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Dr. Miriam Galvin
Associate Professor, Clinical Medicine

Publications and Further Research Outputs

Peer-Reviewed Publications

Kennedy, Polly and Conroy, à ilís and Heverin, Mark and Leroi, Iracema and Beelen, Anita and van den Berg, Leonard and Hardiman, Orla and Galvin, Miriam, Burden and benefit-A mixed methods study of informal Amyotrophic Lateral Sclerosis caregivers in Ireland and the Netherlands, International journal of geriatric psychiatry, 37, (5), 2022 Journal Article, 2022 DOI

Polly Kennedy & Éilís Conroy, Mark Heverin, Iracema Leroi, Anita Beelen, Leonard van den Berg, Orla Hardiman & Miriam Galvin, 'It refocuses the mind on the important things in life' - An exploration of burden and self-described positive experiences of informal ALS caregivers in Ireland and the Netherlands, ALS SYMPOSIUM, Virtual, 2021, 2021 Poster, 2021

Miriam Galvin , Eilis Conroy, Polly Kennedy, Mark Heverin, Iracema Leroi and Orla Hardiman, Caregiving in ALS: burden and benefit - a mixed methods study , AAIC 2021 Alzheimer's Association International Conference Satellite Symposium, Virtual, 2021, 2021 Oral Presentation, 2021

Galvin, M. and Heverin, M., IMPACT ALS Europe- A European Survey of People living with ALS, ALS SYMPOSIUM, Virtual, 2021, 2021 Oral Presentation, 2021

Association for Computing Machinery(ed.), Development of an explainable clinical decision support system for the prediction of patient quality of life in amyotrophic lateral sclerosis, Virtual, 2021, 2021, 594-602 p Proceedings of a Conference, 2021

Deirdre Murray, Miriam Galvin, Mark Heverin, Polly Kennedy, Colm Peelo, Olivia Grogan, Sinead Maguire, Liam Knox, Esther Hobson, Roisin Duffy, Christopher McDermott and Orla Hardiman, Adoption and Implementation of the Telemedicine in MND (TiM) System in the Irish MND Service , ENCALS 2021 , Virtual, 2021, 2021 Poster, 2021

Tobin K, Maguire S, Corr B, Normand C, Hardiman O, Galvin M., Discrete choice experiment for eliciting preference for health services for patients with ALS and their informal caregivers, BMC Health Services Research, 2021 Mar 9;21(1):213, 2021, p213- Journal Article, 2021

É Conroy & P Kennedy, M Heverin, I Leroi, E Mayberry, A Beelen, T Stavroulakis, L.H. van den Berg , C. J McDermott, O Hardiman and M Galvin, 'Seeing my wife gradually deteriorate and knowing where it is going makes me sad' - A multi-centre, exploratory study of burden and difficulties of informal ALS caregivers, ALS SYMPOSIUM, Virtual, 2021, 2021 Poster, 2021

Antoniadi A.M., Galvin M., Heverin M., Hardiman O., Mooney C., Prediction of caregiver quality of life in amyotrophic lateral sclerosis using explainable machine learning, Scientific Reports, 11, (1), 2021 Journal Article, 2021 DOI

Conroy E., Kennedy P., Heverin M., Leroi I., Mayberry E., Beelen A., Stavroulakis T., van den Berg L.H., McDermott C.J., Hardiman O., Galvin M., Informal caregivers in amyotrophic lateral sclerosis: A multi"centre, exploratory study of burden and difficulties, Brain Sciences, 11, (8), 2021 Journal Article, 2021 DOI

Roe L. and Galvin M., Providing inclusive, person-centred care for LGBT+ older adults: A discussion on health and social care design and delivery, Journal of Nursing Management, 29, (1), 2021, p104 - 108 Journal Article, 2021 DOI

Kennedy, P. Galvin, M. Heverin, M. Murray, M. & Hardiman, O, The complexity of planning care at a multidisciplinary motor neurone disease (MND) clinic, ALS SYMPOSIUM, Virtual, 2021, 2021 Poster, 2021

Antoniadi, Anna Markella, Galvin, Miriam, Heverin, Mark, Hardiman, Orla, Mooney, Catherine, Prediction of quality of life in people with ALS, ACM SIGAPP Applied Computing Review, 21, (2), 2021, p5-17 Journal Article, 2021 DOI

Chen, Yaohua Sophie and Beber, Bárbara Costa and Higgins, Dawn and Galvin, Miriam and Ilinca, Stefania and Lawlor, Brian and Leon, Tomas and Leroi, Iracema and McGlinchey, Eimear and Rogan, Carol and Saha, Sanjib and Tjin, Anna and O'Sullivan, Roger and CLIC†Caregivers Study Group, COVID†19†related loneliness and social isolation in caregivers of people with brain health challenges: The CLIC†Caregiver Global Survey, Alzheimer's & dementia : the journal of the Alzheimer's Association, 17, (Suppl 7), 2021 Journal Article, 2021

Carney, Síle; Wheeler, Carolin; Pinto-Grau, Marta; Costello, Emmet; Hammond, Michaela; Heverin, Mark; Burke, Tom; Galvin, Miriam; Hardiman, Orla & Pender, Niall, Longitudinal Analysis of Psychological Distress in Motor Neuron Disease Caregivers, Psychological Society of Ireland (PSI) 50th anniversary annual conference, Virtual, 2020, 2020 Poster, 2020

Peelo, Colm ; Murray, Deirdre; Meldrum, Dara; Galvin, Miriam; Hobson, Esther; McDermott, Christopher & Hardiman, Orla, Bringing Telehealth in Motor Neuron Disease to Ireland , Psychological Society of Ireland (PSI) 50th anniversary annual conference, Virtual, 2020, 2020 Poster, 2020

Galvin, M., Gavin, T., Mays, I. et al., Individual quality of life in spousal ALS patient-caregiver dyads. , Health Qual Life Outcomes, 2020 Journal Article, 2020

Anna Antoniadi, Miriam Galvin, Mark Heverin, Orla Hardiman, and Catherine Mooney, Using Patient Information for the Prediction of Caregiver Burden in Amyotrophic Lateral Sclerosis. , 11th ACM International Conference on Bioinformatics, Computational Biology and Health Informatics , USA, edited by Association for Computing Machinery , 2020, pp1 Poster, 2020

Wheeler, Caroline; O'Dea, Ailín; Carney, Síle; Burke, Tom; Wilson O'Raghallaigh, Jennifer; Maguire, Sinead; Galvin, Miriam; Heverin, Mark; Hardiman, Orla & Pender, Niall, Preliminary Qualitative Analysis of Focus Group Interviews Accessing Amyotrophic Lateral Sclerosis Caregivers' Experiences of Group Based Interventions, Psychological Society of Ireland (PSI) 50th anniversary annual conference, Virtual, 2020, 2020 Poster, 2020

Anna Antoniadi, Miriam Galvin, Mark Heverin, Orla Hardiman, and Catherine Mooney. , Identifying Features That Are Predictive of Quality of Life in People With Amyotrophic Lateral Sclerosis. , IEEE ICHI International Conference on Healthcare Informatics, 2020 Poster, 2020

Brizzi, K.T. and Bridges, J.F.P. and Yersak, J. and Balas, C. and Thakur, N. and Galvin, M. and Hardiman, O. and Heatwole, C. and Ravits, J. and Simmons, Z. and Bruijn, L. and Chan, J. and Bedlack, R. and Berry, J.D., Understanding the needs of people with ALS: a national survey of patients and caregivers, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 2020 Journal Article, 2020

Experience Of Amyotrophic Lateral Sclerosis In Ireland In Public Policy in, editor(s)Oliver and Blank , Public Policy in ALS/MND Care - an International Perspective , 2020, [Hardiman, O, Lefter S, Galvin M, ] Book Chapter, 2020

Anna Markella Antoniadi, Miriam Galvin, Mark Heverin, Orla Hardiman, Catherine Mooney, Prediction of caregiver burden in amyotrophic lateral sclerosis: a machine learning approach using random forests applied to a cohort study, BMJ Open, 10, (2), 2020, pe033109 Journal Article, 2020

Miriam Galvin & Gerry McNamara, Face-to-Face Interviews With Vulnerable Respondents: Informal Caregivers of Patients With Progressive Neurodegeneration, SAGE Research Methods Cases: Medicine and Health, 2020 Journal Article, 2020

Lorna Roe and Miriam Galvin and Laura Booi and Lenisa Brandao and Jorge Leon Salas and Eimear McGlinchey and Dana Walrath, To live and age as who we really are: Perspectives from older LGBT+ people in Ireland, HRB Open Research, 2020 Journal Article, 2020 DOI

Addressing the context: Issues in cross-national comparative research in cross national comparative research in, Doing Educational research: Overcoming Challenges in Practice, Sage, 2019, [Altrichter H, Galvin M, McNamara G & O'Hara J] Book Chapter, 2019

Thurn, T. and Borasio, G.D. and Chi{\`o, Physicians? attitudes toward end-of-life decisions in amyotrophic lateral sclerosis, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 20, (1-2), 2019, p74-81 Journal Article, 2019

Tom Burke, Sinead Maguire, Miriam Galvin, Mark Heverin, Orla Hardiman, Niall Pender, When the shared journey ends: the enduring impact of ALS on bereaved caregivers, 30th International Symposium on ALS/MND, Australia, 2019 Poster, 2019

Galvin M, Deconstructing Burden: Informal Caregivers in Neurodegeneration , Sonas Dementia Conference Croke , 2019 Oral Presentation, 2019

Galvin M, Individual Quality of Life among spousal ALS patient-caregiver dyads, International ALS Symposium, , 2019, 2019 Oral Presentation, 2019

Burke, T., Wilson-O'Raghallaigh J, Maguire S., Galvin , M., Heverin, M., Hardiman, O., Pender, Niall , Group Interventions for Amyotrophic Lateral Sclerosis Caregivers in Ireland: a randomised controlled trial protocol, BMJ Open, (September), 2019 Journal Article, 2019 DOI

Orla Hardiman(ed.), International Symposium ALS/FTD, Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, Australia, 2019, 40-41 p Proceedings of a Conference, 2019

Impey, Sinead; Berry, Damon; Furtado, Selma; Galvin, Miriam; Grogan, Loretto; Orla Hardiman, Orla; Hederman, Lucy; Heverin, Mark; Wade, Vincent; Stephens, Gaye;, Capturing 'The Everything': a novel approach to domain investigation in a rare disease setting, HISI 2019 - 24th HISI Annual Conference & Scientific Symposium Health Informatics Society of Ireland, 26 November 2019, 2019 Conference Paper, 2019

Burke, T., Hardiman, O., Pinto-Grau, M, Longergan, K., Heverin, M., Tobin, K., Staines, A. Galvin, M., and Pender, N, , Longitudinal Predictors of Caregiver Burden in Amyotrophic Lateral Sclerosis: A population-based cohort of patient-caregiver dyads., Journal of Neurology , 2018 Journal Article, 2018

M Galvin, O Hardiman, A Laverdiere , B Charpentier, J Petrillo, K Bowyer Lucie Bruijn, C McDermott , ALS European Survey: People living with ALS and their caregivers' input into drug development in Europe , ENCALS, Oxford, 2018 Poster, 2018

The Impact of Cognitive and Behavioural Change on Quality of Life of Caregivers and Patients with ALS and Other Neurological Conditions in, editor(s)Pagnini F and Simmons Z , Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being, , Oxford University Press, 2018, [Burke, T., Galvin, M., Maguire, S., Pender, N., & Hardiman, O] Book Chapter, 2018

Miriam Galvin,Sile Carney, Bernie Corr, Iain Mays, Niall Pender, Orla Hardiman, Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis, · BMJ Open , 8, (1), 2018, pe018721- Journal Article, 2018 TARA - Full Text DOI

Miriam Galvin, Bernie Corr, Sile Carney, Niall Pender, Orla Hardiman, Informal ALS caregivers -expressing their needs within a health care setting: a qualitative analysis, ENCALS, Oxford, 2018 Poster, 2018

Miriam Galvin, Bernie Corr, Sile Carney, Niall Pender, Orla Hardiman, Informal ALS caregivers -expressing their needs within a health care setting: a qualitative analysis, 29th ALS International Symposium , Glasgow, 2018 Poster, 2018

Galvin M, Gaffney R, Corr B, Mays I, Hardiman O, Pre-diagnosis journey - perspectives of informal ALS caregivers: a thematic analysis, American Academy of Neurology Conference, USA, 2017 Poster, 2017

Galvin M, Ryan P, Maguire S , Heverin M, Madden C, Vajda A, Normand C, Hardiman O., The Patient Journey to a National ALS Clinic: Delayed Diagnosis and Economic Cost: The path to specialist multidisciplinary care: A population based study of consultations, interventions and costs, American Academy of Neurology Conference, USA, 2017 Poster, 2017

Galvin M, Ryan P, Maguire S, Heverin M, Madden C, Vajda A, Normand C, Hardiman O, The path to specialist multidisciplinary care in amyotrophic lateral sclerosis: A population- based study of consultations, interventions and costs. , PLoS One, 12, (6), 2017 Journal Article, 2017 TARA - Full Text

Galvin, M. Gaffney, R. and Corr, B. and Mays, I. and Hardiman, O., From first symptoms to diagnosis of amyotrophic lateral sclerosis: Perspectives of an Irish informal caregiver cohort - A thematic analysis, BMJ Open, 7, (3), 2017, pe014985- Journal Article, 2017 TARA - Full Text DOI

Burke, T Galvin, M. and Pinto-Grau, M. and Lonergan, K. and Madden, C. and Mays, I. and Carney, S. and Hardiman, O. and Pender, N., Caregivers of patients with amyotrophic lateral sclerosis: investigating quality of life, caregiver burden, service engagement, and patient survival, Journal of Neurology, 264, (5), 2017, p898-904 Journal Article, 2017 DOI

Galvin M, Exploring the complex needs of ALS caregivers - from first symptoms across the caregiving course, , Institute for Biomedical Ethics, 2017 Invited Talk, 2017

Galvin M, Ryan P, Maguire S, Heverin M, Madden C, Vajda A, Normand C, Hardiman O, The Patient Journey to a National ALS Clinic: Delayed Diagnosis and Economic Cost, European Academy of Neurology, Copenhagen, 2016 Poster, 2016

Galvin, M. , Deconstructing Caregiver Burden in Amyotrophic Lateral Sclerosis - adding a qualitative perspective, 17th Healthcare Interdisciplinary Research Conference, Dublin, 2016 Oral Presentation, 2016

Galvin M, Deconstructing Caregiver Burden in Amyotrophic Lateral Sclerosis - adding a qualitative perspective, European Academy of Neurology, Denmark, 2016 Oral Presentation, 2016

Galvin M, Ryan P, Maguire S , Heverin M, Madden C, Vajda A, Normand C, Hardiman O, The Patient Journey to a National ALS Clinic: Delayed Diagnosis and Economic Cost: The path to specialist multidisciplinary care: A population based study of consultations, interventions and costs, ALS Symposium, Dublin, 2016 Poster, 2016

Rooney J, Heverin M, Vajda A, Burke T, Galvin M, Tobin K, Elamin M, Staines A, Hardiman O, Survival analysis of geospatial factors in the Irish ALS cohort., Amyotrophic lateral sclerosis & frontotemporal degeneration, 2016, p1-6 Journal Article, 2016 DOI

Galvin M, Tobin K, Mays I, Staines A, Hardiman O, Caregiver Burden in Amyotrophic Lateral Sclerosis (ALS): A Prospective Analysis, Irish Journal of Medical Science, 185, (Supplement 12), 2016 Journal Article, 2016 DOI

Galvin M, Corr B, Madden C, Mays I, McQuillan R, Timonen V, Staines A, Hardiman O, Caregiving in ALS - A mixed methods approach to the study of Burden, BMC Palliative Care, 15, (1), 2016, p81- Journal Article, 2016 URL TARA - Full Text DOI

Galvin, M. et al, Proceedings of the Winter Scientific Meeting of the Faculty of Public Health Medicine 2015, Irish Journal of Medical Science (1971 -), 185, (S12), 2016, p543-561 Journal Article, 2016 DOI

Galvin, M., Autonomy and Quality of Life: The Patient-Carer Dyad, ALS SYMPOSIUM, 2016 Oral Presentation, 2016

Maguire S, Penugonda M, Tobin K, Galvin M, Hardiman O, Palliative Care Outcomes in ALS, 27th International ALS Symposium, Dublin, 2016 Poster, 2016

Connolly S, and Galvin M, Hardiman O, End-of-life management in patients with amyotrophic lateral sclerosis, The Lancet Neurology, 14, (4), 2015, p435 - 442 Journal Article, 2015 DOI URL

Galvin M, Madden C, Maguire S, Heverin M, Vajda A, Staines A, Hardiman O, Patient journey to a specialist amyotrophic lateral sclerosis multidisciplinary clinic: an exploratory study., BMC health services research, 15, 2015, p571 Journal Article, 2015 DOI TARA - Full Text

Galvin M, Madden C, Mays I, Corr B, Staines A, Hardiman O , Caregiver Burden in ALS- Dimensions and Difficulties , 26th International ALS Symposium, USA, 2015 Poster, 2015

Galvin M, Tobin K, Mays I, Staines A, Hardiman O, Caregiver Burden in Amyotrophic Lateral Sclerosis (ALS): a Prospective Analysis , Winter Scientific Meeting, Royal College of Physicians in Ireland,, Dublin, 2015 Poster, 2015

Burke T, Elamin M, Galvin M, Gallagher L, Hardiman O, Pender N, Erratum: Caregiver burden in amyotrophic lateral sclerosis: a cross-sectional investigation of predictors. [J Neurol, (2015) 262, (1526-1532), DOI 10.1007/s00415-015-7746-z], 2015, - 2799 Miscellaneous, 2015 DOI URL

Burke T, Elamin M, Galvin M, Hardiman O, Pender N, Caregiver burden in amyotrophic lateral sclerosis: a cross-sectional investigation of predictors, Journal of Neurology, 262, (6), 2015, p1526 - 1532 Journal Article, 2015 DOI URL

Galvin M, and Connolly S, Mays I, Hardiman O, End of Life in Patients with Amyotrophic Lateral Sclerosis (ALS): A Review , 25th International ALS Symposium, , Brussels, 2014 Poster, 2014

Galvin M, Mays I, Corr B, Staines A, Hardiman O , Exploration of Caregiving Experiences in Amyotrophic Lateral Sclerosis: a preliminary analysis, 25th International ALS Symposium, , Brussels, 2014 Poster, 2014

Galvin, M. , Clergymen and Child Sexual Abuse: Media, Discourse and Masculinity, , Studies, 2011 Journal Article, 2011

Galvin M, Representations of Sexuality: Men who interact sexually with children, The Self, Selves and Sexualities International Conference, School of Nursing and SALIS, Dublin City University, 2010 Oral Presentation, 2010

Norman, J, Galvin, M, Mc Namara, G , Straight Talk: Researching Gay and Lesbian Issues in the School Curriculum , Centre for Educational Evaluation, School of Education Studies, Dublin City University , 2006 Book, 2006

Galvin, M., The Role of Teachers in Addressing Homophobic Bullying in Irish Second-Level Schools, 2005 Oral Presentation, 2005

Cleary, A, Corbett, M, Galvin, M, Wall, J , Young Men on the Margins , The Katherine Howard Foundation, 2004 Book, 2004

Norman, J, Galvin, M , A Survey of Teachers on Homophobic Bullying in Irish Second-Level Schools , 2004 Report, 2004

Galvin, M., Factors contributing to Workload and Pressure of Work in General Practice in Ireland: a National Survey, Association of University Departments of General Practice, Galway, 2001 Oral Presentation, 2001

Non-Peer-Reviewed Publications

Grycuk, Emilia; Almirall-Sanchez, Arianna; Kinchin, Irina; Galvin, Miriam; Dunne, Nikki; McGlinchey, Eimea; Lawlor, Brian; Chen, Yaohua; and Leroi, Iracema;, Care burden, loneliness, and social isolation in informal caregivers in Ireland: Before and during COVID-19, Family Carers Ireland, Virtual, 2021, 2021 Oral Presentation, 2021

Roe L & Galvin M, How health system design and delivery can fail to support the needs of LGBT+ older adults, Inclusion Health Seminar, 2020 Invited Talk, 2020

Galvin M, Informal caregiving and palliative care, Contemporary debates in bioethics, Switz, 2019 Invited Talk, 2019

Galvin M, Maguire S, Cawley E, Bernie Corr, Contextualising Cognitive & Behavioural Change, caregivers, families and health care professionals, Healthcare Professionals Study Day, Beaumont Hospital, 2016 Oral Presentation, 2016

Galvin, M, A Report on the Co. Wicklow Anti-Bullying Survey of Post-primary School Student, 2011 Report, 2011

Galvin, M, People's Assessment of Need Survey, Carnew, , Health Services Executive, 2008 Report, 2008

Galvin, M., CHOICE - Results from Staff Survey, North Western Health Board, Bundoran, Co. Donegal, 2004 Oral Presentation, 2004

Research Expertise

Projects

  • Title
    • PRECISION ALS
  • Summary
    • Academic-Industry collaboration Multimodal pan European data acquisition Patient data framework and platform for clincial research
  • Funding Agency
    • Science Foundation Ireland and Industry
  • Date From
    • December 2021
  • Title
    • MIRANDA Multidisciplinary Innovation and Research Advancing Neurological care in a Digital Age,
  • Summary
    • The MIRANDA consortium of experts in research and practice has designed a comprehensive training programme for healthcare professionals which includes: 1. Creation of an evidence-based eHealth solution for delivery of neuro-rehabilitation 2. Development of a knowledge bank representing multidisciplinary knowledge and decision-making processes 3. Evaluation of professional burden in healthcare professionals and development of guidelines for management 5. Design and clinical integration of digital technology to facilitate communication and remote monitoring of disease progression 6. Implementation of innovative, user-friendly solutions for care.
  • Funding Agency
    • HRB
  • Date From
    • March 2022
  • Title
    • IMPACT
  • Summary
    • European Study of ALS in Europe - Patient input to drug development
  • Funding Agency
    • Industry collaboration
  • Title
    • Towards Self Care in Headache
  • Summary
    • An innovative community-based model that promotes high quality at low complexity.
  • Funding Agency
    • Slaintecare Integration Fund
  • Title
    • Developing a Patient and Public Involvement (PPI) training program for the Global Brain Health Institute
  • Summary
    • Development of training programme around PPI in brain health projects
  • Funding Agency
    • GBHI, Atlantic Institute
  • Date From
    • 2020
  • Title
    • Informal Caregivers: mixed methods approach to the study of burden experiences
  • Summary
    • Caregiver burden and experiences, 3 country study - Ireland, UK, Netherlands
  • Funding Agency
    • ALZ UK/GBHI
  • Title
    • ALSCarE
  • Summary
    • Evaluation of the Patient and Caregiver Journey in ALS: A cross European study of 500 patient/caregiver dyads
  • Funding Agency
    • HRB/ JPND
  • Title
    • Telehealth in MND in Ireland
  • Summary
    • The use of telemedicine in enhancing clinical care for those with ALS
  • Funding Agency
    • HRB
  • Title
    • Exploring loneliness, social isolation and care burden in care partners and families of people with dementia:
  • Summary
    • A COVID-19 response. C
  • Funding Agency
    • COVID-19 Rapid Response Fund. Trinity College Dublin.

Keywords

Demography; Healthcare Ethics; human geography; intersectional research; Medical Ethics; Philosophy and Epistemology; philosophy of social sciences; research methodology; Social Sciences--Humanistic Emphasis

Recognition

Representations

Journal Reviewer: BMJ supportive and palliative care

Journal Reviewer: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Journal Reviewer: International Journal of Geriatric Psychiatry

Journal Reviewer: BMC Palliative Care

Journal Reviewer: BMJ Open

Conference organisation and Chair European Network to Cure ALS (ENCALS) Dublin . Co-organizer 2015

Conference Organisation Community Activation, Alzheimers Association International Conference, Sao Paulo, Brazil GBHI Fellows 2019

Diversity and Brain Health: Perspectives from the LGBT+ Community in Ireland, GBHI & School of Law TCD June 2019

Conference Chair 30th International Symposium on ALS/MND Perth, Australia Chair, Health Services and Caregiver Burden Session 2019

External Examiner Professional Doctorate in Education Institute of Education, Dublin City University 2021

Research Consultant in evaluation for Atlantic Institute, Oxford University 2019

Contemporary debates in bioethics: Informal caregiving and palliative care Institute for Biomedical Ethics, Basel Switzerland, 2019

Memberships

International Health Humanities Network 2018 – present

International Society for Quality of Life Research 2019 – present

European Care Pathways Association 2013 – 2015

Neuropsychoanalysis (NPSA) Ireland Study Group 2016 – 2018

American Academy of Neurology 2017 – 2018

LATAM: Latin American Consortium - multicentre translational initiative to study neurodegenerative conditions 2019 – present