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Trinity Centre for People with Intellectual Disabilities and Collaborators Publications

Published Articles:

Joint Staff and Student Research Publication

Publication by Dr. John Kubiak - July 2016

Dr John Kubiak has a new publication out in The International Journal of Learning in Higher Education. The article is titled: 'Using Concept Mapping as a Learning Tool for College Students with an Intellectual Disability'.

This article outlines how students with an intellectual disability (ID) used concept maps as a learning and research tool in a post-secondary education (PSE) program. Concept mapping is described as a graphical tool used for organizing and representing relationships between concepts and has been shown to have a positive impact on the quality of student learning, especially in higher education. This paper outlines how concept maps were used in one Irish university as a learning tool in an inclusive education college program for people with an ID. Examples are provided from a small group of students who used concept maps as 1) a learning tool for gaining a greater understanding of their own learning processes and 2) as a research tool for eliciting information and gathering data. Further research is needed to better understand how college students with an ID can be supported both individually and collaboratively to develop and progress their learning skills through the use of concept mapping.


Keywords:

Concept Mapping, Students with Intellectual Disabilities, Post-secondary Education Programs, Higher Education, Inclusive Research

The International Journal of Learning in Higher Education, Volume 23, Issue 2, June 2016, pp.7-21. Article: Print (Spiral Bound). Published online: April 29, 2016 (Article: Electronic (PDF File; 965.943KB)).

http://ijlhe.cgpublisher.com/product/pub.260/prod.130

Dr John Kubiak has a new publication out in the INTERNATIONAL JOURNAL OF LEARNER DIVERSITY AND IDENTITIES. The article is titled: Researching Inclusively with College Students with Intellectual Disabilities ➤➤ Further information The International Journal of Learner Diversity and Identities

A chapter entitled 'Experiences of Learning: Students With Intellectual Disabilities in Higher Education in Ireland' by John Kubiak and Michael Shevlin, has been included in the book Inclusive Education for Students with Intellectual Disabilities, A volume in International Advances in Education: Global Initiatives for Equity and Social Justice, (Series Editors: Elinor L. Brown, Rhonda G. Craven, and George F. McLean). For more information please click here

Kubiak, J, (2013). Using phenomenography to explore intellectually disabled students' experiences of learning in tertiary education. Trinity Education Papers (in press)

Kubiak, J. (2013). Intellectually Disabled Students' Experiences of Learning in Tertiary Education: an Inclusive Phenomenography, Unpublished D.Ed. Thesis, Trinity College Dublin

O'Connor, B., Kubiak, J., Espiner, D., & O'Brien, P., (2012). Lecturer Responses to the Inclusion of Students with Intellectual Disabilities Auditing Undergraduate Classes, Journal of Policy and Practice in Intellectual Disabilities , 9, (4): 247 - 256

O' Doherty, S. (2011). Attitudes of care staff towards client sexuality. The Frontline of Learning Disability, 82, 18-19

Haveman, M., Perry, J., Salvador, L., Kerr, M., Van Schrojenstein Lantman-de Valk, H., Van Hove, G., Moravec Berger D., Walsh, P.N., Azema, B., Buono, S., Cara, A., Germanavicius, A., Linehan, C., Maatta, T., Tossebro, J., Weber, G., Ageing and Health Status in adults with intellectual disabilities: Results of the European POMONA II study., Journal of Intellectual and Developmental Disability, 36, (1), 2011, p49 - 60

Martínez-Leal, R., Salvador-Carulla, L., Linehan, C., Walsh P.N., Weber, G., Van Hove, G., Määtta, T., Azema, B., Haveman, M., Buono, S., Germanavicius, A., van Schrojenstein Lantman-de Valk, H., Tossebro, J., Carmen-Câra, A., Moravec, D., Perry, J., Kerr, M.P.,(2011) The Impact of Living Arrangements in the Health Status of Persons with Intellectual Disability in Europe: An observational study using a health survey in 14 European countries, Journal of Intellectual Disability Research, 55 (9), 858-872

Veenstra, M,Y., Walsh, P.N., van Schrojenstein Lantman-de Valk, H.M.J., Haveman, M.J., Linehan, C., Kerr, M.P., Weber, G., Salvador-Carulla, L., Carmen-Câra, A., Azema, B., Buono, S., Germanavicius, A., Tossebro, J., Määtta, T., van Hove, G., & Moravec, D., Sampling and ethical issues in a multicenter study on health of people with intellectual disabilities, Journal of Clinical Epidemiology, 63, (10), 2010, p1091 - 1100

Linehan, C., Kerr, M.P., Walsh, P.N., Brady, G., Kelleher, C., Delanty, N., Dawson, F., & Glynn, M , Examining the prevalence of epilepsy and delivery of epilepsy care in Ireland, Epilepsia, 51, (5), 2010, p845 - 852

Hughes, Z., (June 2010). A Story to Tell. Learning Disability Today

Hughes, Z.,(November, 2010). A Story to Tell. Oral History Society Journal

McConkey, R., Kelly, F., Mannan, H. and Craig, S. (2010). Inequalities in respite service provision: Insights from a national, longitudinal study of people with intellectual disabilities. Journal of Applied Research in Intellectual Disability, 23, 85-94

Linehan, C., Walsh, P.N., Van Schrojenstein Lantman-de Valk, H., Kerr, M., & Dawson, F. , Are People with Intellectual Disabilities Represented in European Health Surveys? , Journal of Applied Research in Intellectual Disabilities, 22, (5), 2009, p409 - 420

O'Brien, P., O'Keeffe, M., Healy, U., Kubiak, J., Lally, N., & Hughes, Z. (2009). Inclusion of students with intellectual disability within a university setting. The Frontline of Learning Disability, 74, 6- 7

O'Keeffe, & Hughes, Z. (2009). Finding voice as researchers through the use of photos. The Frontline of Learning Disability, 74, 12

Hamilton, C., and Atkinson, D., (2009). A Story to Tell': learning from the life-stories of older people with intellectual disabilities in Ireland. British Journal of Learning Disabilities, 37

Kelly, F., Craig, S., McConkey, R. and Mannan, H. (2009). Lone parent carers of people with an intellectual disability in the Republic of Ireland. British Journal of Learning Disabilities, 37, 265-270

Kubiak, J. (2009). Pushing the boundaries of inclusion within third-level education. The Frontline of Learning Disability, 74, 8- 10

Submitted:

McConkey, R., Kelly, F. & Craig, S. (2011). Access to respite breaks for families who have a relative with intellectual disabilities: a national survey. Journal of Advanced Nursing (in press)

McConkey, R., Kelly, F., Mannan, H. & Craig, S. (2011). Moving from family care to residential and supported accommodation: a national, longitudinal study of people with intellectual disabilities. American Journal on Intellectual and Developmental Disabilities (in press)

In preparation:

Kubiak, J. (2013). People with Intellectual Disabilities in Higher Education: Opportunities for Learning, Trinity Education Papers (Special edition).

Kubiak, J. & Shevlin, M., (2013). Intellectually Disabled Students' Experiences of Learning in one Irish College. Journal of Applied Research in Intellectual Disabilities.

Chadwick, D. D., Mannan, H., Garcia Iriarte, E., McConkey, R. M., O'Brien, T., Finlay, F., Lawlor, A., Harrington, G. Family Voices 1: The lives of families of people with intellectual disabilities in Ireland

O'Connor, B., Kubiak, J., Espiner, D., & O'Brien, P. (2011). Lecturer Responses to the Inclusion of Students with Intellectual Disabilities Auditing Undergraduate Classes. Journal of Policy and Practice in Intellectual Disabilities

Conference papers:

Kubiak, J, (April, 2012). Intellectually Disabled Students' Experiences of Learning in Tertiary Education: an 'Inclusive' Phenomenography, Conference paper, Examining Theory and Practice in Inclusive Education , Trinity College Dublin.

Kubiak, J., (June, 2013).Intellectually Disabled Students' Experiences of Learning in one Irish College, Exploring Difference and Diversity in Irish Higher Education , School of Education, Trinity College Dublin.,

Kubiak, J. & Twomey, M. (June 2013). The use of 'voice' as a research approach (Keynote speakers), Approaches to Inclusive Research in Education: Opportunities and Challenges, Long Room Hub, Trinity College Dublin.

Kubiak, J., Lally, M., & Murphy, T. (May, 2011). 'Our experience of attending undergraduate lectures at Trinity College' - A students' perspective". Paper presented at 11th Research Conference, 11th Nordic Network on Disability Research (NNDR) Research Conference, Reykjavik, Iceland, (May 27-28, 2011)

O' Doherty, S. (May, 2011). 'The right of people with intellectual disabilities to have intimate relationships - care staff perspectives in Ireland'. Poster session presented at the 11th Nordic Network on Disability Research Annual Conference, Reykjavik, Iceland

Lally, N., Murphy, T., O'Keeffe, M., & Yap, M. (May, 2011). Promoting university inclusion for people with Intellectual Disabilities throughout Ireland - how we did it. Paper presented at 11th Nordic Network on Disability Research, Reykjavik, Iceland

O' Doherty, S. (February, 2011). 'The right of people with intellectual disabilities to have intimate relationships - care staff perspectives'. Paper presented at the conference 'Intellectual Disability and Sexuality: Moving Forward' (Pavilion Publishing), Dublin, Ireland

O'Brien, P., Kubiak, J., Espiner, D., O'Connor. B., & O'Keeffe, M. (October, 2010). "Including students in undergraduate classes within a university setting". Paper presented at IASSID , Rome, 20-22 October, 2010

Chadwick, D.D., McConkey, R. & Iriarte-Garcia, E., O'Brien, P, Finlay, F., Greene, S. Lawlor, A., Spain, J., (October, 2010). 'Family Voices: The concerns and strengths of families of people with ID. Integrating Biomedical and Psycho-Social-Educational Perspectives', 3rd IASSID-Europe Conference, Rome, Italy, 20-22

Chadwick, D.D. Mannan, H., McConkey, R. & Iriarte-Garcia, E., (December 2010). Advocating for Services: 'Experiences & Concerns of family members of people with Intellectual Disabilities in Ireland'. Proceedings of the 10th Seattle Club Conference. Llandudno, Wales, 6-7

Lally, N & O'Brien, P (October, 2010). Rolling out University Inclusion throughout Ireland for People with intellectual Disabilities. Paper presented at the 3rd International Association of the Scientific Study of Intellectual Disability, IASSID-Europe, Rome, Italy.

Hughes, Z., Kelly, G & Brennan, C. (October 2010). 'Creating a digital archive of life stories of people with intellectual disabilities.' 3rd International Conference of IASSID-Europe, Rome, Italy

Garcia Iriarte, E., O'Brien, McConkey, R., Chadwick, D., Ryan, K., Wolfe, M. & Minogue, G. (October, 2010). 'Working with committees: using inclusive research to effect change'. In (Murphy, J., moderator), Inclusive Research 2 - Results from two national Irish projects. Paper presented at the 3rd International Association of the Scientific Study of Intellectual Disability, IASSID-Europe, Rome, Italy

Garcia Iriarte, E., O. Brien, P., McConkey, R., Chadwick, D., Minogue, G., Ryan, K. & Wolfe, M. (October, 2010). 'Two more steps in inclusive research: disseminating and using the findings'. In (Murphy, J., moderator) Inclusive Research 1 - Experiences from three Irish national projects. Paper presented at the 3rd International Association of the Scientific Study of Intellectual Disability, IASSID-Europe, Rome, Italy

Chadwick, D., O'Brien, P., Garcia Iriarte, E., Curry, p., & Lally, N. (October, 2010). Transition of Students with Intellectual disabilities from education into post school options in Ireland. Paper presented at the International Association of the Scientific Study of Intellectual Disability, IASSID-Europe, Rome, Italy

Garcia Iriarte, E., Wolfe, M., Chadwick, D., McConkey, R., O' Brien, P. (June, 2010). 'Doing inclusive research: Strategies to work with co - researchers with intellectual disabilities'. Paper presented at the 15th World Congress of Inclusion International, Berlin, Germany

Hughes, Z. (June 2010). 'A Story to Tell.' European Association for Service Providers in Disability (EASPD) Annual Conference (Invited paper) Helsinki, Finland

Lally, N & O'Brien, P (June, 2010). Access and Entry into Tertiary Education for Students with Intellectual Disabilities in Ireland: A Pilot Study. Paper presented at the 15th World Congress of Inclusion International, Berlin, Germany.

Lally, N., Murphy, T., O'Keeffe, M. and Yap, M.L. (2010) 'Breaking Boundaries: The Experiences of Students with Intellectual Disabilities in Inclusive Third Level Education in Ireland'. Global PhD and Researchers Colloquium on Disability Law and Policy. Centre for Disability Law and Policy, NUIG. 26-27 April 2010

Lally, N., Murphy, T., O'Keeffe, M., & Yap, M. (April, 2010). Breaking Boundaries: The Experiences of Students with Intellectual Disabilities in Inclusive Third Level Education in Ireland. Presentation at the Global Ph.D/Post-Doctoral and Post Graduate Researchers Colloquium on Disability, Law, and Policy, National University of Ireland, Galway, Ireland.

Hughes, Z. (March 2010). The lives and stories of older people with intellectual disabilities. World Social Work Day Celebration (Invited paper)Trinity College Dublin

Chadwick, D., Garcia Iriarte, E., Lally, N., O'Brien, P., Curry, p. (December, 2009). Transition of Students with Intellectual Disabilities from Education into Post-School options within the Irish Context. Poster presented at the Seattle Club Conference Annual Meeting, London, UK.

Hughes, Z. (December 2009). A story to Tell (poster). 9th Seattle Club Conference on Research on Intellectual and Developmental Disabilities, University College London, UK

Espiner, D., O'Brien, P.,and Kubiak, J. (2009). "'Being a real student: Students' perceptions of one inclusive tertiary educational experience". Paper presented at Australasian Board of the Society for the Study of Intellectual Disability (ASSID) 44th Conference , Tasmania, 4th - 7th Nov 2009.

Lally, N & O'Brien, P (November, 2009). A whole new world at a tertiary level Paper Presented at University Education Opportunities for Students with Intellectual Disabilities, Lunds Universitett, Sweden.

Hughes, Z. (November, 2009) Interesting people, Interesting lives… Interesting Stories ...International Conference of the College of Psychiatry of Ireland & the Northern Ireland & European Divisions of the Royal College of Psychiatrists. Dublin. (Invited paper)

Buggy, S, Flynn, S. & Wolfe, M. (October, 2009). Promoting independent and community living for people with intellectual disabilities. Paper presented at National Disability Authority Annual Conference, Croke Park, Dublin

O'Brien, P. & García Iriarte, E. (October, 2009). Full Participation and Inclusion for People with Intellectual Disabilities through the Work of the National Institute for Intellectual Disability, Trinity College Dublin. Colloquium Presented at the Department of Disability and Human Development, University of Illinois at Chicago

O'Brien, P. & García Iriarte, E. (October, 2009). 'Full participation and inclusion for people with intellectual disabilities through the work of the National Institute for Intellectual Disability', Trinity College Dublin. Colloquium presented at the Department of Disability and Human Development, University of Illinois at Chicago, Chicago, IL

Linehan, C., Burke, T., Walsh, P.N., Glynn, M., Hall, L., Ryan, D., & Kerr, M, Quality of Life of Caregivers of Persons with Intellectual Disability and Epilepsy in Ireland, Health Special Interest Group, Kingston, Canada , 8th-10th September, 2009

Hughes, Z. & Kelly, G. (August, 2009). My Life, My Story10th Annual Down's Syndrome World Congress (Invited Workshop) Dublin City University, Dublin

Hughes, Z. (July 2009). The archiving of life stories. Keynote address, Inclusion through Education, Research and Advocacy, Summer School, Trinity College Dublin

García Iriarte, E. (May, 2009). Participation of People with Intellectual Disabilities in Empowerment Evaluation: a Road to Self-Determination. Paper presented at the EU-China Human Rights Seminar on the Rights of the Disabled and Access to Justice. Prague, Czech Republic

O'Brien, P., Mannan, H. & Hughes, Z (April 2009). 'Inclusive research.' Presentation at the British Psychological Society Faculty for Learning Disabilities Annual CPD Event, Belfast

Zoe Hughes (March, 2009). ''But my life's not that interesting…': Supporting someone with a disability to write their life story.' World Book Day Celebration (Invited paper). Stewarts Hospital Services, Dublin

Zoe Hughes (January, 2009). 'The archiving of life stories.' One day seminar on Dementia and Disability (Invited paper) Trinity College Dublin

Curtis, S. & Hamilton. C. (2008). 'The anti bullying group; People with ID talk about bullying behaviour.' Paper presented at the IASSID Conference 25-30th August, Cape Town South Africa. See entry of abstract in Journal of Intellectual Disability Research 52 ( 9), 796

O'Brien, P., McConkey, R., McNamee, M., Roberts, W., Wolfe, M., Alford, P., Curry, P. & Quinlivan, L (2008, November) 'Working collaboratively with people with intellectual disabilities to document Irish lives.' Paper presented at the ASSID 43rd Conference University of Melbourne, November 24 - 26

McConkey, R. & O'Brien, P. (2008, November). 'New paradigms in intellectual disability research for the modern era.' Paper presented at the ASSID 43rd Conference University of Melbourne, November 24 - 26

O'Brien, P., Shevlin, M., O'Keeffe, M., Kenny, M., Fitzgerald, S., Espiner, D & Kubiak, J.(2008) 'Opening up a whole new world: Students with intellectual disability being included within a university setting.' Paper presented at the ASSID 43rd Conference University of Melbourne, November 24 - 26

Mannan, H. O'Brien, P. & Curry, P. (August 2008) 'What life is like for family members of people with intellectual disabilities in Ireland.' 13th IASSID World Congress Cape Town, 25-30

Mannan, H. (2008). 'What life is like for family members of people with intellectual disabilities in Ireland.' Paper presented at the IASSID Conference 25-30th August, Cape Town South Africa. See entry of abstract in Journal of Intellectual Disability Research 52 ( 9), 697

Hamilton, C., Atkinson, D. & Walsh, P.N.( 2008). 'A story to tell' Paper presented at the IASSID Conference 25-30th August, Cape Town South Africa. See entry of abstract in Journal of Intellectual Disability Research 52 (9), 697

O'Brien, P.,& Curry, P. (2008) 'All we want to say.' Paper presented at the IASSID Conference 25-30th August, Cape Town, South Africa. See entry of abstract in Journal of Intellectual Disability Research 52 ( 9), 697

O'Brien, P., McConkey, R., McNamee, M., Roberts, W., Wolfe, M., Alford, P., Curry, P. & Quinlivan, L (2008) 'Working collaboratively with people with intellectual disabilities to document Irish lives.' Paper presented at the ASSID 43rd Conference University of Melbourne, November 24 -26

O'Keeffe; M., Hughes, Z., Higgins, B., McCormack, E., & Kenny, W. (November, 2008). 'Nothing about researching us without us.' Paper presented at the 9th Annual Interdisciplinary Research Conference, Trinity School of Nursing, Dublin, Ireland

O'Brien, P., Shevlin, M., O'Keeffe. M.,Curtis, S., Kubiak, J.,M., Fitzgerald, S., Kenny, M., & Espiner, D. (November, 2008). 'Opening up a whole new world; Students with intellectual disability being included within a university setting.' Paper presented at the 43rd ASSID conference, University of Melbourne

Mc Conkey, R. & O'Brien, P. (November, 2008). 'New paradigms in intellectual disability research for the modern era.' Paper presented at the 43rd ASSID conference, University of Melbourne

O'Brien, P., Curry, P., Quinlivan, L., McNamee, M., & Curtis. S. (November, 2008). 'Researching and working inclusively with people with intellectual disability'. Paper presented at the 43rd ASSID Conference, University of Melbourne

Hughes, Z., Higgins, B., McCormack, E., Kenny, W. & Healy, U. (September, 2008). 'Getting political: The experience of students with intellectual disabilities in University politics.' Paper presented at the 4th Biennial Disability Studies Conference, Lancaster University, UK

W. Roberts, C. Hamilton & Z. Hughes (July 2008). 'From Darkness into the Light: Life stories and personal testimonies'.Spending Time in Institutions' International Seminar at the Social History of Learning Disability Conference. Open University, Milton Keynes, UK

Mannan, H. (May, 2008). Joint Conference organized by Leonard Cheshire Disability and United Nations Economic Commission for Africa, Addis Ababa, Ethiopia. Presented session entitled 'Health care equity is a development issue' -Workshop 10: Access to health care

Walsh, P.N., Linehan, C., Perry, J., & Kerr, M., Health Science: Health Indicators for people with Intellectual Disabilities, 60th Conference of the Gerontological Society of America , San Francisco, USA, 16th-20th November, 2007

Linehan, C., & Walsh, P.N, Measures of Adult Mental Health in Europe, European Congress of Mental Health in Intellectual Disability, Zagreb, Crotia, 11th-13th October, 2007

Hamilton, C. (2007). 'In Our House, We're Not Terribly Sexual' , Keynote address, Irish Sex Education Network (ISEN) AGM Dublin: October 2007

Hamilton, C. (2007). 'Doing Disability Research - equal lives for equal people", Paper presented at the ASSID (NZ) Conference Wellington: September 2007

Mannan, H. (November, 2007). Stellenbosch Symposium on Evidence to Action on Disability, Cape Town, South Africa. Presented session entitled "International perspectives on employment of people with disabilities: Evidence, practice and action"

Mannan, H. (November, 2007). 42nd Australian Scientific Study of entitled "Disability measurement, legislation and case law: Impact on intellectual Disabilities' Conference, Perth, Australia. Presented session employment of people with disabilities

Linehan, C., & Walsh, P.N., on behalf of the POMONA Project , Track A6 Indicators. Piloting a set of health indicators for people with intellectual disability in 14 European States 2005-2008, European Journal of Public Health, 16, 2006, pp20-

Linehan, C., Buono, S., Moravec-Berger, D., Salvador-Carulla, L., Tossebro, J. , Monitoring the Health of Adults with Intellectual Disabilities in Europe, Journal of Applied Research in Intellectual Disabilities, 19, (3), 2006, pp248-

Kerr, M., Germanavicius, A., Haveman, M., & Linehan, C, Pilot Study: Health Indicators for People with Intellectual Disability in Europe, Journal of Applied Research in Intellectual Disabilities, , 19, (3), 2006, pp248-

Buono, S., Walsh, P.N., Linehan, C., & Musumeci, M. (, Indicatori di Salute Nelle Disabilita Intellettive, VII Congresso Nazionale. Promuovere Benessere Con Persone Gruppi Comunita, Cesena, Italy, 28th-30th September, 2006

Handbooks:

Garcia Iriarte, E. & O'Doherty, S. (2010). Inclusive Research Network Co-Researcher Handbook. Relationships and supports study. Dublin: National Institute for Intellectual Disability

Garcia Iriarte, E. & O'Doherty, S. (2010). Inclusive Research Network Supporter Handbook. Relationships and supports study. Dublin: National Institute for Intellectual Disability

National Institute for Intellectual Disability & National Federation of Voluntary Bodies. (2010). Co - researcher handbook - where we live study. Dublin: National Institute for Intellectual Disability & Galway: National Federation of Voluntary Bodies

National Institute for Intellectual Disability & National Federation of Voluntary Bodies. (2010). Supporter handbook - where we live study. Dublin: National Institute for Intellectual Disability & Galway: National Federation of Voluntary Bodies

Reports:

Chadwick, D. D., Finlay, F., García Iriarte, E., Greene, S., Harrington, J., Lawlor, A., Mannan, H., McConkey, R., O'Brien, P., Spain, J. & Turner, A. (2010) Family Voices: Life in Ireland for families of people with intellectual disabilities. National Institute for Intellectual Disability, Trinity College Dublin

Inclusive Research Network (2010). Where We Live. A National study done by members of the Inclusive Research Network through surveys. Dublin: National Institute for Intellectual Disability & Galway: National Federation of Voluntary Bodies

Inclusive Research Network (2010). Relationships and supports study: People with intellectual disabilities in Ireland. Dublin: National Institute for Intellectual Disability & Galway: National Federation of Voluntary Bodies

National Institute for Intellectual Disability (2009). All we want to say: Life in Ireland for people with intellectual disabilities. Dublin: Trinity College Dublin

Chadwick, D. (2009) National Study of Family Members Caring for People with Intellectual Disabilities (Accessible Summary). National Institute for Intellectual Disability, Trinity College Dublin

Donahoe, B. (2009). The Inclusive Research Network. A participatory action project. Easy to read version. Dublin: National Institute for Intellectual Disabilities & Galway: National Federation of Voluntary Bodies

Tierney, E., Curtis, S. & O' Brien, P. (2009). The Inclusive Research Network. A participatory action project. Dublin: National Institute for Intellectual Disabilities & Galway: National Federation of Voluntary Bodies