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Professor Mary Mc Carron
Professor of Ageing & Intellectual Disab, School of Nursing & Midwifery

Biography

Professor Mary McCarron, PhD RNID RGN BNS FTCD is Professor of Ageing and Intellectual Disability, Director of the Trinity Centre for Ageing and Intellectual Disability (TCAID) and Executive Director of the National Intellectual Disability Memory Service. She has held many senior leadership roles in Trinity College including Dean of the Faculty of Health Sciences and Head of the School of Nursing and Midwifery.

Professor McCarron is the founder and Principal Investigator for IDS-TILDA, the longitudinal comparative study on ageing in persons with intellectual disability including persons with Down syndrome, a global first. IDS-TILDA increases understanding about how lives and chronic conditions change over time for this population, drives changes on healthcare practice and national health policy. Professor McCarron has also led a longitudinal cohort study of dementia in people with Down syndrome spanning over 25 years, which has led to the development of Ireland's first dedicated National Memory Service for people with an intellectual disability, where she serves as Executive Director.

A champion of patient and public involvement in research (PPI) McCarron is Principal Investigator of PPI Ignite Programme at Trinity College Dublin, part of the national network among universities in Ireland funded by the HRB. She received the inaugural HRB Impact Award. She is co-applicant on the HRB's Clinical Research Network Awards for Dementia Trials Ireland (DTI), a world-class clinical trials' infrastructure to support and grow dementia intervention studies. In addition, she is the Irish Lead on the H21 Consortium working on Clinical and trial outcome measures for dementia in individuals with Down Syndrome,

Professor McCarron has been a key advisor on ageing and policy issues to various governmental and other groups at a national and international level and an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD).

Publications and Further Research Outputs

Peer-Reviewed Publications

Kibsgaard Larsen, F., Asaad Baksh, R.,McGlinchey, E., Melbye Langballe, E., Benejam, B., Beresford-Webb, J., McCarron, M., Coppus, A., Falquero, S., Fortea, J., Levin, J., V.Loosli, V., Mark, R., Rebillat, A-S., Zaman, S. & Strydom, A., Age of Alzheimer's disease diagnosis in people with Down syndrome and associated factors: Results from the Horizon 21 European Down syndrome consortium, The Journal of the Alzheimer's Association, 2024 Journal Article, 2024 TARA - Full Text DOI

Lynch, L., McCarron, M., McCallion, P. and Burke, E. A., A longitudinal exploration of self-reported TV behaviours as a surrogate for sedentary behaviour in older adults with an intellectual disability from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA) study, Journal of Intellectual Disabilities, 2024 Journal Article, 2024 URL TARA - Full Text

McMahon M, Wormald A, Eustace-Cook J, McCarron M, McCallion P and Smith V, Prevalence and incidence of cancer amongst adults with intellectual disability " a systematic review and meta-analysis protocol, HRB Open, 2024 Journal Article, 2024 DOI TARA - Full Text DOI

Odalovic, M., Gorman, A., Paul, A., McCallion, P., Burke, E.A., MacLachlan, M., McCarron, M., Henman C, M., Moran, M., O"Connell, J., Walsh, M., Shankar, R., Ryan, C. & O"Dwyer, M., Psychotropic medicines' prevalence, patterns and effects on cognitive and physical function in older adults with intellectual disability in Ireland: longitudinal cohort study, 2009-2020, BJPsych Open, 10, (2), 2024 Journal Article, 2024 TARA - Full Text DOI URL

McCausland, D.,Haigh, M., McCallion, P. & McCarron, M., IRB challenges in multisite studies: A case report and commentary from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA)., HRB Open Research., 7, (3), 2024 Journal Article, 2024 DOI

Fallon, M.,McCallion, P., McCarron, M. & McGlinchey, E., An Exploration of Biopsychosocial Risk Factors for People Ageing with Down syndrome in Ireland, 5th International Conference of the Trisomy 21 Research Society, Rome, 5th - 8th June, 2024 Oral Presentation, 2024

Sheerin, F., Fleming, S., May, P., McCallion, P., McCarron, M., Naseer, A., Lalor, G. & D'Eath, M., Challenges in Care and Service Provision for Older Adults with Intellectual Disabilities and Complex Age-Related Conditions in Ireland, British Journal of Learning Disabilities, 2024 Journal Article, 2024 URL TARA - Full Text

From Adulthood to Older Age - Ageing and Intellectual Disability. in, editor(s)Sheerin, F. & Doyle, C. , Intellectual Disabilities: Health and Social Care Across the Lifespan., Switzerland., Springer Cham., 2023, pp147 - 158, [McCallion, P. & McCarron, M.] Book Chapter, 2023 DOI

McDermott, S., McCarron, M., Burke, EA., McCallion, P. and O'Donovan, MA., Enabling older adults with intellectual disability to become physical activity leaders in their community: Pilot study, Journal of Intellectual Disability Research, 2023 Journal Article, 2023 DOI

Odalovic, M., Gorman, A., McCallion, P., Burke, E., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M., Prevalence and pattern of psychotropic use among older adults with intellectual disabilities in Ireland: What"s changed between two time points, 2010 and 2020?., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023 Oral Presentation, 2023 URL

Abdullah, Z., Paul, P., Pavithra, P., McCallion, P., McCarron, M. & Burke, E., The prevalence of epilepsy and osteoporosis in those with intellectual disability., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023 Oral Presentation, 2023 URL

Allen, A-P., McGlinchey, E., Fallon, M., McCallion, P. & McCarron, M., Cognitive reserve and dementia risk management in people with an intellectual disability., International Journal of Geriatric Psychiatry, 2023 Journal Article, 2023 DOI TARA - Full Text

Wormald A, McGlinchey E, D'Eath M, Leroi I, Lawlor B, McCallion P, McCarron M, O'Sullivan R. & Chen Y., Impact of COVID-19 Pandemic on Caregivers of People with an Intellectual Disability, in Comparison to Carers of Those with Other Disabilities and with Mental Health Issues: A Multicountry Study., International Journal of Environmental Research and Public Health. , 20, (4), 2023 Journal Article, 2023 DOI TARA - Full Text

Brennan, D., D'eath, M., McCallion, P. & McCarron, M., Health and well-being of sibling carers of adults with an intellectual disability in Ireland: Four waves of data., British Journal of Learning Disabilities., 2023 Journal Article, 2023 DOI TARA - Full Text

McCausland, D., McCallion, P., Carroll, R. & McCarron, M., Barriers to Community Participation for Adults Aging With an Intellectual Disability in Ireland: A Longitudinal Study, Inclusion, 11, (3), 2023, 204, p217 Journal Article, 2023 TARA - Full Text DOI

Al Shuhaimi, L., O'Dwyer, M., Henman, M., McCarron, M. & McCallion, P., Long-term exposure to anticholinergics among people with intellectual disabilities: a longitudinal cohort study., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023 Oral Presentation, 2023 URL

Odalovic, M., Gorman, A., McCallion, P., Burke, E., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M., Psychotropic drug use among adults with intellectual disabilities in Ireland: trend analysis for 10-year period., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023 Poster, 2023 URL

Timmins, F., McCausland, D., Brennan, D., Sheerin, F., Luus, R., McCallion, P., & McCarron, M. , A national cohort study of spiritual and religious practices of older people with intellectual disability, A national cohort study of spiritual and religious practices of older people with intellectual disability, 0, 2023, phttps://doi.org/10.1177/174462 Journal Article, 2023 URL

O'Brien, F., McCallion, P., Ryan, C., Paul, A., Burke, É., Echiverri, S., & McCarron, M., Does Arterial Stiffness Predict Cardiovascular Disease in Older Adults With an Intellectual Disability?., Journal of Cardiovascular Nursing, 2023 Journal Article, 2023 TARA - Full Text DOI

McMahon, M., Wormald, A., McCallion, P. & McCarron, M., Cancer deaths in older adults with intellectual disability in Ireland, Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023 Oral Presentation, 2023 URL

McGlinchey, E., Daly, L., Allen, A., Dennehy, H., Buttery, N., Corr, C., McCallion, P., Kennelly, S., Dunne, P., McCarron, M., Developing Best Practice Guidelines for Post-Diagnostic Dementia Support for People with an Intellectual Disability, 33rd Alzheimer Europe Conference, Helsinki, 16-18 October 2023, 2023 Oral Presentation, 2023

Wormald, A.D, McCarron, M. & McCallion, P., Loneliness, isolation and social asymmetry in older people with an intellectual disability., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March., 2023 Oral Presentation, 2023 URL

McCarron, M., PPI and Intellectual Disability. A Case Study from the IDS-TILDA Study, R2D2-MH, the Horizon Europe: Public and Patient Involvement: What it is and how to do it, Online, 7th February, 2023, R2D2-MH Invited Talk, 2023

Gnann, U., Ryan, C., Paul, A., McCarron, M., McCallion, P.. & Burke, E., A cross-sectional exploration of the prevalence and impact of urinary incontinence among ageing adults with intellectual disability in Ireland., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 2023 Oral Presentation, 2023 URL

Fitzpatrick, D., McCallion, P., McCarron, M., and Burke, EA., Epidemiology of constipation and its associated factors in an ageing population of people with an intellectual disability in Ireland: A cross-sectional study., Journal of Intellectual & Developmental Disability, 2023 Journal Article, 2023 DOI TARA - Full Text

Kelly, K., Haigh, M., McCarron, M., McCallion, P., Burke, E-A. & Wormald, A-D., Moral distress in carers for people with an intellectual disabilitywho died during the COVID-19 pandemic, a template analysisextending the Barlem and Ramos model of moral distress., Journal of Applied Research in Intellectual Disabilities, 2023, p1 - 9 Journal Article, 2023 TARA - Full Text DOI

Fitzpatrick, D., McCallion, P., McCarron, M. & Burke, E., Epidemiology of constipation and its associated risk factors in an ageing population of people with intellectual disability in Ireland: A cross-sectional study., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March., 2023 Oral Presentation, 2023 URL

McCausland, D., McCallion, P. & McCarron, M., Use of technology by older adults with an intellectual disability in Ireland to support health, well-being and social inclusion during the COVID-19 pandemic., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023 Oral Presentation, 2023 URL

Lynch, L., McCarron, P., McCallion, P. & Burke, E., A longitudinal exploration of self-reported TV behaviours as a surrogate for sedentary behaviour in older adults with an intellectual disability., Trinity Health and Education International Research Conference 2023 (THEconf2023): "Back to normal or forward to better? New horizons in healthcare"., School of Nursing and Midwifery, Trinity College Dublin., 8th - 9th March, 2023 Oral Presentation, 2023

Living and Dying Well with Dementia in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp179 - 209, [McCarron, M., Allen, A.P., Mulryan, N., Leigh, M., O'Reilly, L., McCarthy, C., Dunne, P., Reilly, E. & McCallion, P.] Book Chapter, 2022 DOI URL

Dennehy H., Allen A.P., McGlinchey E., Buttery N., Garcia-Dominguez L., Chansler R., Corr C., Dunne P., Kennelly S., Daly L. McCallion P. and McCarron M., A scoping review of post-diagnostic dementia supports for people with intellectual disability, Aging and Mental Health, 2022 Journal Article, 2022 URL

O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E-A. & McCarron, M., Hypertension in Older Adults. The prevalence, awareness, treatment and control of hypertension in older adults with an Intellectual Disability: a cross sectional study., JBI Evidence Synthesis , 20, (7), 2022 Journal Article, 2022 DOI URL

Chen Y, Allen A P, Fallon M, Mulryan N, McCallion P, McCarron M and Sheerin F, The challenges of mental health of staff working with people with intellectual disabilities during COVID-19 - A systematic review, Journal of Intellectual Disabilities, 2022 Journal Article, 2022

Use of Do-Not-Resuscitate Orders in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp407 - 434, [McCallion, P., Ferretti, L.A. & McCarron, M.] Book Chapter, 2022 URL DOI

Sheerin, F., Allen, A.P., Fallon, M., McCallion, P., McCarron, M., Mulryan, N., Chen, Y., Staff Mental Health while Providing Care to People with Intellectual Disability during the Covid-19 Pandemic, British Journal of Learning Disabilities, 2022 Journal Article, 2022 URL

Burke, E., McCallion, P., McCarron, M. and Foran, S., Falls and fear of falls among older adults with intellectual disability, Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin, 8-10 March 2022, 2022 Oral Presentation, 2022 URL URL

Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19 in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of life and people with intellectual and developmental disability: Contemporary issues, challenges, experiences and practice, Switzerland, Palgrave Macmillan Cham, 2022, pp235 - 264, [McCarron, M., Kelly, K., McCallion, P., Burke, E., Haigh, M. and Wormald A.] Book Chapter, 2022 DOI

McCausland, D., McCarron, M. & McCallion, P., Use of technology by older adults with an intellectual disability in Ireland to support health, well-being and social inclusion during the COVID-19 pandemic, British Journal of Learning Disabilities., 2022, p1 - 16 Journal Article, 2022 DOI

Accessible Funerals and People with Intellectual Disability in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp265 - 296, [Forrester-Jones, R., McCallion, P., McCarron, M., Stancliffe, R.J. & Wiese, M.Y.] Book Chapter, 2022 URL DOI

Gorman, A., Odalovi", M., McCallion, P., Burke, EA., MacLachlan, M., McCarron, M., Henman, M., Moran, M., O'Connell, J., Walsh, M., Shankar, R. & O'Dwyer, M, Examining Quality, Use and Impact of Psychotropic (Use) in older adults with intellectual disabilities: study protocol, HRB Open Research, 5, (71), 2022 Journal Article, 2022 DOI

Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice in, End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp435 - 463, [Wiese, M.Y., Stancliffe, R., McCallion, P. & McCarron M.] Book Chapter, 2022 DOI URL

Louise Lynch, Mary McCarron, Jessica Eustace-Cook, Philip McCallion, Eilish Burke, Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review, Journal of Intellectual Disabilities, 2022 Journal Article, 2022 URL TARA - Full Text

Wormald, A., McCallion, P., Lynch, L., Kelly, K. & McCarron, M., Quality care at end-of-life: comparing reported delivery to European consensus norms for palliative care of people with an intellectual disability., IASSIDD: Virtual 2022 International Conference Series, VIrtual, 6th November 2022, 2022 Oral Presentation, 2022 URL

Ganley, B., McCausland, D., McCallion, P, McCarron, M. and Burke, E., Choice and people with an intellectual disability as they age., Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin, 8-10 March 2022, 2022 Oral Presentation, 2022 URL URL

Experience of End-of-Life Issues by People with Intellectual Disability in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp29 - 57, [Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M.] Book Chapter, 2022 URL DOI

Lynch, L., McCarron, M., Eustace-Cook, J., McCallion, P. & Burke, E. , Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review, Journal of Intellectual Disabilities, 2022, p1 - 27 Journal Article, 2022 DOI URL

Brennan, D., D'eath, M., Dunne, N., O'Donovan, M-A., McCallion, P., & McCarron, M., ). Irish Social Policy to Family Carers of Adults with an Intellectual Disability: A critical analysis, Journal of Intellectual Disability, 2022 Journal Article, 2022 DOI

Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M., End of Life and People with Intellectual and Developmental Disability. Contemporary Issues, Challenges, Experiences and Practice., 1, Switzerland, Palgrave Macmillan Cham, 2022, XXXIV - 519pp Book, 2022 URL DOI

Chen, S., McCallion, P., McCarron, M. and Burke, E., A descriptive quantitative exploration of the factors associated with mobility limitations in adults with intellectual disability in Ireland, Resilience, rehabilitation and reablement, Trinity health and education international research conference, School of Nursing and Midwifery, Trinity College Dublin., 2022 Oral Presentation, 2022 URL URL

Building Shared End-of-Life Supports and Cross-Training for Hospice/Palliative and Intellectual Disability Services Providers in, editor(s)Stancliffe, R.J., Wiese, M.Y., McCallion, P. & McCarron, M. , End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice, Switzerland, Palgrave Macmillan Cham, 2022, pp211 - 233, [Ferretti, L.A., McCarron, M. & McCallion, P.] Book Chapter, 2022 DOI URL

McCarron, M., Wark, S. & Maes-Fenton, D., People with Intellectual disabilities aging successfully across the globe'., IASSIDD: Virtual 2022 International Conference Series, Virtual, Friday, 20th May, 2022 Oral Presentation, 2022 URL

Byrne, K., MacGiolla Phadraig, C., Daly, B., McCarron, M. & McCallion, P., The Oral Health Status of Older People with Intellectual Disabilities in Ireland. Initial Findings., International association of disability and oral health (IADH) , Paris, France, 24th - 26th August, 2022 Poster, 2022

McCarron, M., McCausland, D., McGlinchey, E., Bowman, S., Foley, M., Haigh, M., Burke, E. & McCallion, P., Recruitment and retention in longitudinal studies of people with intellectual disability: A case study of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Research in Developmental Disabilities, 124, 2022 Journal Article, 2022 DOI

Kirwan, R., Sheerin, F., McGlinchey, E., McCallion, P. & McCarron, M., Functional loss in older adults with intellectual disabilities and dementia, Learning Disability Practice, 2022 Journal Article, 2022 DOI

Reilly, E., Carroll, R., McCallion, P., McCarron, M., & Burke, E., The impact of ageing for people with down syndrome over the age of 40-years living in Ireland. A 10-year longitudinal follow-up, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

Fallon, M., McGlinchey, E., McCallion, P., & McCarron, M., Developing a biopsychosocial model of cognitive decline in people ageing with intellectual disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March , 2021 Oral Presentation, 2021 URL

Lynch L, McCarron M, McCallion P and Burke E., Sedentary behaviour levels in adults with an intellectual disability: a systematic review and meta-analysis, HRB Open Res, 4, (69), 2021 Journal Article, 2021 DOI URL

McCallion, P., Shi, J., Ferretti, L., & McCarron, M. , Utilizing the China Health and Retirement Longitudinal Study (CHARLS) to Understand the Aging of People Living in the Community with Intellectual and Developmental Disabilities, Health, 13, (1), 2021, p47 - 59 Journal Article, 2021 DOI

Al Shuhaimi L, Henman M, McCallion P, McCarron M, O'Dwyer M, The impact of long-term exposure to anticholinergics among people with intellectual disabilities: a scoping review protocol. , HRB Open Research, 4, (62), 2021 Journal Article, 2021 DOI

Chen, S., McCarron, M., McCallion, P. and Burke, E., The use of Timed up and Go: Identifying mobility issues amongadults with intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371 Oral Presentation, 2021 URL DOI

Donohoe, N., McCarron, M., McCallion, P. and Burke, E., A novel approach to engaging people with intellectual disability as contributors in research, IASSIDD 6th European Congress, Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 2021, IASSIDD Invited Talk, 2021 DOI URL

McCarron, M., McCausland, D., Luus, R., Allen, A., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of coronavirus disease 2019 (COVID-19) on older adults with an intellectual disability during the first wave of the pandemic in Ireland, HRB Open Research, 4, (93), 2021 Journal Article, 2021 DOI

Todd, S., Bernal, J., Worth, R., Shearn, J., Brearley, S., McCarron, M., & Hunt, K., Hidden lives and deaths: the last months of life of people with intellectual disabilities living in long-term, generic care settings in the UK, Journal of Applied Research in Intellectual Disabilities, 2021, p1 - 10 Journal Article, 2021 URL DOI

Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P and McCarron M., Factors associated with the progression of deficit accumulation frailty among adults with an intellectual disability: a systematic review revealing research gaps, HRB Open Research, 2021 Journal Article, 2021 DOI

McCausland, D., Luus, R., McCallion, P., Murphy, E., & McCarron, M., The impact of COVID-19 on the social inclusion of older adults with an intellectual disability during the first wave of the pandemic in Ireland, Journal of Intellectual Disability Research, 2021 Journal Article, 2021 DOI

Health and wellness among persons ageing with intellectual disability in, editor(s)M. Putnam, C. Bigby , Handbook on Aging with Disability, Routledge, 2021, [McCausland, D.; McCallion, P.; McCarron, M.] Book Chapter, 2021

Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., & McCarron, M., Exploring a Social Conceptualisation of Frailty among Older Adults with an Intellectual Disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

Wormald, A., McCallion, P., & McCarron, M., A life without loneliness: What results from the IDS-TILDA tell us is the best way to avoid loneliness in the lives of older people with an intellectual disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

Tuffrey-Wijne, I., Dhollander, N., Forrester-Jones, R., Westergård, B-E., Karbasi, C., Oliver, D., Abu-Saad Huijer, H., Uitdehaag, M., Echteld, M., Groot, M., McCarron, M., McCallion, P., Schäper, S., Todd, S., Wark, S., Roemer, A. & Previous, K., Palliative and End-of-life Care, People with IDD & Covid-19 (PEPIC-19): an international survey, Journal if Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress Value Diversity, Virtual, 6th July - 8th July, 34, (5), Blackwell Publishing LTD, 2021, pp1468 - 1371 Oral Presentation, 2021 URL DOI

Molloy, R., McCarron, M., McCallion, P. and Burke, E., A longitudinal exploration of the foot health status of older adults with intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371 Oral Presentation, 2021 URL DOI

Lynch, L., McCallion, P., McCarron, M. and Burke, E., Examining the sedentary behaviour levels among older adults withintellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371 Oral Presentation, 2021 URL DOI

Burke. E., Carroll, R., Ding, AW., Yaman, M., Walsh, JB., McCallion P and McCarron M., Men's Bones Matter Too, a Cross Sectional Study Examining Bone Health among Men with Intellectual Disability in Ireland., OBM Geriatrics , 5, (4), 2021 Journal Article, 2021 URL DOI TARA - Full Text

Molloy, R., Burke, E., McCallion, P., & McCarron, M., A descriptive quantitative exploration of the foot health status of older adults with intellectual disability in Ireland over 10 years., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

Monaghan R, O'Dwyer M, Luus R, Mulryan N, McCallion P, McCarron M, Henman MC, The relationship between antiepileptic drug load and challenging behaviors in older adults with intellectual disability and epilepsy, Epilepsy & Behavior, 122, 2021 Journal Article, 2021 TARA - Full Text DOI URL

Ryan, J., McCallion, P., McCarron, M., Luus, R., Burke, E.A., Overweight/obesity and chronic health conditions in older people with intellectual disability in Ireland, Journal of Intellectual Disability Research, 2021 Journal Article, 2021 URL DOI

Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Developing A Biopsychosocial Model of Cognitive Decline in People Ageing with Intellectual Disability, IASSIDD Virtual 2021, Amsterdam, the Netherlands, 6-8th July 2021, 2021 Conference Paper, 2021 URL

Bracken-Scally M. Keogh B., Daly l., Pittalis C., Kennelly B.,Hynes G., Gibb M., Cole N., McMahon G., Lawlor B., MCCarron M. & Brady AM, Assessing the Impact of Dementia Inclusive Environmental Adjustment in the Emergency Department, Dementia, 20, (1), 2021, p28 - 46 Journal Article, 2021 DOI

Maguire, E., Mulryan, N., Sheerin, F., McCallion, P. & McCarron, Autism Spectrum Disorder in Older Adults with Intellectual Disability - A Scoping Review, Irish Journal of Psychological Medicine , 2021, p1 - 14 Journal Article, 2021 URL DOI

Monaghan, R., O'Dwyer, M., Luus, R., Mulryan, N., McCallion, P., McCarron, M., & Henman, M., Anti-epileptic drugs, seizures and effect of co-administration of potential seizure threshold lowering psychotropic drugs in adults with epilepsy & intellectual disability., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 2021 Oral Presentation, 2021 URL

Responding to Changing Workforce Realities: One Profession's Experience in, editor(s)Putnam, & C. Bigby (Eds.), , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, pp323 - 336, [Sheerin, F., McCallion, P. & McCarron, M. ] Book Chapter, 2021 DOI

McGlinchey, E., McCallion, P., & McCarron, M., Patterns of onset of dementia and epilepsy in adults with Down syndrome: Findings from IDS-TILDA., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

Burke E, Dennehy H, Bakker A, Bowman S, Murphy E, Maes-Festen D., McCallion, P., McCarron, M, and Oppewal A., The Methodological Approach to the Co-Creation of Online Health Education with and for Individuals with Intellectual Disability, Global Journal of Intellectual & Developmental Disabilities, 7, (5), 2021 Journal Article, 2021 TARA - Full Text DOI URL

King, E., Brangan, J., McCarron, M., McCallion, P., O'Donovan, MA., Bavussantakath, F.R., Predictors of Productivity and Leisure for People aging with Intellectual Disability. , Canadian Journal of Occupational Therapy, 2021 Journal Article, 2021 DOI

O'Dwyer M, Watkins L, Henman M, McCallion P, McCarron M, Shankar R., Optimising Medicines Use in Older Adults with Intellectual Disability who have epilepsy: Challenges and Perspectives, Therapeutic Advances in Drug Safety, 12, 2021, p1 - 5 Journal Article, 2021 DOI

Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Using Health Psychology Theory to inform research into Cognitive Decline in People with Intellectual Disability, Psychology, Health and Medicine , University College Cork, 12th-14th May 2021, 2021 Poster, 2021 URL URL

Flannery, F., Sheerin, F., McCallion, P., Eustace-Cook, J., The impact of COVID-19 on the mental health and well-being of adults with an intellectual disability, THEconf2021: Transforming healthcare in a changing world: new ways of thinking and working, Trinity College Dublin, 10th and 11th March , 2021 Oral Presentation, 2021

Lynch, L., McCarron, M., McCallion, P. & Burke, E.,, Sedentary behaviour levels in adults with an intellectual disability: a systematic review, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', 9th - 11th March, 2021 Oral Presentation, 2021 URL

Exploring the intellectual disability data landscape for policy and service directions: An Irish perspective in, editor(s) i ka, J. & Beadle-Brown, J. , The Development, Conceptualisation and Implementation of Quality in Disability Support Services, Prague, Karolinum Press, 2021, [O'Donnovan, M-A., Craig, S., McCallion, P., McCarron, M. & Byrne, E.] Book Chapter, 2021 URL

O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E. and McCarron M., The prevalence, awareness, treatment, and control of hypertension in older adults with an intellectual disability in Ireland: a cross sectional study, European Journal of Cardiovascular Nursing, 20, (4), 2021, p315 - 323 Journal Article, 2021 DOI

The emergence of aging with long-term disability populations in, editor(s)M. Putnam, & C. Bigby (Eds.) , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, pp219 - 228, [McCallion, P., Ferretti, L.A., & McCarron, M. ] Book Chapter, 2021

Marianne Fallon, Eimear McGlinchey, Philip McCallion, Mary McCarron, Developing A Biopsychosocial Model of Cognitive Decline in People Ageing with Intellectual Disability, IASSIDD Virtual 2021, Amsterdam, the Netherlands, 6-8th July 2021, 2021 Oral Presentation, 2021 URL URL

Darker CD., Mullin M., Doyle L., Tanner M., McGrath D., Doherty L., Dreyer-Gibney K., Barret EM., Flynn D., Ivers J, Burke E, Ryan M., McCarron M., Murphy P., et alia, Developing a healthy university campus in Trinity College Dublin - overview and an outline process evaluation , Health Promotion International, 2021 Journal Article, 2021 DOI URL

Monaghan, R., O'Dwyer, M., McCallion, P., McCarron, M., & Henman, M., The relationship between anti-epileptic drug load and behaviours that challenge in older adults with intellectual disability and epilepsy., Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021

O'Brien, F., McCallion, P., Carroll, R., O'Dwyer, M., Burke, E., and McCarron, M., Reflections about hypertension in older adults with an intellectual disability: the importance of Home Blood Pressure Monitoring (HBPM)-Authors' reply,, European Journal of Cardiovascular Nursing, 20, (4), 2021, p391 Journal Article, 2021

McCausland, D., McCallion, P., Murphy, E., Luus, R., & McCarron, M., The impact of the COVID-19 crisis on the social inclusion and well-being of older people with an intellectual disability in Ireland, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

Monaghan R, O'Dwyer M, Mulryan, Luus R, McCarron M, McCallion P, Henman M, Antiepileptic drugs, occurrence of seizures and effect of co-administration of potential seizure threshold lowering psychotropic drugs in adults with intellectual disability who have epilepsy , Journal of Applied Research in Intellectual Disabilities, 34, (3), 2021, p816 - 829 Journal Article, 2021 DOI

Burke, E., Carroll, R., Walsh, J., McCallion, P., & McCarron, M., An exploration of the association between bone health and hand grip strength among older men with intellectual disability, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

McCarron, M., Allen, A., McCausland, D., Haigh, M., Luus, R., Bavussantakath, F.R., Sheerin, F., Mulryan, N., Burke, E., McGlinchey, E., Flannery, F. & McCallion, P., The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey., HRB Open Research, 4, (95), 2021 Journal Article, 2021 DOI

McCarron, M., McCallion, P., Burke, E., & Timmins, F., End of Life Care for People with an Intellectual Disability a Qualitative Exploration of Staff Carers' Experiences, BMC Palliative Care, 2021 Journal Article, 2021 DOI URL

McDermott, S., O'Donovan, M-A., McCarron, M., McCallion, P., Lynch, L., & Burke, E., Training Older Adults with intellectual disabilities (ID) as Physical Activity leaders 2020 (PPALS2), Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

Health and wellness among persons ageing with intellectual disability in, editor(s)M. Putnam, & C. Bigby (Eds.) , Handbook on Ageing with Disability, London, Taylor & Francis, 2021, pp229 - 239, [McCausland, D., McCallion, P., & McCarron, M. ] Book Chapter, 2021

Murphy, E., McCausland, D., Korfage, I., Flygare Wallen, E., Koster, R., McCallion, P., & McCarron, M., Digi-ID: Digital Skills education to support better health and well being and social inclusion outcomes for adults with intellectual disabilities (ID), Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

McCarron, M., McCausland, D., Allen, A., Luus, R., & McCallion, P., The impact of the COVID-19 crisis for older people with an intellectual disability in Ireland, Trinity Health and Education International Research Conference 2021 (THEconf2021): 'Transforming healthcare in a changing world: new ways of thinking and working', Dublin, 9th - 11th March, 2021 Oral Presentation, 2021 URL

Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., and McCarron, M., Social frailty among older adults with an intellectual disability, Journal of Applied Research in Intellectual Disabilities, 6th IASSIDD Europe Congress: Value Diversity, Amsterdam, The Netherlands, 5th - 8th July 2021, 34, (5), Blackwell Publishing LTD, 2021, pp1181 - 1371 Poster, 2021 URL DOI

Aging with Intellectual Disability: Dementia and Cognitive Decline in, editor(s)Matson, E , Handbook of Dual Diagnosis, Switzerland, Springer Nature, 2020, pp331 - 330, [Sheerin, F., McCallion, P., McGlinchey, E., O'Dwyer, M., Reilly, E., & McCarron, M. ] Book Chapter, 2020 URL DOI

Burke, EA., Bowman, S., Murphy, E., Oppewal, A., McCallion, P., and McCarron M., Get Wise About Your Health, Supporting people with intellectual disability to be health savvy: Sharing preliminary findings from public engagement and involvement in research , Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020 Conference Paper, 2020

McCausland, D., McCallion, P., Carroll, R., & McCarron, The nature and quality of friendship for older adults with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 2020 Journal Article, 2020 DOI

Wormald, A., McCallion, P., & McCarron, M., A complete model of loneliness in the ageing intellectual disability population, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

O'Connell, J., O'Dwyer, M., McCallion, P., McCarron, M., & Henman, M,, Frailty and its association with medication use in older adults with intellectual disability: an observational cross-sectional study, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

O'Dwyer M, McCallion P, McCarron M, O'Connell J, Henman M., Measuring drug burden in older adults with intellectual disabilities: Critical issues for consideration in finding the optimal measure to improve safety of medicines use. , Expert opinion on drug safety, 19, (6), 2020, p649 - 652 Journal Article, 2020 DOI

McCausland, D., Carroll, R., McCallion, P., & McCarron, M. , Friendship for older people with intellectual disabilities in Ireland., TTrinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

McCausland, D., Stancliffe, R.J., McCallion, P., McCarron, M., Longitudinal use and factors associated with public transport and other travel options for older people with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 33, (3), 2020, p442 - 456 Journal Article, 2020 DOI

Burke, EA., Walsh, JB., McCalion, P. and McCarron, M., A descriptive examination of the link between men with intellectual disabilities, bone health and grip strength., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, March 2020, 2020 Poster, 2020

Murphy, E., McCausland, D., McCallion, P., & McCarron, M. , Technology use and social inclusion for older adults with an intellectual disability in Ireland., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

Burke, EA., Bowman, S., McCallion, P., McCarron, M. and Gallagher, S., The use of massive open online courses to improve the healthcare service for adults with intellectual disability, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020 Conference Paper, 2020

Choice as people age with intellectual disability - an Irish perspective in, editor(s)Roger J. Stancliffe, Michael L. Wehmeyer, Karrie A. Shogren, Brian H. Abery, , Choice, preference and disability: Promotiing self-determination across the lifespan, Springer Books, 2020, [O'Donovan, M-A., McCausland, D., McCallion, P., McCarron, M] Book Chapter, 2020

Keogh B., Ting To, W., Daly L., Hynes G., Kennelly S., Lawlor B., Timmons S., O'Reilly S., Bracken-Scally M., Ciblis A., Cole N., Drury A., Pitalis C., Kennelly B., McCarron M. and Brady A.M., Acute hospital staff's attitudes towards dementia and perceived dementia knowledge: a cross-sectional survey in Ireland, BMC Geriatrics, 20, (376), 2020 Journal Article, 2020 URL DOI TARA - Full Text

Smith, M., Manduchi, B., Burke, E., Carroll, R., McCallion, P. & McCarron, M., Communication difficulties in adults with Intellectual Disability: Results from a national cross-sectional study, Research in Developmental Disabilities, 97, (103557), 2020, p1-12 Journal Article, 2020 TARA - Full Text DOI

Brennan, D., McCausland, D., O'Donnovan, M-A., Eustace-Cook, J., McCallion, P., & McCarron, M., Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review, Journal of Applied Research in Intellectual Disabilities, 33, (6), 2020, p1221 - 1233 Journal Article, 2020 DOI

McGlinchey, E., McCallion, P., McCarron, M., Down syndrome and Dementia: Advances in the field, Current Opinion in Psychiatry, 33, (3), 2020, p278 - 283 Journal Article, 2020 DOI

Sheerin, F., Mulryan, N,, McCallion, P., & McCarron, M., Is depressive symptomology affected by physical activity and vitality in a cohort of older Irish adults with intellectual disability? Results from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

McCausland, D., McCallion, P., Brennan, D., McCarron, M., In pursuit of meaningful occupation: Employment and occupational outcomes for older Irish adults with an intellectual disability, Journal of Applied Research in Intellectual Disabilities, 33, (3), 2020, p386 - 397 Journal Article, 2020 DOI

Bond L, Carroll R, Mulryan N, O'Dwyer M, O'Connell J, Monaghan R, Sheerin F, McCallion P, McCarron M., Biopsychosocial factors associated with depression and anxiety in older adults with intellectual disability: results of the wave 3 Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., Journal of intellectual disability research : JIDR, 64, (5), 2020, p368-380 Journal Article, 2020 DOI

O' 'Connell, J., Burke, E., McMahon N, McCallion, P., McCarron, M, Henman, M., O'Dwyer M, Medication Burden and Frailty in Older Adults with Intellectual Disability: An Observational Cross-Sectional Study, Pharmacoepidemiology and Drug Safety, 29, (4), 2020, p482 - 492 Journal Article, 2020 DOI

Monaghan, R., O'Dwyer, M., McCallion, P., McCarron, M., & Henman, M., Patterns of anti-epileptic drug use, seizures and co-administration of proconvulsive psychotropic drugs in older adults with epilepsy and intellectual disability in Ireland, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

Dee, B., Burke, E., Romero-Ortuno, R., McCallion, P., & McCarron, M., Factors associated with frailty among older adults with an intellectual disability: a systematic review of the literature, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

McGlinchey, E., McCallion, P., & McCarron, M., Engaging the Down syndrome community in dementia prevention research, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

McDermott, S., O'Donovan, M-A., McCarron, M., McCallion, P., Lynch, L., & Burke, E., Older adults with intellectual disabilities (ID) as physical activity leaders in Ireland and Spain, Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

O'Donohoe, N., McCallion, P., McCarron, M and Burke E., Engaging people with intellectual disability in research, a novel approach., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Trinity College Dublin, 2020 Conference Paper, 2020

McCarthy, C., McCallion, P., & McCarron, M., Providing optimum end of life care to people with an intellectual disability living in residential care., Trinity Health and Education International Research Conference: Integrated Health Care Developing Integrated Person-Centered Health Systems, TheConfo2020, Dublin, 3rd - 5th March, 2020 Oral Presentation, 2020 URL

Manduchi B, Walshe M, Burke E, Carroll R, McCallion P, McCarron M , Prevalence and risk factors for choking in adults with intellectual disability: Results from a national cross sectional study. , Journal of Intellectual and Developmental Disability , 46, (2), 2020, p126 - 137 Journal Article, 2020 DOI TARA - Full Text

Burke, EA., Walsh, BJ., McCallion, P., & McCarron, M., Making Reasonable Adjustment to Enable and Support People With Intellectual Disability Engage in Objective Health Measures in a Research Study-The Health Fair in the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Inclusion, 8, (2), 2020, p124 - 137 Journal Article, 2020 DOI

Burke, EA., Carroll, R., Walsh, JB., McCallion, P. and McCarron, M., Bone health, grip strength and older men with intellectual disability , THE WORLD CONGRESS OF THE INTERNATIONAL ASSOCIATION FOR THE SCIENTIFIC STUDY OF INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, Glasgow , August 2019, 2019 Conference Paper, 2019 DOI

F Sheerin, P McCallion, N Mulryan, E McCann, M McCarron, Is depressive symptomatology affected by physical activity and vitality in a cohort of older Irish adults with intellectual disabilitity?, Journal of Intellectual Disability Research, World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6-9 August, 2019, 63, (7), Wiley, 2019, pp646 - 646 Published Abstract, 2019 DOI

McCarron M, Lombard-Vance R, Murphy E, May P, Webb N, Sheaf G, McCallion P, Stancliffe R, Normand C, Smith V, O'Donovan MA, Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review, BMJ Open, 2019 Journal Article, 2019 DOI TARA - Full Text

McGlinchey, E., McCallion, P. & McCarron, M., Inclusion of people with Down syndrome in dementia research: Awareness, engagement and attitudes., Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019 Oral Presentation, 2019 DOI

Epidemiological Issues in Intellectual Disability and Aging Research. in, editor(s)V.P. Prasher, & M.P. Janicki. , Physical Health of Adults with Intellectual and Developmental Disabilities, Switzerland., 2019, pp9 - 26, [McCallion, P., Ferretti, L-A., Beange, H & McCarron, M.] Book Chapter, 2019 DOI

Ryan, J., McCallion, P., McCarron, M., Burke, E., Obesity and health burden in adults with an intellectual disability, a comparative study. , Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019 Oral Presentation, 2019

O'Dwyer M, Finnerty S, Henman M, Carroll R, McCallion P, McCarron M. , Prevalence and treatment of dementia in older adults with Intellectual Disability (ID) in Ireland, Journal of Intellectual Disability Research, IASSIDD World Congress, Glasgow, August 2019, 63, (7), 2019 Conference Paper, 2019 DOI

McCausland, D. Murphy, E. McCallion, P. McCarron, M., Assessing the impact of person-centred planning on the community integration of adults with an intellectual disability, Dublin, National Disability Authority, 2019 Report, 2019 URL

Bond L, Carroll R, Mulryan N, O'Dwyer M, O'Connell J, Monaghan R, Sheerin F, McCallion P, McCarron M. , The association of life events and mental ill health in older adults with intellectual disability: results of the wave 3 intellectual disability supplement to the Irish longitudinal study on ageing (IDS ]TILDA), IASSIDD World Congress, Glasgow, August 2019, 63, (7), 2019 Conference Paper, 2019 DOI

McCarron, M., Carroll, R., McCallion, P., Ageing of People with intellectual disabilities: Building the samples and research questions for IDS-TILDA's next decade. , Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019 Oral Presentation, 2019 DOI

Burke, EA., Carroll, R., O'Dwyer, M., Walsh, JB., McCallion, P., McCarron, M., A quantitative examination of the bone health status of older adults with intellectual and developmental disability in Ireland: a cross sectional nationwide study., British Medical Journal, 2019 Journal Article, 2019 DOI TARA - Full Text

Epidemiological issues. in, editor(s)V.P. Prasher, & M.P. Janicki , Physical Health of Adults with Intellectual Disabilities, London: Wiley, 2019, pp9 - 26, [McCallion, P., Ferretti, L., Beange, H., & McCarron, M.] Book Chapter, 2019

O'Donovan, M-A, McCallion, P., Byrne, E., & McCarron, M. , Housing mobility for older people with an intellectual disability, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019 Oral Presentation, 2019

Accessing general health services. in, editor(s)Barr, O & Gates, B. , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Barr, O., Bell, T., Bromley, J., Chaplin, E., Francis, R., Marsh, L., McCallion, P., McCarron, M., O'Neill, E., Read, S., Russ, L., Scott, J., & Sowney, M.] Book Chapter, 2019

Murphy, E, McCausland, D, Carroll, R., McCallion, P. McCarron, M., Technology use and social inclusion for older adults with an intellectual disability:Lessons learnt from the IDS-TILDA study, DOCTRID V: "Transitions across the Lifespan for People Living with Autism and/or Intellectual Disability", Galway, September 21, 2019 Poster, 2019 DOI

Andrew Wormald, The antecedents of loneliness on older people with an intellectual disability, The antecedents of loneliness on older people with an intellectual disability, 85, 2019, p116 - 130 Journal Article, 2019 URL

Sheerin, F., McCallion, P., & McCarron, M., Finding hope and comfort: Religion and spirituality in the lives of older Irish adults with intellectual disability. , The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019 Oral Presentation, 2019

McGlinchey, E., McCarron, M., Holland, A., & Mccallion, P., Examining the Effects of Computerised Cognitive Training on Levels of Executive Function in Adults with Down syndrome., Journal of Intellectual Disability Research. , 63, (9), 2019, p1137 - 1150 Journal Article, 2019 DOI

Burke, E., McCallion, P., McCarron, M., Bowman, S. & Gallagher, S.E. , .The use of massive open online courses to improve the healthcare service for adults with intellectual disability. , The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019 Oral Presentation, 2019

Claire O'Dwyer; Martin Henman; Mary Mc Carron; Eva O'Leary; Philip McCallion; Eilish Burke; Juliette O'Connell; Maire O'Dwyer, Prevalence and patterns of antipsychotic use and their associations with mental health and problem behaviours among older adults with intellectual disabilities, Journal of Applied Research in Intellectual Disabilities , 32, (4), 2019, p981 - 993 Journal Article, 2019 DOI

McCausland, D., Brennan, D., McCallion, P., & McCarron, M., Balancing personal wishes and caring capacity in future planning for adults with an intellectual disability living with family carers , Journal of Intellectual Disabilities, 23, (3), 2019, p414 - 431 Journal Article, 2019 DOI

Changes across the lifespan, in, editor(s)Barr, O & Gates, B , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Bradley, A., Crickmore, D., Dearing, M., Marsh, L., McCallion, P., McCarron, M., & Read, S.] Book Chapter, 2019

McGlinchey, E., McCallion, P,, McDermott, S., Foley, M., Burke, E.A., O'Donovan, M-A., McCausland, D., Gibney, S., McCarron, M. , Positive Ageing Indicators for People with an Intellectual Dsiability 2018, Dublin: Trinity Centre for Ageing and Intellectual Disability, 2019 Report, 2019 URL

Al Mutairi HK, O'Dwyer M, McCarron M, McCallion P, Burke E, Henman MC., Laxative use among older adults with intellectual disability: A cross-sectional observational study, International Journal of Clinical Pharmacy, 42, 2019, p88 - 99 Journal Article, 2019 DOI

McCarron, M., Lombard-Vance, R., Murphy, E., O'Donovan, M-A., Webb, N., Sheaf, G., McCallion, P., Stancliffe, R., Normand, C., Smith, V., May, P., Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review, BMJ Open, 2019 Journal Article, 2019 DOI

McCausland, D., Carroll, R., McCallion, P., McCarron, M. , The nature and quality of friendships of older people with intellectual disabilities in Ireland, Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019 Oral Presentation, 2019 URL

Bond, L., Carroll, R., Mulryan, N., O'Dwyer, M., O'Connell, J., Monaghan, R., Sheerin, F., McCallion, P., McCarron, M., The association of life events and mental ill health in older adults with intellectual disability: results of the wave 3 Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing, Journal of Intellectual Disability Research, 63, (5), 2019, p454 - 465 Journal Article, 2019 DOI

Reilly, E., McCarron, M., McCallion, P., Carroll, R., & Burke, E, The Impact of Ageing for People with Down syndrome over the Age of 40-years Living in Ireland. A 10-Year Longitudinal Follow-up., Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019 Oral Presentation, 2019

Mental health and emotional wellbeing. in, editor(s)Barr, O & Gates, B , Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd Edition. Oxford: Oxford University Press, 2019, [Chaplin, E., Francis, R., McCallion, P., McCarron, M., Read, S., Taggart, L., & Ward, G.] Book Chapter, 2019

Bracken-Scally M., Brady A-M., Daly L. , Hynes G. , Keogh B. , Kennelly B. and Mc Carron M. , Methodological lessons learned from a parallel dementia process evaluation, Trinity Health and Education International Research Conference (THEconf2019, School of Nursing and Midwifery, Trinity College Dublin, 6-7 March , 2019 Oral Presentation, 2019 URL

O'Donovan, M-A., McCarron, M., Lynch, L., & McCallion, M., Pathways to health for older people with intellectual disability - Conceptualising a framework to understand access, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019 Oral Presentation, 2019

Hunt, K., Bernal, J., Worth, R., Shearn, J., Jarvis, P., Jones, E., Lowe, K., Padden, P., Barr, O., Forrester-Jones, R., Kroll, T., McCarron, M., Read, S., & Todd, S., End-of-life care in intellectual disability: a retrospective crosssectional study, BMJ Supportive & Palliative Care, 2019, p469 - 477 Journal Article, 2019 DOI

McCallion, P., McCarron, M., & Burke, E. , Irish findings on quality in life and death for people with ID. , Journal of Intellectual Disability Research, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 63, (7), 2019 Conference Paper, 2019 DOI

Dementia and Intellectual Disability: Prevalence, Assessment and Post-Diagnostic Support in, editor(s)Johnny Matson , Handbook of Intellectual Disabilities, Springer , 2019, pp965 - 986, [Eimear McGlinchey, Evelyn Reilly, Philip McCallion, Pamela Dunne, Niamh Mulryan, Mary McCarron] Book Chapter, 2019 URL

Mac Giolla, Phadraig C., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Non-restrictive support strategies for adults with intellectual disabilities: A focus group study exploring dentists decision making and communication., 2019 Journal Article, 2019

Mac Giolla, Phadraig C., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Communication-based behavior support for adults with intellectual disabilities receiving dental care: A focus group study exploring dentists' decision-making and communication., Journal of Intellectual Disability Research, 23, (4), 2019, p526 - 540 Journal Article, 2019

O'Connell J, Henman MC, Burke É, Donegan C, McCallion P, McCarron M, O'Dwyer M, Association of Drug Burden Index with grip strength, timed up and go and Barthel index activities of daily living in older adults with intellectual disabilities: an observational cross-sectional study, BMC Geriatrics, 19, (1), 2019, p173- Journal Article, 2019 DOI

Dunne P., Reilly E., Judge R., Lowe F., McCarron M., Giving Meaning to Life - the role of digital life stories in supporting people with intellectual disability and dementia, The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019 Oral Presentation, 2019

Ouellette, Kuntz, H., Martin, L, Burke, E., McCallion, P., McCarron, M., McGlinchey, E., Sandberg, M., Shooshtari, S., & Temple, B. , Development of a consensus statement on how best to support individuals with IDD as they become frail., The World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Glasgow, Scotland, 6th - 9th August, 2019 Oral Presentation, 2019

Physical Health of Older Adults with Intellectual Disability in, editor(s)V.P Prasher and Matt Janicki , Physical Health of People with Intellectual Disability, Springer International, Springer International , 2019, [Burke E.A., O'Dwyer M, McGlinchey E, Foran S, MacGiolla Phadraig C, Carroll R, McCallion P and McCarron M] Book Chapter, 2019 DOI

Important Physical Health Issues in, editor(s)V.P. Prasher, & M.P. Janicki , Physical Health of Adults with Intellectual Disabilities, London: Wiley, 2019, pp27 - 52, [Burke, E., O'Dwyer, M., McGlinchey, E., Foran, S., MacGiolla Phadraig, C., Carroll, R., McCallion, P & McCarron M.] Book Chapter, 2019 DOI

Wormald, A., McCallion, P., & McCarron, M., The Antecedents of Loneliness in Older People with an Intellectual Disability., Research in Developmental Disabilities., 85, 2019, p116 - 130 Journal Article, 2019 DOI

O'Dwyer, M., O'Connell., J., O'Dwyer C.,Mulryan, N., McCallion, P., McCarron, M. and Henman, M.C.,, Patterns and indications for antipsychotic utilisation in older adults with intellectual disability: a cross sectional study, International Journal of Pharmacy Practice, Health Services Research and Pharmacy Practice Conference, Newcastle, April 2018, 26(1), 2018, pp7 - 8 Oral Presentation, 2018 URL DOI

McCausland, D., McCallion, P., Brennan, D., and McCarron, M., The exercise of human rights and citizenship by older adults with an intellectual disability in Ireland, Journal of Intellectual Disability Research, 62, (10), 2018, p875 - 887 Journal Article, 2018 URL

MacGiolla Phadraig, C., Nunn, J., McCallion, P., McCarron, M, Prevalence of edentulism among adults with Intellectual Disabilities: a narrative review informed by systematic review principles" in its current form for publication in Special Care in Dentistry, Special Care in Dentistry , 38, (4), 2018, p191 - 200 Journal Article, 2018 DOI

O'Dwyer, C., McCallion, P., McCarron, M. , Medication Use and Potentially Inappropriate Prescribing in Older Adults with Intellectual Disabilities: A neglected area of research. Therapeutic Advances in Drug Safety., Journal of Intellectual Disability Research, 9, (9), 2018, p535 - 557 Journal Article, 2018 DOI

Keogh B, Daly L, Brady AM, Bracken-Scally M, Hynes G, Kennelly B, Ciblis A, Pittalis C, & Mc Carron M. , Key Stakeholders Perceptions of Assistive Technology to Support People with Dementia living at home., 28th Alzheimer Europe Conference: "Making dementia a European priority"., Barcelona , 29 to 31 Oct, 2018 Poster, 2018 TARA - Full Text

O'Dwyer M, Peklar J, Mulryan N, McCallion P, McCarron M, Henman MC, Prevalence and patterns of anti-epileptic medicationprescribing in the treatment of epilepsy in older adults with intellectual disabilities, Journal of Intellectual Disability Research, 62, (3), 2018, p245 - 261 Journal Article, 2018 DOI

O'Dwyer M, Burke E, Foran S, McCarron M, McCallion P. , Associations of medicine use with falls and bone health in older adults with intellectual disabilities, Journal of Applied Research in Intellectual Disabilities, IASSIDD European Congress, Athens, 31, (4), 2018, pp544- Conference Paper, 2018 DOI

Galvin, M., Doyle, J., Murphy, E., Hannigan, C., Brady, A.M., McCarron, M., Bowman, S., Smith, S. and Dinsmore, J., The role of design thinking in the application of PPI within the ProACT project, SPHeRE Network 4th Annual Conference 2018, Dublin, Ireland, 2018 Poster, 2018

McCarron, M., McCallion, P., Coppus, A., Fortea, J., Stemp, S., Janicki, M., & Watchman, K. , Defining advanced dementia in people with Down syndrome and other intellectual disabilities: consensus statement of the International Summit on Intellectual Disability and Dementia, Journal of Palliative Medicine, 2018 Journal Article, 2018

Bracken-Scally, M., Brady, A-M., Daly, L., Keogh, B., Kennelly, B., Hynes, G. & McCarron, M., Use of a consortium approach in integrating dementia care services in acute hospitals, National Forum on Integrated Care in Ireland, University College Dublin, 5 December 2018, 2018 Poster, 2018

O'Dwyer, C., McCallion, P., McCarron, M., Prevalence and Associated Factors of Challenging Behaviours among Older Adults with Intellectual Disability in Ireland, Research in Developmental Disabilities, 80, 2018, p192 - 204 Journal Article, 2018 DOI

Bowman, S., McCarron, M, Developing a Strategic Public Engagament Plan, Sphere Conference, RCSI Dublin, 11th January, 2018 Poster, 2018

Almutari, H., O'Dwyer, M., Burke, E., McCarron, M., McCallion, P., & Henman, M. , Laxatives Use and Constipation among Intellectually Disabled Older People, Prevalence, Pattern and Association: A Cross-Sectional Observational Study., Alimentary Pharmacology and Therapeutics Journal , 2018 Journal Article, 2018

McCarron, M., McCallion, P., Watchman, K., Janicki, M.P., Coppus, A., Service, K., Fortea, J., Hogan, M., Reilly, E., Stemp, S. , Quality Care for People with Intellectual Disability and Advanced Dementia: Guidance on Service Provision, Journal of Palliative Medicine, 21, (9), 2018, p9 - 10 Journal Article, 2018 URL

O'Donovan, M.A., Mannan, H., McVeigh, J., McCarron, M., McCallion, P., Byrne, E., Core human rights concepts of in Irish health and housing policy documents: in search of equity for people with ID , Journal of Policy and Practice in Intellectual Disabilities, 15, (4), 2018, p307 - 313 Journal Article, 2018 DOI

Ouellette-Kuntz, H., Martin, L., Burke, E., McCallion, P., McCarron, M., McGlinchey, E., Sandberg, M., Schoufour, J., Shooshtari, S., Temple, B, How best to support individuals with IDD as they become frail: Development of a Consensus Statement, Journal of Applied Research in Intellectual Disabilities , 32, (1), 2018, p35 - 42 Journal Article, 2018 URL

Bracken-Scally, M., Brady, A., Daly, L., Hynes, G., Keogh, B., Kennelly, B., McCarron, M, Flexibility and reablement in home care in dementia, International Journal of Integrated Care, 18th International Conference for Integrated Care 2018, Netherlands, 23rd - 25th May, 18, (S2), 2018, pp314- Meeting Abstract, 2018 URL

Almutari, H., O'Dwyer, M., McCarron, M., McCallion, P., & Henman, M. , The Use of Proton Pump Inhibitors Among Older Adults with Intellectual Disability: A Cross Sectional Observational Study., Saudi Pharmaceutical Journal, 26, (7), 2018, p1012 - 1021 Journal Article, 2018 DOI TARA - Full Text

O'Dwyer, C., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M., McCarron, M., Prevalence and associated factors of problem behaviours among older adults with intellectual disabilities in Ireland, Research in Developmental Disabilities, 80, 2018, p192 - 204 Journal Article, 2018 URL

O'Connell, J. Burke, E., Henman, M., McCallion, P., McCarron, M., O'Dwyer, M., A comparison of drug burden measures on physical function scores in a cohort of older adults with Intellectual Disabilities, Journal of Applied Research in Intellectual Disability, Fifth International IASSIDD Europe Congress , Athens, Greece, 17-20 July, 2018 , 31, (4), 2018, pp553 - 553 Poster, 2018

Daly L.,Brady A.M., Keogh B., Bracken-Scally M., Ciblis A., Kennelly B., Hynes G., Pittalis C., Drury A. and McCarron M., Achieving inclusiveness: Suggestions to overcome challenges to accessing the perspective of people living with dementia , 19th International Nursing Ethics Conference and 4th International Ethics in Care Conference , Catherine McAuley School of Nursing and Midwifery, University College Cork, 1-2 September , 2018, pp16 - 17 Oral Presentation, 2018 URL

Mac Giolla, Phadraig, C., McCallion, P., Nunn, J., McCarron, M., Total tooth loss without denture wear is a risk indicator for difficulty eating among older adults with intellectual disabilities., Journal of Oral Health, 46, (2), 2018, p170 - 178 Journal Article, 2018 DOI

O'Dwyer M, Galvin N, McCallion P, McCarron M, Henman M, O'Connell J. , Use of High Risk Medicines in Older Adults with Intellectual Disabilities: A cross-sectional study , Journal of Applied Research in Intellectual Disabilities, IASSIDD European Congress, Athens , 31, (4), 2018, pp544 - 544 Conference Paper, 2018 DOI

McCarron, M., McCallion, P., Coppus, A., Fortea, J., Stemp, S., Janicki, M., Watchman, K, Supporting Advanced Dementia in people with Down syndrome and other intellectual disabilities: Consensus Statement of the International Summit on Intellectual Disability and Dementia, Journal of Intellectual Disability Research, 62, (7), 2018, p617 - 624 Journal Article, 2018 DOI

Mac Giolla Phadraig C, Griffiths C, McCallion P, McCarron M. Donnelly-Swift E and Nunn J, Pharmacological behaviour support for adults with intellectual disabilities: Frequency and predictors in a national cross-sectional survey., Community Dentistry and Oral Epidemiology, 2018, p1-7 Journal Article, 2018 DOI

O'Dwyer, M., Galvin, N., McCallion, P., McCarron, M., Henman, M., O'Connell, J. , Patterns of antipsychotic utilization and associations with behaviours, with challenges in older adults with intellectual disability: a cross sectional study, Journal of Applied Research in Intellectual Disability, Fifth International IASSIDD Europe Congress , Athens, Greece, 17-20 July, 2018 , 31, (4), 2018, pp544 - 544 Oral Presentation, 2018

Burke, E, A., McCarron, M., McCallion, P., Bowman, S, Building Inclusive Communities: Learning from the world, Involving Older Adults in Research - Lessons from 10 Years of IDS-TILDA, USA, November 2018, 2018 Oral Presentation, 2018

O Connell J., Burke E., Donegan C., McCallion P., McCarron M., Henman M., O'Dwyer M., , Effect of Drug Burden Index on Physical Function Measures in Older Adults with Intellectual Disabilities: An Observational Cross-sectional Study, BMC, 2018 Journal Article, 2018

Burke, E., Carroll, R., O'Dwyer, M., Walsh, J., McCallion, P., McCarron, M., sing chi-square automatic interaction detection modelling to identify predictors of osteoporosis among adults with Intellectual Disability, Journal of Applied Research in Intellectual Disability, Fifth International IASSIDD Europe Congress , Athens, Greece, 17-20 July, 2018 , 31, (4), 2018, pp554 - 554 Oral Presentation, 2018

Brady, A-M. Bracken, M. Keogh, BJ, Daly, L, Hynes, G. Kennelly , B, Mc Carron M, Learning from a Parallel Process Evaluation of Dementia Care Services , 25th Research & Education Conference, School of Nursing, University of Maribor, Slovenia , 7th June, 2018 Conference Paper, 2018

O'Dwyer, M., Henman, M., McCarron, M., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M O'Connell, J., , Prevalence and Patterns of antiepileptic medication use in the treatment of epilepsy in older adults with Intellectual Disabilities, Journal of Intellectual Disability Research , 62, 2018, p245 - 261 Journal Article, 2018 DOI

O'Dwyer M, Hughes J, McCallion P, McCarron M, Henman M., Psychotropic drug use in older adults with intellectual disabilities who have dementia in Ireland , Journal of Applied Research in Intellectual Disabilities, IASSIDD European Congress, Athens, 31, (4), 2018, pp544- Conference Paper, 2018 DOI

O'Dwyer, M. McCarron, P. McCallion & M. Henman , Medication Use and Potentially Inappropriate Prescribing in Older Adults with Intellectual Disabilities: A neglected area of research, Therapeutic Advances in Drug Safety , 2018 Journal Article, 2018 DOI

O'Connell, J., Burke, E., Mulryan, N., O'Dwyer, C., Donegan, C., McCallion, P., McCarron, M., Henman, M., O'Dwyer, M, Drug Burden Index to Define the Burden of Medicines in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study , British Journal of Clinical Pharmacology, 84, 2018, p553 - 567 Journal Article, 2018 Other TARA - Full Text DOI

McCarron M, Lombard-Vance R, Murphy E, O'Donovan MA, Webb N, Sheaf G, McCallion P, Stancliffe R, Normand C, Smith V, May P, Quality of life outcomes and costs associated with moving from congregated settings to community living arrangements for people with intellectual disability: An evidence review, Dublin, Health Research Board, September, 2018, 94 Report, 2018 URL

Belton, A., O'Dwyer, M.,Peklar, J., Mccallion, P., Mccarron, M., & Henman, M., Medication use and health screening in an ageing adult population with Down Syndrome in Ireland: A descriptive study" for publication in the Journal of Policy and Practice in Intellectual Disabilities, Journal of Policy and Practice in Intellectual Disabilities, 15, (2), 2018, p145 - 154 Journal Article, 2018 DOI

Almutari, H., O'Dwyer, M., Burke, E., McCarron, M., McCallion, P., Henman, M, 1. Laxatives Use and Constipation among Intellectually Disabled Older People, Prevalence, Patterns and Association: A Cross-Sectional Observational Study, Drugs and Aging, 2018 Journal Article, 2018

McCausland, D., Carroll, R., McCallion, P., McCarron, M.3 , Engagement in Community by Older People with an Intellectual Disability in Ireland , 65th Annual and Scientific Meeting of the Irish Gerontological Society, Clayton Whites Hotel, Wexford, 29th and 30th Septem, 2017 Poster, 2017

O'Dwyer, M., McCarron, M, Anticholinergic medicines in Older Adults with intellectual Disabilities, Faculty of Psychiatry of Intellectual Disability Annual Conference RCPI, Dublin, 6th October, 2017 Oral Presentation, 2017

Wormald, A., McCarron, M., McCallion, P.,, The influence of loneliness on age related decline in older people with an Intellectual Disability (ID) , IASSIDD Health Sirg, Belfast, 19th - 21st June, 2017 Poster, 2017

McCausland, D., McCarron, M, Social and community participation of older people with intellectual disabilities , 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017 Oral Presentation, 2017

O'Dwyer, M., Burke, E., Oppewal, A., Foran, S, McCarron, M.,, Medication use in older adults with intellectual disabilities, Falls, Fraility, Bone Health Conference, Dublin, November, 2017 Oral Presentation, 2017

O'Dwyer, C., McCarron, M., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M O'Connell, J., , Prevalence and Associated Factors of Behaviours which Challenge Among Older Adults with Intellectual Disability in Ireland, Research in Developmental Disabilities , 61, (10), 2017, p969-983 Journal Article, 2017

McCarron, M., Burke, E., White, P., O'Dwyer, C., Ryan, K., O'Farrel, J., McCallion, P, He'd mind you, you mind him" Experiences of end of life care for people with an intellectual disability as perceived by staff carers., 2017, p1 - 63 Report, 2017

Pittalis C., Kennelly B., Brady A.M., Daly L., Hynes G., Bracken-Scally M., Ciblis A., Keogh B. and McCarron M, Analysing the Burden of Care of Informal Carers of People with Moderate or Severe Dementia, Changing Perspectives in Gerontology - the Next 65 Years, Clayton Whites Hotel, Wexford, 29th and 30th Septem, 2017 Poster, 2017

O'Dwyer, M., O'Connell, J., McCarron, M., McCallion, P., Henman, M, Medication use in older adults with intellectual disabilities, IASSIDD Health Sirg, Belfast, June, 2017 Oral Presentation, 2017

McCarron, M., McCallion, P., Reilly, E., Dunne, P., Carroll, R., Mulryan, N., A prospective 20‐year longitudinal follow‐up of dementia in persons with Down syndrome, Journal of Intellectual Disability Research , 61, (9), 2017, p843 - 852 Journal Article, 2017 URL

Burke, E, A., Foran, S., Oppewal, A., O'Dwyer, M., McCarron, M, The impact and relationship between musculoskeletal health, falls, medication and physical activity on older adults with intellectual disabilities from a Dutch and Irish perspective, European Congress on Falls Frailty and Bone Health, Dublin, 9th November, 2017 Oral Presentation, 2017

Burke, E; McCallion, P., Walsh, J.B., McCarron, M., An exploration of the bone health of older adults with an intellectual disability in Ireland, Journal of Intellectual Disability Research, 16, (2), 2017, p99 - 114 Journal Article, 2017 TARA - Full Text DOI

McCarron, M, Ageing with an Intellectual Disability in Ireland, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20/09/17, 2017 Oral Presentation, 2017

O'Dwyer, M., McCarron, M, Medication use and polypharmacy in older adults with intellectual disabilities, 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017 Oral Presentation, 2017

O'Donovan, M-A., Byrne, E., McCallion, P., McCarron, M, Measuring choice for adults with an intellectual disability - a factor analysis of the adapted daily choice inventory scale, Journal of Intellectual Disability Research, 65, (5), 2017, p471 - 487 Journal Article, 2017 URL

Burke, E., McCarron, M.,, An exploration of the bone health of older adults with an intellectual disability, 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017 Oral Presentation, 2017

Brennan, D., Murphy, R., McCallion, P., McCarron, M, "What's going to happen when we're gone?" Family caregiving capacity for older people with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 31, (2), 2017, p226 - 235 Journal Article, 2017 DOI

O'Connell, J., O'Dwyer, M., Burke, E., Henman, M., Donegan, C., McCarron, M., McCallion, P., Mulryan, N., Association of Drug Burden Index with Physical Function in Irish Older Adults with Intellectual Disability, Age & Ageing, 65th Annual and Scientific Meeting of the Irish Gerontological Society: Changing Perspectives in Gerontology- The Next 65 Years. , Wexford, Ireland, 29-30 Sept 2017, 46, 2017, pp1 Poster, 2017

De Moraes A., O'Donovan, M., Gormley, J., McCallion, P., Burke, E., McCarron, M, Physical activity in an older population of persons with an intellectual disability: Results from Wave 2 of the Intellectual Disability Supplement to the Irish longitudinal study on Ageing (IDS-TILDA), British Journal of Sports Medicine, 2017 Journal Article, 2017

McCallion, P., Hogan, M., Santos, F H., McCarron, M., Service, K., Stemp, S., Keller, S., Fortea, J., Bishop, K., Watchman, K., Janicki, M.P., , Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to End-of-life Care in Advanced Dementia, Journal of Applied Research in Intellectual Disability, 55, (5), 2017, p338 - 346 Journal Article, 2017

Peklar, J., Kos, M., O'Dwyer, M., McCarron, M., McCallion, P., Kenny, R., Henman, M, Medication and supplement use in older, PLOS , (1), 2017, p1 - 15 Journal Article, 2017 DOI

O'Connell, J., O'Dwyer, M., Burke, E., Henman, M. C., McCallion, P., McCarron, M, Factors associated with Drug Burden Index in Older Adults with Intellectual Disabilities: An Observational Cross-Sectional Study, 39th All Ireland Schools of Pharmacy Conference, University College, Cork, April, 2017 Oral Presentation, 2017

O'Connell J., O'Dwyer, M., Henman, M., McCarron, M., , Addressing the complexity of medication use in people with Intellectual Disability, Irish Gerontological Society, Postgraduate Study Day in Ageing Research, Dublin, April, 2017 Oral Presentation, 2017

O'Dwyer, C., Wormald A., McCarron, M, Mental Health, challenging behaviour and loneliness in older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

O'Donovan, M-A., McGlinchey, E., Haigh, M., McCarron, M.,, Ageing with an intellectual disability in Ireland, The American Association on Intellectual and Developmental Disabilities, Dublin, 13th October, 2017 Oral Presentation, 2017

McCarron, M., McCallion, P., Watchman, K., Janicki, M., Coppus, A., Fortea, J., Hogan, M., Reilly, E., Stemp, S, Quality Care for people with Intellectual Disability and Advanced Dementia: Guidance on Service Provision, British Medical Journal, 2017, p1 - 22 Journal Article, 2017

O'Dwyer, M., Peklar, J., Mulryan, N., McCallion, P., McCarron, M., & Henman, M. C., Prevalence, patterns and factors associated with psychotropic use in older adults with intellectual disabilities in Ireland, Journal of Intellectual Disability Research, 61, (10), 2017, p969 - 983 Journal Article, 2017 DOI

Brennan, D., McCarron, M, Family Care Giving, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017 Oral Presentation, 2017

O'Dwyer, M., McCarron, M, Medication and Polypharmacy in older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

Mac Giolla Phadraig C, Griffiths C, McCallion P, McCarron M, Nunn J., Communication based behaviour support for adults with intellectual disabilities receiving dental care: a focus group study exploring dentists' decision making and communication., Journal of Intellectual Disabilities, Online First, 2017 Journal Article, 2017 DOI TARA - Full Text

O'Connell J., O'Dwyer, M., Burke, E; Henman, M., McCarron, M., McCallion, P;, Drug Burden Index and Physical Function Measures in Older Adults with Intellectual Disabilities, ESCP International Symposium , Germany, 9th - 11th October, 2017 Conference Paper, 2017

Pittalis C., Kennelly B., Brady A.M., Daly L., Hynes G., Bracken-Scally M., Ciblis A., Keogh B. and McCarron M., Analysing the Burden of Care of Informal Carers of People with Moderate or Severe Dementia, Age and Ageing, 65th Annual and Scientific Meeting of the Irish Gerontological Society, Wexford, Ireland, 29-30 September 2017, 46, (Supp 3), 2017, ppiii13 - iii59 Published Abstract, 2017 URL

Burke, E, A., Carroll, R., McCallion, P., Walsh, J B., McCarron, M, An exploration of the bone health of older adults with an intellectual disability, European Congress on Falls Frailty and Bone Health, Dublin, 9th November, 2017 Oral Presentation, 2017

McCarron, M., Haigh, M., & McCallion, P. (Eds.), Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland. Wave 3 IDS-TILDA., Dublin: School of Nursing & Midwifery, Trinity College Dublin, 2017 Report, 2017

Mot, H., McCarron, M, Laxative use by older people with intellectual disability, All-Ireland Schools of Pharmacy Conference, Cork, April, 2017 Poster, 2017

Brennan, D., Murphy, R., McCallion, P., & McCarron, M, Future Care Planning Amongst Parent and Sibling Carers with Ageing Family Member with an Intellectual Disability, Irish Gerontological Society - 65th Annual & Scientific Meeting, Wexford, 28th-30th September, 2017 Poster, 2017 URL

O'Dwyer, M., O'Connell, J., O'Dwyer, C., Mulryan, N., Burke, E., Donegan, C., Mccallion, P., Mccarron, M., & Henman, M., Drug Burden Index and Physical and Cognitive Function in Older Adults with Intellectual Disabilities: A Cross-Sectional Study, Pharmacoepidemiology and Drug Safety, Annual Meeting International Society of Pharmacoepidemiology, Montreal, Canada, 26, (2), 2017, pp478 - 478 Oral Presentation, 2017 DOI

O'Dwyer M., O'Connell J., Donegan C., Burke E., McCarron M., McCallion P., Henman M., Drug burden index to define functional and cognitive effects in older adults with intellectual disabilities: an observational cross sectional study. , International Journal of Clinical Pharmacy, European Society of Clinical Pharmacy Annual Symposium, Oslo, October 2016, 39(1), 2017, pp312 - 312 Poster, 2017 DOI

McCarron, M., Cleary, E., McCallion, P, Health and Health-Care Utilization of the Older Population of Ireland: Comparing the Intellectual Disability Population and the General Population, Research on Aging, 39, (6), 2017, p693 - 718 Journal Article, 2017 DOI

Burke, E., McCallion, P., McCarron, M, "Men's Bones Matter Too; Fracture risk and associated osteoporosis among older men with intellectual disability, Health SIRG 2017 , Belfast, 19th June, 2017 Poster, 2017

O'Donovan, M., O'Dwyer, M., McCarron, M., McCallion P, An exploration of medication use patterns for adults with intellectual disability who transition to new living arrangements, Health SIRG 2017 , Belfast, 19th June, 2017 Poster, 2017

Wormald, A., McCallion, P., McCarron, M, Loneliness in older people with an Intellectual Disability, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017 Oral Presentation, 2017

McGlinchey, E., McCarron, M, Cognitive Training with Adults with Down syndrome, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017 Oral Presentation, 2017

Martin Henman , Hadiah Almutiari , Maire O ' Dwyer , Mary McCarron , Philip McCallion, Characteristics of the use of proton pump inhibitors among older people with intellectual disability, International Journal of Clinical Pharmacy, PCNE Working Conference, Bled, Slovenia, March 2017, 10.1007/s11096-017-0, 2017, pp8- Oral Presentation, 2017 DOI

Burke, E., McCarron, M.,, Physical health and older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

Brady, A-M., Bracken-Scally, M., Daly, L., Ciblis, A., McCarron, M., Kennelly, B., Keogh, B., & Hynes, G., Learning from the development of Integrated Care Projects in Dementia, International Journal of Integrated Care, ICIC17 - 17th International Conference on Integrated Care, Dublin, Ireland, 8-10 May 2017, 17, (5), 2017, ppA89- Published Abstract, 2017 URL

Foran, S., McCallion, P., McCarron, M, The prevalence and predictors of falls and fear of falling among participants in the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing., European Congress on Falls Frailty and Bone Health, Dublin, November, 2017 Oral Presentation, 2017

McCarron, M., Haigh, M., McCallion, P., Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA), School of Nursing and Midwifery,Trinity College Dublin, December, 2017, p1 - 136 Report, 2017 URL TARA - Full Text

King E., O'Donovan M., Brangan, A., McCallion, P., McCarron, M, An Occupational Therapy Perspective on the Environment and Supporting Engagement for People Ageing with Intellectual Disabilities, IASSIDD Health Sirg, Belfast, 19th - 21st June, 2017 Poster, 2017

Brennan, D., Murphy, R., McCallion, P., & McCarron, M, Family Strategies for Care Giving for Older People with Intellectual Disability (ID), within 'post-institutional' Ireland, 13th Conference of the European Sociological Association, Athens, Greece, 29 Aug - 1 Sept, 2017 Oral Presentation, 2017 URL

O'Donovan, M., McCarron, M, Transitions and choice for older people with ID , 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017 Oral Presentation, 2017

Peklar, J., Kos, M., O'Dwyer, M.,McCarron, M., McCallion, P., Kenny, R.A., Henman, M.C., Medication and supplement use in older people with and without intellectual disability: An observational, cross-sectional study, PloS one, 1, 2017, p1 - 15 Journal Article, 2017 Other URL TARA - Full Text DOI

Kennelly B., Brady A.M., Hynes G., Bracken-Scally M., Daly L., Keogh B., Ciblis A. and McCarron M., Better off at home or in long term care? A balance-of-care analysis of people with advanced dementia, Age and Ageing, 65th Annual and Scientific Meeting of the Irish Gerontological Society, Wexford, Ireland, 29-30 September 2017, 46, (Supp 3), 2017, ppiii1 - iii12 Published Abstract, 2017 URL

McCarron, M., Burke, E., White, P., O'Dwyer, C., Ryan, K., O'Farrell, J., McCallion, P., "He'd mind you, you mind him": Experiences of end of life care for people with an intellectual disability as perceived by staff carers., School of Nursing and Midwifery, Trinity College Dublin, 2017 Report, 2017 URL TARA - Full Text

Brady, A-M., Hynes, G., Daly, L., Bracken-Scally, M., Ciblis, A., McCarron, M., Kennelly, B., & Keogh, B., Responsive community care for people with dementia & their families: Evaluating a person centred and integrated care model, International Journal of Integrated Care, ICIC17 - 17th International Conference on Integrated Care, Dublin, Ireland, 8-10 May 2017, 17, (5), 2017, ppA92- Published Abstract, 2017 URL

Burke, E.A., Carroll, R., Walsh, J.B., McCallion, P., McCarron, M. , Using Chi-Squared Automatic Interaction Detection (CHAID) Modelling To Identify the Risk Factors of Osteoporosis among Older Adults with Intellectual Disability, Osteoporosis International , WCO-IOF-ESCEO 2017 World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases, Florence, Italy, 23-26 March, 2017, 28, 2017, ppS620 - S620 Poster, 2017

McCausland D., McCallion, P., Brennan, D., McCarron, M, Interpersonal relationships of older adults with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 31, (1), 2017, p140 - 153 Journal Article, 2017 DOI

Sexton, E., O'Donovan, M.A., McCallion, P., McCarron, M, A comparison of measures of self-determination and emotional wellbeing in research with older adults with and without intellectual disabilties, Journal of Intellectual & Developmental Disabilities, 41, (4), 2016, p324 - 337 Journal Article, 2016 DOI

McGlinchey, E., McCarron, M., McCallion, P, Findings in relation to change in EF scores, IASSID Congress, Melbourne, Australia, 15th - 19th August, 2016 Oral Presentation, 2016

Supporting families who have ageing members with disabilities.P.N Walsh, A., Carr, G. O'Reilly, & J. McEvoy (Eds.) Handbook of Intellectual Disability and Clinical Psychology Practice. 2nd Edition. in, Handbook of Intellectual Disability and Clinical Psychology Practice, 2016, [McCarron, M., & McCallion, P.] Book Chapter, 2016

O'Donovan, M-A., Mannian, H., McCallion, P., McCarron, M., Byrne, E, Health for all (except if you have ID?) Examining extent to which national health policy is equitable, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016 Oral Presentation, 2016

Murphy, R., Brennan, D., McCarron, M, Love labour and caring for older people with an Intellectual Disability within the family home environment, IASSIDD Congress, Melbourne, Australia, 2016 Meeting Abstract, 2016

Sexton, E; O'Donovan, M-A; McCallion, P; McCarron M, Whose quality of life? Measures of emotional wellbeing and self-determination in research with older adults with and without intellectual disabilities,Special Issue of the Journal of Intellectual and Developmental Disability on Quality of Life, Journal of Policy and Practice in Intellectual Disabilities, 13, (4), 2016, p261 - 268 Journal Article, 2016 DOI

Brennan D. Murphy R. McCallion P & McCarron M, Understanding Family Strategies the Enable long term and sustainable home environments for older people with intellectual disability, Trinity College, 2016 Report, 2016

Brennan, D., Murphy, R., McCallion, P., McCarron, M, Caregiving capacity and future care planning for older people with an intellectual disability, Age and Ageing, 45, 2016 Journal Article, 2016

Caoimhin MacGiolla, Phadraig., McCarron, M, The relationship between diet, nutrition and dentate status among older adults with disabilities, 23rd iADH Congress in Conjuction with the SCDA 28th Annual Meeting, Chicago, 17th April, 2016 Oral Presentation, 2016

Daly L., Bracken-Scally M., Hynes G., Ciblis A., Keogh B., Kennelly B., McCarron M. and Brady Anne-Marie, Using Inter-level Dynamics As An Interpretive Lens When Employing The RE-AIM Framework To Evaluate The Development Of Integrated Dementia Care, Age and Ageing, Irish Gerontological Society 64th Annual and Scientific Meeting. Developing Cultures of Excellence in Ageing and Exploring the Needs of Marginalised Groups, The Malton Hotel, Killarney, 29.09.16-01.10.16, 45, (Supp 2), Oxford University Press, 2016, ppii4- Published Abstract, 2016 URL

Mulryan, N., McCarron, M, Mental Health Factors Associated with Subjective Sleep reports in an older Irish population with intellectual Disability - Results from IDS-TILDA, Journal of Policy and Practice in Intellectual Disabilities, 2016 Journal Article, 2016

Tuffrey-Wijne I., Wicki M., Heslop P., McCarron M., Todd S., Oliver D., de Veer A., Ahlström G., Schäper S., Hynes G., O'Farrell J., Adler J., Riese F., Curfs L, Developing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique, BioMed Central Palliative Care, 15, (36), 2016, p1 - 11 Journal Article, 2016 URL

Murphy, R., Brennan, D., McCallion, P., McCarron, M, Questioning the feasibility of the implementation of contemporary policy in Ireland: The narratives of family caregivers supporting older people with an Intellectual Disability, IASSIDD Congress, Melbourne, Australia, 15-19 August, 2016 Conference Paper, 2016 URL

O'Dwyer, M; Maidment, I; Bennett K; Peklar, J; Mulryan, N; McCallion, P; McCarron, M; Henman, C;, Association of anticholinergic burden with adverse effects in older people with intellectual disabilities: An observational cross-sectional study, The British Journal of Psychiatry, 209, (6), 2016, p504 - 510 Journal Article, 2016 DOI

Mulryan, N., McCarron, M, Sleep problems and associated health variables in Older Irish population with Down Syndrome: Results from the Intellectual Disability Supplement to the Irish Longitudinal study on Ageing, IASSIDD Congress, Melbourne, Australia, 2016 Meeting Abstract, 2016

Daly, L., Hynes, G., Braken-Scally, M., Ciblis A., Kennelly, B., Keogh, B., McCarron, M., Brady, A-M., Evaluation as process: Evaluating the Genio Dementia Programme - overview and progress to date, Sonas apc ltd. 8th National Dementia Conference: New developments, Innovative practice, City West Hotel, Dublin, 16th - 17th May, 2016 Poster, 2016

Burke, EA., McCarron, M.,Walsh, JB., Carroll, R and McCallion, P, Prevalence and predictors of osteoporosis risk among older adults with intellectual disability n Ireland, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016 Conference Paper, 2016

McCausland, D., McCallion, P., Cleary, E., MCCarron, M, Social Connections for Older People with Intellectual Disability in Ireland: Results from Wave 1 of IDS-TILDA, Journal of Applied Research in Intellectual Disability, 29, (1), 2016, p71 - 82 Journal Article, 2016 URL

Caoimhin MacGiolla, Phadraig., McCarron, M, Why do older adults with intellectual disabilities not wear dentures, 23rd iADH Congress in conjunction with SCDA 28th Annual Meeting, Chicago, 16th April, 2016 Poster, 2016

O'Connell, J., O'Dwyer, M., Donegan, C., Henman, M., McCarron, M., McCallion, P., Development of the Drug Burden Index tool for use in an Irish population of older people with intellectual disability, 45th ESCP (European Society of Clinical Pharmacy) Symposium, Oslo, Norway, October 2016, 2016 Poster, 2016

People with Disabilities Entering the Third Age in, editor(s)Edurne, G., McConkey, R., Gilligan, R , Disability and Human Rights: Global Perspectives, Palgrave, 2016, pp217 - 228, [McCallion, P., McCarron] Book Chapter, 2016

King, E., Okodogbe, T., Burke, E., McCarron, M., McCallion, P., O'Donovan, MA, Activities of daily living and transition to community living for adults with intellectual disabilities, Scandinavian Journal of Occupational Therapy, 24, (5), 2016, p357 - 365 Journal Article, 2016 DOI

Brennan, D., Murphy, R., McCallion, P., Griffiths, M & McCarron, M, Understanding Family Strategies that enable Long Term and Sustainable Home Environments for Older People with Intellectual Disability. Final Report - September 2016, Dublin, 2016, 1-72 Report, 2016 URL TARA - Full Text

Supporting families with ageing members who have intellectual disability in, editor(s)Carr, A., Linehan, C., O'Reilly, G., Walsh, P. N., McEvoy, J , The Handbook of Intellectual Disability and Clinical Pshchology Practice, UK, Routledge, 2016, pp760 - 787, [McCarron, M., McCallion] Book Chapter, 2016

O'Dwyer, M., Maidment, I., Bennett, K., Peklar, J., Mulryan, N., McCallion P., McCarron, M., Henman, M, Association of Anticholinergic burden with adverse effects in older people with Intellectual Disabilities in Ireland: An observational cross-sectional study, British Journal of Psychiatry, 209, 2016, p504 - 510 Journal Article, 2016 DOI TARA - Full Text

McCausland, D., Brennan, D., McCarron, M, Using the WHO's ICF as a theoretical framework for the study of social participation for older people with intellectual disability, IASSID Congress, Melbourne, Australia, 15th - 19th August, 2016 Oral Presentation, 2016

O'Dwyer, M., Pekler, J., McCallion, P., McCarron, M., Henman, M, Factors associated with polypharmacy and excessive polypharmacy in older people with Intellectual Disability differ from the general population; a cross-sectional observational nationwide study, British Medical Journal Open, 6, (4), 2016 Journal Article, 2016 TARA - Full Text DOI URL

O'Dwyer, C., McCallion, P., McCarron, M, Prevalence and Associated Factors of Challenging Behaviour in older adultes with an intellectual disability in Ireland, PSI Early Graduate Group Conference, Trinity College, 29th February, 2016 Poster, 2016

O'Donovan, M., McCarron, M, Core human rights concepts in Irish health and housing policy documents: in search of equity for people with Intellectual Disability, Divisions of Population Health Sciences, Royal College of Surgeons, Dublin, 15th June, 2016 Oral Presentation, 2016

Ramsay, H., Mulryan, N., McCallion, P., McCarron, M, Geographical barriers to mental health service care among individuals with intellectual disability in the Republic of Ireland, Journal of Policy and Practice in Intellectual Disabilities, 13, (4), 2016, p261 - 268 Journal Article, 2016 DOI

McCarron M, Will Older People with Intellectual Disability unlock the Determinants of  Cardiovascular Disease' Preliminary findings from IDS TILDA, Cardiovascular Nurses Scientific Conference, Killarney, 8 September, 2015 Oral Presentation, 2015

O'Dwyer, M., Peklar, J., Maidment, I, Bennett, K., McCallion, P., McCarron, M, Factors associated with high anticholinergic burden in ageing adults with Intellectual Disabilities: A cross-sectiontal study, Pharmacoepidemiology and Drug Safety, Boston, 24th - 26th August, (25), 2015, pp377 - 378 Poster, 2015 DOI

Ramsay, H., Mulryan, N., McCallion, P., McCarron, M, Geographical barriers to mental health service care among individuals with an intellectual disability in the Republic of Ireland, Journal of Policy and Practice in Intellectual Disabilities, 37, (4), 2015, p566 - 578 Journal Article, 2015

O'Donovan, M-A., McCarron, M, Moving in later life: What is the impact on older people with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

Shivers, C., McCarron, M, Healthy eating similarities and differences among individuals with Intellectual Disabilities and the general Irish population, IAGG-ER 8th Conference, Dublin, 26th April, 2015 Poster, 2015

Burke, E., McCallion, P., Walsh, JB., McCarron, M, The Bone Status of Adults with Intellectual Disability: Results from the Second Wave of IDs-TILDA, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

McGlinchey, E., McCallion, P., McCarron, M, Cognitive reserve: Implications for research in dementia for people with down syndrome, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015 Poster, 2015

Burke, E., McCarron, M., Walsh, JB., McCallion, P, The feasibility of utilising quantitative ultrasound as a method of objectiviely measuring bone status among older adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

McCarron, M, Understanding the usefulness of Frailty Indices for People with Intellectual Disabiliaty as they age, IAAG-ER 2015 Conference, Dublin, 24-25 April, 2015 Conference Paper, 2015

O'Dwyer, M., Peklar, J., Henman, M., McCarron, M., McCallion, P, Patterns of psychotropic drug use and psychotropic polypharmacy in an ageing population with intellectual disability, 4th Year Student Colloquium, November, 2015 Oral Presentation, 2015

McCarron, M, A Data Driven Approach to Understanding Ageing-focused Support and Services for People with Disabilities , Department of Health, Hawkins house, Dublin 2, 5 March, 2015 Oral Presentation, 2015

McCausland, D., McCallion, P., Cleary,E., McCarron, M, Social Connections for Older People with Intellectual Disabilities in Ireland: Results from Wave 1 of IDS-TILDA, Journal of Applied Research in Intellectual Disabilities, 29, (1), 2015, p71 - 82 Journal Article, 2015 DOI

McCarron, M, Implications for Hospice, Palliative Care and Intellectual Disability Services, Kaleidoscope Conference Invitation, Dublin Castle , 13 May, 2015 Conference Paper, 2015

McGlinchey, E., McCarron, M., Carroll, R., O'Donovan, M-A., McCallion, P, Changes in the level of personal choice in older adults in Ireland in Intellectual Disability: Results from the IDS-TILDA, IAGG-ER 8th Conference, Dublin, 24th April, 2015 Poster, 2015

Burke, S., McCarron, M, Predicting onset of Osteoporosis and anxiety in adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

Burke, EA., McCarron, M, The IDS-TILDA Study - An overview with focus on speech and language, Masterclass for speech and language master students, School of Speech and Language, Trinity College, 9th October, 2015 Oral Presentation, 2015

McDermott, A., Burke, E., McCallion, P., McCarron, M, A descriptive quantitative study into the prevalence of constipation in people with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 25th April, 2015 Poster, 2015

Foran, S., McCarron M, Associations between use of equipment in the performance of activities of daily living and falls in older adults with intellectual disability:, 16th Healthcare Interdisplinary Research Conference, Trinity College, Dublin, 5th November, 2015 Oral Presentation, 2015

Burke, EA., Walsh, J B., McCallion, P., McCarron, M.,, An examination of the bone status of adults with Intellectual Disability, results from the second wave of IDS-TILDA, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

McCarron, M, The Irish Context, , International Exploratory Workshop Palliative Care for People with Intellectual Disability in Europe, Zürich, 23-25 February, 2015 Oral Presentation, 2015

O'Dwyer, M., J. Peklar, N. Mulryan, P. McCallion, M. McCarron, and M. Henman, Patterns of Antiepileptic drug use in the ageing population with epilepsy and Intellectual Disability, ESCP Annual Symposium, Lisbon, 23 - 28 October, 38(2), Internatational Journal of Clinical Pharmacy , 2015, pp589 - 589 Poster, 2015

McCallion, P., Carroll, R., McCarron, M, Type II disbetes in people with intellectual disability as they age, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

Burke, S., Carroll, R., Burke, E., McCallion, P., McCarron, M, Predicting onset of Osteoporosis and anxiety in adults with Intellectual Disability, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

McDermott, A., Burke, E., Carroll, R., McCallion, P., McCarron, M, Examining the prevalence of constipation in older adults with an intellectual disability, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

Burke, EA., Carroll, R., Walsh, JB., McCallion, P., McCarron, M, Examining the risk factors for bone fragility among of older adults with an intellectual disability in Ireland, WCO-IOF -ESCEO, Milan, 23rd - 29th May, 2015 Poster, 2015

McCarron M, Carroll R, Kelly C, McCallion P, Mortality Rates in the General Irish Population Compared to those with an Intellectual Disability from 2003 to 2012., Journal of applied research in intellectual disabilities, 28, (5), 2015, p406 - 413 Journal Article, 2015 DOI

O'Donovan, M-A., McCarron, M, Participants who had moved residence since wave 1 and the process involved in moving: A profile of the population and the types of challenges and supports relevant to them., Health Research Board ( Housing Committee), Dublin, 2015 Oral Presentation, 2015

Caoimhin MacGiolla, Phadraig., McCallion, P., Nunn, J., McCarron, M.,, Dentate status of older people in Ireland with and without Intellectual Disability, IAGG-ER 8th Conference, Dublin, 25th April, 2015 Poster, 2015

McCarron, M., Caroll, R., Burke, E., O'Dwyer, M, Frailty indices for people with Intellectual Disability as they age, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015 Poster, 2015

Burke, EA., McCarron, M, Results form the IDS-TILDA study wave 2: Determinants of health among adults with an intellectual disability, Speech and Language Department Seminar, Trinity College, Dublin, 24th November, 2015 Oral Presentation, 2015

Burke, EA., McCallion, P., Walsh, JB., McCarron, M, An investigation into the bone health and bone quality among older adults with an intellectual disability in Ireland., Annual Medical Conference, Irish Osteoporosis Society , Trinity College, 31st October, edited by Dublin , 2015 Oral Presentation, 2015

O'Donovan, M-A., McCarron, M, Transitions in living arrangement; Insights into the process of moving for older people with an intellectual disability, Department of Health: Value for Money, Dublin , 2015 Oral Presentation, 2015

McCarron, M, Palliative Care for People with Intellectual Disability in Europe: The Irish Context, International Exploratory Workshop, Zurich, 24th February, 2015 Oral Presentation, 2015

Ling J, Payne S, Connaire K & McCarron M, Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model, Child: Care Health and Development, 42, (1), 2015, p51 - 59 Journal Article, 2015 DOI

People with disabilities entering the Third Age. In E.G. Iriarte, R. McConkey, & R Gilligan, & (Eds.) Disability and Human rights: Global perspectives. in, Disability and Human Rights: Global Perspectives, London, Palgrave McMillan, 2015, pp217 - 230, [McCallion, P., McCarron, M] Book Chapter, 2015

O'Dwyer, M., Belton, A, Burke, E., Mulryan, N., Pekar, J., McCallion, P, McCarron, M., Henman, M, Antipsychotics in older people with ID: Prevalence and associated risks, IAGG-ER 8th Conference, Dublin, 25th April, 2015 Oral Presentation, 2015

Mac Giolla, Phadraig C., Burke, E., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in ireland, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

McCarron, M, Meeting the needs of people with intellectual disability and dementia , Dementia: Putting strategies and research into practic, Ljubljana, Slovenia , 2-4 September, 2015 Conference Paper, 2015

O'Donovan, M-A., McCarron, M, Moving in later life: What is the impact on older people with intellectual disability?, Sphere Network Conference, Dublin, 2015 Poster, 2015

McCarron, M, Dementia & Ageing Services Manageables, National Federadion Voluntary Bodies, 2nd June, 2015 Oral Presentation, 2015

McCausland, D., Brennan, D., McCallion, P., McCarron, M, Challenging Community Policy for people with intellectual disabilities, 12th Conference of the European Sociological Association, Prague, 25-28 August, 2015 Conference Paper, 2015

MacGiolla Phadraig C., McCarron M. , Burke E., Cleary E., McGlinchey E., McCallion P., Nunn., J., Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Journal of Public Health Dentistry, , 75, (2), 2015, p101 - 108 Journal Article, 2015 DOI

Cronin, P., Hynes, G., Breen, M., McCarron, M., McCallion, P., & O'Sullivan, L. , Between worlds: the experiences and needs of former family carers, Health & Social Care in the Community, 23, (1), 2015, p88 - 96 Journal Article, 2015 DOI TARA - Full Text

O'Dwyer, M., McCarron, M., McCallion, P, Henman, M, Prevalence and factors associated with high anticholinergic burden in ageing people with Intellectual Disabilities in Ireland, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015 Poster, 2015

Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Examining the bone health of older adults with intellectual disability, Irish Gerontological Society PhD Conference, Education Centre, Our Lady's Hopice, Harolds Cross, Dublin 6, 2015 Oral Presentation, 2015

Successful implementation of a strategic planning process to address services system wide Dementia needs for people with an Intellectual Disability and their Caregivers in, Intellectual Disability & Dementia, Kingsley London, K Watchman, 2014, [McCarron, M., McCallion, P., Reilly, E., & Mulryan, N] Book Chapter, 2014

McCallion, P., McCarron, M, Understanding the potential of re-diabetes screening to predict future type 2 diabetes among people with intellectual diabilities, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Burke. EA., McCarron, M., McCallion, M, I'm not ready yet, what people with an intellectual disability say about growing older and retirement in Ireland, Royal College of Surgeons, Dublin, June, 2014 Oral Presentation, 2014

McCarron, M, Burke, E, McCallion, P, Swinburne J, Carroll, M, What people with an intellectual disability say about growing older and retirement in Ireland, Dortmund, March, 2014 Oral Presentation, 2014

May, P., Hynes, G., McCallion, P., Payne, S., Larkin, P., McCarron, M, Policy analysis: Palliative care in Ireland, Health Policy, 115, (1), 2014, p68 - 74 Journal Article, 2014 DOI TARA - Full Text

McCausland, D., Carroll, R., McCarron, M., McCallion, P, Social participation for older people with intellectual disabilities living in different residential settings in Ireland: Results from wave 2 of the IDs-TILDa study on ageing, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCallion, P., Hastings, P., McCarron, M, Understanding increasing longevity for people with intellectual disability: Findings from New York state administrative data, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Burke, E., McCallion P., & McCarron, M., Advancing Years, Different Challenges: Wave 2 IDSTILDA Findings on the ageing of people with an intellectual disability, Trinity College, September, 2014, p1 - 178 Report, 2014 DOI TARA - Full Text

McCausland, D., McCarron, M, A study of social participation for older people with an Intellectual Disability in Ireland, Tung Wah Group Visit, Trinity College, Dublin, May , 2014 Oral Presentation, 2014

O'Farrell, J., McCarron, M, Palliative care for adults with intellectual disabilities in Europe, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Burke, E., McCarron, M., Carroll, R., Cleary, E., McCallion, P, Health concerns for adults with intellectual disability as they grow older, 4th Year Student Colloquium, November, 2014 Oral Presentation, 2014

Burke, EA., McCarron, M, The intellectual disability supplement to the Irtish Longitudinal study on ageing; Research among older adults with intellectual disability., 4th Year RNID Student Nurses, Trinity College, Dublin, 2014 Oral Presentation, 2014

Dunne, P., McCarron, M, When ageing in place is no longer viable - Transitions to a higher support home for persons with an intellectual disability and dementia, IASSID, Vienna, July, 2014 Oral Presentation, 2014

O'Dwyer, M., McCarron, M, Medication and policy implication, HSE & DOH, June, 2014 Oral Presentation, 2014

Burke, E., McCarron, M., Walsh, JB., McCallion, P, Structured feedback from older adults with an intellectual disability on the experience of attending for a heatlh assessment: Results form a pilot study, IASSID, Vienna, July, 2014 Poster, 2014

Wormwald, A., McCallion, P., McCarron, M, An examination of loneliness and its health effects as experienced by older people with an intellectual disability, Irish Gerontological Society, Harolds Cross, Dublin, 2014 Oral Presentation, 2014

Mac Giolla, Phadraig C., El-Helaali, R., Nunn, J H., Burke, E., McCallion, P., McGlinchey, E., McCarron, M , National levels of reported difficulty in tooth and denture cleaning among an ageing population with intellectual disabilities., 15, (3), 2014, p48 - 53 Journal Article, 2014 DOI

Griffiths, M., McCarron, M., McCallion, P., Doherty, S., Cleary, E, Exploring the differences in carer strain in sibling and parent carers of older people with an intellectual disability in Ireland, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Serving an Elderly Population. In M. Agran, F. Brown, C. Hughes, C. Quirk, & D. Ryndak. Equality & Full Participation for Individuals with Severe Disabilities in, A Vision for the future, Baltimore, Paul H Brookes, 2014, pp319 - 348, [Bigby, C., McCallion, P., & McCarron, M] Book Chapter, 2014

O'Farrell, J., McCallion, P., Ryan, K., Connaire, K., McCarron, M, Understanding equality and inclusion in palliative care: Identifying and addressing the needs of people with intellectual disability., 8th World Congress of the European Association for Palliative Care, 2014 Poster, 2014

McGlinchey, E., McCarron, M., McCallion, P, Cognitive reserve: Implications for research in dementia for people with down syndrome, IASSID, Vienna, July, 2014 Poster, 2014

O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence and patterns of medicine use in ageing people with intellectual disability., Irish Gerontology Society, Harold's Cross, 23rd May, 2014 Oral Presentation, 2014

The challenges of palliative care policy implementation in acute care in, Giving Voice in a Multi-Voiced environment , London, MacMillian Publishers Ltd, 2014, pp133 - 134, [Hynes, G., Coghlan, D. McCarron, M] Book Chapter, 2014

McCarron, M., Carroll, C., Kelly, C., McCallion, P, Variations in age of mortality by gender and level in intellectual disability: A population level study of mortality among people with intellectual disabilities in Ireland, IASSID, Vienna, July , 2014 Oral Presentation, 2014

Cleary, E., McCallion, P, McCarron, M, Dual sensory impairment among older people in Ireland: Comparison between a cohort of people with intellectual disabilities and a cohort of people aged 50 years and older, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McGlinchey, E., McCarron, M., McCallion, P, Examining the usefulness of measures of executive function in individuals with down syndrome: A comparative review, IASSID, Vienna, July, 2014 Poster, 2014

Mac Giolla, P., McCarron, M, Effective skills for the maintenance of oral health in people with intellectual disability, 4th Year Student Colloquium, November, 2014 Oral Presentation, 2014

McCarron, M, Carroll, R., Kelly, C., McCallion, P, To understand differing patterns of age of death by gender and level of intellectual disability for people with intellectual disability in Ireland, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Heladi, R., MacGiolla, P., McCallion, P., Burke, E., McGlinchey, E., Nunn, J., McCarron, M, DIs-TILDA: Older adults with intellectual disabilities reported difficulty regarding oral hygiene, TCD Research Education Day, Trinity College Dublin, October, 2014 Poster, 2014

McCarron, M., Carroll, R., McGlinchey, E., Cleary, E., McCallion, P, Contributing toward policy inplications and emerging health and social issues, NDA, Dublin, November, 2014 Oral Presentation, 2014

Burke, E., McCarron, M., Swinburne, J., McGlinchey, E., Carroll, R., McCallion, P, What it's like to grow older: The ageing perceptions of people with intellectual disability in Ireland. , Journal of Applied Research in Intellectual Disability, 52, (3), 2014, p205 - 219 Journal Article, 2014 DOI

Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M, Similarities and differences in older life stages of people with intellectual disability compared to other citizens, Dortmund, March, 2014 Oral Presentation, 2014

O'Dwyer, M., Peklar, J., Maidment, I., McCallion, P., McCarron, M., Henman, M , Prevalence and factors associated with high anticholinergic burden among an Ageing Population with Intellectual Disability in Ireland, Journal of Applied Research in Intellectual Disabilities., 4th IASSID (International Association for the Scientific Study of Intellectual and Developmental Disabilities) European Congress, Vienna, July, 2014, edited by Oulette-Kuntz H, Murphy G. , 27, (4), Wiley Blackwell, 2014, pp325 - 335 Oral Presentation, 2014 DOI

McCarron, M., O'Dwyer, M., Burke, E., McGlinchey, E., & McCallion P, Epidemiology of Epilepsy in older adults with an intellectual disability in Ireland: Associations and Service Implications, American Journal on Intellectual & Developmental Disabilities, 119, (3), 2014, p253 - 260 Journal Article, 2014 URL

Shivers, C., McCarron, M., McCallion, P, Acceptability of a multimedia life stories platform in a residential home for individuals and dementia and intellectual disability, IASSID, Vienna, July, 2014 Poster, 2014

McCarron, M, Buuilding longitudinal prevalence - overview, IASSID, Vienna, July , 2014 Oral Presentation, 2014

O'Donovan, M-A., McCarron, M, Sovial Issues - Living transitions, NDA, Dublin, November, 2014 Oral Presentation, 2014

O'Farrell, J., McCarron, M, Exploring carers' experience of end of life for people with intellectual disabilities as they age, IASSID, Vienna, July, 2014 Oral Presentation, 2014

O'Farrell, J., McCallion, P., Ryan, K., Connaire, K., McCarron M.,, Exploring end of life experiences of older adults with an intellectual disability in Ireland, Irish Gerontological Society, Harolds Cross, Dublin, 2014 Oral Presentation, 2014

O,Donovan, M-A., McCarron, M, Social Issues - Living transitions, HSE &DOH, Dublin, June, 2014 Oral Presentation, 2014

Burke, E., McCarron, M., Walsh, JB., McCallion, P, Debeloping a baseline picture of the bone health status of older adults with intellectual disabilities in Ireland, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCausland, D., McCarron, M., McCallion, M., Brennan, D, Social relationships for older people with an intellectual disability , 'Somebody to love' Seminar MSc in Disability Studies, Trinity College, 25th April, 2014 Oral Presentation, 2014

Burke, EA., McCallion, P., McCarron, M., , Bone health and people with intellectual disability. A comprehensive approach to health and health care for people with intellectual disabilities as they age, IASSIDD Academy on Education, Teaching and Research, Vienna, July, 2014 Oral Presentation, 2014

McCausland, D., McCarron, M, Social engagement, NDA, Dublin, November, 2014 Oral Presentation, 2014

Shivers, C., McCarron, M., McCallion, P, Literacy and numeracy in an ageing population of individuals with intellectual and developmental disabilities, IASSID, Vienna, July, 2014 Poster, 2014

O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, The anticholinergic burden of medicines use in an ageing population with intellectual disability in Ireland, All Ireland School of Pharmacy Conference, Trinity College, Dublin, 2014 Poster, 2014

Begley, C., McCarron, M., Huntley-Moore, S., Condell, S., Higgins, A, Successful research capacity building in academic nursing and midwifery in Ireland: an exemplar. , Nurse Education Today , 34, (5), 2014, p754 - 760 Journal Article, 2014 TARA - Full Text DOI

Caoimhe MacGiolla, P., McCallion, P., Burke, E., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in Ireland, IASSID, Vienna, July , 2014 Oral Presentation, 2014

McCarron, M, Unlocking the determinants of successful ageing: The intellectual disability supplement to the Irish Longitudinal study on Ageing, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McGlinchey, E., McCarron, M., McCallion, P, Developing an understanding of executive functioning in adults with down syndrome: What is its impact on the ageing brain, 15th Healthcare Interdisciplinary Research Conference & Student Colloquim, November, 2014 Oral Presentation, 2014

Griffiths, C., Keenan, P., McCausland, D., Hynes, G., McCarron, M., McCallion, P, Engineering change in the culture and practices of a service for people with intellectual disability., Journal of Applied Research in Intellectual Disabilities, Pathways to Inclusion 4th International IASSIDD Europe Regional Congress, Vienna, 14th-17th July 2014, 27, (4), 2014, pp359 - 359 Conference Paper, 2014

Burke, E., McCallion, P., Walsh, JB., McCarron, , Bone health and the older adult with Intellectual Disability in Ireland - preliminary results from IDS-TILDA, HSE & DOH, June , 2014 Oral Presentation, 2014

McCarron, M, Perspectives on Ageing with Intellectual Disability, International Conference , Dortmund, 21-22 march, 2014 Oral Presentation, 2014

McCarron, M., Carroll, R., McGlinchey, E., Cleary, E., McCallion, P, Utility of a frailty index in older adults with an intellectual disability: Preliminary findings for the Irish Longitudinal Study on Ageing (IDS-TILDA), IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCarron, M., McCallion, P., Reilly, E., Mulryan, N, A prospective 14-year longitudinal follow-up of dementia in persons with Down Syndrome., Journal of intellectual disability research , 58, (1), 2014, p61 - 70 Journal Article, 2014 DOI

Burke, E., McCarron, M, A Changing health profile, NDA, Dublin, November, 2014 Oral Presentation, 2014

O'Farrell, J., Ryan, K., McCallion, P., McCarron, M, Equality and inclusion in palliative care: Pathways at end of life for older people in an intellectual disability, 15th Healthcare Interdisciplinary Research Conference & Student Colloquium, November, 2014 Oral Presentation, 2014

O'Dwyer, M, Belton, A., Peklar, J., Maidment, I., McCallion, P., McCarron, M., Henman, M, Anticholinergic burden in older adults with intellectual disability: Relations ships with multimorbidity and adverse effects, IGS 62nd Annual and Scientific Meeting, Radisson Blu Hotel, Galway, 9 - 11 October, 2014 Poster, 2014

Mulryan, N., Cleary, E., Carroll, R., Lawlor, B., McCallion, P., McCarron, M, IDS-TILDA Wave II: First report of mental health variables, IASSID, Vienna, July, 2014 Oral Presentation, 2014

O'Dwyer, M., Peklar, J., Belton, A., McCallion, P., McCarron, M., Henman, M, Prevalence and Predictors of Multiple Medicines Use among an Ageing Population with Intellectual Disability in Ireland., Journal of Applied Research in Intellectual Disabilities., 4th IASSID (International Association for the Scientific Study of Intellectual and Developmental Disabilities) European Congress, Vienna, July, 2014, edited by Oulette-Kuntz H, Murphy G. , 27, (4), 2014, pp297- Oral Presentation, 2014 DOI

Burke, E., McCarron, M, A Preliminary examination of the bone healt of older adults with intellectual disability in Ireland - IDS-TILDA Wave 1, Tung Wah Group Visit, Trinity College, Dublin, May, 2014 Oral Presentation, 2014

McCausland, D., McCarron, M, Social engagement, HSE & DOH, June, 2014 Oral Presentation, 2014

Mac Giolla Phadraig, C., Burke, E., McCallion, P., McGlinchey, E., McCarron, M., Nunn, J, Dental attendance among older adults with intellectual disabilities in Ireland., Special Care in Dentistry, 34, (6), 2014, p265 - 272 Journal Article, 2014 DOI

Burke, E., McCallion, P., McCarron, M, Bone health and people with an intellectual disabilty, IASSID, Vienna, July, 2014 Poster, 2014

Mulryan, N., Cleary, E., Carroll, R., Lawlor, B., McCallion, P., McCarron, M, Comparison of sleep parameters and associated factors in a matched nationally representative population sample in persons with and without intellectual disabilities, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Burke, E., McCallion, P., Walsh, JB., McCarron, M, Supporting older adults with intellectual disabilities to engage in Health Screening: Lessons learned from the intellectual disability supplement to the Irish longitudinal study on ageing, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCallion, P., McCarron, M., Burke, E, A comprehensive approach to health and health care for people with intellectual disability as they age, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Mac Giolla, P., McCallion, P., McGlinchey, E., Nunn, J., Burke, E., McCarron, M, Older adults in Ireland have poorer oral heatlh outcomes if they have intellectual disabilities, GERR, November, 2014 Poster, 2014

Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Developing a baseline picture of the bone health status of older adults with an Intellectual disability in Ireland, WCO_IOF ESCEO Seville, March, 2014 Poster, 2014

Responding to the Challenges of Service Development to address Dementia needs for People with an Intellectual Disability in, Intellectual disability and dementia: Research into practice', London, Jessica Kingsley Publishers , 2014, pp241 - 269, [McCarron M, McCallion, P., Reilly E., Mulryan, N.,] Book Chapter, 2014 URL

McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Examining the area of employment in older adults with an intellectual disability in Ireland, Joyrnal of Applies Research in Intellectual Disabilities, 26, (4), 2013, p335 - 343 Journal Article, 2013

Burke, EA., McCallion, P., McCarron, M, Osteoporosis and people with Down syndrome: A preliminary descriptive examination of the IDS-TILDA Wave 1 results (Winning entry), Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, Internation Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston, September, 2013 Oral Presentation, 2013

O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence and Patterns of Psychotropic Drug Use and Psychotropic, Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, Irish Journal of Medical Science , 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September 2013, 182, (6), 2013 Oral Presentation, 2013 DOI

McCallion, P., Burke, E., Swinburne, J., McGlinchey, E., Carroll, R., McCarron, M, The influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., The Health Well, 4, 2013, p749 - 756 Journal Article, 2013 DOI TARA - Full Text

McCausland, D., Burke, E., McGlinchy, E., Swinburne, J., Cleary, E., McCarron, M., McCallion, P , Use of Transport for Older People with Intellectual Disability: Results from Wave 1 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Irish Journal of Medical Science, 61st Annual&Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September 2013, 182, (6), 2013 Poster, 2013

McCarron, M., Swinburne, J., McGlinchey, E., Burke, E., McCallion, P, Patterns of multimorbidity in an ageing population of people with an intellectual disability: Results from the intellectual disability supplement of the Irish Longitidinal study on Ageing (IDS-TILDA), 61st Annual and Scientific meeting of the Irish Gerontological Society, 2013 Oral Presentation, 2013

Daly, L., McCarron, M., Higgins, A., McCallion, P, 'Sustaining Place' - a grounded theory of how informal carers of people with dementia manage alterations to relationships within their social worlds., Journal of Clinical Nursing, 22, (3-4), 2013, p501 - 512 Journal Article, 2013 DOI

Burke, EA,. McCarron, McGlinchey, E., McCallion, P, Exploring a picture of ageing for people with an intellectual disability in Ireland, Research and practice seminar, St Michael's House, Dublin, November, 2013 Oral Presentation, 2013

McCarron, M, A Picture of Oral Health in Older Adults with an Intellectual Disability in Ireland: Policy & Educational Implications, 3rd Research Week - International Symposium of College of Oral Medicine, Taiwan, May, 2013 Oral Presentation, 2013

May P, Hynes G, McCallion P, Payne S, Higgins A, Larkin P, McCarron, M, Challenges in increasing regional equity in palliative care service provision in Ireland , European Journal of Palliative Care, 20, (3), 2013, p130 - 133 Journal Article, 2013

Understanding the similarities and differences in aging with an intellectual disability: Linking Irish general population and intellectual disability datasets in, editor(s)R. Urbano , Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families , New York, Academic Press, 2013, pp206 - 233, [McCallion, P., Swinburne, J., Burke, E., McGlinchey, E., McCarron, M.] Book Chapter, 2013 DOI

Burke, E., McCallion, P., & McCarron, M., Osteoporosis and people with Down syndrome; a preliminary descriptive examination of the IDS-TILDA Wave 1 results, . Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, September, 2013 Oral Presentation, 2013

Mac Giolla Caoimhin, P; McCallion, P., Nunn, J., Burke, E., McGlinchey, E., Cleary, E., McCarron, M, Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Gerondontology, 75, (2), 2013, p101 - 108 Journal Article, 2013

McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Carroll, R., McCallion, P, Patterns of multimorbidity in an older population of persons with an intellectual disability: results from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA)., Research in developmental disabilities, 34, (1), 2013, p521 - 527 Journal Article, 2013 DOI TARA - Full Text

McCarron, M., McCausland, D., Keenan, P., Griffiths, C., Hynes, G., McCallion, P, A Collaborative Initiative to Implement Person Centred Practice, School of Nursing & Midwifery, Trinity College Dublin, 2013 Report, 2013

McCarron, M., McCausland, D., Developing an Understanding of 'Community' for Older People with Intellectual Disability (ID): What can we learn from the Sociological and Equality Literature? , 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

O'Dwyer, M., Peklar, J., Henman, M., McCallion, P, McCarron, M., Patterns, Prevalence and Indications for Medicine Use among an Ageing Population with Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

McCallion, P., & McCarron, M., Commentary: Deaths of people with intellectual disabilities in the UK, The Lancet, 383, 2013, p853 - 855 Journal Article, 2013 DOI

McGlinchey, E., McCallion, P., Burke, E., McCarron, M., Examining the area of Employment for Adults with an Intellectual Disability, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Oral Presentation, 2013

Griffiths C, Keenan P, McCausland D, Hynes G, McCarron M and McCallion P, My Needs, My Wants, My Aspirations. The findings of a collaborative initiative to implement person-centred care in a service for people with intellectual disability: A case study. , 13th Annual Research Conference, The Catherine McAuley School of Nursing and Midwifery, University College Cork. Ireland. , University College Cork. Ireland, 8th November 2013, 2013 Meeting Abstract, 2013

McCarron, M, Embedding the needs of people with intellectual disability within national dementia policies, Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, 2013 Oral Presentation, 2013

O'Dwyer, M., Peklar, J., Henman, M., McCallion P., McCarron, M, Patterns and Prevalence of Medicines Use in an Ageing Population with Intellectual Disability in Ireland, All-Ireland Schools of Pharmacy Conference, Belfast, 2013 Poster, 2013

O'Dwyer, M., Peklar, J., Henman, M., McCallion, M., McCarron, M., Patterns and Prevalence of Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, Doctoral Colloquium of the Annual Interdisciplinary Research Conference, School of Nursing and Midwifery, Trinity College Dublin, 2013 Oral Presentation, 2013

McCausland, D., McCarron, M., McCallion, P., Brennan, D, An exploration of the experiences of community for older people with intellectual disability in Ireland, 14th Helathcare interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College, November, 2013 Oral Presentation, 2013

O'Dwyer ,M., Peklar, J., Henman, M., McCallion, P., McCarron, M, Patterns and Prevalence of Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, 4th Annual International College of Mental Health Pharmacy Conference, Hinckley, United Kingdom, October, 2013 Oral Presentation, 2013

May, P., Hynes, G., McCallion, P., Payne, S., Larkin, P., Higgins, A., & McCarron, M., Implementation challenges in increasing equity in palliative care in Ireland, European Journal of Palliative Care, 20, (3), 2013, p130 - 133 Journal Article, 2013

Lambert, V., Glacken, M., McCarron, M, Using a range of methods to access children's voices. , Journal of Research in Nursing, 18, (7), 2013, p601 - 616 Journal Article, 2013 DOI TARA - Full Text

O'Donovan, M. A., McCallion, P., & McCarron, M. , Residence and health service utilization of older people with an intellectual disability, Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, 2013 Poster, 2013

Lambert, V., Glacken, M., McCarron, M, Meeting the information needs of children in hospital, Journal of child health care, 17, (4), 2013, p338-353 Journal Article, 2013 DOI TARA - Full Text

Burke, E., McCarron, M., McCallion, P. , The Silent Thief of Bone: Developing a baseline picture of the bone health of adults with an intellectual disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

McCallion P, Burke E, Swinburne J, McGlinchey E, Carroll R & McCarron M, Influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., Health, 5, (4), 2013, p749 - 756 Journal Article, 2013 DOI TARA - Full Text

McCarron, M., McGlinchey,E., Burke, E., O'Dwyer, M., McCallion, P., Epidemology of epilepsy in Older Adults with an Intellectual Disability, Irish Journal of Medical Science Volume 182 Supplement 6 DOI 10.1007/s11845-013-0985-z, 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September, 2013 Poster, 2013

McCausland, D., McCarron, M., McCallion, P., Brennan, D, An exploration of the experiences of community for older people with intellectual disability in Ireland, 14th Helathcare interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College, November, 2013 Oral Presentation, 2013

Foran, S., McCarron, M., & McCallion, P, Expanding assessment of fear of falling among older adults with an intellectual disability, International Scholarly Research Notices , 2013, 2013, p9 Journal Article, 2013 DOI TARA - Full Text

McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., McCallion, P, Patterns of multimorbidity in an ageing population of people with an intellectual disability: Results from the intellectual disability supplement to the Irish longitudinal study on ageing (IDS-TILDA), Irish Journal of Medical Science , 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 2013, 182, (6), 2013, pp179-296 Published Abstract, 2013 TARA - Full Text DOI

O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence, patterns and indications for medicine use among an ageing population with intellectual disability in Ireland, 14th HJIRC, School of Nursing, Trinity College, Dublin, November, 2013 Poster, 2013

McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Exploring the Issue of Employment for Adults with an Intellectual Disability in Ireland, Journal of applied research in intellectual disabilities, 26, (4), 2013, p335 - 343 Journal Article, 2013 DOI

Burke, E., McCallion, P., McGlinchey, E., McCarron, M., , The Ageing Perceptions of Older Adults with an Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November 2013, 2013 Conference Paper, 2013

Amado, A.N., Stancliffe, R.J., McCarron, M., McCallion, P, Social Inclusion and Community Participation of Individuals with Intellectual/Developmental Disabilities, Intellectual & Developmental Disabilities. Intellectual and Developmental Disability, 51, (5), 2013, p360 - 375 Journal Article, 2013 DOI

McCarron, M., Reilly, E. & Dunne, P,, Achieving Quality Environments for Person Centred Dementia Care, No, Trinity College Dublin , 2013 Book, 2013

O'Dwyer, M., Peklar, J., Henman, M., McCallion, P, McCarron, M, Patterns ,Prevalence and Appropriateness of Medicine Use in an Ageing Population with Intellectual Disability in Ireland, Pharmaceutical Care Network Europe Working Conference, , Berlin, February, 2013 Poster, 2013

Griffiths, M., McCallion, P., & McCarron, M., Sibling Caregivers of Adults Aging with Intellectual or Developmental Disabilities, Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, September, 2013 Oral Presentation, 2013

McCarron, M., McGlinchey, E., Burke, E., O'Dwyer, M., McCallion, P, Prevalence of Epilepsy in Older Adults with an Intellectual Disability in Ireland: Associations and Service Implications, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

McCarron, M., McCausland, D., Keenan, P., Griffiths, C., Hynes, G., McCallion, P. , A Collaborative Initiative to Implement Person Centred Practice. Report., 2013 Report, 2013

McCarron., M, Swinburne, J., McCallion, P., , IASSID World Congress Key Note Speaker: Building Longitundinal prevalence figures: Findings from IDS-TILDA, IASSID World Congress, Halifax, Canada, July , 2012 Meeting Abstract, 2012

McCarron, M., Reilly, E., Mulryan, N. & McCallion, P., A Prospective Fourteen-year Longitudinal follow-up of Dementia in persons with Down Syndrome., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

Foran. S, McCallion. P, McCarron, M., Fear of falling in older people with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

McCarron, M. & McCallion, P, Understanding roles in the Community: Findings from the Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

Mulryan, N., Lawlor, B., McCallion, P., McCarron, M., Depressive Symptomatology and Sleep Patterns in an Older Irish Population with Intellectual Disability., IASSID World Congress, Halifax, Canada, July 2012, 2012 Meeting Abstract, 2012

Glackin, M., Higgins, A., Sharek, D., McCann, E., Sheerin, F., Breen, M., and McCarron, M, 'You should live for yourself': Older LGBT people's pathways to coping and support'. All Ireland Gerontological Nurses Association 4th Annual conference , Active Ageing for Mental Health: Promoting Positive Attitudes." , Silver Springs Hotel, Cork, Ireland, 7 June, 2012 Conference Paper, 2012

Hynes G, Coghlan D & McCarron M, Participation as a multi-voiced process: Action research in the acute hospital environment. , Action Research , 10, 2012, p293 - 312 Journal Article, 2012 DOI

Meeting the End of Life Needs of Older Adults with Intellectual Disabilities in, editor(s)E. Chang & A. Johnson , Contemporary and Innovative Practice in Palliative Care. , Rijeka, Croatia: Intech, 2012, pp255 - 270, [McCallion, P., McCarron, M., Fahey-McCarthy, E., & Connaire, K.] Book Chapter, 2012

Hynes G, Coghlan D, McCarron M, Developing Practice in Healthcare: The contribution of Building to Negotiating the Tensions among practical, Professional and Organisational Knowing., International Journal of Action Research, 8, (2), 2012, p159 - 184 Journal Article, 2012 DOI

McGlinchey, E., McCallion, P., Swinburne,J., Carroll, R., McCarron, M., Behavioural health of older adults with an Intellectual Disability: Findings from the Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

Mulryan, N., Lawlor, B., McCallion, P., McCarron, M., Prevalence of Mental Health Issues in Older Adults with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July 2012, 2012 Meeting Abstract, 2012

McGlinchey, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., Life Long Learning and Employment in Older Irish Adults with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July, 2012 Oral Presentation, 2012

Hynes G, Stokes A, McCarron M, Informal care-giving in advanced chronic obstructive pulmonary disease: lay knowledge and experience., Journal of clinical nursing, 21, (7-8), 2012, p1068-77 Journal Article, 2012 DOI

Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., I'm Not Ready Yet: What people with an Intellectual Disability say about growing older and retirement in Ireland., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

Glacken, M., Higgins, A., Sharek, D., McCann, E., Sheerin, F., Breen, M. & McCarron, M. , Older LGBT People's Pathways to Coping and Support. , All Ireland Gerontological Nurses Association 4th Annual Conference, Silver Springs Hotel, Cork, 7th June, 2012 Oral Presentation, 2012

McCarron, M., Swinburne. J., Burke. E., McGlinchey, E., & McCallion, P, Physical health and multiple morbidity in Irish people with an intellectual disabiltiy as they age., IASSID World Congress, Halifax, Canada, July , 2012 Oral Presentation, 2012

McCallion, P., Swinburne, J., Burke, E., McGlinchey,E., Carroll, R., McCarron, M., Health Care Utilisation by Adults with an Intellectual Disability Ageing in Ireland., IASSID World Congress, Halifax, Canada, July, 2012 Oral Presentation, 2012

Hynes G, Stokes A, McCarron M. , Informal care-giving in advanced chronic obstructive pulmonary disease:, Informal care-giving in advanced chronic obstructive pulmonary disease: Lay knowledge and experience, 21, (7-8), 2012, p1068 - 1077 Journal Article, 2012 DOI

McCallion, P., Burke, E., McCarron, M., Hopes for the Future: The impact of caring for a family member with an Intellectual Disability who is ageing., IASSID World Congress, Halifax, Canada, July 2012, 2012 Meeting Abstract, 2012

Cecily Begley, Mary McCarron, Sylvia Huntley-Moore, Developing Research Capacity in Academic Faculty, INMED Conference, Flexner 100 years on - a return to core principles,, Trinity College Dublin, 18-20 May, 2011 Meeting Abstract, 2011

Lambert V, Glacken M, McCarron M, Employing an ethnographic approach: key characteristics, Nurse Researcher, 19, (1), 2011, p17 - 24 Review Article, 2011 TARA - Full Text DOI

McCarron M. Breen, M., Cronin, P. , Hynes, G., McCallion, P., Between Worlds: The Experiences and Needs of Former Family Carers. School of Nursing & Midwifery, Trinity College Dublin, 2011 Report, 2011 TARA - Full Text

Burke, EA., McCarron, M., Swinburne, J., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., McCallion, P, Solcial connectedness and social participation of older adults with an intellectual disability in Ireland 2011: First results from IDS-TILDA, Irish Nurses and Midwives Organisation Education Day,, Dublin, November, 2011 Oral Presentation, 2011

Lambert V, Glacken M, McCarron M, Communication between children and health professionals in a child hospital setting: a Child Transitional Communication Model., Journal of advanced nursing, 67, (3), 2011, p569-82 Journal Article, 2011 DOI

McCarron M. & McCallion, P. , The first wave findings of the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA). , , 2nd International Conference. Building a Picture of Ageing in Persons with Intellectual Disability: Future Directions for Ageing Well. , Trinity College Dublin, September, 2011 Meeting Abstract, 2011

McCarron, M., McCallion, P., Fahey-McCarthy, E., & Connaire, K. , Staff Perceptions of Essential Pre-requisits Underpinning End-of-Life Care for Persons with Intellectual Disabilitiy and Advanced Dementia, Journal of Policy & Practice in Intellectual Disabilities, 7, (2), 2010, p143 - 152 Journal Article, 2010 DOI

McCarron, M., McCallion, P., Fahey-McCarthy, E., Connaire, K., Dunn-Lane, J., Supporting persons with down syndrome and advanced dementia: Challenges and care concerns, Dementia, 9, (2), 2010, p285-298 Journal Article, 2010 DOI

Hynes, G., McCarron, M., Coghlan, D, ddressing Heteroglot in Action Research. Annual Nursing and Midwifery Research Conference. Faculty of Nursing and Midwifery, RCSI, RCSI Dublin, February 2010, 2010 Meeting Abstract, 2010

McCarron M, McCallion P, Fahey-McCarthy E, Connaire K, The Role and Timing of Palliative Care in Supporting Persons with Intellectual Disability and Advanced Dementia., Journal of Applied Research in Intellectual Disabilities, 24, (3), 2010, p189 - 198 Journal Article, 2010 DOI

Hynes, G., Coghlan, D., McCarron, M., The Heteroglot of Practice in an Action Research Project. 26th European Group of Organizational Studies Colloquium, Lisbon, July 2010, 2010 Meeting Abstract, 2010

Older people with intellectual disabilities in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B (Ed)] Book Chapter, 2009

Dementia (in people with intellectual disability) in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B (Ed)] Book Chapter, 2009

Begley C, McCarron M, Huntley-Moore S., Research capacity building in academic nursing and midwifery, 10th Annual Research Conference, School of Nursing and Midwifery, Trinity College Dublin, November, 2009, pp14 - 14 Oral Presentation, 2009

Fealy, G., McCarron, M., O'Neill, D., McCallion, P., Clarke, M., Small, V., O'Driscoll, A., & Cullen, A. , Effectiveness of gerontologically informed nursing assessment and referral interventions for older persons attending the emergency department: systematic review, Journal of Advanced Nursing, 65, 2009, p934-945. Journal Article, 2009 TARA - Full Text DOI

Dementia nurse specialists in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B ] Book Chapter, 2009

The Test for Severe Impairment. in, editor(s)NY: Springer. , Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities. , 2009, [Mulryan, N., Tyrrell, J., Cosgrave, M., Reilly, E. McCallion, P., & McCarron, M. ] Book Chapter, 2009 DOI

Fahey-McCarthy, E., McCarron, M., Connaire, K., McCallion, P., , Developing an Education Intervention for Staff Supporting Persons With an Intellectual Disability and Advanced Dementia, 6, (4), 2009, p267- Journal Article, 2009 DOI

Hynes, G., Stokes, A., McCarron, M, Informal Care-giving in Advanced Chronic Obstructive Pulmonary Disease (COPD): Current Experiences in the Irish Context, Irish Thoracic Society Meeting Limerick. 2009: November, 2009 Meeting Abstract, 2009

Lambert, V., Glacken, M., McCarron, M., A protection-participation dichotomy: communicating with children in healthcare. 1st International Children's Conference. Children and Young People in a Changing World., Queens University Belfast., 23rd-24th April 2009, 2009 Meeting Abstract, 2009

Neenan, K .,McCarron, M, Connaire, K., Cox, K, Day in Day out. Echoes of Hospice Day Care. 7th Annual Kaleidoscope Conference Pearls and Promises: The changing face of Palliative Care Practice. , Dublin Castle, 11TH -12TH June 2008, 2008 Meeting Abstract, 2008

McCarron, M, Fahey-McCarthy, E., Connaire, K., McCallion, P , Role and Timing of Palliative Care in Supporting persons with Intellectual Disability and Advanced Dementia. , Embracing the Challenge: Citizenship and Dementia. , The Dementia Services Development Centre Northern Ireland. Stormont Hotel. , 6th -8th May 2008, 2008 Meeting Abstract, 2008

Lambert,V., Glacken, M. & McCarron, M, , Visible-ness": The degree to which children are included or excluded in the communication process. Participatory Methods Seminar, Researching Children's Worlds: Sharing Knowledge to Improve Action. Training Event,, Galway , 08-FEB-08 -08-FEB-08, 2008 Meeting Abstract, 2008

Lambert, V., Glacken, M. and McCarron, M., , Getting to grips with Ethnography., 3rd Symposium on Current Developments in Ethnographic Research in the Social and Management Sciences, University of Liverpool. , 03-SEP, 2008 Meeting Abstract, 2008

Lambert, V., Glacken, M., McCarron, M, Communicating with Children in Health Care: Children as Human Becoming and/or Human Beings, 2nd International Conference. Re-presenting Childhood and Youth,, University of Sheffield , 08-JUL, 2008 Meeting Abstract, 2008

Nurse Roles in Supporting Aging Persons with Mental Health Problems in, , Mental Health, Intellectual Disabilities, and the Aging Process, 2008, pp223-237 , [Mccarron, M., Griffiths, C.] Book Chapter, 2008 DOI

Lambert, V., Glacken, M., McCarron, M., , The challenge of communicating with children in a technological age, 10th International Paediatric and Child Health Nursing Conference, Darwin, Northern Territory, Australia , 30-APR-08 -02-MAY-08, 2008 Meeting Abstract, 2008

Hynes, G. & McCarron, M., Identifying Palliative Care Needs of Patients with COPD. , Irish Journal of Medical Science, , 177, 2008 Journal Article, 2008

Neenan K Mc Carron M Connaire K Cox K , Challenges encountered while researching end of life care in a specialist Palliative Care Hospice Day Service in the Republic of Ireland. Royal College of Surgeons in Ireland., Annual International Nursing and Midwifery Research Conference, Royal College of Surgeons in Ireland, 20th-21st Feb, 2008 Meeting Abstract, 2008

Begley C, McCarron M, Huntley-Moore S , Developing research capacity in academic nursing and midwifery National Association for the Integration of Teaching and Learning , Bologna and staff development conference, Trinity College Dublin, 2008, 9-10 Report, 2008

Hynes, G., Stokes, A., McCarron, M, Informal Care-giving in Advanced COPD: Lay knowledge and experience, Ireland, Trinity College Dublin, 2008 Report, 2008

Lambert, V., Glacken, M., McCarron, M, Visible-ness?: The nature of communication for children admitted to a specialist paediatric hospital in the Republic of Ireland, Journal of Clinical Nursing, 17, 2008, p3092 - 3102. Journal Article, 2008 DOI

Lambert, V, Glacken, M, McCarron, M, 'Visible-ness': the nature of communication for children admitted to a specialist children's hospital in the Republic of Ireland., Journal of clinical nursing, 17, (23), 2008, p3092-3102 Journal Article, 2008 TARA - Full Text DOI

McCarron, M, Fahey-McCarthy, E., Connaire, K., McCallion, P , Palliative Care and Persons with Intellectual Disability and Dementia: Recent Innovations and Developments. , 7th Annual Kaleidoscope Conference Pearls and Promises: The changing face of Palliative Care Practice, Dublin Castle , 11TH -12TH June 2008, 2008 Meeting Abstract, 2008

Lambert, V., Glacken, M. and McCarron, M., Communicating with Children in Health Care: A Sociological Perspective. 9th Annual Interdisciplinary Research Conference.Transforming Healthcare through Research Education and Technology, School of Nursing and Midwifery Studies. Trinity College Dublin. , 05-NOV, 2008 Meeting Abstract, 2008

Supporting Families who have Aging Members with Disabilities. in, Walsh, P.N., Carr, A.,O'Reilly, G. ,& McEvoy, J. , The Handbook of Intellectual Disability and Clinical Psychology Practice, London: Routledge., 2007, pp867 - 899, [McCarron, M., & McCallion, P. ] Book Chapter, 2007

Neenan K Mc Carron M Connaire K Cox K , Precious Moments in Hospice Day Care , The 8th International Conference, The Social Context of Death, Dying and, Bath UK., 12-15 September 2007, 2007 Meeting Abstract, 2007

McCallion P., & McCarron M, Perspective on Quality of Life in Dementia Care. , Intellectual and Developmental Disabilities, 45, (1), 2007, p56 - 59 Journal Article, 2007 DOI

Neenan K Mc Carron M Connaire K Cox K , Precious Moments in Hospice Day Mortality , Supplement vol 12 , 2007 Meeting Abstract, 2007

Lambert, V. Glacken, M. & McCarron, M, Being at or brought to the forefront: one dimension of the nature of communication for children admitted to a specialist paediatric hospital in the Republic of Ireland., 3rd International Congress on Pediatric Nursing. Children and Young Peoples Nursing: Looking Forward, Athens, Greece. , 24-AUG-07 -25-AUG-07, 2007 Meeting Abstract, 2007

McCarron, M. & McCallion, P. , ) End of Life Care Challenges for Persons with Intellectual Disability and Dementia: Making Decisions About Tube Feeding, Intellectual and Developmental Disabilities, 45(2) , 2007, p128-131. Journal Article, 2007 DOI

Lambert, V., Glacken, M. & McCarron, M, Being overshadowed: one aspect of the process of communication between children and health care professionals in a paediatric hospital setting, RCN International Nursing Research Conference, Dundee, Scotland. , 01-MAY-07 -04-MAY-07, 2007 Meeting Abstract, 2007

Neenan K Mc Carron M Connaire K Cox K , Day by Day Patients' experiences of Hospice Day Care., School of Nursing and Midwifery Trinity College Dublin 8th Annual Interdisciplinary Research Conference Transforming Healthcare through Research, Education and Technology , 7th - 9th Nov 2007, 2007 Meeting Abstract, 2007

McCarron, M, McCallion, P, End-of-life care challenges for persons with intellectual disability and dementia: making decisions about tube feeding., Intellectual and developmental disabilities, 45, (2), 2007, p128-131 Journal Article, 2007 DOI

McCarron M, Nolan, L., McCallion, P. and Murphy-Lawless, J, Loss of Place-Understanding Dementia Related Stigma from and Irish Perspective, 17th Alzheimer's Europe Conference -Estoril Spain , Estoril Spain , 9th -12th May 2007, 2007 Meeting Abstract, 2007

Nolan, L., McCarron, M., McCallion, P., & Murphy-Lawless, J., Perceptions of Stigma in Dementia: An exploratory study, Dublin, The Alzheimer Society of Ireland, September, 2006, p1 - 116 Report, 2006 URL

McCarron, M., McCallion, P., Reilly, E., & McLaughlin, M. , Encouraging earlier assessment of dementia, IASSID Europe Conference, Maastricht, Holland., 2006 Conference Paper, 2006

Nolan, L. McCarron, M., McCallion, P. and Muprhy-Lawless, J., , 'Stigma in dementia' - reality or myth, supportive or non-supportive? , Irish Journal of Medical Science - Conference Proceedings of 55th Annual Scientific Meeting of the Irish Gerontological Society,, 176, (S6), , 2006, pppS256 - S257. Conference Paper, 2006

McCallion, P., & McCarron, M. , ). Dementia and Carer Burnout: Usefulness of the MBI. IASSID , Europe Conference, Maastricht, Holland, 2006 Conference Paper, 2006

Nolan, L., McCarron, M., McCallion, P. and Murphy-Lawless, J. , Presentation of the findings of Stigma in dementia: an exploratory study', The Right to be Heard, The Alzheimer Society of Ireland, Annual National Conference 2006, Sligo Park Hotel, 18th November , 2006 Conference Paper, 2006

McCallion, P., Maniccia, D., Bashant, J., & McCarron, M. , Systematic Literature Review and a Meta-Analysis of Intervention Effectiveness Findings Addressing Quality of life for Nursing Home Residents with Dementia., Gerontological Society of America Annual Scientific Meeting, Orlando, Florida., 2005 Conference Paper, 2005

McCallion, P., Maniccia, D., Bashant, J., & McCarron, M. , Systematic literature review and a meta-analysis of intervention effectiveness findings. , 15th Alzheimer's Europe Conference, Killarney, Ireland., 2005 Conference Paper, 2005

McCarron, M., McCallion, P., & McLaughlin, M, Findings from a Memory Clinic for Persons with Intellectual Disabilities and Dementia., Gerontological Society of America Annual Scientific Meeting, Orlando, Fl., 2005, 2005 Conference Paper, 2005

McCallion, P., Nickle, T., & McCarron, M., A comparison of reports of caregiver burden between foster family care providers and staff caregivers of persons in other settings, Dementia, 4, (3), 2005, p401 - 412 Journal Article, 2005 DOI

McCarron, M, & McCallion, P, A Revised Stress and Coping Framework , Journal of Policy and Practice in Intellectual Disabilities, 2, 2005, p139 - 148 Journal Article, 2005 DOI

McCarron, M., & McCallion, P, Pain scale for persons with intellectual disabilities and dementia., 15th Alzheimer's Europe Conference, Killarney, Ireland, 2005 Conference Paper, 2005

McCarron M, Gill M, McCallion P, Begley C. , Health co-morbidities in ageing persons with Down Syndrome and Alzheimber's dementia., Journal of Intellectual Disability Research, 49, (7), 2005, p560 - 566 Journal Article, 2005 URL DOI

McCallion, P., McCarron, M., & Force, L.T. , A Measure of Subjective Burden for Dementia Care: The Caregiving Difficulty Scale-Intellectual Disability, Journal of Intellectual Disability Research, 49, (5), 2005, p365 - 371 Journal Article, 2005 DOI

McCarron, M., McCallion, P., & McLaughlin, M, A Memory Clinic for Persons with Intellectual Disabilities and Dementia, 15th Alzheimer's Europe Conference, Killarney, Ireland., 2005, 2005 Conference Paper, 2005

McCarron, M., McCallion, P., O'Brien, J. & Lane J. , Risk factors and impact on survival of tube feeding in persons with Down syndrome and dementia. , 15th Alzheimer's Europe Conference, Killarney, Ireland. , 2005 Conference Paper, 2005

McCarron, M., Assessment of Dementia in Persons with Intellectual Disability: Challenges and Opportunities, The Frontline of Learning Disability, 64, (Winter), 2005, p24 - 27 Journal Article, 2005

McCarron, M., McCallion, P., Fleming, S., Bourke, E., An Investigation of Dependency Levels of Ageing Persons with Intellectual Disability (ID) and the Implications from a Care and Resource Perspective, Dublin, December , 2004, pvi - 102 Report, 2004

McCarron, M., McCallion, P., & Fleming, S , Dependency levels among aging persons with Intellectual Disability (ID) and their care and resource implications, Gerontological Society of America Annual Scientific Meeting, Washington, DC, 2004 Conference Paper, 2004

McCarron, M., & McCallion, P, Staff caregivers of persons with intellectual disabilities (ID) and dementia. A revised stress and coping framework, World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004 Conference Paper, 2004

McCallion, P., & McCarron, M., Best practice in end of life care for persons with intellectual disability (ID) and dementia., World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004 Conference Paper, 2004

Intellectual disabilities and dementia in, editor(s)K. Doka , Living with Grief: Alzheimer's disease, Washington, DC, Hospice Foundation of America, 2004, pp67 - 84, [McCallion, P., & McCarron, M. ] Book Chapter, 2004

McCallion, P., & McCarron, M., Aging and Intellectual disabilities: A review of recent literature., Current Opinion in Psychiatry, 17, (5), 2004, p349 - 352 Journal Article, 2004 DOI

McCallion, P., & McCarron, M, Assessment of Dementia in Persons with Developmental Disabilities, National Alzheimer's Disease Education Conference, Philadelphia, PA., 2004 Conference Paper, 2004

McCarron, M., & McCallion, P, Longitudinal follow-up of persons with Down syndrome (DS) and Dementia: Risk factors and impact on survival of tube feeding, World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004 Conference Paper, 2004

Fleming, S., McCarron, M., Bourke, E., & McCallion, P. , Dependency levels among aging persons with Intellectual Disability (ID) and their care and resource implications. Conference Proceedings, 5th Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2004 Conference Paper, 2004

McCarron, M. , Alzheimer's Dementia in persons with Down syndrome. , Centennial Conference of the Irish Association of Directors of Nursing and Midwifery, Tullamore. , 2004 Conference Paper, 2004

Kirley A, Lowe N. Mullins C, McCarron M, Daly G, Waldman I, Fitzgerald M, Gill M, Hawi Z, Phenotype studies of the DRD4 gene polymorphisms in ADHD: Assocaition with opportional defiant disorder and positive family history., American Journal Of Medical Genetics Part B-Neuropsychiatric Genetics, 131B, (1), 2004, p38 - 42 Journal Article, 2004 URL DOI

McCallion, P., McCarron, M., & Fleming, S, The Pain Symptom Checklist for Persons With Intellectual Disabilities and Advanced Dementia., Gerontological Society of America Annual Scientific Meeting, Washington, DC., 2004 Conference Paper, 2004

McCarron, M., Fleming, S., Bourke, E., & McCallion, P, ). Pain in Persons with Intellectual Disabilities and Advanced Dementia: Development and validation of a pain assessment instrument. Conference Proceedings,, , 5th Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2004 Conference Paper, 2004

Kirley A, Lowe N, Hawi Z, Mullins C, Daly G, Waldman I, McCarron M, O'Donnell D, Fitzgerald M, Gill M, Association of the 480 bp DAT1 allele with methylphenidate response in a sample of Irish children with ADHD., American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics, 121B, (1), 2003, p50-4 Journal Article, 2003

Nurses Roles in Supporting Aging Persons with Intellectual Disability and Mental Health Problems: Challenges and Opportunities for Care in, editor(s)P. Davidson, V. Prasher, & M.P. Janicki , Mental Health, Intellectual Disabilities and the Aging Process., London, Blackwell, 2003, [McCarron M. & Griffiths, C] Book Chapter, 2003

McCallion, P., & McCarron, , Subjective burden among staff caregivers of persons with ID and dementia., Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2003 Conference Paper, 2003

McCarron, M., & McCallion, P., Dementia and Persons with Developmental/ Learning Disabilities: Caring and Being Cared For. , Special Olympics Scientific Symposium, Belfast, N. Ireland., 2003 Conference Paper, 2003

McCarron M, Lawlor BA, Responding to the challenges of ageing and dementia in intellectual disability in Ireland., Aging & mental health, 7, (6), 2003, p413-7 Journal Article, 2003 DOI

McCarron, M., & McCallion, P. , Programming Models in Dementia Care: Lessons from the Intellectual Disabilities Care Field, Gerontological Society of America Annual Scientific Meeting, San Diego, CA., 2003 Conference Paper, 2003

McCallion, P., & McCarron, M. , Objective and subjective burden: Empowering staff to address dementia challenges, National Alzheimer's Disease Education Conference, Chicago, Il., 2003 Conference Paper, 2003

McCarron, M., Gill, M., McCallion, P. Lawlor, B., & Begley, C, Alzheimer's dementia in persons with Down syndrome, Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2003 Conference Paper, 2003

McCallion, P., & McCarron, M, Quality of Life as a Guide to Program Development in Dementia Care: Issues in Definition and Measurement, Gerontological Society of America Annual Scientific Meeting, San Diego, CA., 2003 Conference Paper, 2003

McCallion, P., & McCarron, M, Burden experiences among staff caregivers of persons with ID and dementia., International Roundtable on Aging and Developmental Disabilities, Volos, Greece., 2003 Conference Paper, 2003

Lawlor, B, McCarron, M, Cosgrave, M, Tyrrell, J, Gill, M, , Responding to dementia care needs in persons with Intellectual Disability., IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

A. Kirley, Z. Hawi, G. Daly, M. McCarron, C. Mullins, N. Millar, I. Waldman, M. Fitzgerald and M. Gill, Dopaminergic system genes in ADHD: toward a biological hypothesis, Neuropsychopharmacology, 27, (4), 2002, p607-619 Journal Article, 2002 TARA - Full Text DOI

Building Supports for Women with Intellectual Disabilities Across the Lifespan: A Nursing Perspective with Practical Considerations in, editor(s)P.N. Walsh, & T. Heller , Health of Women with Intellectual Disabilities, London, Blackwell, 2002, pp190 - 203, [McCarron M. and Service K. P. ] Book Chapter, 2002

McCarron M, Gill M, Lawlor B, Begley C. , Time spent caregiving for persons with the dual disability of Down syndrome and Alzheimer's dementia: Preliminary findings. , Journal of Learning Disabilities, 6, (3), 2002, p263 - 279 Journal Article, 2002 DOI

McCallion, P., & McCarron, M. , Subjective burdens/difficulties working with persons with intellectual disabilities and dementia, IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

McCarron, M, Cosgrave, M, Tyrrell, J, Gill, M, Lawlor, B, Association between Age at Onset of Dementia and Age of Menopause in Women with Down's Syndrome. , IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

M. McCarron, M. Gill, B. Lawlor and C. Begly, A pilot study of the reliability and validity of the Caregiver Activity Survey - Intellectual Disability (CAS-ID), Journal of Intellectual Disability Research, 46, (8), 2002, p605-612 Journal Article, 2002 DOI URL

McCarron, M, Gill, M, Lawlor, B, Tyrrell, J, Cosgrave, M, Begley, C. , The Influence of Alzheimer's dementia on Time Spent Caregiving in persons with Down syndrome., IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

Tyrrell J, McCarron M, Cosgrave M, Gill M, Lawlor B. , A longitudinal study of 289 people with Down's syndrome: results at year three., IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

McCallion, P., & McCarron, M., Objective and Subjective Burdens/ Difficulties Working with Persons with Intellectual Disabilities and Dementia, Alzheimer's Disease International Conference, Barcelona, Spain., 2002 Conference Paper, 2002

McCarron, M, Gill, M, Tyrrell J, Cosgrave M, Lawlor B, ApoE e4 is a risk factor for dementia and premature death: Findings from a longitudinal study on persons with Down's syndrome:, World Genetics Conference. Brussels. , 2002 Conference Paper, 2002

Z. Hawi, D. Foley, A. Kirley, M. McCarron, M. Fitzgerald and M. Gill, Dopa decarboxylase gene polymorphisms and attention deficit hyperactivity disorder (ADHD): no evidence for association in the Irish population, Molecular Psychiatry, 6, (4), 2001, p420 - 424 Journal Article, 2001 DOI URL URL URL TARA - Full Text

McCarron, M, Gill, M, Lawlor, B, Begley, C. , A pilot study of Reliability and Validity of the Caregiving Activity Survey-Intellectual Disability (CAS-ID), 11TH IASSID International Roundtable on Aging and Intellectual Disabilities. Luxembourg. , 2001 Conference Paper, 2001

McCarron, M , The impact of caring for persons with a dual disability of Down syndrome and Alzheimer's dementia, 4th Annual Irish Conference Dementia Care- Journal of Dementia Care and DSIDC, Dublin, Ireland., 2001 Conference Paper, 2001

Lawlor BA, McCarron M, Wilson G, McLoughlin M, Temporal lobe-oriented CT scanning and dementia in Down's syndrome., International journal of geriatric psychiatry, 16, (4), 2001, p427-9 Journal Article, 2001 DOI

Kirley, A., Hawi, Z.Dr., McCarron, M., (...), Fitzgerald, M., Gill, M., A review of attention deficit hyperactivity disorder and dopamine system candidate, American Journal of Medical Genetics - Neuropsychiatric Genetics, 105, (7), 2001, p634 Journal Article, 2001

J. Tyrrell, M. Cosgrave, M. McCarron, J. McPherson, J. Calvert, A. Kelly, M. McLaughlin, M. Gill and B. A. Lawlor, Dementia in people with Down's syndrome, International journal of geriatric psychiatry, 16, (12), 2001, p1168-1174 Journal Article, 2001 DOI URL

McCarron, M, Gill, M, Lawlor, B, Begley, C. , The social and economic impact of caring for persons with the dual disability of Alzheimer's dementia and Down syndrome, Transforming Healthcare Through Research, Education &Technology Research Conference. Trinity College, Dublin. Ireland. , 2001 Conference Paper, 2001

Low JN, Storey EJ, McCarron M, Wardell JL, Ferguson G, Glidewell C, , Conformational preferences in 2-nitrophenylthiolates: interplay between intra- and intermolecular forces; structures of (E)-1-(4-methyl-2-nitrobenzenethiolato)-2-phenylethene, S-(2-nitrophenyl)-benzenecarbothiolate and 1-(2-nitrophenylthio)-2,5-pyrrolidinedione, Acta crystallographica. Section B, Structural science, 56, (1), 2000, p58 - 67 Journal Article, 2000 TARA - Full Text

Z. Hawi, M. McCarron, A. Kirley, G. Daly, M. Fitzgerald and M. Gill, No association of the dopamine DRD4 receptor (DRD4) gene polymorphism with attention deficit hyperactivity disorder (ADHD) in the Irish population, American Journal of Medical Genetics Part A, 96, (3), 2000, p268 - 272 Journal Article, 2000 URL DOI URL

Cosgrove, M., Tyrrell, J., McCarron, M., Gill, M., Lawlor, B., A Five Year Follow up Study of Dementia in Persons with Down's Syndrome: Early Symptoms and Patterns of Deterioration., Irish Journal of Psychological Medicine 17(1) 5-11., 17, (1), 2000, p5 - 11 Journal Article, 2000

McCarron, M , Adults' Dementia Care Challenges and needs: are we meeting them?, 'Annual Conference of Social Workers in Intellectual Disability- Dundalk. Ireland., 2000 Conference Paper, 2000

McCarron, M , Alzheimer's dementia and Down syndrome: Emerging Challenges for Professional Caregivers', An Bord Altranais Annual Mental Handicap Seminar - Dublin, Ireland. , 2000 Conference Paper, 2000

McCarron M, Tyrell J, Cosgrave M,et al , Influence of APO-E alleles on risk for dementia in Down's syndrome, World Genetics Conference. Paris., 2000 Conference Paper, 2000

Hawi Z, McCarron M, Kirley A, et al., No association of the dopamine DRD4 receptor (DRD4) gene polymorphism with attention deficit hyperactivity disorder (ADHD) in the Irish population., World Genetics Conference. Paris., 2000 Conference Paper, 2000

McCarron, M , Alzheimer's Dementia in persons with Down syndrome: Implications for carers and service delivery, Annual Nurse Managers Association (Intellectual Disability) -Limerick. Ireland. , 2000 Conference Paper, 2000

McCarron, M., Tyrell, J., Cosgrave, M., Lawlor, B., Gill, M.J., Influence of APO-E alleles on risk for dementia in Down's syndrome., American Journal Medical Genetics, 96, (4), 2000, p178- Journal Article, 2000

McCarron, M. , Some Issues in Caring for persons with the dual diagnosis of Alzheimer's dementia and Down's syndrome, Journal of Learning Disability for Nursing Health and Social Care, 3, (3), 1999, p123 - 129 Journal Article, 1999

McCarron, M, Issues in Caring for Persons with the dual diagnosis of Alzheimer's dementia and Down syndrome. , Alzheimer's Down syndrome Conference. Trinity Centre for Health Sciences, St. James's Hospital, Dublin, Ireland., 1999 Conference Paper, 1999

Cosgrove, M., Tyrrell, J., McCarron, M. , Gill, M., Lawlor, B, Age at onset of dementia and age of menopause in women with Down's syndrome., . Journal of Intellectual Disability Research, 43, (6), 1999, p461 - 465 Journal Article, 1999 DOI

Cosgrave M, Tyrrell J, McCarron M, Gill M, Lawlor, BA, Determinants of aggression, and adaptive and maladaptive behaviour in older people with Down's syndrome with and without dementia., Journal of Intellectual Disability Research, 43, (5), 1999, p393 - 399 Journal Article, 1999 DOI

McCarron, M. , Down's syndrome and dementia, 2nd Annual Irish Conference Dementia Care- Journal of Dementia Care and DSIDC, Dublin, Ireland. , 1999 Conference Paper, 1999

McCarron, M , Alzheimer's Dementia and Down's Syndrome, All Hallows Conference Centre, Drumcondra, Dublin. Ireland. , 1998 Conference Paper, 1998

Cosgrave MP, McCarron M, Anderson M, Tyrrell J, Gill M, Lawlor BA, Cognitive decline in Down syndrome: a validity/reliability study of the test for severe impairment., American journal of mental retardation : AJMR, 103, (2), 1998, p193-7 Journal Article, 1998 DOI

McCarron M, Reflections of a Life in Residential Care., Frontline, Summer, 1990 Review Article, 1990

Non-Peer-Reviewed Publications

McCarron, M., Allen, A.P., Buttery, N., Dennehy, H., Kennelly, S., Corr, C., Dunne, P., Daly, L., McCallion P., McGlinchey, E., Voices of Experience: Building Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability. Brief Report, 5, Trinity College Dublin, January, 2024 Report, 2024 TARA - Full Text DOI

McCarron, M., Daly, L., McCallion, P., Allen, A.P., Buttery, N., Dennehy, H., Kennelly, S., Corr, C., Dunne, P., McGlinchey, E., Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability, 17, Trinity College Dublin, March, 2024 Report, 2024 TARA - Full Text DOI

McCarron, M., Haigh, M., Dann, G., & McCallion, P. (Eds.), Longitudinal Dynamics in the Ageing of People with an Intellectual Disability: Evidence from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 5, 2023 Report, 2023 TARA - Full Text URL DOI

Sheerin, F., Fleming, S., McCarron, M., McCallion, P., May, P., Lalor, G. & D'eath, M. Fleming, S., The Care of Older Adults with Intellectual Disabilities and Complex Age-Related Conditions, National Disability Authority, January, 2023 Report, 2023 URL

McCarron, M., Data from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), National Statistics Board Meeting: Statistics, data and information on disability and related areas, Department of the Taoiseach, Dublin, 29th March, 2023, Central Statistics Office Invited Talk, 2023

McCarron, M., IDS TILDA 10 years on, Shaping the Future of Intellectual Disability Nursing in Ireland Conference 2023 and Beyond"A Partnership Approach., Killashee House Hotel Naas, Co. Kildare., Wednesday 24th May., 2023, HSE Office of Nursing and Midwifery Services Director. Invited Talk, 2023

McCarron, M., Data Driving policy, Practice and healthcare change: The Intellectual disability Supplement to the Irish Longitudinal Study on Ageing., Clinician's Day at St. Michael's House., St. Michael's House, HQ, Ballymun., 3rd October 2023., 2023, St. Michael's House. Invited Talk, 2023

McCarron, M., Developing Post-Diagnostic Dementia Support Guidelines for People with an Intellectual Disability., Dementia Research-Bridging the gap between research, policy and practice., Radisson Blu Royal Hotel, Golden Lane, Dublin., 22/02/2023, 2023, The Alzheimer Society of Ireland. Invited Talk, 2023

McCarron, M, Burke, E-A. & Wormald, A., Building a Better Future for People Ageing with an Intellectual Disability - The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing., Trinity Centre for Ageing and Intellectual Disability/Brother's of Charity Services Ireland Synposium., The Clarion Hotel, Steamboat Quay, Dock Rd, Limerick City., 29th September 2023, 2023 Oral Presentation, 2023

Fallon, M., McGlinchey, E. & McCarron, M., Modifiable lifestyle factors associated with age of dementia diagnosis., Horizon 21 Consortium F2F Meeting., Munich, Germany., 15th - 16th June, 2023 Oral Presentation, 2023

McGlinchey, E., Bray, F., Fortea, J., Yap, M-L., Kennelly, S. & McCarron, M., Complex Joy: A Celebration of Brain Health in People with Down Syndrome, Creative Brain Week 2023, Science Gallery, Trinity College Dublin, 9th March, 2023 Oral Presentation, 2023 URL

McCarron, M., Data Driving policy, Practice and healthcare change: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, FHM&S Postgraduate Research Symposium, Online, 1st June, 2023, University of Chester, UK Invited Talk, 2023

Byrne, K., MacGiolla Phadraig, C., Daly, B., McCarron, M. & McCallion, P., The Oral Health Status of Older People with Intellectual Disabilities in Ireland. Initial Findings., Irish Society for Disability and Oral Health (ISDH) , The Lyrath Estate Hotel, Kilkenny, 23rd June, 2022 Oral Presentation, 2022

McCarron, M., Addressing Inequity in Healthcare for People with Intellectual Disabilities: Improving the Patient Journey., Academic Primary Care Centre (APCC) Lecture , Russell Centre, Cookstown Way, Tallaght, Dublin 24, Thursday, 26th May, 2022, Faculty of Health Sciences Invited Talk, 2022 URL

McCarron, M., Leadership in Health Research and Health Care - My Journey , Local Network Orientation for Atlantic Fellows, GBHI, Lloyd Institute, 7th September, 2022, GBHI Invited Talk, 2022

Darren McCausland, Andrew P. Allen, Margaret Haigh, Fintan Sheerin, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Niamh Mulryan, Philip McCallion and Mary McCarron, Overcoming Adversity: The Continuing Impact of COVID-19 on People Ageing with an Intellectual Disability in Ireland. Findings from the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) COVID-19 Sub-Study, Trinity College Dublin, December, 2021 Report, 2021 URL DOI TARA - Full Text

McCarron, M., Physical Health issues for older adults with an Intellectual Disability: Evidence form the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing(IDS TILDA) , Physical health in people with intellectual disability: Current perspectives and future directions, Virtual, 25th May, 2021, The Royal Society of Medicine Invited Talk, 2021 URL

McCarron, M., McCausland, D., Allen, A.P., Luus, R., Sheerin, F., Burke, E., McGlinchey, E., Flannery, F., & McCallion, P., THE IMPACT OF COVID-19 on People Ageing with an Intellectual Disability in Ireland 2020 - Evidence from Wave 4 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Dublin, December, 2020 Report, 2020 URL

McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS TILDA): Major Findings and Implications for Care, Camphill Community, Kilcullen, 29th February, 2020 Invited Talk, 2020

McCarron, M., Down syndrome and Dementia - Inclusion and Equity, Dementia Care Conference, Online, 29th September, 2020 Invited Talk, 2020

McCarron, M., Building a Successful Career in the Academy: Navigating Multiple Priorities , Duke University School of Nursing, 6th February, 2020 Invited Talk, 2020

McCarron, M., Longitudinal Studies: Dealing with Missing Data , Duke University School of Nursing, 4th February, 2020 Invited Talk, 2020

McCarron, M., Women in Science - Building an enabled world to foster equality, Royal College of Physicians of Ireland, Kildare Street, 9th March, 2020 Invited Talk, 2020

McCarron, M., Understanding key issues in ageing for people with an intellectual disability:Ten years of data from IDS-TILDA, COPE Foundation Services, Cork, 25th February, 2020 Invited Talk, 2020

McCarron, M., Ageing and Intellectual Disability: What it may mean for some people in retirement, Retirement Planning Council of Ireland, Online, 14th October, 2020 Invited Talk, 2020

McCarron, M., COVID-19 and Older Adults with an Intellectual Disability: A TCAID Perspective, SJOG: Online Research Study Day, Online, 18th November, 2020, SJOG Invited Talk, 2020

McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS TILDA): Major Findings and Implications for Care , Trinity College Dublin School of Nursing and Midwifery, 18th February, 2020 Invited Talk, 2020

McCarron, M., The Irish Longitudinal Comparative Study on Ageing in Persons with an Intellectual Disability (IDS-TILDA), Duke University School of Nursing, 5th February, 2020 Invited Talk, 2020

McCarron, M., Understanding key issues in ageing for people with an intellectual disability: Ten years of data from IDS-TILDA, St. Michaels House, Ballymun, 21st January, 2020 Invited Talk, 2020

McCarron, M., Recruitment and Retention in Longitudinal Studies: Building the samples and research questions for IDS-TILDA's next decade, Duke University School of Nursing, 4th February, 2020 Invited Talk, 2020

McCarron, Mary; McCausland, Darren; Allen, Andrew; Luus, Retha; Sheerin, Fintan; Burke, Eilish; McGlinchey, Eimear; Flannery, Fidelma; McCallion, Philip, The impact of COVID-19 on people ageing with an intellectual disability in Ireland, Dublin, December, 2020 Report, 2020 DOI TARA - Full Text URL

McCarron, M., Responding to Early onset Dementia in Persons with Down Syndrome: Award-winning Approaches to Assessment and Care, CLE Wednesdays; Clinical and Lived Experiences (GBHI), Online, 28th October, 2020, GBHI Invited Talk, 2020

McCarron, M., Positive Ageing Indicators for People with an Intellectual Disability, Brothers of Charity, Roscommon, 26th September, 2019 Invited Talk, 2019

McCarron, M., Understanding the Determinants of Health and Well-being for People Ageing with an Intellectual Disability: Key insights from Longitudinal Studies, DOCTRID IV Conference, National University of Ireland, Galway, 19th -20th September, 2019 Invited Talk, 2019

McCarron, M., Understanding the Determinants of Health and Well-being for People Ageing with an Intellectual Disability: Key insight from Longitudinal Studies., London-wide Down syndrome seminar series., Kings College London, 6th November, 2019 Invited Talk, 2019

McCarron, M., Health and Well-being for Women Ageing with an Intellectual Disability: Insights from IDS-TILDA., Women's Health Taskforce, Department of Health, Dublin 2, 13th November, 2019, Department of Health Invited Talk, 2019

McCarron, M., Intellectual Disabilities: The Opportunities for Global Brain Health, GBHI Network Symposium, Dublin, 8th May, 2019, GBHI Invited Talk, 2019

McCarron, M., Living with Dementia in Rural Ireland, 4TH Annual Conference - Disability and Human Rights with Dementia, Kings House, Boyle, Co.Roscommon, 27th May, 2019 Invited Talk, 2019

McCarron, M., Understanding key issues in ageing for people with an intellectual disability: Ten years of data from IDS-TILDA, Peamount Hospital, 20th August, 2019 Invited Talk, 2019

McCarron, M., Positive Ageing Indicators for People with an Intellectual Disability, Advancing the Role of the Registered Nurse in Intellectual Disability., Ashling Hotel, Dublin 7, 16th October, 2019, HSE Invited Talk, 2019

McCarron, M., 10 Years of IDS-TILDA: Key Findings & Emerging Opportunities., 29th Annual Research Conference., Stillorgan, Dublin, 12th November, 2019, St. John of God Hospitaller Services Invited Talk, 2019

McCarron, M., Destination Unknown: How IDS-TILDA had to make its own roadmap, Irish Research Nurses Network (IRNN) 12th Annual Conference , River Lee Hotel, Cork, 14th November, 2019, IRNN Invited Talk, 2019

McCarron, M., Positive Ageing Indicators for People with an Intellectual Disability., Launch of the Healthy and Positive Ageing Initiative (HaPAI) Positive Ageing Indicators Report 2019, Department of Health, Dublin 2, 29th May, 2019, Department of Health Invited Talk, 2019

McCarron, M., Ageing and Dementia in people with ID: Challenges and Opportunities in Care , Inaugural meeting of the MLM CHO Dementia Strategy Steering Group, Mullingar Park Hotel, Mullingar, Co. Westmeath, 24th September, 2019 Invited Talk, 2019

K Kiely, Prevalence and patterns of anti-epileptic medication, 2018 Journal Article, 2018

Brady A.M., Daly L., Keogh B., Kennelly B., Ciblis A., Drury A., Hynes G., Bracken-Scally M., Pittalis C. and McCarron M., Evaluation of the Cork Integrated Dementia Care Across Settings (Cork-IDEAS) Project, Dublin, Ireland, School of Nursing and Midwifery, Trinity College Dublin, 2018, p1 - 109 Report, 2018 URL

Bowman, S., McCarron, M, Advancing Public & Patient Involvement in Health Research, HRB-IRC PPI Ignite Programme, TBSI, 12th January, 2018 Invited Talk, 2018

Bowman, S., McCarron, M, HRB-IRC, HRB-IRC PPI Ignite Programme, TBSI, 12th January, 2018 Invited Talk, 2018

McCarron, M., A Woman's Place is in the Academy: My life as a woman in science, Irish Nutrition and Dietetic Institute 60th Anniversary Celebration, Royal Irish Academy, Dublin, 4th Oct, 2018, Irish Nutrition and Dietetic Institute Invited Talk, 2018

McCarron, M., Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland, Department of Health, Dublin 2, 23rd May, 2018 Invited Talk, 2018

McCarron, M., , Ten years of data: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, IASSIDDS's 5th European Congress, Athens Greece, 18 - 20 July, 2018 Oral Presentation, 2018

McCarron, M, Discovering the Future of Holistic Care for Older People with Intellectual Disabilities: What 10 Years of Ageing Research in Ireland is Teaching Us , 8th Hong Kong International Nursing Forum cum 2018 ICOWHI Congress, Hong Kong, 17th - 18th December, 2018 Invited Talk, 2018

McCarron, M, Supporting people with Intellectual Disability and Advanced Dementia: Complexities in End of Life Care, All Ireland Seminar on Palliative Care and disabilities: Impact of legislation to improve quality of life and realise human rights, Ashling Hotel, Dublin, Tuesday 12th June , 2018, ALLPHC Invited Talk, 2018 URL

McCarron, M, CEOL Midlands Network meeting , Mullingar Park Hotel, Thursday 14th June, 2018 Invited Talk, 2018

Brady, A-M., Bracken-Scally, M., Keogh, B., Kennelly, B., Daly, L., Hynes, G., Pittalis, C., Drury, A., Ciblis, A. & McCarron, M., Evaluation of the St. James's Hospital DemPath Integrated Care Pathway Project, Dublin, Ireland, School of Nursing and Midwifery, Trinity College Dublin, 2018 Report, 2018 URL

McCarron, M, Dementia and Down syndrome: Awareness, hope and service transformation , Dementia: transforming the journey - prevention, treatment and quality of life., Castle Upton Suite Hilton Templepatrick Golf & Country Club, Co Antrim, Thursday 17 May , 2018 Invited Talk, 2018

Bracken-Scally, M., Brady, A-M., Keogh, B., Hynes, G.,Kennelly, B., Drury, A., Daly, L., & McCarron, M., Evaluation of the Connolly Hospital Dementia Pathways Project: Preliminary findings, Connolly Hospital Dementia Pathways Partnerships in Care Seminar, Connolly Hospital, Blanchardstown, Dublin, 20 September 2018, 2018 Invited Talk, 2018

McCarron, M, the National Indicators for people with an intellectual disability, The National Indicators for people with an intellectual disability, Portlaoise, 22nd September , 2018, Down Syndrome Ireland Invited Talk, 2018

McCarron, M, Round Table 1: What can mortality data tell us about health inequalities at end of life? "Older adults who have died across the first 10 years of IDS-TILDA", 5th IASSIDD Europe Congress 2018, Athens Greece, 18 - 20 July, 2018 Invited Talk, 2018

McCarron, M, Dementia: transforming the journey - prevention, treatment and quality of life., Hilton Hotel, Templepatrick, Co. Antrim, 17th May, 2018 Invited Talk, 2018

McCarron, M, Pushing the Boundaries in Research and Service Transformation, Clinical Leadership Programme for staff from ID services forum day , Dublin, 31st May, 2017, Leadership and Innovation Centre for Nursing and Midwifery Invited Talk, 2017

Brady, A-M., Ciblis, A., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Bracken-Scally, M., & McCarron, M., Evaluation of the Memory Matters Carlow/Kilkenny Community Dementia Project, Dublin, Ireland, Trinity College Dublin, 2017 Report, 2017 URL URL

McCarron, M, Older Persons: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing , Comparative Joint Seminar: Matched presentations across the life-cycle from Ireland and US/Canada, Ashling Hotel, Dublin, 16th October, 2017, The American Association on Intellectual and Developmental Disabilities (AAIDD); National Federation of Voluntary Bodies; St. Michael's House and KARE Invited Talk, 2017

McCarron, M, Dementia, End of Life and People with Intellectual Disabilities, Last days of life conference, Cardiff, 1st March, 2017 Invited Talk, 2017

McCarron, M, Health conditions associated with ageing in people with Down syndrome, New Horizons in Down's Syndrome, Kildare Street, Dublin, 1st February, 2017, Royal College Physicians of Ireland Invited Talk, 2017

McCarron, Mary; Haigh, Margaret; Burke, Eilish; McGlinchey, Eimear; McCausland, Darren; Carroll, Rachael; O'Donovan, Mary-Ann; Sheerin, Fintan; O'Dwyer, Maire; Foran, Sinead; MacGiolla Phadraig, Caomhin; Mulryan, Niamh; O'Connell, Juliette; Ryan, Judy; McCallion, Philip, 'IDS-TILDA Wave 3: Main Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Dublin, Trinity College Dublin, 2017, - Protocol or guideline, 2017 TARA - Full Text URL

Brennan D., McCarron, M., McCallion, P.,, Caring Capacity in the Domestic Space: Current and Future Challenge, , Irish Association of Social Workers and Social Care Ireland - National Conference, Our Lady's Hospice, Dublin, September 22nd, 2017 Invited Talk, 2017

McCarron, Mary; Haigh, Margaret; Burke, Eilish; McGlinchey, Eimear; McCausland, Darren; Carroll, Rachael; O'Donovan, Mary-Ann; Mulryan, Niamh; Sheerin, Fintan; O'Dwyer, Maire; Foran, Sinead; MacGiolla Phadraig, Caomhin; O'Connell, Juliette; Ryan, Judy; McCallion, Philip, 'IDS-TILDA Wave 3: Pre-Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Dublin, Trinity College Dublin, 2017, - Protocol or guideline, 2017 URL TARA - Full Text

McCarron, M., Burke, E, To ensure 'nothing about us without us', Engaged Research: Society& Higher Education Working Together to Address Grand Societal Challenges, Mansion House, Dublin, 13th January, 2017, Irish Research Council & Campus Engage Invited Talk, 2017

Mary McCarron, Philip McCallion, Rachael Carroll, Eilish Burke, Eimear McGlinchey, Mary-Ann O'Donovan, Darren McCausland, Fintan Sheerin, Maire O'Dwyer, Sinead Foran, Caoimhin MacGiolla Phadraig, Niamh Mulryan, Juliette O'Connell and Judy Ryan., Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 3 IDS-TILDA, Trinity College Dublin, 2017 Report, 2017 DOI TARA - Full Text

McCarron, M, Down Syndrome & Dementia. Findings from a longitudinal research study, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

McCarron, M;, Ageing and Intellectual Disabilty: Lessons learned from IDS TILDA, Faculty of Psychiatry of Intellectual Disability Annual Conference , Dublin, 6th October, 2017, Royal College of Psychiatrists Invited Talk, 2017

McCarron, M, Alzheimer's Dementia and Down syndrome: Awareness, Hope and Service Transformation, Session 9 GBHI Conference, Barcelona, 2017 Invited Talk, 2017

McCarron, M, The needs of people living with Down's Syndrome and dementia, Meeting of The All-Party Oireachtas Group on Dementia, Leinster House , 15th June, 2017, The Alzheimer Society of Ireland Invited Talk, 2017

McCarron, M, Dementia in People with Down syndrome, All-Party Oireachtas Group on Dementia, Kildare Street, 15th June , 2017, Dementia Committee Invited Talk, 2017

McCarron, M;, IDS-TILDA Ageing in Intellectual Disability, Faculty of Psychiatry of Intellectual Disability Annual Conference , Dublin, 6th October, 2017, Royal College of Psychiatrists Invited Talk, 2017

McCarron, M.,, Dementa and Down syndrome, 8th March, NI Conference on Dementia, Belfast, 2017 Oral Presentation, 2017

McCarron, M; Burke, E;, Engaged Research Report, Mansion House Dublin, 13th January, 2017, Campus Engage Invited Talk, 2017

Brady, A-M., Bracken-Scally, M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Pittalis, C., & McCarron, M., Evaluation of the Community Outreach Dementia Project Leitrim, Dublin, Ireland, Trinity College Dublin, 2017 Report, 2017 URL URL

McCarron, M, NI Conference on Dementia, Belfast, 8th March, 2017, Alzheimers Society Invited Talk, 2017

Burke, E., McCarron, M, Ageing and the changing needs of people with an intellectual disability, International Occupational Therapy Group from Singapore, St James Hospital, February, 2017 Invited Talk, 2017

Burke, E., McCarron, M, IDS-TILDA, An overview from the beginning, Research Study Day, Dublin, January, 2017, St John of God Invited Talk, 2017

McCarron, M, Overview of IDS-TILDA, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

McCarron, M.,, Empowering the RNID - Future Proofing the Undergraduate Programme for Changing Models of Service Delivery , INMO - Registered Nurse Intellectual Disability Section, Dublin, 22nd November, 2016 Invited Talk, 2016

Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Bracken-Scally, M., McCarron, M, Evaluation of the Genio Dementia Programme 2014-16 'Memory Matters' Initiative Implemented by the Carlow/Kilkenny Service Provider Forum: Early Findings. , School of Nursing and Midwifery, , Trinity College Dublin, 2016 Report, 2016

McCarron, M, Understanding Dementia in Persons with Down Syndrome: Implications for Hospics, Palliatve Care and Intellectual Disability Services, Intellectual Disabilities and Palliative Care Working together, Milford Care Centre, Limerick, 5th May, 2016 Invited Talk, 2016

McCarron, M, Empowerment and inclusion of people with intellectual disability as research partners - practical strategies and not just words., Public and Patient Involvement (PPI) in Research conference, Working as partners, making a difference, 27th April , 2016, Health Research Board Invited Talk, 2016

Burke, E., McCarron, M, Bone health and older adults with intellectual disability., Research Study Day, Dublin, November, 2016, Daughters of Charity Invited Talk, 2016

Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Bracken-Scally, M., McCarron, M, ). Evaluation of the Genio Dementia Programme 2014-16 Cork Integrated Dementia Care Across Settings (Cork-IDEAS) Initiative: Early Findings., School of Nursing and Midwifery, , Trinity College Dublin, 2015 Report, 2015

McCarron, M, Understanding Person Centred Dementia Care , Federation Catholic Voluntary Nursing Homes , Hallows College , 28 May, 2015 Invited Talk, 2015

McCarron, M, IDS-TILDA Results in Wave 1 and Wave 2, Ability West, Galway, 15th June, 2015 Invited Talk, 2015

Burke, EA., McCarron, M, The lives and needs of older people with learning disabilities in Ireland, The BILD 2015 International Ageing Well Research and Practice Conference, Aston University, Bermingham, 4th December, 2015 Invited Talk, 2015

McCarron, M, Understanding dementia in persons with an intellectual disability: Service models and Good Practice, CARDI, 15 Interventions to support people with dementia, Trinity College Dublin, 23 September, 2015 Invited Talk, 2015

Burke, EA., McCarron, M, Unlocking the determinants of ageing and bone health among adults with an intellectual disability, Disability Research Seminar, Dublin, 3rd November, 2015 Invited Talk, 2015

Burke, EA.,, Health, well-being and community participation: IDS-TILDA, Camphill Community National Conference, Kilkenny, July, 2015 Invited Talk, 2015

Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Bracken-Scally, M., Ciblis, A., McCarron, M. , Evaluation of the Genio Dementia Programme 2014-16 Community Outreach Dementia Project Leitrim: Early Findings, School of Nursing and Midwifery, , Trinity College Dublin, 2015 Report, 2015

McCarron, Mary; Burke, Eilish; McGlinchey, Eimear; McCausland, Darren; Carroll, Rachael; Mulryan, Niamh; Cleary, Eimear; O'Donovan, Mary-Ann; Shivers, Carolyn; McCallion, Philip, 'IDS-TILDA Wave 2: Main Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Dublin, Trinity College Dublin, 2014, - Protocol or guideline, 2014 URL TARA - Full Text

McCarron., M, Disabilities: Unlocking the Determinants of Successful Ageing: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, European Conference of International Association for the Scientific Study of Intellectual & Developmental Disabilities , Vienna, 14-17 July, 2014 Invited Talk, 2014

McCallion P, McCarron M,, Deaths of people with intellectual disabilities in the UK, 383, (9920), 2014, p853 - 855 Journal Article, 2014 DOI

McCarron, M, Responding to Early onset Dementia in Persons with Down Syndrome, DSIDC 2014 Annual Conference - Young Onset Dementia, Dublin Castle , 20th November, 2014 Invited Talk, 2014

Mary McCarron, Philip McCallion, Rachael Carroll, Eilish Burke, Eimear Cleary, Darren McCausland, Eimear McGlinchy, Mary Ann O'Donovan, Niamh Mulryan, and Carolyn Shivers, Advancing Years, Different Challenges: Wave 2 IDS-TILDA. Findings on the ageing of people with an intellectual disability., Dublin, 2014 Report, 2014

McCarron, Mary; Burke, Eilish; McGlinchey, Eimear; McCausland, Darren; Carroll, Rachael; Mulryan, Niamh; Cleary, Eimear; O'Donovan, Mary-Ann; Shivers, Carolyn; McCallion, Philip, 'IDS-TILDA Wave 2: Pre-Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, Dublin, Trinity College Dublin, 2014, - Protocol or guideline, 2014 TARA - Full Text URL

McCarron, M, Keynote Speaker, DSQIID-CV Seminar Working Group, Hong Kong,China, July, 2013 Invited Talk, 2013

McCarron, M, Ageing&Intellectual Disability, NTU Department of Social Work, Cheng-Chung University,Chia-Yi,Taiwan, July, 2013 Invited Talk, 2013

McCarron. M., Swinburne. J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., & McCallion. P., Growing Older with an Intellectual Disability in Ireland 2011; First Results from the The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., 2011 Report, 2011 DOI TARA - Full Text

McCarron , M. , Toward a 21st Century Model of Supports for Persons with Disabilities. , International Conference Active Citizenship & Disability, Centre for Disability Law and Policy National University of Ireland Galway, October, 2011 Invited Talk, 2011

Higgins, A., Sharek, D., McCann, E., Sheerin, F., Glacken, M., Breen, M., and McCarron, M., Visible Lives: Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland, Dublin, Gay and Lesbian Equality Network, 2011, 1, 212 Report, 2011

McCarron M. , Working with generalist health care and palliative care services to support people with ID as they age. . , The 20th Roundtable of the IASSID Special Interest Research Group on Ageing with an Intellectual Disability, Trinity College Dublin, September, 2011, IASSID Special Interest Research Group on Ageing Invited Talk, 2011

Higgins A, Sharek D, McCann E, Glacken M, Breen M, McCarron M, Sheerin F, Visible Lives Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland, Dublin, Gay and Lesbian Equality Network (GLEN), 2011, p1 - 191 Report, 2011 TARA - Full Text

McCarron, Mary; Swinburne, Janet; Burke, Eilish; McGlinchey, Eimear; Mulryan, Niamh; Andrews, Vicky; Foran, Sinead; McCallion, Philip, 'IDS-TILDA Wave 1: Main Interview Questionnaire', The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, 2011, - Protocol or guideline, 2011 TARA - Full Text URL

McCarron , M. , Understanding Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Communication , IASLT Adult Intellectual Disability , St. John of Gods Service Stillorgan Dublin, October, 2011, St. John of Gods Service Stillorgan Dublin Invited Talk, 2011

Timmins, F. Glacken, M., Grogan, A. McCarron, M. Keilthy, P. and McDaid, O., National Consultation With Service Users And Healthcare Providers Regarding Home Care Nursing Services For People With State-Acquired HCV. , Dublin, 2010 Report, 2010

Mc Carron M Neenan K Connaire K Mc Conville U, Stepping Stones: The role of hospice day care in the care of patients with terminal illness., Dublin, 2010 Report, 2010 TARA - Full Text

McCarron, M , Supporting Persons with advanced and terminal dementia. 1st North Mayo Dementia 28th February 2009 , 28th February 2009 , 2009 Invited Talk, 2009

McCarron M. & McCallion, P. , Plenary Paper - The first wave findings of the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA), 2009 Working Paper, 2009

McCarron, M , Caring for Persons with Intellectual Disabilities; From student Nurse to International Research and Leadership. 5th Positive Choices Conference University College Cork April 24th 2009 , April 24th 2009 , 2009 Invited Talk, 2009

McCarron, M., Fahey-McCarthy, E., Connaire, K, McCallion, P , Supporting Persons with Intellectual Disability and Dementia. Fusing the Horizons of Intellectual Disability, Palliative and Person Centred Dementia Care, 2008 Report, 2008

McCarron, M , Developing a Strategic Plan to Address the Needs of person with Intellectual Disability and Dementia. Brothers of Charity Service, Bawnmore Limerick. (May 20th) Workshop. , May 20th 2008, 2008 Invited Talk, 2008

McCarron, M , An Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing. The Irish College of Psychiatrists Spring Meeting. Grand Hotel Malahide. , April 4th 2008, 2008 Invited Talk, 2008

McCarron, M , Ageing and Dementia: Opportunities and Challenges in Care. Transforming Learning Disability Nursing Practice to Address Health Inequalities. 5th Annual National Network for Learning Disability Nurses. Trinity College Dublin. Plenary Paper. , 2008 Invited Talk, 2008

Fahey-McCarthy, E., McCarron, M. Connaire, K, McCallion, P , Supporting Persons with Intellectual Disability and Dementia. Fusing the Horizons of Intellectual Disability, Palliative and Person Centred Dementia Care. An Introductory Education and Training Programme., (Including Trainers Manual, CD ROMS, Student Reflective work book. , 2008 Report, 2008

McCarron, M , Dementia Assessment and Care Approaches in Persons with an Intellectual Disability. The Irish Psychological Society (1 Day Workshop) Ardilaun Hotel Galway , 27th March 2008, 2008 Invited Talk, 2008

McCarron, M , Supporting persons with Advanced Dementia: Palliation and End of Life Care. Older People With Learning Disability and Dementia Conference. Dementia Services Development Centre Northern Ireland. Armagh City Hotel. April 9th. (Paper), April 9th 2008, 2008 Invited Talk, 2008

McCarron, M , Challenges and Opportunities -Developing Services for the Future. Learning Disability & Dementia Forum. Belfast Health and Social Care Trust. , 10th October 2007, 2007 Invited Talk, 2007

McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Care and Service Provision. International Conference The Way Forward: Choice and Challenges. COPE Foundation. Sliver Springs Hotel Cork. (May 2007)., May 2007, 2007 Invited Talk, 2007

McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Care and Service Provision. International Conference The Way Forward: Choice and Challenges. COPE Foundation. Sliver Springs Hotel Cork. (May 2007)., May 2007, 2007 Invited Talk, 2007

McCarron, M , Ageing and Dementia in Persons with Intellectual Disability. A Workshop. Irish Nurses Organisation Dublin. (March 2007). , March 2007, 2007 Invited Talk, 2007

McCarron, M , Enhancing Quality of Life for Older people with a Disability in Ireland. National Conference. Session Chair -Connectedness, Companionship, Recreational Activities. Croke Park Conference Centre (May 2007), May 2007, 2007 Invited Talk, 2007

McCarron, M , How can we promote health and well-being in persons with Down syndrome who are deeply forgetful and living with Dementia? New Ideas-New approaches Supporting Innovation in Services and Supports to people with Intellectual Disability. National Federation of Voluntary Bodies., Silver Springs Hotel. Kilkenny, 23rd and 24th of Oct, 2007 Invited Talk, 2007

McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Understanding Person Centred Dementia Care. (A Workshop) Brothers of Charity Galway. Days Hotel (June 2007). , June 2007, 2007 Invited Talk, 2007

McCarron, M , Caring for Persons with Advanced Dementia: Developing Commissioning Strategies. Facing End of Life Conference. NHS North East. Middlesbrough. UK. (February). , NHS North East. Middlesbrough. UK., February 2007, 2007 Invited Talk, 2007

McCarron, M , Palliative Care: Important Care Considerations when supporting people with Advanced Dementia. Developing Supports for People with Intellectual Disabilities and Dementia. St. John of God Hospitaller Services. Stillorgan. (4th October 2007), 4th October, 2007 Invited Talk, 2007

McCarron, M , How can we promote health and well-being in persons with Down syndrome who are deeply forgetful and living with Dementia? New Ideas-New approaches Supporting Innovation in Services and Supports to people with Intellectual Disability. National Federation of Voluntary Bodies. (, Silver Springs Hotel. Kilkenny, 23rd and 24th of Oct, 2007 Invited Talk, 2007

McCarron, M , Dementia in Persons with Intellectual Disability; Understanding Critical End of Life Care. Palliative Care in Persons with Intellectual Disability Conference. Peamount Intellectual Disability Service. Newcastle. Dublin. (March 2007), Newcastle. Dublin., March 2007, 2007 Invited Talk, 2007

Lambert V, Using a range of methods to access children's voices, Health4Life, Dublin City University, May, 2006 Conference Paper, 2006

McCallion, P., & McCarron, M., Some resources on intellectual disability and dementia., The Frontline of Learning Disability, 64, (Winter), 2005, p29 - 29 Journal Article, 2005

McCarron, M., McCallion, P., & McLaughlin, M., Overview of dementia issues in intellectual disability , The Frontline of Learning Disability, 64, (Winter), 2005, p14 - 15 Journal Article, 2005

McCallion, P., & McCarron, M. , Environmental modification and dementia: key recommendations., The Frontline of Learning Disability, 64, (Winter), 2005, p28 - 29 Journal Article, 2005

McCarron, M., McCallion, P., Fleming, S., & Bourke, E., An Investigation of Dependency Levels of Ageing Persons with Intellectual Disability (ID) and the Implications from a Care and Resource Perspective, Dublin, School of Nursing & Midwifery, Trinity College Dublin, 2005 Report, 2005

McCarron M, Alzheimer's Dementia in Persons with Intellectual Disability: Common Questions and Concerns - Information Booklet, 2003, - Miscellaneous, 2003

McCarron M, McCallion, P & Service, K, Day to day care activities for persons with ID and dementia. A two cd-rom training package produced in conjunction with the NYS Developmental Disabilities Planning Council. , 2002, - Miscellaneous, 2002

McCarron M, Assisting people with a Mental Handicap Cope with the loss of Family and Friends. , Frontline, 1996 Review Article, 1996

McCarron, M & O'Reilly, O, Reflections and Visons. Report on European Year of Older People and Solidarity between Generations, Conference Proceedings, 1993 Review Article, 1993

Research Expertise

Description

An international expert in the field of ageing and intellectual disability, Professor Mary McCarron is the founder and Principal Investigator of the first longitudinal study on ageing in people with an intellectual disability (IDS-TILDA) to be conducted within the EU and the only study, to date, with the potential to compare the ageing process in people with intellectual disability with the general population (TILDA). The recipient of the inaugural Health Research Board 2019 Impact Award, Prof McCarron's research excellence and translational activities have been recognised as exemplary. Her sustained efforts in including people with intellectual disabilities in all aspects of research was instrumental in securing an institutional Public, Patient Involvement award from the Health Research Board and Irish Research Council for Trinity College. Leading a research team focused upon ageing, intellectual disability, dementia, end of life and palliative care, Professor McCarron's work is at the forefront of addressing health and care inequities. Funded by the Health Research Board, Irish Hospice Foundation, The Atlantic Philanthropies, Department of Health, Irish Research Council, National Disability Authority, EIT Health and others, Professor McCarron's areas of focus are: Longitudinal epidemiological studies tracking the key determinants of health and wellbeing of adults with an intellectual Disability as they age. . Develop interventions models targeted at preventing secondary disability and improving quality of life and longevity for people with ID. . Longitudinal studies tracking over 20+ years the incidence, prevalence and risk factors associated with dementia in people with Down syndrome. . Working with relevant agencies to establish the first National Memory Clinic for people with ID with satellite services throughout the country with a focus on building capacity for assessment of symptoms of dementia and the standardization of assessment and diagnostic protocols. . Using a concerted and collaborative approach develop the infrastructure and networks required to establish and run large scale primary and secondary clinical trials. Work with international collaborators and the Global Brain Health Institute (GBHI) to develop and validate clinical trials outcome measures, and to develop pre dementia disease models by accumulating clinical and biomarker data with a focus on disease prevention and treatment in people with Down syndrome. . Work with people with ID and relevant agencies and policy makers to develop post diagnostic supports for people with ID and dementia and their caregivers and assess cost and quality of life issues in dementia care and end of life care. . Extending palliative care to persons with advanced and terminal dementia and other non-malignancies . Award-winning approaches to environmental design for those ageing with dementia;

Projects

  • Title
    • Building Circles of Support for people with intellectual disabilities
  • Funding Agency
    • Health Research Board
  • Date From
    • 01-Dec-22
  • Date To
    • 13-Feb-24
  • Title
    • ADM Impact on Real Life: Expectations for People with Intellectual Disabilities (ADMIRE)
  • Funding Agency
    • Faculty of Health Sciences
  • Title
    • CANcer incidence, prevalence, Diagnosis, treatment, risk factors and outcomes in older adults with Intellectual Disabilities
  • Funding Agency
    • Health Research Board
  • Title
    • Loneliness as experienced by people with an intellectual disability (LEID); Theoretical framework development to support future intervention studies.
  • Funding Agency
    • Faculty of Health Sciences, Trinity College Dublin
  • Date From
    • 1st January 2023
  • Date To
    • 31st December 2023
  • Title
    • Translating the HS E's National Health Promotion Strategic Framework into an accessible format to support individuals with communication challenges, to support and empower all Individuals with communication challenges with their own health and wellbeing in a person centred manner
  • Funding Agency
    • Avista
  • Date From
    • 1st March 2024
  • Date To
    • 28th February 2025
  • Title
    • Engaging the Brain through Cognitive Stimulation Therapy
  • Funding Agency
    • Avista
  • Date From
    • 1st March 2024
  • Date To
    • 28th February 2025
  • Title
    • EQUIP: Examining Quality, Use and Impact of Psychotropic (Use) in older adults with intellectual disabilities
  • Summary
    • The project will use longitudinal medicines data from ten years of the IDS-TILDA and from the HSE national prescribing database to examine quality and changes in psychotropic medicines use among older adults with intellectual disabilities. The project will use longitudinal data analysis to examine the long-term side effects of these medicines and if a move to the community meant a reduction in medicines. The findings will be used by the HSE and College of Psychiatrists of Ireland to develop guidelines to improve medicines use.
  • Funding Agency
    • Health Research Board
  • Date From
    • 6th December 2021
  • Date To
    • 5th May 2024
  • Title
    • The impact of the menopause on the mental health of women with intellectual disability
  • Funding Agency
    • Irish Research Council
  • Title
    • The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) Wave 5
  • Summary
    • The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) researches ageing among people with an intellectual disability (ID) aged 40+ years in the Republic of Ireland. The first of its kind in Europe, IDS-TILDA through alignment with The Irish Longitudinal Study on Ageing (TILDA), remains the only study able to directly compare ageing among people with ID with ageing among the general population.
  • Funding Agency
    • Health Research Board
  • Date From
    • 1st November 2022
  • Date To
    • 31st December 2024
  • Title
    • Development of OPTIMA-ID: Optimising Pharmaco-Therapy and Improving Medication for Ageing with Intellectual Disability.
  • Funding Agency
    • Faculty of Health Sciences, Trinity College Dublin
  • Date From
    • January 2022
  • Date To
    • December 2022
  • Title
    • National PPI Network 2021
  • Funding Agency
    • HRB
  • Date From
    • 2021
  • Date To
    • 2025
  • Title
    • Follow-up on the experience of Covid-19 among People with Intellectual Disabilities, An At-risk and Vulnerable group
  • Funding Agency
    • Health Research Board/Department of Health
  • Date From
    • January 2021
  • Date To
    • September 2021
  • Title
    • Dementia Trials Ireland
  • Funding Agency
    • Health Research Board
  • Date From
    • 2021
  • Date To
    • 2025
  • Title
    • Care of Older Adults with Intellectual Disability and Complex Age-Related Conditions
  • Funding Agency
    • National Disability Authority
  • Date From
    • April 2020
  • Date To
    • November 2021
  • Title
    • Including best practices and the voices of experience in developing post-diagnostic dementia support guidelines for people with an intellectual disability
  • Funding Agency
    • Alzheimer's Society of Ireland and Health Research Board
  • Date From
    • November 2020
  • Date To
    • November 2020
  • Title
    • Digi-ID (Digital  skills education to support health and social inclusion for adults with intellectual disabilities)
  • Funding Agency
    • EIT Health
  • Date From
    • January 2021
  • Date To
    • December 2021
  • Title
    • Prevent Dementia DS
  • Funding Agency
    • GBHI/Alzheimer's Org/Alzheimer's Society Deans Research Initiative Wellcome Trust ISSF Assistant P
  • Date From
    • September 2020
  • Date To
    • March 2023
  • Title
    • MOOC
  • Funding Agency
    • EIT Health
  • Date From
    • 1st September 2017
  • Date To
    • 31st December 2017
  • Title
    • Get Wise About Your Health
  • Funding Agency
    • EIT Health
  • Date From
    • 1st January 2020
  • Date To
    • 31st December 2020
  • Title
    • PPALS2
  • Funding Agency
    • EIT Health
  • Title
    • SOOTHE
  • Funding Agency
    • EIT Health
  • Date From
    • January 2020
  • Date To
    • December 2020
  • Title
    • People with disabilities experiencing homelessness
  • Funding Agency
    • National Disability Authority
  • Date From
    • 02 December 2019
  • Date To
    • 31 July 2020
  • Title
    • Dean's Award Proposal 'Questions of Inclusion'
  • Funding Agency
    • Faculty of Health Sciences, Trinity College Dublin
  • Date From
    • February 2020
  • Date To
    • February 2021
  • Title
    • Way2Be - Stewarts Care
  • Funding Agency
    • Dormant Accounts
  • Date From
    • December 2019
  • Date To
    • December 2020
  • Title
    • Qualitative research study on the lived experiences of service users in Community Health Organisation Area 1
  • Funding Agency
    • Health Service Executive
  • Date From
    • February 2020
  • Date To
    • February 2021
  • Title
    • Assessing the impact of person centred planning (PCP) on community integration for adults with intellectual disabilities.
  • Funding Agency
    • National Disability Authority Research Promotion Scheme
  • Date From
    • March 2018
  • Date To
    • February 2019
  • Title
    • Visiting Professors Fund
  • Funding Agency
    • Faculty of Health Sciences, Trinity College Dublin
  • Date From
    • January 2020
  • Date To
    • December 2020
  • Title
    • Registrar's Civic Engagement Award
  • Funding Agency
    • Trinity College Dublin
  • Date From
    • June 2019
  • Title
    • HRB Impact Award
  • Summary
    • This award recognised Prof Mary McCarron, who has made, or is making, an outstanding contribution to research that has had a significant impact on people's health or on health policy or practice. Research impact has been defined as 'an identifiable benefit or positive influence on society, public policy, quality of life and/or the economy'. This award will help increase recognition of the value of integrating health research into practice and policy to create a lasting impact on people's health. It should also provide an opportunity to showcase Ireland's position as a leader in health research internationally.
  • Funding Agency
    • Health Research Board
  • Date To
    • February 2019
  • Title
    • National Intellectual Disability Dementia Diagnostic Centre
  • Funding Agency
    • National Dementia office/Department of Health
  • Date From
    • February 2019
  • Date To
    • February 2021
  • Title
    • Better Bones, Better Health: Developing a risk assessment tool for the prediction of osteoporosis and osteopenia among adults with an intellectual disability
  • Summary
    • This study used predictive models to calculate the probability of osteoporosis in order to develop a prototype clinical evaluation tool for the assessment of the risk of a person with ID having osteoporosis/osteopenia.
  • Funding Agency
    • Dean's Award
  • Date From
    • September 2018
  • Date To
    • March 2019
  • Title
    • Wave IV An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
  • Funding Agency
    • Health Research Board & Department of Health
  • Date From
    • Nov 2018
  • Title
    • Working with the Research Community: Training & Toolkit for Patients and Members of the Public
  • Funding Agency
    • Health Research Board
  • Date From
    • December 2018
  • Date To
    • December 2020
  • Title
    • PPALs: People with Intellectual Disabilities with Physical Activities Leaders in the Community
  • Summary
    • P-PALs is a project to encourage people with ID to take a leadership role in promoting physical activity among their peers. Working with Age & Opportunity's Go for Life programme, it encourages adults with ID to learn how to lead a group in physical activities and games and to encourage that group to become more physically active.
  • Funding Agency
    • EIT Health
  • Date From
    • January 2018
  • Date To
    • December 2018
  • Title
    • Residents of St Joseph's Moving to Community Settings: Understanding the changes in their lives
  • Funding Agency
    • Health Service Executive
  • Date From
    • August 2017
  • Date To
    • August 2021
  • Title
    • A Participatory action research pilot study to enhance long term care planning for older people with an Intellectual Disability (ID) in Ireland and their families
  • Summary
    • This is a 'bolt-on' project to IDS-TILDA, which builds on the NDA funded project "Understanding Family Strategies that Enable Long Term and Sustainable Home Environments for Older People with an Intellectual Disability".
  • Funding Agency
    • IRC
  • Date From
    • 01/03/2017
  • Date To
    • 01/03/2018
  • Title
    • Evaluation of the Genio Dementia Programme 2014 - 2016
  • Summary
    • An Evaluation for the Genio Dementia Programme
  • Funding Agency
    • Genio
  • Date From
    • July 2014
  • Date To
    • December 2019
  • Title
    • PPI Ignite
  • Funding Agency
    • Health Research Board
  • Date From
    • August 2017
  • Date To
    • September 2020
  • Title
    • Quality of life outcomes and cost changes associated with providing support to people with intellectual disability who move form congregared settings to community living arrangements
  • Summary
    • Researchers McCarron, M., May, P., O'Donovan, M., McCallion, P., Smith, V., Cunniffe, A, Stancliffe, R., Normand, C
  • Funding Agency
    • HRB
  • Date From
    • August 2017
  • Date To
    • February 2018
  • Title
    • National Key Indicators of Positive Ageing for People with ID
  • Summary
    • A bolt on study to IDS TILDA to develop National Key Indicators of Positive Ageing for People with ID
  • Funding Agency
    • Department of Health
  • Date From
    • March 2017
  • Date To
    • December 2018
  • Title
    • Forgotten Lives and hidden Deaths; people with Ld living in non LD care settings
  • Funding Agency
    • Dunhill Medical Trust
  • Date From
    • October 2016
  • Date To
    • September 2018
  • Title
    • Family Strategies that Enable Long Term and Sustainable Home Environments for Older People with ID
  • Funding Agency
    • National Disability Authority
  • Date From
    • May 2016
  • Date To
    • May 2017
  • Title
    • ProACT (Intergrated Technology Ecosystems for ProACTive Patient Centred Care)
  • Summary
    • PI: Dr. John Dinsmore. TCD Team: Prof. Mary McCarron, Dr. Anne-Marie Brady, Dr. Joan Cahill. Development of proactive integrated care technology ecosystems to support multimorbidity disease management (including detection of early onset cognitive decline/dementia) in an ageing population. Involves 12 partners across 6 EU member states. Trial sites in Ireland, Belgium and Italy. Award secured August 2015.
  • Funding Agency
    • European Commission - Horizon 2020 under Call SC1-PHC25-2015
  • Date From
    • 01/01/2016
  • Date To
    • 01/07/2019
  • Title
    • ProACT (Integrated Technology Systems for ProACTive Patient Centred Care)
  • Funding Agency
    • TCD-Faculty of Health Sciences - Dean's Research Initiative Fund
  • Date From
    • September 2016
  • Date To
    • June 2018
  • Title
    • St Ita's moving to community Settings
  • Summary
    • This project is independently evaluating change in the lives of 29 residents in St Joseph's Intellectual Disability Services, St Ita's Hospital, Portrane, Co Dublin, following a transition from current residence, using the IDS-TILDA framework. The first phase acted as a baseline and with data from the second phase, collected post-move, used to evaluate change.
  • Date From
    • Aug 2017
  • Date To
    • March 2018
  • Title
    • Wave III An Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing TILDA. Wave III
  • Summary
    • An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
  • Funding Agency
    • Health Research Board & Department of Health
  • Date From
    • Nov 2015
  • Date To
    • Dec 2018
  • Title
    • KNOWLEDGE EXCHANGE AND DISSEMINATION SCHEME 2017 KEDS-2017-021
  • Funding Agency
    • HRB
  • Date From
    • 01/01/18
  • Date To
    • 01/01/19
  • Title
    • KEDS
  • Funding Agency
    • Health Research Board
  • Date From
    • December 2015
  • Date To
    • December 2016
  • Title
    • Community inclusion for people with and intellectual disability
  • Funding Agency
    • Irish Research Council
  • Date From
    • March 2015
  • Date To
    • December 2015
  • Title
    • Brain Training in persons with Down syndrome
  • Funding Agency
    • Down syndrome Ireland
  • Date From
    • March 2015
  • Date To
    • March 2017
  • Title
    • Understanding family strategies that enable long term and sustainable home environments for older people with an Intellectual Disability
  • Summary
    • The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) is the first and most extensive such study to be conducted in Ireland or in the EU, and it is recognised internationally as pioneering in this field. This study provides the definitive and most nationally representative sample of older people with an ID. Within this study the now completed "Carer's Self-Completion Questionnaire" has a sample of 62 carers of older people with an ID living within family settings. The key methodology employed in this study entailed qualitative focus groups and interviews with these families. All focus group discussions were transcribed and data inputted into NVIVO with data analysed and mined to extract key themes and concepts. Objectives: . Describe the decision making process within families caring for an older person with an ID 1. Describe strategies for long term care planning within families 2. Describe patterns of transfer of care (parent to sibling, sibling to sibling etc) 3. Describe key family, economic, environmental, and social factors influencing strategies for long term family care . Illuminate barriers and enablers for families with an older person with ID 1. Identify pressure points for these families 2. Identify strategies, supports and enablers which sustain older people with ID within the family and community setting including the role of caregiving networks and supportive neighbours and communities . Identify best practice for supporting families with an older person with ID 1. Identify gaps between family experiences and the aspirations of contemporary ID social policy 2. Articulate the perceptions of families with regard to future policy 3. Propose models of support that facilitate family engagement and capacity in sustaining older people with an ID within the community
  • Funding Agency
    • National Disability Authority
  • Date From
    • March 2015
  • Date To
    • March 2016
  • Title
    • Shaping the Future of Intellectual Disability Nursing in Ireland.
  • Funding Agency
    • Health Services Executive Ireland/Trinity College Dublin.
  • Date From
    • November 2013
  • Date To
    • April 2015
  • Title
    • Wave II An Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing TILDA. Wave II.
  • Summary
    • An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
  • Funding Agency
    • Health Research Board & Department of Health
  • Date From
    • November 2012
  • Date To
    • October 2015
  • Title
    • Effective family support models during the transition of adults with intellectual disabilities into old age
  • Summary
    • Co. P.I McCallion, P., McCarron, M
  • Funding Agency
    • Research and Development Office, Belfast
  • Date From
    • Nov 2012
  • Title
    • Measuring and evaluating outcomes at the end of life for people with learning disabilities
  • Funding Agency
    • Baily Thomas Trust
  • Date From
    • August 2012
  • Date To
    • February 2015
  • Title
    • Getting the Message to the people that Matter; Innovation in Research Dissemination.
  • Funding Agency
    • IRCHSS Award
  • Date From
    • December 2011
  • Date To
    • May 2012
  • Title
    • A collaborative initiative to implement person-centred practice in residential care settings for children and adults with intellectual disability.
  • Summary
    • McCarron M(PI), McCallion, P., Keenan, P., Griffiths, C., Rolfe G.
  • Funding Agency
    • Stewarts Hospital
  • Date From
    • October 2011
  • Date To
    • February 2013
  • Title
    • What are the respite needs and experiences of family's caring for a child with a life-limiting condition requiring palliative care?
  • Summary
    • Ling, J-Doctoral Student and HRB Clinical Research Fellow McCarron, M (Principal Supervisor)
  • Funding Agency
    • Health Research Board
  • Date From
    • October 2010
  • Date To
    • September 2013
  • Title
    • An Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing TILDA - Wave 1
  • Summary
    • Background & Aim: In Ireland and elsewhere there is for the first time a sizeable and growing population of older persons with intellectual disabilities (ID). This is an incredible success but also a tremendous challenge; we know little about their ageing and there is much concern that mortality is higher, health problems are greater, access to services and health promotion is poorer and quality of life is often compromised. A comprehensive longitudinal study of ageing (TILDA) is about to begin in Ireland. Use of the electoral register as a sampling frame will unintentionally exclude many people with ID. Use of the National Intellectual Disability Database will offer an historic and critical opportunity to create a supplemental longitudinal follow-up of ageing in persons with ID. Approach: Sample: There will be two samples; (1) a stratified convenience pilot sample of 50 persons with ID aged 40-70 years, (2) approximately 800 persons over age 40 randomly selected from the HRB ID database with an over-sample of those over 55 and those 40-49 living at home or independently. Measures: Measures will address health, cognitive status, activities of daily living, living situations, social life and overall quality of life. Measures will be comparable to these being used in the larger TILDA study and yet will address unique issues. Analysis: For the pilot sample analysis will focus upon usability of instruments and instrument reliability and validity issues. When the finalized protocol is then administered to the first wave sample of the longitudinal study, a descriptive statistical picture of the life experiences of adult persons of ID will be developed as well as comparisons between important subgroups and with the general population findings of TILDA. Implications: The study will provide the first comprehensive picture of ageing in persons with ID and prepare for longitudinal investigation of that ageing.
  • Funding Agency
    • Health Research Board & Department of Health
  • Date From
    • October 2008
  • Date To
    • September 2012
  • Title
    • Evaluation of the Programme to support Palliative and Hospice Care in the Republic of Ireland
  • Funding Agency
    • Atlantic Philanthropies
  • Date From
    • March 2010
  • Date To
    • March 2011
  • Title
    • The Post-Caring Experience: An Assessment of the Needs of former Family Carers.
  • Funding Agency
    • IRCHSS and Care Alliance
  • Date From
    • Dec 2009
  • Date To
    • Dec 2010
  • Title
    • Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland and recommending positive ageing strategies and actions to promote their full participation and inclusion in Irish society.
  • Summary
    • Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland and recommending positive ageing strategies and actions to promote their full participation and inclusion in Irish society
  • Funding Agency
    • GLEN
  • Date From
    • Nov 2009
  • Date To
    • Dec 2010
  • Title
    • National Consultation with Service Users and Healthcare Providers regarding Home Nursing Services for People with State Acquired Hepatitic C Virus (HCV)
  • Summary
    • Timmins, F, (PI) Glacken, M, Grogan, A. Frazer, K., McCarron, M
  • Funding Agency
    • HSE
  • Date From
    • May 2008
  • Date To
    • November 2008
  • Title
    • Developing respiratory practice to address palliative care needs of patients with chronic obstructive pulmonary disease (COPD): exploring the lay carer expert knowledge and experience.
  • Summary
    • Hynes, G -Doctoral Student McCarron, M (PI) Cox, K
  • Funding Agency
    • Irish Hospice Foundation
  • Date From
    • August 2007
  • Date To
    • October 2008
  • Title
    • An investigation of the Role of Hospice Day Care in the Care of Patients with Life Limiting Illness
  • Summary
    • McCarron, M, (PI), Neenan, K, (Doctoral Student), Ryan, F, McCann, M, Connaire, K, Cox, K,
  • Funding Agency
    • Irish Cancer Society
  • Date From
    • September 2006
  • Date To
    • September 2008
  • Title
    • Expanding Palliative Care to Meet the Needs of Persons with COPD
  • Summary
    • Hynes, G, -Doctoral Student McCarron, M (PI) Cox, K.
  • Funding Agency
    • Health Research Board
  • Date From
    • June 2006
  • Date To
    • September 2009
  • Title
    • Stigma and Alzheimer's disease
  • Summary
    • A qualitative study of the expereince of stigma by persons with dementia and their families
  • Funding Agency
    • Alzheimer's Society of Ireland
  • Date From
    • March 2006
  • Date To
    • September 2006
  • Title
    • Cost effectiveness and Quality of Life in Service Delivery for Persons with the dual disability of Down syndrome (DS) Alzheimer's Dementia (AD).
  • Summary
    • Responding to dementia needs is a new challenge for intellectual disability service providers and particularly pressing when consumers present with Down syndrome. New models of service are called for and are being attempted. This study will assess the relative cost and impacts on quality of life of four different care options: community and campus based group homes, aging settings and dementia specific settings.
  • Funding Agency
    • Health Research Board
  • Date From
    • Sept 2004
  • Date To
    • Sept 2007
  • Title
    • A palliative care model for supporting persons with intellectual disabilities (ID) and dementia (AD)
  • Summary
    • Development of and effectiveness testing for an evidence-based training module to foster earlier application of palliative care principles in care of persons with intelelctual disabilities and dementia.
  • Funding Agency
    • Health Research Board
  • Date From
    • June 2005
  • Date To
    • May 2007
  • Title
    • An investigation of dependency levels of ageing persons with Intellectual Disability (ID)
  • Summary
    • McCarron, M (PI), McCallion, P, Fleming, S.
  • Funding Agency
    • HSE Peamount Intellectual Disabilities Service
  • Date From
    • January 2004
  • Date To
    • July 2006
  • Title
    • Clinical Nursing Research Fellow, Investigating the 'influence of Alzhjeimer's Dementia on Time Spent Caregiving for persons Down syndrome and Alzheimer's dementia'
  • Summary
    • MCarron, M (PI and Doctoral Student), Begley, C Gill M.
  • Funding Agency
    • Health Research Board
  • Date From
    • Nov 1999
  • Date To
    • Oct 2002
  • Title
    • Seed funding to explore the impact of caring for persons with the dual disability of Alzheimer's Dementia and Down Syndrome
  • Summary
    • McCarron, M (PI)
  • Funding Agency
    • All-Ireland Research Fellowship grant from An Bord Altranais and the National Board of Nursing
  • Date From
    • Nov 1998
  • Date To
    • Nov 1999
  • Title
    • National Indicators of Positive Ageing for People with Intellectual Disabilty
  • Summary
    • This project is developing a set of national indicators of positive ageing for people with ID to mirror those collected for the non-ID population. Using a Delphi process, it will include people with ID, academics in the field of ID and ageing, policymakers and carers in order to agree the final indicator set. IDS TILDA, it is predicted, will be the primary data source for the indicators.
  • Funding Agency
    • Dept of Health's HaPAI programme (Healthy and Positive Ageing Indicators) and the HSE
  • Date From
    • 01/03/2018
  • Date To
    • 01/09/2019
  • Title
    • Health Assessment and People with Intellectual Disability
  • Funding Agency
    • EIT Health
  • Date From
    • October 2017
  • Date To
    • January 2018
  • Title
    • Knowledge Transfer Exchange
  • Summary
    • Activities associated with the Palliative Care research Network work package. Identifying and addressing the needs of people with intellectual disability
  • Funding Agency
    • AALPHC
  • Date From
    • June 2017
  • Date To
    • October 2017
  • Title
    • WayFinding
  • Summary
    • PI: Dr. John Dinsmore. To pilot a smart watch navigation application for people with intellectual disability/mild cognitive impairment
  • Funding Agency
    • TCD Faculty of Health Sciences Award - Dean's Research Initiative Fund
  • Date From
    • 01/05/2016
  • Date To
    • 01/02/2017
  • Title
    • Our Voices
  • Summary
    • Our Impact (Knowledge Exchange and Dissemination Scheme Wave 3)
  • Funding Agency
    • HRB
  • Date From
    • December 2017
  • Date To
    • November 2018
  • Title
    • ASSISTID (Assistive Technologies for People with Intellectual Disability and Autism
  • Summary
    • PI: Prof. Brian Harvey. Core TCD Team: Prof. Mary McCarron, Dr. John Dinsmore. Study Title: Assistive Technology Development for Autism and Intellectual Disability. Role: TCD PI (presently supporting TCD applicants in the process of targeting fellows and pushing submissions with one successful and 4 applications in progress) Proportion direct to TCD will be determined in 2016. To date 2 DOCTRID ASSISTID Fellows at €171,832 per fellow have been secured under the programme
  • Funding Agency
    • European Commission - Marie Curie FP7 Co-Fund
  • Date From
    • 15/05/2014
  • Date To
    • 15/05/2019
  • Title
    • Understanding the contributors to better integration and community participation by persons with severe and profound intellectual disability
  • Summary
    • A Time to Move On from Congregated Settings: A Strategy for Community Inclusion (HSE, 2011) recommends a model of community inclusion to support people with an intellectual disability currently living in congregated settings to move to dispersed housing in ordinary communities. However, there is insufficient data on how successful community inclusion and community participation may be achieved for people with severe and profound intellectual disability. As a means of filling this gap, the research team, working with Inclusion Ireland conducted in-depth interviews with carers and service managers of older people with severe and profound intellectual disability to discern best practices, develop training and capacity building, and inform public policy.
  • Funding Agency
    • Irish Research Council
  • Date From
    • January 2015
  • Date To
    • December 2016
  • Title
    • The last months of life of people with LD living in Wales over a 12 month period.
  • Summary
    • Stuart Todd
  • Funding Agency
    • Dunhill Medical trust grant NISCHR (WAG)
  • Date From
    • 2015
  • Date To
    • 2016
  • Title
    • BEADS
  • Summary
    • Brain Exercise for Adults with Down Syndrome
  • Funding Agency
    • Down Syndrome Ireland
  • Date From
    • July 2015
  • Date To
    • March 2017
  • Title
    • End of Life Care
  • Summary
    • palliative and end of life care for older adults with intellectual disability in Ireland, through a social justice lens, in association with the IDS-TILDA study
  • Funding Agency
    • AIIHPC
  • Date From
    • Jan 13
  • Date To
    • Dec 16
  • Title
    • Effective family support models during the transition of adults with intellectual disabilities into old age
  • Funding Agency
    • Research & Development office Belfast
  • Date From
    • May 2013
  • Date To
    • May 2016
  • Title
    • Best and most cost effective day service models to support the transition of adults with intellectual disabilities (ID) into old age.
  • Summary
    • PI: Laurence Taggart, McCarron M, McCallion P
  • Funding Agency
    • Ulster University & Northern Ireland Research & Development Office
  • Date From
    • 2012
  • Date To
    • 2015

Keywords

Aged care nursing; Ageing & Intellectual Disability - Changing Service Needs; Ageing & Intellectual Disability Issues; Ageing, Health and Intellectual Disability ; Dementia in people with Down's syndrome; Mental health nursing; Palliative Care and Dementia; Palliative care nursing; People with Down Syndrome & Alzheimer's Disease

Recognition

Representations

Honorary Professor, Queen's University Belfast March 2023 - February 2026

Stewarts Care (Appointed to board February 2021) February 2021 - Present

Peamount Hospital (Appointed to board December 2018) December 2018 - Present

Member of the National Steering Committee for the National Dementia Office, HSE 2017 - Present

Advising the National Federation of Voluntary Bodies Working Group on Health Outcomes for Older Adults with Intellectual Disabilities 2017 - Present

Appointed by the Minister for Health to the Steering Committee of the National Trauma Strategy 2015

Dental Hospital (The Minister for Health appointed the Board in June 2015) Dental Board Meeting Performance and Succession Committee Meeting (Chair) June 2015 - Present

Board member of DOCTRID 2015 - Present

Awards and Honours

Winner, Societal Impact Award, The Trinity Innovation Awards 2022

Fellow, The International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 2022

Fellow, American Academy of Nursing 2020

Winner, Inaugural Impact Award, Health Research Board 2019

Chair, Ageing and Intellectual Disability 2014

Trinity Fellow April 2011

Clinical Fellowship in Nursing and Midwifery by the Health Research Board 1999

Nurse of the Year 1993

Memberships

Member, National Avista Dementia Strategy Group 2023 – Present

Member, Digital Life Story Steering Committee (Avista) 2023 – Present

Member, Menu of Life Enhancing Activities Steering Committee (Avista) 2023 – Present

Member, The UK-Irish Consortium for ageing well with a lifelong disability: Priorities, perspectives and opportunities 2021 – Present

Member, T21RS COVID-19 Impact group 2021 – Present

Member, Independent Scientific and Ethics Advisory Board - Gene overdosage and comorbidities during the early lifetime in Down Syndrome (EU Research Project) 2020 – Present

Member, Irish Gerontology 2020 – Present

Member, Trisomy 21 Research Society 2019 – Present

Member, National Steering Committee on Open Science, Health Research Board 2018 – Present

Member and founder, National Federation Working Group on Health Outcomes for Older People with Intellectual Disability 2018 – Present

Member, Steering Committee, National Dementia Office 2016 – Present

Member, Trinity EngAGE, Trinity College Dublin 2010 – Present

Member, HSE National Steering Group on Dementia, National Federation of Voluntary Bodies 2008 – Present

Member, TILDA Steering Committee, Trinity College Dublin 2006 – Present

Member, European Association of Palliative Care Taskforce on Palliative Care/End of life Care for People with Intellectual Disabilities 2005 – Present

Member, International Down Syndrome Special Interest Group 2004 – Present

Member, Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group 2000 – Present

Advisor, Ageing related issues in persons with Intellectual Disability, Inclusion Ireland 2000 – Present

Member, International Association for the Scientific Study of Intellectual Disability (IASSID) 2000 – Present

Member, National Steering Committee, National Dementia Office, Health Service Executive (HSE) 2017 – 2018

Member, National Working Group on Extending Palliative Care to Persons with Advanced Dementia 2008

Member, Research Committee, National Federation of Voluntary Bodies 2008

External Member, Residential Care Standards for Older People by the Health Information Quality Authority (HIQA), St. Patrick's Hospital Cashel 2008

Member, Professional Advisory Group, Alzheimer's Europe Conference 2005 2004 – 2005

Member, Strategic Planning Group on Older People with Disabilities 2000 – 2004

Chair, 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia, Volos, Greece 2003 – 2003

Guest Reviewer - Irish Journal of Psychological Medicine, Journal of Intellectual Disability Research & American Journal of Mental Retardation