Dr. Miriam Galvin
Associate Professor, Clinical Medicine

Gilsenan, Galvin, Kennedy, Hardiman,Murray, An evaluation of the Telehealth in MND (TiM) service for patients with Motor Neurone Disease., 10th Annual Quality and Patient Safety Meeting. Beaumont Hospital Dublin, Beaumont Hospital Dublin, November 2022, 2022 Conference Paper, 2022

Eilis Conroy, David O"Brien, Beatriz Vélez-Gómez, Mark Heverin, Orla Hardiman, Chris McDermott, Miriam Galvin, IMPACT ALS EUROPE SURVEY - People living with ALS in Europe, ALS International Symposium 2022, December 2022, 2022 Conference Paper, 2022

Emilia Grycuk, Yaohua Chen, Arianna Almirall-Sanchez, Dawn Higgins, Miriam Galvin, Joseph Kane, Irina Kinchin, Brian Lawlor, Carol Rogan, Gregor Russell, Roger O'Sullivan, Iracema Leroi, Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English-speaking regions: Before and during the COVID-19 pandemic , International Journal of Geriatric Psychiatry, 2022 Journal Article, 2022

Conroy, É, Kennedy, P,Heverin, M; Hardiman, O; Galvin, M , Meaning in life and personal satisfaction as positive aspects for ALS caregivers " A longitudinal mixed methods analysis , 33rd ALS International Symposium 2022, December 2022, 2022 Conference Paper, 2022

Gilsenan et al, An evaluation of using the Telehealth in (MND)TiM service for patients with Motor Neurone Disease, Irish Society of Chartered Physiotherapists Conference 2022, November 2022, 2022 Conference Paper, 2022

Gilsenan, Elizabeth Coates, James Sutherland, Morgan Harold, Deirdre Murray, Polly Kennedy, Miriam Galvin, Mark Heverin, Chris McDermott*, Orla Hardiman*, Esther Hobson, Feasibility and acceptability of the real-world implementation of the Telehealth in Motor Neuron Disease (TiM) service in two specialist MND centres , 33rd International ALS Symposium 2022, December 2022, 2022 Conference Paper, 2022

Chen, Yaohua Sophie and Beber, Bárbara Costa and Higgins, Dawn and Galvin, Miriam and Ilinca, Stefania and Lawlor, Brian and Leon, Tomas and Leroi, Iracema and McGlinchey, Eimear and Rogan, Carol and Saha, Sanjib and Tjin, Anna and O'Sullivan, Roger and CLIC†Caregivers Study Group, COVID†19†related loneliness and social isolation in caregivers of people with brain health challenges: The CLIC†Caregiver Global Survey, Alzheimer's & dementia : the journal of the Alzheimer's Association, 17, (Suppl 7), 2021 Journal Article, 2021 DOI

Tobin K, Maguire S, Corr B, Normand C, Hardiman O, Galvin M., Discrete choice experiment for eliciting preference for health services for patients with ALS and their informal caregivers, BMC Health Services Research, 2021 Mar 9;21(1):213, 2021, p213- Journal Article, 2021

Polly Kennedy & Éilís Conroy, Mark Heverin, Iracema Leroi, Anita Beelen, Leonard van den Berg, Orla Hardiman & Miriam Galvin, 'It refocuses the mind on the important things in life' - An exploration of burden and self-described positive experiences of informal ALS caregivers in Ireland and the Netherlands, ALS SYMPOSIUM, Virtual, 2021, 2021 Poster, 2021

Kennedy, P. Galvin, M. Heverin, M. Murray, M. & Hardiman, O, The complexity of planning care at a multidisciplinary motor neurone disease (MND) clinic, ALS SYMPOSIUM, Virtual, 2021, 2021 Poster, 2021

Galvin, M. and Heverin, M., IMPACT ALS Europe- A European Survey of People living with ALS, ALS SYMPOSIUM, Virtual, 2021, 2021 Oral Presentation, 2021

Antoniadi A.M., Galvin M., Heverin M., Hardiman O., Mooney C., Prediction of caregiver quality of life in amyotrophic lateral sclerosis using explainable machine learning, Scientific Reports, 11, (1), 2021 Journal Article, 2021 DOI

Association for Computing Machinery(ed.), Development of an explainable clinical decision support system for the prediction of patient quality of life in amyotrophic lateral sclerosis, Virtual, 2021, 2021, 594-602 p Proceedings of a Conference, 2021

Roe L. and Galvin M., Providing inclusive, person-centred care for LGBT+ older adults: A discussion on health and social care design and delivery, Journal of Nursing Management, 29, (1), 2021, p104 - 108 Journal Article, 2021 DOI

Miriam Galvin , Eilis Conroy, Polly Kennedy, Mark Heverin, Iracema Leroi and Orla Hardiman, Caregiving in ALS: burden and benefit - a mixed methods study , AAIC 2021 Alzheimer's Association International Conference Satellite Symposium, Virtual, 2021, 2021 Oral Presentation, 2021

Conroy E., Kennedy P., Heverin M., Leroi I., Mayberry E., Beelen A., Stavroulakis T., van den Berg L.H., McDermott C.J., Hardiman O., Galvin M., Informal caregivers in amyotrophic lateral sclerosis: A multi"centre, exploratory study of burden and difficulties, Brain Sciences, 11, (8), 2021 Journal Article, 2021 DOI

Antoniadi, Anna Markella, Galvin, Miriam, Heverin, Mark, Hardiman, Orla, Mooney, Catherine, Prediction of quality of life in people with ALS, ACM SIGAPP Applied Computing Review, 21, (2), 2021, p5-17 Journal Article, 2021 DOI

É Conroy & P Kennedy, M Heverin, I Leroi, E Mayberry, A Beelen, T Stavroulakis, L.H. van den Berg , C. J McDermott, O Hardiman and M Galvin, 'Seeing my wife gradually deteriorate and knowing where it is going makes me sad' - A multi-centre, exploratory study of burden and difficulties of informal ALS caregivers, ALS SYMPOSIUM, Virtual, 2021, 2021 Poster, 2021

Deirdre Murray, Miriam Galvin, Mark Heverin, Polly Kennedy, Colm Peelo, Olivia Grogan, Sinead Maguire, Liam Knox, Esther Hobson, Roisin Duffy, Christopher McDermott and Orla Hardiman, Adoption and Implementation of the Telemedicine in MND (TiM) System in the Irish MND Service , ENCALS 2021 , Virtual, 2021, 2021 Poster, 2021

Lorna Roe and Miriam Galvin and Laura Booi and Lenisa Brandao and Jorge Leon Salas and Eimear McGlinchey and Dana Walrath, To live and age as who we really are: Perspectives from older LGBT+ people in Ireland, HRB Open Research, 2020 Journal Article, 2020 DOI

Peelo, Colm ; Murray, Deirdre; Meldrum, Dara; Galvin, Miriam; Hobson, Esther; McDermott, Christopher & Hardiman, Orla, Bringing Telehealth in Motor Neuron Disease to Ireland , Psychological Society of Ireland (PSI) 50th anniversary annual conference, Virtual, 2020, 2020 Poster, 2020

Experience Of Amyotrophic Lateral Sclerosis In Ireland In Public Policy in, editor(s)Oliver and Blank , Public Policy in ALS/MND Care - an International Perspective , 2020, [Hardiman, O, Lefter S, Galvin M, ] Book Chapter, 2020

Wheeler, Caroline; O'Dea, Ailín; Carney, Síle; Burke, Tom; Wilson O'Raghallaigh, Jennifer; Maguire, Sinead; Galvin, Miriam; Heverin, Mark; Hardiman, Orla & Pender, Niall, Preliminary Qualitative Analysis of Focus Group Interviews Accessing Amyotrophic Lateral Sclerosis Caregivers' Experiences of Group Based Interventions, Psychological Society of Ireland (PSI) 50th anniversary annual conference, Virtual, 2020, 2020 Poster, 2020

Brizzi, K.T. and Bridges, J.F.P. and Yersak, J. and Balas, C. and Thakur, N. and Galvin, M. and Hardiman, O. and Heatwole, C. and Ravits, J. and Simmons, Z. and Bruijn, L. and Chan, J. and Bedlack, R. and Berry, J.D., Understanding the needs of people with ALS: a national survey of patients and caregivers, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 2020 Journal Article, 2020

Anna Antoniadi, Miriam Galvin, Mark Heverin, Orla Hardiman, and Catherine Mooney. , Identifying Features That Are Predictive of Quality of Life in People With Amyotrophic Lateral Sclerosis. , IEEE ICHI International Conference on Healthcare Informatics, 2020 Poster, 2020

Anna Antoniadi, Miriam Galvin, Mark Heverin, Orla Hardiman, and Catherine Mooney, Using Patient Information for the Prediction of Caregiver Burden in Amyotrophic Lateral Sclerosis. , 11th ACM International Conference on Bioinformatics, Computational Biology and Health Informatics , USA, edited by Association for Computing Machinery , 2020, pp1 Poster, 2020

Galvin, M., Gavin, T., Mays, I. et al., Individual quality of life in spousal ALS patient-caregiver dyads. , Health Qual Life Outcomes, 2020 Journal Article, 2020

Anna Markella Antoniadi, Miriam Galvin, Mark Heverin, Orla Hardiman, Catherine Mooney, Prediction of caregiver burden in amyotrophic lateral sclerosis: a machine learning approach using random forests applied to a cohort study, BMJ Open, 10, (2), 2020, pe033109 Journal Article, 2020

Carney, Síle; Wheeler, Carolin; Pinto-Grau, Marta; Costello, Emmet; Hammond, Michaela; Heverin, Mark; Burke, Tom; Galvin, Miriam; Hardiman, Orla & Pender, Niall, Longitudinal Analysis of Psychological Distress in Motor Neuron Disease Caregivers, Psychological Society of Ireland (PSI) 50th anniversary annual conference, Virtual, 2020, 2020 Poster, 2020

Miriam Galvin & Gerry McNamara, Face-to-Face Interviews With Vulnerable Respondents: Informal Caregivers of Patients With Progressive Neurodegeneration, SAGE Research Methods Cases: Medicine and Health, 2020 Journal Article, 2020

Galvin M, Deconstructing Burden: Informal Caregivers in Neurodegeneration , Sonas Dementia Conference Croke , 2019 Oral Presentation, 2019

Galvin M, Individual Quality of Life among spousal ALS patient-caregiver dyads, International ALS Symposium, , 2019, 2019 Oral Presentation, 2019

Impey, Sinead; Berry, Damon; Furtado, Selma; Galvin, Miriam; Grogan, Loretto; Orla Hardiman, Orla; Hederman, Lucy; Heverin, Mark; Wade, Vincent; Stephens, Gaye;, Capturing 'The Everything': a novel approach to domain investigation in a rare disease setting, HISI 2019 - 24th HISI Annual Conference & Scientific Symposium Health Informatics Society of Ireland, 26 November 2019, 2019 Conference Paper, 2019

Tom Burke, Sinead Maguire, Miriam Galvin, Mark Heverin, Orla Hardiman, Niall Pender, When the shared journey ends: the enduring impact of ALS on bereaved caregivers, 30th International Symposium on ALS/MND, Australia, 2019 Poster, 2019

Thurn, T. and Borasio, G.D. and Chi{\`o, Physicians? attitudes toward end-of-life decisions in amyotrophic lateral sclerosis, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 20, (1-2), 2019, p74-81 Journal Article, 2019

Addressing the context: Issues in cross-national comparative research in cross national comparative research in, Doing Educational research: Overcoming Challenges in Practice, Sage, 2019, [Altrichter H, Galvin M, McNamara G & O'Hara J] Book Chapter, 2019

Orla Hardiman(ed.), International Symposium ALS/FTD, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, Australia, 2019, 40-41 p Proceedings of a Conference, 2019

Burke, T., Wilson-O'Raghallaigh J, Maguire S., Galvin , M., Heverin, M., Hardiman, O., Pender, Niall , Group Interventions for Amyotrophic Lateral Sclerosis Caregivers in Ireland: a randomised controlled trial protocol, BMJ Open, (September), 2019 Journal Article, 2019 DOI

Miriam Galvin,Sile Carney, Bernie Corr, Iain Mays, Niall Pender, Orla Hardiman, Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis, · BMJ Open , 8, (1), 2018, pe018721- Journal Article, 2018 DOI TARA - Full Text

Miriam Galvin, Bernie Corr, Sile Carney, Niall Pender, Orla Hardiman, Informal ALS caregivers -expressing their needs within a health care setting: a qualitative analysis, 29th ALS International Symposium , Glasgow, 2018 Poster, 2018

M Galvin, O Hardiman, A Laverdiere , B Charpentier, J Petrillo, K Bowyer Lucie Bruijn, C McDermott , ALS European Survey: People living with ALS and their caregivers' input into drug development in Europe , ENCALS, Oxford, 2018 Poster, 2018

Burke, T., Hardiman, O., Pinto-Grau, M, Longergan, K., Heverin, M., Tobin, K., Staines, A. Galvin, M., and Pender, N, , Longitudinal Predictors of Caregiver Burden in Amyotrophic Lateral Sclerosis: A population-based cohort of patient-caregiver dyads., Journal of Neurology , 2018 Journal Article, 2018

The Impact of Cognitive and Behavioural Change on Quality of Life of Caregivers and Patients with ALS and Other Neurological Conditions in, editor(s)Pagnini F and Simmons Z , Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being, , Oxford University Press, 2018, [Burke, T., Galvin, M., Maguire, S., Pender, N., & Hardiman, O] Book Chapter, 2018

Miriam Galvin, Bernie Corr, Sile Carney, Niall Pender, Orla Hardiman, Informal ALS caregivers -expressing their needs within a health care setting: a qualitative analysis, ENCALS, Oxford, 2018 Poster, 2018

Burke, T Galvin, M. and Pinto-Grau, M. and Lonergan, K. and Madden, C. and Mays, I. and Carney, S. and Hardiman, O. and Pender, N., Caregivers of patients with amyotrophic lateral sclerosis: investigating quality of life, caregiver burden, service engagement, and patient survival, Journal of Neurology, 264, (5), 2017, p898-904 Journal Article, 2017 DOI

Galvin M, Exploring the complex needs of ALS caregivers - from first symptoms across the caregiving course, , Institute for Biomedical Ethics, 2017 Invited Talk, 2017

Galvin M, Ryan P, Maguire S, Heverin M, Madden C, Vajda A, Normand C, Hardiman O, The path to specialist multidisciplinary care in amyotrophic lateral sclerosis: A population- based study of consultations, interventions and costs. , PLoS One, 12, (6), 2017 Journal Article, 2017 TARA - Full Text

Galvin M, Ryan P, Maguire S , Heverin M, Madden C, Vajda A, Normand C, Hardiman O., The Patient Journey to a National ALS Clinic: Delayed Diagnosis and Economic Cost: The path to specialist multidisciplinary care: A population based study of consultations, interventions and costs, American Academy of Neurology Conference, USA, 2017 Poster, 2017

Galvin, M. Gaffney, R. and Corr, B. and Mays, I. and Hardiman, O., From first symptoms to diagnosis of amyotrophic lateral sclerosis: Perspectives of an Irish informal caregiver cohort - A thematic analysis, BMJ Open, 7, (3), 2017, pe014985- Journal Article, 2017 DOI TARA - Full Text

Galvin M, Gaffney R, Corr B, Mays I, Hardiman O, Pre-diagnosis journey - perspectives of informal ALS caregivers: a thematic analysis, American Academy of Neurology Conference, USA, 2017 Poster, 2017

Galvin, M. et al, Proceedings of the Winter Scientific Meeting of the Faculty of Public Health Medicine 2015, Irish Journal of Medical Science (1971 -), 185, (S12), 2016, p543-561 Journal Article, 2016 DOI

Galvin M, Tobin K, Mays I, Staines A, Hardiman O, Caregiver Burden in Amyotrophic Lateral Sclerosis (ALS): A Prospective Analysis, Irish Journal of Medical Science, 185, (Supplement 12), 2016 Journal Article, 2016 DOI

Galvin M, Corr B, Madden C, Mays I, McQuillan R, Timonen V, Staines A, Hardiman O, Caregiving in ALS - A mixed methods approach to the study of Burden, BMC Palliative Care, 15, (1), 2016, p81- Journal Article, 2016 DOI TARA - Full Text URL

Galvin M, Deconstructing Caregiver Burden in Amyotrophic Lateral Sclerosis - adding a qualitative perspective, European Academy of Neurology, Denmark, 2016 Oral Presentation, 2016

Rooney J, Heverin M, Vajda A, Burke T, Galvin M, Tobin K, Elamin M, Staines A, Hardiman O, Survival analysis of geospatial factors in the Irish ALS cohort., Amyotrophic lateral sclerosis & frontotemporal degeneration, 2016, p1-6 Journal Article, 2016 DOI

Galvin, M. , Deconstructing Caregiver Burden in Amyotrophic Lateral Sclerosis - adding a qualitative perspective, 17th Healthcare Interdisciplinary Research Conference, Dublin, 2016 Oral Presentation, 2016

Galvin M, Ryan P, Maguire S , Heverin M, Madden C, Vajda A, Normand C, Hardiman O, The Patient Journey to a National ALS Clinic: Delayed Diagnosis and Economic Cost: The path to specialist multidisciplinary care: A population based study of consultations, interventions and costs, ALS Symposium, Dublin, 2016 Poster, 2016

Galvin M, Ryan P, Maguire S, Heverin M, Madden C, Vajda A, Normand C, Hardiman O, The Patient Journey to a National ALS Clinic: Delayed Diagnosis and Economic Cost, European Academy of Neurology, Copenhagen, 2016 Poster, 2016

Galvin, M., Autonomy and Quality of Life: The Patient-Carer Dyad, ALS SYMPOSIUM, 2016 Oral Presentation, 2016

Maguire S, Penugonda M, Tobin K, Galvin M, Hardiman O, Palliative Care Outcomes in ALS, 27th International ALS Symposium, Dublin, 2016 Poster, 2016

Connolly S, and Galvin M, Hardiman O, End-of-life management in patients with amyotrophic lateral sclerosis, The Lancet Neurology, 14, (4), 2015, p435 - 442 Journal Article, 2015 URL DOI

Galvin M, Madden C, Maguire S, Heverin M, Vajda A, Staines A, Hardiman O, Patient journey to a specialist amyotrophic lateral sclerosis multidisciplinary clinic: an exploratory study., BMC health services research, 15, 2015, p571 Journal Article, 2015 TARA - Full Text DOI

Galvin M, Madden C, Mays I, Corr B, Staines A, Hardiman O , Caregiver Burden in ALS- Dimensions and Difficulties , 26th International ALS Symposium, USA, 2015 Poster, 2015

Burke T, Elamin M, Galvin M, Gallagher L, Hardiman O, Pender N, Erratum: Caregiver burden in amyotrophic lateral sclerosis: a cross-sectional investigation of predictors. [J Neurol, (2015) 262, (1526-1532), DOI 10.1007/s00415-015-7746-z], 2015, - 2799 Miscellaneous, 2015 DOI URL

Galvin M, Tobin K, Mays I, Staines A, Hardiman O, Caregiver Burden in Amyotrophic Lateral Sclerosis (ALS): a Prospective Analysis , Winter Scientific Meeting, Royal College of Physicians in Ireland,, Dublin, 2015 Poster, 2015

Burke T, Elamin M, Galvin M, Hardiman O, Pender N, Caregiver burden in amyotrophic lateral sclerosis: a cross-sectional investigation of predictors, Journal of Neurology, 262, (6), 2015, p1526 - 1532 Journal Article, 2015 DOI URL

Galvin M, and Connolly S, Mays I, Hardiman O, End of Life in Patients with Amyotrophic Lateral Sclerosis (ALS): A Review , 25th International ALS Symposium, , Brussels, 2014 Poster, 2014

Galvin M, Mays I, Corr B, Staines A, Hardiman O , Exploration of Caregiving Experiences in Amyotrophic Lateral Sclerosis: a preliminary analysis, 25th International ALS Symposium, , Brussels, 2014 Poster, 2014

Galvin, M. , Clergymen and Child Sexual Abuse: Media, Discourse and Masculinity, , Studies, 2011 Journal Article, 2011

Galvin M, Representations of Sexuality: Men who interact sexually with children, The Self, Selves and Sexualities International Conference, School of Nursing and SALIS, Dublin City University, 2010 Oral Presentation, 2010

Norman, J, Galvin, M, Mc Namara, G , Straight Talk: Researching Gay and Lesbian Issues in the School Curriculum , Centre for Educational Evaluation, School of Education Studies, Dublin City University , 2006 Book, 2006

Galvin, M., The Role of Teachers in Addressing Homophobic Bullying in Irish Second-Level Schools, 2005 Oral Presentation, 2005

Norman, J, Galvin, M , A Survey of Teachers on Homophobic Bullying in Irish Second-Level Schools , 2004 Report, 2004

Cleary, A, Corbett, M, Galvin, M, Wall, J , Young Men on the Margins , The Katherine Howard Foundation, 2004 Book, 2004

Galvin, M., Factors contributing to Workload and Pressure of Work in General Practice in Ireland: a National Survey, Association of University Departments of General Practice, Galway, 2001 Oral Presentation, 2001