    Funding Agency
    Health Research Board
    Date From
    6th December 2021
    Date To
    5th May 2024
  • Title
    A palliative care model for supporting persons with intellectual disabilities (ID) and dementia (AD)
    Summary
    Development of and effectiveness testing for an evidence-based training module to foster earlier application of palliative care principles in care of persons with intelelctual disabilities and dementia.
    Funding Agency
    Health Research Board
    Date From
    June 2005
    Date To
    May 2007
  • Title
    Expanding Palliative Care to Meet the Needs of Persons with COPD
    Summary
    Hynes, G, -Doctoral Student McCarron, M (PI) Cox, K.
    Funding Agency
    Health Research Board
    Date From
    June 2006
    Date To
    September 2009
  • Title
    Better Bones, Better Health: Developing a risk assessment tool for the prediction of osteoporosis and osteopenia among adults with an intellectual disability
    Summary
    This study used predictive models to calculate the probability of osteoporosis in order to develop a prototype clinical evaluation tool for the assessment of the risk of a person with ID having osteoporosis/osteopenia.
    Funding Agency
    Dean's Award
    Date From
    September 2018
    Date To
    March 2019
  • Title
    Effective family support models during the transition of adults with intellectual disabilities into old age
    Summary
    Funding Agency
    Research & Development office Belfast
    Date From
    May 2013
    Date To
    May 2016
  • Title
    Dementia Trials Ireland
    Summary
    Funding Agency
    Health Research Board
    Date From
    2021
    Date To
    2025
  • Title
    Building Circles of Support for people with intellectual disabilities
    Summary
    Funding Agency
    Health Research Board
    Date From
    01-Dec-22
    Date To
    13-Feb-24
  • Title
    PPI Ignite
    Summary
    Funding Agency
    Health Research Board
    Date From
    August 2017
    Date To
    September 2020
  • Title
    An Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing TILDA - Wave 1
    Summary
    Background & Aim: In Ireland and elsewhere there is for the first time a sizeable and growing population of older persons with intellectual disabilities (ID). This is an incredible success but also a tremendous challenge; we know little about their ageing and there is much concern that mortality is higher, health problems are greater, access to services and health promotion is poorer and quality of life is often compromised. A comprehensive longitudinal study of ageing (TILDA) is about to begin in Ireland. Use of the electoral register as a sampling frame will unintentionally exclude many people with ID. Use of the National Intellectual Disability Database will offer an historic and critical opportunity to create a supplemental longitudinal follow-up of ageing in persons with ID. Approach: Sample: There will be two samples; (1) a stratified convenience pilot sample of 50 persons with ID aged 40-70 years, (2) approximately 800 persons over age 40 randomly selected from the HRB ID database with an over-sample of those over 55 and those 40-49 living at home or independently. Measures: Measures will address health, cognitive status, activities of daily living, living situations, social life and overall quality of life. Measures will be comparable to these being used in the larger TILDA study and yet will address unique issues. Analysis: For the pilot sample analysis will focus upon usability of instruments and instrument reliability and validity issues. When the finalized protocol is then administered to the first wave sample of the longitudinal study, a descriptive statistical picture of the life experiences of adult persons of ID will be developed as well as comparisons between important subgroups and with the general population findings of TILDA. Implications: The study will provide the first comprehensive picture of ageing in persons with ID and prepare for longitudinal investigation of that ageing.
    Funding Agency
    Health Research Board & Department of Health
    Date From
    October 2008
    Date To
    September 2012
  • Title
    An exploration of diagnostic overshadowing in cancer care for older adults with intellectual disability
    Summary
    Funding Agency
    IRC Foundations

Other Health Sciences, Population Health, Public & Environment Health, Mental Health (including Psychiatry and Clinical Psychology), Health Care & Health Services (including Health Technology and Health Information Systems), Neuroscience and clinical neurology, Nutrition & Dietetics (including Food and Health and Diabetes),

Recognition

  • Winner, Inaugural Impact Award, Health Research Board 2019
  • Fellow, American Academy of Nursing 2020
  • Trinity Fellow April 2011
  • Clinical Fellowship in Nursing and Midwifery by the Health Research Board 1999
  • Nurse of the Year 1993
  • Winner, Societal Impact Award, The Trinity Innovation Awards 2022
  • Chair, Ageing and Intellectual Disability 2014
  • Fellow, The International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 2022
  • Member, European Association of Palliative Care Taskforce on Palliative Care/End of life Care for People with Intellectual Disabilities Present
  • Member, Trisomy 21 Research Society Present
  • Member, National Working Group on Extending Palliative Care to Persons with Advanced Dementia
  • Member, National Steering Committee on Open Science, Health Research Board Present
  • Member, Trinity EngAGE, Trinity College Dublin Present
  • Guest Reviewer - Irish Journal of Psychological Medicine, Journal of Intellectual Disability Research & American Journal of Mental Retardation
  • Member and founder, National Federation Working Group on Health Outcomes for Older People with Intellectual Disability Present
  • Member, T21RS COVID-19 Impact group Present
  • Chair, 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia, Volos, Greece 2003
  • Member, Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group Present
  • Member, HSE National Steering Group on Dementia, National Federation of Voluntary Bodies Present
  • Member, National Avista Dementia Strategy Group Present
  • Member, Research Committee, National Federation of Voluntary Bodies
  • Advisor, Ageing related issues in persons with Intellectual Disability, Inclusion Ireland Present
  • Member, Irish Gerontology Present
  • Member, TILDA Steering Committee, Trinity College Dublin Present
  • Member, National Steering Committee, National Dementia Office, Health Service Executive (HSE) 2018
  • Member, Professional Advisory Group, Alzheimer's Europe Conference 2005 2005
  • Member, Independent Scientific and Ethics Advisory Board - Gene overdosage and comorbidities during the early lifetime in Down Syndrome (EU Research Project) Present
  • Member, Steering Committee, National Dementia Office Present
  • Member, Strategic Planning Group on Older People with Disabilities 2004
  • Member, Menu of Life Enhancing Activities Steering Committee (Avista) Present
  • Member, Digital Life Story Steering Committee (Avista) Present
  • External Member, Residential Care Standards for Older People by the Health Information Quality Authority (HIQA), St. Patrick's Hospital Cashel
  • Member, The UK-Irish Consortium for ageing well with a lifelong disability: Priorities, perspectives and opportunities Present
  • Member, International Association for the Scientific Study of Intellectual Disability (IASSID) Present
  • Member, International Down Syndrome Special Interest Group Present
  • Peamount Hospital (Appointed to board December 2018) December 2018 - Present
  • Member of the National Steering Committee for the National Dementia Office, HSE 2017 - Present
  • Honorary Professor, Queen's University Belfast March 2023 - February 2026
  • Stewarts Care (Appointed to board February 2021) February 2021 - Present
  • Appointed by the Minister for Health to the Steering Committee of the National Trauma Strategy 2015
  • Dental Hospital (The Minister for Health appointed the Board in June 2015) Dental Board Meeting Performance and Succession Committee Meeting (Chair) June 2015 - Present
  • Advising the National Federation of Voluntary Bodies Working Group on Health Outcomes for Older Adults with Intellectual Disabilities 2017 - Present
  • Board member of DOCTRID 2015 - Present