You are here Trinity Health Kidney Centre > Our Research

RITA-Ireland Vasculitis RIV Registry and Biobank

The RKD registry and Biobank was established in 2012 and aims to address an unmet need in the study of rare kidney disease in Ireland: facilitation of clinical studies when sporadic cases are scattered throughout many hospitals in Ireland. Existing centre-based research facilities serve this need poorly; networked collaboration across all the CRFs in the country is required as even large academic hospitals may only encounter a handful of cases. The majority of recruits have the rare disease ANCA vasculitis (with linking of the Irish registry database with the pan-UK UKIVAS initiative).

We welcome expressions of interest from potential collaborators, please email us at rkdbiobank@tcd.ie.

• Downloads for potential collaborators

Number of recruits to RKD Biobank since inception; many have multiple longitudinal samples at different stages of the disease

 

Biological samples (serum, proteomic grade plasma, urine, leucocytes, RNA and DNA) are processed and stored centrally in the Trinity Translational Medicine Institute in temperature monitored freezers, with archiving managed using industry standard Freezerworks software. All aliquots are bar coded and mapped to the freezer location. Linked clinical data are recorded by local clinician and research nurse on a web-accessed database on the REDCap platform developed and managed by Trinity Research IT. Every aliquot has a clearly documented provenance.

The facility is managed by Dr Alan Kennedy. For further information, or to inquire about potential projects or collaborations, please contact; rkdbiobank@tcd.ie or +353 1 896 4810

Postal Address

Rare Kidney Disease Registry and Biobank,
Trinity Health Kidney Centre, 
Office 2.13 / Lab 1.06, 
Trinity Translational Medicine Institute, 
St James’ Hospital,
Dublin 8, 
D08 W9RT, 
Ireland.