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Trinity Research in Childhood Centre (TRiCC)

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Dr. John Allen
Clinical Senior Lecturer in Paediatrics, Paediatrics

Publications and Further Research Outputs

Peer-Reviewed Publications

Allen, John and Molloy, Eleanor and McDonald, Denise, P131 'Severe neurological impairment' - does the term define an agreed cohort for study?, 104, (Suppl 3), 2019, ppA208--A208 Poster, 2019 DOI

John Allen, Severe Neurological Impairment - The Challenges of Definition, Healthcare Planning and End of Life Care, American Academy of Cerebral Palsy and Developmental Medicine, Anaheim, California, September, 2019 Oral Presentation, 2019

John Allen, Children with Complex Needs in Ireland, American Academy of Cerebral Palsy and Developmental Medicine, Anaheim, California, September, 2019, American Academy of Cerebral Palsy and Developmental Medicine Invited Talk, 2019

John Allen, Eleanor Molloy, Denise McDonald, Severe neurological impairment: a review of the definition, Developmental Medicine & Child Neurology, 2019 Journal Article, 2019

Allen, John and Power, Bronwyn and Abedin, Aida and Purcell, Orla and Knerr, Ina and Monavari, Ahmad, Plasma methionine concentrations and incidence of hypermethioninemic encephalopathy during infancy in a large cohort of 36 patients with classical homocystinuria in the Republic of Ireland, JIMD Reports, 47, (1), 2019, p41-46 Journal Article, 2019 DOI

Allen, John and Power, Bronwyn and Abedin, Aida and Purcell, Orla and Knerr, Ina and Monavari, Ahmad, P424 A rare case of hypermethioninaemic encephalopathy in an infant with classical homocystinuria, 104, (Suppl 3), 2019, ppA321--A322 Poster, 2019 DOI

Allen, John and McCarthy, Peter and Dempsey, Eugene M and Hourihane, Jonathan O{\textquoteright, Irish public would prefer legislation to protect Guthrie card archive rather than destroy it, BMJ, 347, 2013 Journal Article, 2013 DOI

Research Expertise

Projects

  • Title
    • SERENITY: SEveRE Neurological Impairment and children with medical complexiTY
  • Summary
    • Severe Neurological Impairment (SNI) is a term that has been used to describe a global impairment of the nervous system. This group of children, who have unique challenges, could be considered a sub-group of those with more general medical complexity. However, there is no internationally agreed definition of severe neurological impairment and, therefore, a paucity of literature on its prevalence and medical and social consequences. This information is vital for future resource planning so we can provide the very best care for this vulnerable group of individuals. Objectives 1.To create a consensus definition of SNI 2.To quantify medical complexity in this group 3.To assess wellbeing in the families of children with SNI
  • Date From
    • September 2018

Keywords

Birth/Congenital Defects; Brain; Cerebral Palsy; Child/Maternal Health; Childhood Disease; Children (Patients); Children with an Intellectual Disability; Children, health and disability; daily life impairments; Developmental Disabilities; DISABILITY; Emotional/Mental Health; Emotional/Mental Health--Child/Adolescent; FAMILY; Family Caregiving; Family centered care; Family Functioning; FAMILY MEMBER; FAMILY STRESS; family support; Handicapped/Disabled (Health/Safety/Medical); Health and Well being; Health Care; IMPAIRMENT; Maternal wellbeing; Medical Complexity; Nervous System; Neurodegenerative Diseases/Disorders; Neurodisability; NEUROLOGICAL; Neurological Disorders; NEUROLOGY; Neuromuscular Disorders; PAEDIATRICS; Paternal Wellbeing; Pediatrics; SEVERE IMPAIRMENT; SEVERE INTELLECTUAL DISABILITY; Severe Neurological Impairment; Sibling Mental Health; Sibling wellbeing; SIBLINGS; Traumatic Brain/Head Injury; Wellbeing

Recognition

Awards and Honours

Best Presentation, Children's University Hospital, Temple St. 2017

Best Poster, International Conference on Brain Monitoring and Neuroprotection in the Newborn 2015

Title of College Scholar, University College Cork 2006

Title of College Scholar, University College Cork 2005

Memberships

Member of the Royal College of Paediatrics and Child Health 2013 – Present