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Empowering Voices: Women with Down Syndrome Speak on Health #WDSD2024

21st March 2024

World Down Syndrome Day 2024 is an international awareness day for people with Down syndrome. The theme for this year’s World Down Syndrome Day is to End The Stereotypes.

To mark this occasion, we decided to focus on women with Down syndrome to raise awareness of the poor health outcomes often faced by these women. We asked women with Down syndrome from all over the world to tell us what health means to them. We wanted to hear from the women themselves how they take care of their own health and what is important to them and how they choose to End the Stereotypes each day.

Empowering Voices: Women with Down Syndrome Speak on Health #WDSD2024

Through sharing their experiences from different countries, women with Down Syndrome share their thoughts on what health means to them..

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Transforming Health Care Delivery: Launching the National Intellectual Disability Memory Service

6th March 2024

The IDS-TILDA team were winners of the Group entry category in the first Research Impact Case Study Competition at the School of Nursing & Midwifery, for thier case study entitled 'Transforming Health Care Delivery: Launching the National Intellectual Disability Memory Service'.

Transforming Health Care Delivery: Launching the National Intellectual Disability Memory Service

The NIDMS team and a family carer, discuss the launch of the National Intellectual Disability Memory Service (NIDMS), a centre of excellence in proactive dementia assessment and diagnosis for people with an intellectual disability.

Empowering Healthcare: From Research to Practice in Intellectual Disability Health Assessment

6th March 2024

Dr Eilish Burke is the winner of the Individual entry category in the first Research Impact Case Study Competition at the School of Nursing & Midwifery, for her case study entitled 'Empowering Healthcare: From Research to Practice in Intellectual Disability Health Assessment'.

Empowering Healthcare: From Research to Practice in Intellectual Disability Health Assessment

Dr. Eilish Burke discusses the prevalent health disparities and underscores the crucial significance of enhancing health assessments specifically tailored for individuals with intellectual disabilities.

Building Bridges for Better Brain Health, from the Halfpenny to the Golden Gate

24th September 2021

This initiative connected people with Down syndrome and their families in Ireland and San Francisco to discuss brain health, with the aim of promoting participation in research and increasing awareness of brain health in this population.

This also promotes participation of the people with Down syndrome and their families in the research process and, specifically, it provides an opportunity for PPI contributors to input into the design and delivery of the project. It will give the people most directly affected by the research more of a voice in the research itself.

Building Bridges 2021

Through sharing their experiences from different countries, awareness of brain health was raised and a space for shared and peer learning was created.

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First HRB Impact Award recognises Professor Mary McCarron

8th February 2019

The Health Research Board has presented the first HRB Impact Award 2019 to Professor Mary McCarron, from Trinity College Dublin. The award recognises how her research has transformed the health, care, and living environments for people ageing with an intellectual disability.

HRB Impact Award 2019

The legacy I want to leave is that we have the services and supports available so that every person with ID will experience happy and healthy lives in old age.

- Professor Mary McCarron

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Ageing with PrIDe - Learning from Ten Years of IDS-TILDA

4th December 2018

Over the past ten years, the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) has been researching the lives of people with an intellectual disability who are ageing in Ireland. Join Mei Lin Yap as she discusses the findings with Prof Mary McCarron, the Principal Investigator to IDS-TILDA in the Trinity Centre for Ageing and Intellectual Disability. Mei Lin also explores what kinds of activities she can do to stay healthy as she ages.

Speakers:Prof Mary McCarron, Mei Lin Yap, Jasmine Russell, Claire Corcoran, Dr Caoimhin Mac Giolla Phadraig, Dr Eric Lacey, Evelyn Reilly

Ageing with PrIDe

So, when you start talking about dementia, I want to be included in that conversation. I want to be included in the conversation about my future. I want to be empowered so that I can choose how to reduce the risk of dementia.

- Mei Lin Yap

Read more here

Download the IDS-TILDA Ageing with PrIDe - A Journey Towards A Happy and Healthy Future Booklet here

Celebrating 10 years of IDS-TILDA

19th October 2017

On the 19th of September 2017, more than 300 people visited Trinity College to celebrate the 10th Anniversary of IDS-TILDA and to recognise its outstanding achievements to date, including 150 research participants. See highlights from the 10th Anniversary celebration and the 2017 Summit on Ageing with an Intellectual Disability below.

Celebrating 10 years of IDS-TILDA

IDS-TILDA has been at the forefront of research on ageing and intellectual disability, recognised not only in Ireland, but also internationally as leading the way in research for people with an intellectual disability

- Fintan McGrath, TD - Minister of State for Disability Issues