Dr. Peter May
Adjunct Associate Professor, Public Health & Primary Care
Adjunct Associate Professor, School of Nursing & Midwifery
Biography
I am a research scientist focusing on economics of care for people with serious and life-limiting illness. I work with an interdisciplinary network of collaborators to design and analyse evaluations of interventions for patients and their families. I worked at Trinity from 2010 to 2023; I am now an adjunct Associate Professor in the School of Medicine.
Publications and Further Research Outputs
Peer-Reviewed Publications
Nolan A, May P, Matthews S, Normand C, Kenny RA, Ward M, Public health insurance and mortality in the older population: Evidence from the Irish Longitudinal Study on Ageing, Health Policy, 2022
Reid EA, Ghoshal A, Khalil K, Jiang J, Normand C, Brackett A, May P, Out-of-pocket costs near end of life in low- and middle-income countries: A systematic review, PLOS Glob Public Health, 2022
Aldridge M, Moreino J, McKendrick K, Li L, Brody A, May P, Association Between Hospice Enrollment and Total Health Care Costs for Insurers and Families, 2002-2018, JAMA Health Forum, 3, (2), 2022, pe215104
Jacobson M, May P, Morrison RS, Improving Care of People With Serious Medical Illness"An Economic Research Agenda for Palliative Care, JAMA Health Forum, 3, (1), 2022, pe214464
Jingjing J, May P, Is Palliative Care Provision Associated with Prevalence of Death in Hospital at the Population Level? Evidence from 30 European Countries in the Years 2005-2017, EAPC 2021, Online, October, 2021
May P, Normand C, Noreika D, Skoro N, Cassel JB., Using predicted length of stay to define treatment and model costs in hospitalized adults with serious illness: an evaluation of palliative care., Health economics review, 11, (1), 2021, p38
Khandelwal N, May P, Downey LM, Engelberg RA, Curtis JR., Patients with acute respiratory failure at risk for high-intensity, costly care., Journal of pain and symptom management, 2021
Reid E, Ghoshal A, Kizilbash A, Brackett A, Jingjing C, Normand C, May P, Out-of-Pocket Costs Near End of Life in Low- and Middle-income Countries: A Systematic Review, EAPC 2021, Online, October, 2021
Ward, M., May, P., Normand, C., Kenny, R.A., Nolan, A, Mortality risk associated with combinations of loneliness and social isolation. Findings from The Irish Longitudinal Study on Ageing (TILDA), Age and Ageing, 2021
Matthews S, Johnston B, Hurley E, Normand C, May P, Palliative and End-of-Life Care Data in Ireland (PELCI): Establishing the State of the Nation, EAPC 2021, Online, October, 2021
Jingjing J, May P, Is Palliative Care Provision Associated with Prevalence of Death in Hospital at the Population Level? Evidence from 30 European Countries in the Years 2005-2017, 15th European Public Health Conference, Dublin, Ireland, October, 2021
Matthews S, Ward M, Nolan A, Normand C, Kenny RA, May P, Predicting Mortality in Ireland: Development of a Four-year Index and Comparison with International Measures, EAPC 2021, Online, October, 2021
Jingjing J, Kim N, Garrido M, Jacobson M, May P, Causal Analyses of Palliative Care Using Observational Data: A Systematic Review of Current Literature and Consideration of Future Opportunities, International Health Economics Association (iHEA) Research Congress, Online, 2021
Jingjing J, May P, Proportion of deaths in hospital in European countries: trends and associations from panel data (2005-2017), European Journal of Public Health, 2021
May P, Normand C, Projecting future needs, costs & outcomes in palliative care: an economic policy evaluation, EAPC 2021, Online, October, 2021
Ahmed R, May P., Does high COVID-19 spread impact neighbouring countries? Evidence from Ireland. , HRB Open Res, 4, 2021, p56
May P, Normand C, The 80/20 Rule in Last Year of Life: Who Are the Costliest Patients in the Irish System?, International Health Economics Association (iHEA) Research Congress, Online, 2021
Jingjing J, May P, Is palliative care provision associated with prevalence of death in hospital at the population level? Evidence from 30 European countries in the years 2005-2017, Academy Health Annual Research Meeting, Online, 2021
Hurley E, May P, Matthews S, Normand C, Johnston B, An International Policy Review of Routine Statutory Data Collection and Reporting in Palliative Care, EAPC 2021, Online, October, 2021
Aldridge MD, Moreno J, McKendrick K, Li L, Brody A, May P, Hospice is Cost Saving for the Healthcare System and Families, Academy Health Annual Research Meeting, Online, 2021
Matthys O, De Vleminck A, Dierickx S, Deliens L, Van Goethem V, Lapeire L, Groenvold M, Lund L, Arnfeldt CM, Sengeloev L, Pappot H, Johnsen AT, Guerin S, Larkin PJ, Jordan C, Connolly M, D'Alton P, Costantini M, Di Leo S, Guberti M, Turola E, van der Heide A, Witkamp E, Rietjens J, van der Wel M, Brazil K, Prue G, Reid J, Scott D, Bristowe K, Harding R, Normand C, May P, Cronin C, Northouse L, Hudson P, Cohen J., Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial., BMC palliative care, 20, (1), 2021, p193
May P, Matthews S, Palliative Care Effects on Hospital Mortality and Utilization: Causal Evidence from a Quasi-Experimental, Nationwide Evaluation in Ireland, Academy Health Annual Research Meeting, Online, 2021
Isenberg SR, Meaney C, May P, Tanuseputro P, Quinn K, Qureshi D, Saunders S, Webber C, Seow H, Downar J, Smith TJ, Husain A, Lawlor PG, Fowler R, Lachance J, McGrail K, Hsu AT., The association between varying levels of palliative care involvement on costs during terminal hospitalizations in Canada from 2012 to 2015., BMC health services research, 21, (1), 2021, p331
Jingjing J, Kim N, Garrido M, Jacobson M, May P, Causal Analyses of Palliative Care Using Observational Data: A Review of Current Literature and Consideration of Future Opportunities, EAPC 2021, Online, October, 2021
May P, Tysinger B, Morrison RS, Jacobson M., Advancing the Economics of Palliative Care: The Value to Individuals and Families, Organizations, and Society, USC Schaeffer Center White Papers, Los Angeles, August, 2021
May P, Matthews S, Palliative Care Teams Reduce Hospital Mortality and Utilization: Causal Evidence from a Quasi-experimental, Nationwide Evaluation in Ireland, EAPC 2021, Online, October, 2021
Ward Mark, May Peter, Normand Charles, Kenny Rose Anne, Nolan Anne, Comparing Underlying and Contributory Cause of Death in Registry Data With End-of-Life Proxy Interviews: Findings From The Irish Longitudinal Study on Ageing (TILDA), Journal of Applied Gerontology, 2020
May P, Normand C, Morrison RS., Economics of Palliative Care for Cancer: Interpreting Current Evidence, Mapping Future Priorities for Research., Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2020, pJCO1802294
May P, Roe L, McGarrigle CA, Kenny RA, Normand C., End-of-life experience for older adults in Ireland: results from the Irish longitudinal study on ageing (TILDA)., BMC health services research, 20, (1), 2020, p118
May P, Johnston BM, Normand C, Higginson IJ, Kenny RA, Ryan K, Population-based palliative care planning in Ireland: how many people will live and die with serious illness to 2046?, HRB Open Research, 2, 2020, p35
Ward, Mark. May Peter, Briggs Robert, McNicholas Triona, Normand Charles, Kenny Rose Anne, Nolan Anne, Linking death registration and survey data: Procedures and cohort profile for The Irish Longitudinal Study on Ageing, HRB Open Res, 3, (43), 2020
Bridget M Johnston and Rachel McCauley and Mary Rabbitte and Regina McQuillan and Caitriona Honohan and David Mockler and Steve Thomas and Peter May, Evidence on the effectiveness and cost-effectiveness of out-of-hours palliative care, Palliative Medicine, 2020, p026921632096955
Bridget M. Johnston, Rachel McCauley, Regina McQuillan, Mary Rabbitte, Caitriona Honohan, David Mockler, Steve Thomas, Peter May, Effectiveness and cost-effectiveness of out-of-hours palliative care: a systematic review, HRB Open Research, 3, 2020, p9
Financial Aspects of Inpatient Palliative Care in, editor(s)Van den Block L, McLeod R , Textbook on Palliative Care, Springer, 2019, [May P, Morrison RS]
May P, Lombard Vance R, Murphy E, O'Donovan MA, Webb N, Sheaf G, McCallion P, Stancliffe R, Normand C, Smith V, McCarron M., Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review., BMJ Open, 9, (9), 2019, pe025736
BMC Health Services Research, BioMed Central, [Associate Editor], 2019
Measuring Cost-Effectiveness in Palliative Care in, editor(s)Van den Block L, McLeod R , Textbook on Palliative Care, Springer, 2019, [Normand C, May P]
Johnston BM, McCauley R, May P, Rabbitte M, McQuillan R, Honohan C, Mockler D, Thomas S, Out-of-hours specialist and generalist palliative care service provision: A review of models and evidence, European Association of Palliative Care, Berlin, Germany, May 2019, 2019
May P, High costs of end-of-life care: an alternative economic perspective, International Health Economics Association, Basel, Switzerland, July 2019, 2019
May P, Garrido MM, Del Fabbro E, Noreika D, Normand C, Skoro N, Cassel JB., Evaluating Hospital Readmissions for Persons With Serious and Complex Illness: A Competing Risks Approach., Medical care research and review : MCRR, 2019, p1077558718823919
Johnston BM, May P, McCauley R, Rabbitte M, McQuillan R, Honohan C, Mockler D, Thomas S, Out-of-hours specialist and generalist palliative care service provision: An evidence review, Dublin, Ireland, 2019
Tiernan E, Ryan J, Casey M, Hale A, O'Reilly V, Devenish M, Whyte B, Hollingsworth S, Price O, Callanan I, Walsh D, Normand C, May P., A quasi-experimental evaluation of an intervention to increase palliative medicine referral in the emergency department., Journal of health services research & policy, 24, (3), 2019, p155-163
Khandelwal N, May P, Curtis JR., Financial stress after critical illness: an unintended consequence of high-intensity care., Intensive care medicine, 2019
May P, Johnston BM, Higginson IJ, Normand C, Ryan K, Future palliative care needs for people living and dying with life-limiting illness: results from Ireland, European Association of Palliative Care, Berlin, Germany, May 2019, 2019
McCarron M, Lombard-Vance R, Murphy E, May P, Webb N, Sheaf G, McCallion P, Stancliffe R, Normand C, Smith V, O'Donovan MA, Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review, BMJ Open, 2019
May P, Normand C, Del Fabbro E, Fine RL, Morrison RS, Ottewill I, Robinson C, Cassel JB., Economic Analysis of Hospital Palliative Care: Investigating Heterogeneity by Noncancer Diagnoses., MDM Policy Pract, 4, (2), 2019, p2381468319866451
Storick V, O'Herlihy A, Abdelhafeez S, Ahmed R, May P, Improving palliative care with machine learning and routine data: a rapid review , HRB Open Research, 2019
Chang S, May P, Goldstein NE, Wisnivesky J, Ricks D, Fuld D, Aldridge M, Rosenzweig K, Morrison RS, Dharmarajan KV, A Palliative Radiation Oncology Consult Service Reduces Total Costs During Hospitalization., Journal of pain and symptom management, 2018
May P, Cassel JB, Economic outcomes in palliative and end-of-life care: current state of affairs, Ann Palliat Med, 7, ((Suppl 3)), 2018, pS244 - S248
May P, Normand C, Patterns and Determinants of Healthcare Use in the Last Year of Life among Older Adults in Ireland: Results from The Irish LongiDinal Study on Ageing (TILDA), EAPC Research Congress, Bern, Switzerland, May, 2018
Cassel JB, Normand C, Garrido MM, Del Fabbro E, Noreika D, Skoro N, May P, Impact of Specialist Palliative Care on Hospital Readmissions: A "Competing Risks" Analysis to Take Mortality into Account, EAPC Research Congress, Bern, Switzerland, May, 2018
May P, Normand C, Cassel JB, Del Fabbro E, Fine RL, Menz R, Morrison CA, Penrod JD, Robinson C, Morrison RS., Economics of Palliative Care for Hospitalized Adults With Serious Illness: A Meta-analysis., JAMA internal medicine, 2018
May P, Garrido MM, Del Fabbro E, Noreika D, Normand C, Skoro N, Cassel JB, Does modality matter? Palliative care units associated with more cost-avoidance than consultations., Journal of Pain and Symptom Management, 55, (3), 2018, p766 - 774
McCarron M, Lombard-Vance R, Murphy E, O'Donovan MA, Webb N, Sheaf G, McCallion P, Stancliffe R, Normand C, Smith V, May P, Quality of life outcomes and costs associated with moving from congregated settings to community living arrangements for people with intellectual disability: An evidence review, Dublin, Health Research Board, September, 2018, 94
Chang S, May P, Goldstein NE, Wisnivesky J, Rosenzweig K, Morrison RS, Dharmarajan KV., A Palliative Radiation Oncology Consult Service's Impact on Care of Advanced Cancer Patients., Journal of palliative medicine, 21, (4), 2018, p438 - 444
Cassel JB, Normand C, Garrido MM, Del Fabbro E, Noreika D, Skoro N, May P, Impact of Specialist Palliative Care on Hospital Readmissions: A "Competing Risks" Analysis to Take Mortality into Account, American Academy of Hospice and Palliative Medicine, Boston, MA, March, 2018
May P, Morrison RS, Murtagh FE., Current state of the economics of palliative and end-of-life care: A clinical view., Palliative medicine, 31, (4), 2017, p293-295
May P, Garrido MM, Aldridge MD, Cassel JB, Kelley AS, Meier DE, Normand C, Penrod JD, Smith TJ, Morrison RS., Prospective Cohort Study of Hospitalized Adults With Advanced Cancer: Associations Between Complications, Comorbidity, and Utilization., Journal of hospital medicine, 12, (6), 2017, p407-413
May P, Normand C, Morrison RS, Economics of palliative care for hospital inpatients with serious illness: Meta analysis of current evidence, Academy Health ARM, New Orleans, LA, June, 2017
Penrod JD, Garrido MM, McKendrick K, May P, Aldridge MD, Meier DE, Ornstein KA, Morrison RS., Characteristics of Hospitalized Cancer Patients Referred for Inpatient Palliative Care Consultation., Journal of palliative medicine, 2017
May P, Normand C, Morrison RS, Economics of palliative care for hospital inpatients with serious illness: Meta analysis of current evidence, iHEA Congress, Boston, MA, July, 2017
May P, Garrido MM, Cassel JB, Kelley AS, Meier DE, Normand C, Smith TJ, Morrison RS., Cost analysis of a prospective multi-site cohort study of palliative care consultation teams for adults with advanced cancer: Where do cost-savings come from?, Palliative medicine, 31, (4), 2017, p378-386
May P, Morrison RS, Normand C, Meta analysis: association between palliative care consultation teams and costs for hospitalized adults, European Association of Palliative Care, Dublin, Ireland, June , 2016
May P, Garrido MM, Cassel JB, Morrison RS, Normand C, Using Length of Stay to Control for Unobserved Heterogeneity When Estimating Treatment Effect on Hospital Costs with Observational Data: Issues of Reliability, Robustness, and Usefulness., Health services research, 51, (5), 2016, p2020 - 2043
May P, Morrison RS, Normand C, Meta analysis: association between palliative care consultation teams and costs for hospitalized adults, Academy Health, Boston, MA, June , 2016
May P, Normand C, Analyzing the Impact of Palliative Care Interventions on Cost of Hospitalization: Practical Guidance for Choice of Dependent Variable., Journal of pain and symptom management, 52, (1), 2016, p100 - 106
Johnston BM, Normand C, May P., Economics of Palliative Care: Measuring the Full Value of an Intervention, Journal of Palliative Medicine, 2016
May P, Garrido MM, Cassel JB, Kelley AS, Meier DE, Normand C, Stefanis L, Smith TJ, Morrison RS, Palliative Care Teams' Cost-Saving Effect Is Larger For Cancer Patients With Higher Numbers Of Comorbidities., Health affairs (Project Hope), 35, (1), 2016, p44-53
May P, Garrido MM, Cassel JB, et al. , Economic Evaluation of PCCTs for Hospitalised Patients with Advanced Cancer, EAPC World Congress, Copenhagen, Denmark, May, 2015
May P, Garrido MM, Cassel JB, Kelley AS, Meier DE, Normand C, Smith TJ, Stefanis L, Morrison RS, Prospective Cohort Study of Hospital Palliative Care Teams for Inpatients With Advanced Cancer: Earlier Consultation Is Associated With Larger Cost-Saving Effect, Journal of Clinical Oncology, 33, (25), 2015, p2745 - 2752
May P, Garrido MM, Cassel JB, et al. , Economics of PCCTs: heterogeneity of treatment effects, American Academy for Hospice and Palliative Medicine, Philadelphia, PA, February, 2015
May, P., Hynes, G., McCallion, P., Payne, S., Larkin, P., McCarron, M, Policy analysis: Palliative care in Ireland, Health Policy, 115, (1), 2014, p68 - 74
May P, Normand C, Morrison RS, Economic evaluation of specialist inpatient palliative care consultation teams, EAPC Research Congress, Lleida, Spain, June, 2014
May P, Normand C, Morrison RS, Economic evaluation of specialist inpatient palliative care consultation teams, iHEA Congress, Dublin, Ireland, July, 2014
May, P., Normand, C. & Morrison, R. S. , Economic impact of hospital inpatient palliative care consultation: review of current evidence and directions for future research. , Journal of Palliative Medicine, 17, (9), 2014, p1054-63
May P, Hynes G, McCallion P, Payne S, Higgins A, Larkin P, McCarron, M, Challenges in increasing regional equity in palliative care service provision in Ireland , European Journal of Palliative Care, 20, (3), 2013, p130 - 133
Non-Peer-Reviewed Publications
Sheerin, F., Fleming, S., McCarron, M., McCallion, P., May, P., Lalor, G. & D'eath, M. Fleming, S., The Care of Older Adults with Intellectual Disabilities and Complex Age-Related Conditions, National Disability Authority, January, 2023
Jacobson M, May P, Morrison RS, et al, Improving Care of People with Serious Medical Illness: An Economic Research Agenda for Palliative Care, Los Angeles, USC Schaeffer Center, February, 2022
Matthews S, Pierce M, O'Brien Green S, Hurley E, Johnston BM, Normand C, May P, Dying and Death in Ireland: What Do We Routinely Measure, How Can We Improve? , Dublin, Irish Hospice Foundation, November, 2021
Normand C, May P, Johnston BM, Cylus J, Health and social care near the end of life: Can policies reduce costs and improve outcomes?, Policy briefs, Copenhagen, WHO Regional Office for Europe, December, 2021
Roman Romero-Ortuno, Peter May, Minjuan Wang, Siobhan Scarlett, Ann Hever, Rose Anne Kenny, TILDA Nursing Home Data: A short report to inform COVID-19 responses for our most vulnerable, The Irish Longitudinal Study on Ageing, 2020
May P, Estimating future palliative care need in Ireland: a microsimulation approach, Expert Consultation on Future Palliative Care Need, Edinburgh, Scotland, September, 2019, Marie Curie/Univrsity of Edinburgh/Scottish Government
May P, Economic evidence for palliative care in Ireland, Systems not silos - Improving Palliative and End of Life Care in Secondary Care, Belfast, November, 2019, All-Ireland Institute for Hospice and Palliative Care
May P, Big data to advance economics of palliative and end-of-life care: some ongoing considerations, EAPC Big Data Taskforce Workshop, Amsterdam, November, 2019
May P, High costs in end-of-life care: Revisiting economic interpretations, International Health Economics Association webinar, November 30th, 2018, 2018
May P, Economics of palliative care: some key concepts, National Palliative Care Research Center Fellowship Program, New York, NY (Webinar), March, 2018
May P, Economics of palliative care: expanding our scope of enquiry, EAPC Congress, Madrid, Spain, May, 2017
May P, Economics of palliative care: understanding and interpreting evidence on costs and resource use, Hospice UK Annual Conference, Liverpool, England, November, 2017
May P, McGarrigle C, Normand C, The end of life experience of older adults in Ireland, Dublin, TILDA, Trinity College Dublin, December, 2017
May P, Some basic principles of economic evaluation, Annual Kathleen Foley Retreat, Quebec, Canada, October, 2016
May P, Analysis of healthcare utilization data: some practical considerations for investigators in palliative care, National Palliative Care Research Center Fellowship Program, New York, NY (Webinar), February, 2016
McCarron M, Higgins A, McCallion P, [ ], May P, An Evaluation of the End-of-Life Programme, Dublin, 2012
Research Expertise
Projects
- Title
- Implementation and evaluation of a navigation intervention for people with cancer in old age and their family caregivers: an international pragmatic randomized controlled trial
- Summary
- Objectives 1. To adapt the Canadian Nav-Care intervention to a NavCare-EU intervention (WP2) and to compare NavCareEU to care as usual, in terms of its: a. effectiveness on (1) health-related quality of life and well-being of older cancer patients across the continuum of supportive, palliative, survivorship and end-of-life care (primary outcomes); (2) family caregivers' care-related quality of life and well-being, and informal care burden; (3) social support; (4) selfefficacy, patient activation, and coping; (5) use of health and social care services and resources; and (6) relevant professionals' role satisfaction (WP3) b. cost-effectiveness (WP4) c. effects on different subgroups defined by characteristics known to affect health equity and equitable access, i.e., gender, age, socioeconomic status, extent of social support and living situation, and geographical location (rural vs. urban) (WP5) d. effectiveness and cost-effectiveness in different health care systems and care regimes in Europe (WP2-5) 2. To evaluate the implementation processes of the NavCare-EU intervention and the feasibility of its integration into different health care systems and care regimes in Europe, the contextual barriers and facilitators for effective and sustainable implementation, and the mechanisms involved in reaching the outcomes in each country, as perceived by patients, family caregivers, and care providers (WP6) 3. To ensure optimal dissemination, exploitation, communication, and stakeholder engagement, and to achieve societal, scientific, and economic impact during and beyond the project (WP7-8)
- Funding Agency
- European Commission
- Date From
- 2022
- Title
- Advancing Palliative Care through Economic Research and Policy Analyses
- Summary
- This grant aims to support the USC Schaeffer Center to identify critical economic research to advance access and standardization of palliative care in the United States. Dr May is a co-chair of a distinguished interdisciplinary panel.
- Funding Agency
- Gordon and Betty Moore Foundation
- Date From
- 2019
- Date To
- 2022
- Title
- Dynamic Microsimulation Projections of ADRD in Ireland and the United States
- Summary
- This pilot project will extend the HRS- and TILDA-based dynamic microsimulation models to incorporate harmonized measures of cognition, depressive symptoms, functional limitations and nursing home use to allow direct comparison. This project has the following aims: 1. Extend and validate the TILDA-based microsimulation to model new outcomes: cognitive function, depressive behavior, functional limitations and time spent in residential care. 2. Extend and validate the US-FEM to model the depressive behavioral domain of ADRD. 3. Produce population and subpopulation (gender, education, and race) projections, and compare these projections within and between countries. 4. Recommend best practices for projecting cognition, depressive behavior, functional status, and ADRD to guide other researchers using panel studies similar to HRS and TILDA. Scope the potential for novel inclusion of biomarkers and laboratory measures in projections. 5. Use the results as a basis for large-scale international study proposal to project future needs, estimate future health and social care costs, and evaluate the effect of different systems and payment models on care, health and economic outcomes.
- Funding Agency
- NIA
- Title
- Palliative and end-of-life care data in Ireland: establishing the state of the nation, mapping future direction
- Summary
- More people are living longer, increasing the need for expert care of complex medical illness. The end-of-life phase imposes severe physical and psychological burdens on people with terminal illness and their families. Contemporary health systems are not geared to providing good end-of-life care. Palliative care aims to maximise quality of remaining life. Current availability of palliative care in Ireland depends heavily on which area of the country you live in. Improving palliative and end-of-life care requires good data on current practices. However we currently know little about the end-of-life phase in Ireland: where people die, what health care they use, how family and friends provide unpaid care, and how palliative care shapes these experiences. This project aims to improve knowledge and understanding of these questions. We will access data from multiple government bodies on how people die. We will also use The Irish Longitudinal study on Ageing (TILDA), which since 2009 interviews a nationally representative cohort of people aged over 50 on their life experience, health and health care use. We will combine these data to describe national trends in death and dying; to measure differences in palliative care service by region; and to evaluate how local palliative care provision is associated with important indicators of end-of-life experience, e.g. pain, anxiety, death in preferred place. We will also compare the data currently collected by Department of Health and Health Service Executive against practices in other countries, to identify opportunities for improvement. Our results will improve provision and planning in palliative and end-of-life care by providing for the first time a national picture of how people die in Ireland, by quantifying how palliative care impacts these experiences, and by identifying ways in which services can be better evaluated and provided in future.
- Funding Agency
- Health Research Board
- Date From
- Feb 2020
- Date To
- Jan 2022
- Title
- Improving outcomes for patients with chronic illness & acute respiratory failure
- Summary
- Project Number: 1K23HL144830-01A1 Project Leader: KHANDELWAL, NITA Awardee Organization: UNIVERSITY OF WASHINGTON
- Funding Agency
- National Heart, Lung, and Blood Institute (United States)
- Date From
- Aug 2019
- Date To
- Aug 2023
- Title
- Better Treatments for Breathlessness in Palliative and End-of-Life Care
- Summary
- The BETTER-B programme aims to significantly improve the treatment of severe breathlessness in patients with advanced disease consisting of a large-scale randomised controlled trial by establishing whether Mirtazapine, currently used as an antidepressant, is an effective treatment to reduce severe breathlessness even when people are not depressed. The consortium comprises 13 international breathlessness experts from respiratory, palliative care and rehabilitative specialities from five European countries, Ireland, UK, Poland, Italy and Germany as well as Australia. betterbreathe.eu
- Funding Agency
- European Commission
- Title
- Family Spending after Hospice Enrollment: A Population-Based Study
- Summary
- Project Number: 1R01NR018462-01 Project Leader: ALDRIDGE, MELISSA DIANE Awardee Organization: ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
- Funding Agency
- National Institute of Nursing Research (United States)
- Date From
- Aug 2019
- Date To
- Aug 2022
- Title
- Economics of palliative care: from international evidence to Irish policy
- Summary
- The aim of this project is to build a demographic/economic microsimulation model to predict the future older population in Ireland using TILDA data, and to evaluate policy options ex ante. In collaboration with University of Southern California and the Irish Department of Health.
- Funding Agency
- Health Research Board
- Date From
- Jan 2019
- Date To
- Dec 2021
- Title
- Psychoeducational Interventions for People with Cancer and their Caregivers (DIAdIC)
- Summary
- This is a six-country trial led by Vrije Universiteit Brussel (PI: Professor Joachim Cohen). The PaCE team led by Professor Normand is responsible for the economic evaluation work package.
- Funding Agency
- European Commission
- Date From
- Jan 2019
- Date To
- Dec 2023
- Title
- Population-based study of palliative care access, impact, and disparities
- Summary
- The primary goal of this study is to use population-level data to understand factors related to specialist palliative care use, and to explore three ways in which palliative care is related to outcomes including quality, disparities, and costs. A secondary goal is to demonstrate the feasibility and importance of acquiring data from disparate sources for population-based research on palliative care and outcomes for people with cancer. Led by Virginia Commonwealth University, Dr May is a co-investigator on the study.
- Funding Agency
- American Cancer Society
- Date From
- Jan 2019
- Date To
- Dec 2020
- Title
- Out-of-hours palliative care service provision: an evidence review
- Summary
- This project reviews systematically both the peer-reviewed academic literature and international policy and practice documentation to assemble best-available evidence on out-of-hours palliative care for adults. This project contributes to the ongoing review of national palliative care policy in Ireland.
- Funding Agency
- Department of Health
- Date From
- Aug 2018
- Date To
- Apr 2019
- Title
- Integrating Palliative Medicine in the Emergency Department (PalMED)
- Summary
- Quality improvement project to improve palliative medicine access in the emergency department of a large acute hospital.
- Funding Agency
- Health Service Executive
- Date From
- Jun 2018
- Date To
- May 2020
- Title
- Understanding inequalities in palliative care and Providing for future need (UP)
- Summary
- The aim of this mixed-methods research is to generate evidence on: - current and future palliative care needs in Ireland; - the magnitude and drivers of financial hardship among the seriously-ill and their households; - what is required to effect change and deliver on equitable provision.
- Funding Agency
- Health Service Executive
- Date From
- Mar 2018
- Date To
- Sep 2019
- Title
- Do we die as we live? Age, socioeconomics, health care & pathways to death in Ireland
- Summary
- This project uses data from the Irish Longitudinal Study on Ageing (TILDA) linked to death certificate records administered by the Central Statistics Office (CSO) to examine three key issues: 1) How does mortality vary across socioeconomic groups in the over 50s in Ireland? 2) To what extent does better access to the healthcare system reduce mortality from amenable causes, i.e., causes of death that could be prevented with timely and effective healthcare? 3) What are the determinants of healthcare utilisation and costs at the end of life in Ireland?
- Funding Agency
- Health Research Board
- Date From
- Jan 2018
- Date To
- Dec 2021
- Title
- Decongregation for people with an intellectual disability: an evidence review
- Summary
- This project reviews systematically the peer-reviewed academic literature on quality of life and cost-effects of deinstitutionalisation for adults with intellectual disabilities.
- Funding Agency
- Department of Health
- Date From
- Jul 2017
- Date To
- Apr 2018
- Title
- Economics of palliative care
- Summary
- PhD fellowship between Trinity College Dublin and Mount Sinai School of Medicine, NY.
- Funding Agency
- National Cancer Institute (United States)/Health Research Board
- Date From
- Jul 2011
- Date To
- Jun2015