Data Sharing and Research Collaborations
Data Sharing with the Maternal Health Study (MHS) research team, Murdoch Children's Research Institute
The MHS research team explored the health and health problems of women in Australia. The MAMMI study surveys were adapted from the MHS surveys and modified for use in Ireland. The MAMMI study team plan to collaborate with the MHS team to merge anonymised data from women recruited in Ireland with the data from women recruited in Australia. By merging the two groups, this will help us to explore certain health issues in depth, such as faecal incontinence and intimate partner violence.
Data Sharing with researchers from the Gothenburg Research Program on Pregnancy and Politics (PregDem), University of Gothenburg, Sweden
In 2014, a collaboration between the Department of Political Science, University of Gothenburg and the MAMMI study involved including additional questions in some of the MAMMI surveys. These additional questions were to explore the extent to which and how political awareness and engagement, citizenship norms and policy preferences shift or develop with the experience of being pregnant and giving birth. The MAMMI study team plan to share an anonymised dataset from consenting women with the PregDem team.
Your data and your rights
We will only share information collected from paper surveys in an electronic format, with the MHS research group in Australia and the PregDem research group in Sweden, None of the researchers accessing this information will know who you are.
Before sharing any data, we remove any information which could identify you.
As a research participant, you have the right to object to your data being shared for this research project, and you can request that your data is withdrawn, without providing a reason. Please contact (Deirdre Daly) at firstname.lastname@example.org
Please note that it will not be possible to withdraw your data if the research is about to be published, as this would affect the results, and all research is in the public interest. (Article 6,1 e and 9, 2, J of the General Data Protection Regulation (GDPR.)
For MAMMI study participants who are interested in learning more about anonymised data sharing between MAMMI and the MHS team in Australia or the PregDem research team in Sweden, this information is provided in our Participant Information Leaflets. If you have any questions, you can also contact us by emailing email@example.com