AVERT Project Patient Engagement Report
March 2020
Patient Recruitment
Are there things in your environment that trigger a flare of vasculitis?
Number of patients recruited to date: 200
Of these, 54 are also members of the Rare Kidney Disease (RKD) Registry
Target = 250 RKD Patients
Locations Captured
Why is location important?
It allows us to link vasculitis flare events to the weather and pollution information from that time and place. This data is all anonymised and stored securely
RKD Patients Only
All Patients
Total number of locations captured this month: 105
Average number of locations captured per patient this month: 0.53
How many locations have you submitted this month?
Total number of locations captured this month: 20
Average number of locations captured per patient this month: 0.37
How many locations have you submitted this month?
EQ5D Scores
RKD Patients Only
All Patients
Total number of EQ5D surveys completed this month: 30
Average EQ5D score this month: 0.734
How have you been feeling?
Let us know by completing EQ5D
Total number of EQ5D surveys completed this month: 14
Average EQ5D score this month: 0.741
How have you been feeling?
Let us know by completing EQ5D
Step Count
RKD Patients Only
All Patients
Average step count per patient this month: 0
How active have you been during March?
Average step count per patient this month: 0
How active have you been during March?
Questions?
Contact the Study Coordinator on: 085-150-7587 or email: rkdnurse@tcd.ie
