Trinity Centre for Ageing & Intellectual Disability Videos

The importance of Work, Advocacy & Improving Support Systems #WDSD25

21st March 2025

Today, we celebrate World Down Syndrome Day by recognising the incredible individuals with Down Syndrome and their contributions to our community. At TCAID, we are proud to include people with Down Syndrome in all aspects of our research and work. In our latest video, Mei Lin Yap, our Ambassador Liaison Officer, shares her experience of being involved in research and how we have supported her in her journey. Mei Lin’s insights are a reminder of the importance of Public and Patient Involvement (PPI) in research – ensuring that those who are directly impacted have a voice in shaping studies that affect their lives. At TCAID, we are committed to creating an environment where people with Down Syndrome can actively participate in research and decision-making. By ensuring people with Down Syndrome have a seat at the table, we empower them to shape the direction of research. Their voices directly influence the research process, ensuring it addresses real-world needs and leads to practical changes that positively impact their lives. This World Down Syndrome Day, let’s continue to amplify the voices of those with Down Syndrome, not just today, but every day.

Unlocking the Causes of Health and Ill Health for People With ID as they Age: Evidence from IDS-TILDA

Tallaght University Hospital's "Let's Talk About Down Syndrome" podcast series- Episode 4

5th May 2024

We are delighted to announce the release of the fourth episode in Tallaght University Hospital's "Let's Talk About Down Syndrome" podcast series! Join Geraldine Kyle, a registered nurse tutor at TUH and mother of a young adult with Down syndrome, as she hosts an insightful conversation with Professor Sean Kennelly and Evelyn Reilly from Tallaght University Hospital’s National Intellectual Disability Memory Service.

Key Highlights:

• Dementia and Down Syndrome: Professor Kennelly explains the significant link between Alzheimer's disease and Down syndrome, attributing it to the extra chromosome 21 that codes for amyloid protein, leading to a higher risk and earlier onset of Alzheimer's in individuals with Down syndrome.
• Early Signs and Risks: Subtle changes in behaviour, memory, and physical abilities can indicate the onset of dementia. Addressing risk factors like visual and hearing impairments, maintaining physical activity, and managing conditions like thyroid disorders and sleep apnoea can promote better brain health.
• National Intellectual Disability Memory Service: Evelyn Reilly discusses Ireland's first dedicated memory clinic for individuals with intellectual disabilities, established in 2020. The clinic provides comprehensive services, including diagnostic assessments, rapid referrals, case management, post-diagnostic support, and research opportunities.
• Baseline Screening: Emphasizing the importance of baseline screening for individuals with Down syndrome over the age of 35 to monitor changes over time and distinguish between dementia and other mental health issues.
• Research and Future Directions: The clinic aims to expand research networks and participate in clinical trials to develop effective dementia interventions, offering hope for managing Alzheimer's disease in the Down syndrome population.