AVERT Project Patient Engagement Report August 2020
Patient Recruitment
Are there things in your environment that trigger a flare of vasculitis?
Number of patients recruited to date: 223
Of these, 119 are also members of the Rare Kidney Disease (RKD) Registry
Target = 250 RKD Patients
Total number of patients recruited month: 5
Of the above number, 5 are in the RKD Registry
Locations Captured
Why is location important?
It allows us to link vasculitis flare events to the weather and pollution information from that time and place. This data is all anonymised and stored securely
RKD Patients Only
All Patients
Total number of locations captured this month: 266
Average number of locations captured per patient this month: 1.19
How many locations have you submitted this month?
Total number of locations captured this month: 224
Average number of locations captured per patient this month: 1.88
How many locations have you submitted this month?
EQ5D Scores
RKD Patients Only
All Patients
Total number of EQ5D surveys completed this month: 164
Average EQ5D score this month: 0.746
How have you been feeling?
Let us know by completing EQ5D
Total number of EQ5D surveys completed this month: 150
Average EQ5D score this month: 0.754
How have you been feeling?
Let us know by completing EQ5D
Questions?
Contact the Study Coordinator on: 085-150-7587 or email: rkdnurse@tcd.ie
