Mary Mc Carron
Professor of Ageing & Intellectual Disab, School of Nursing & Midwifery
Dean of Health Sciences, Fac Office - Faculty of Health Sciences

Biography

Mary McCarron, PhD RNID, RGN, BNS. F.T.C.D is Dean of the Faculty of Health Sciences, and Chair of Ageing and Intellectual Disability at Trinity College Dublin. Since joining Trinity College in 2002 Professor McCarron has held many senior leadership roles including, Director of Research and Head of the School of Nursing and Midwifery which is now one of the largest Schools in the University and ranked 31st in the World 2016. With excess of 1400 students and over 100 staff this school and has a strong research programme with 18 undergraduate and postgraduate programmes. In 2011 Professor McCarron was elected Dean of the Faculty of Health Sciences, with responsibility for the School of Nursing and Midwifery, School of Pharmacy and Pharmaceutical Sciences, School of Dental Sciences, Medicine, with a student body in excess of 4,000 and a staff of 650. She is a member of the Senior Executive Management team of the University. A leader in multidisciplinary health sciences, Professor McCarron is a committed ageing research leader at Trinity College and an international expert in the fields of intellectual disability, ageing, dementia, and palliative care. Professor McCarron is the founder and Principal Investigator for the first ever Longitudinal Comparative Study on Ageing in Persons with Intellectual Disability (IDS-TILDA) to be conducted in Ireland or internationally. This study is a supplement to The Irish Longitudinal Study on Ageing (TILDA). With its nationally representative sample, huge support from people with ID, their families and providers, and opportunities for comparisons with the general population, IDS-TILDA increases understanding how lives and chronic conditions change over time and provides insights on key issues at end of life. Professor McCarron's innovative and inclusive approaches are internationally recognized as an exemplar for ensuring meaningful involvement of persons with disability in the research process. With extensive experience in working in the area of dementia in people with Down syndrome Professor McCarron has led large longitudinal cohort studies spanning over 25 years. Her special interest is on the early detection and presentation of dementia, and in the development of humane approaches to care and support. Her award winning approaches on environmental design and technology innovations are sustaining and improving quality of life for people across the continuum of dementia. She has been a key advisor of ageing and policy issues to various governmental and other groups at a National and International level. The emerging IDS-TILDA data is already informing needed policy responses to develop human and appropriate services for this increasingly at risk group. She has been successful in obtaining over €10,000,000 in research funding, as PI or collaborator, and holds/has held grants from a variety of National International sources such as the Department of Health, Health Research Board, National Disability Authority, All Ireland Institute of Hospice and Palliative Care, Atlantic Philanthropies and Horizon 2020. Professor McCarron is an active member of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), she plays a critical leadership role in EngAGE, the Trinity College Dublin consortium of over 140 multi-disciplinary researchers on ageing issues. In 2010 in conjunction with Professor Heleen Evenhuis, Professor McCarron led the Development of a PhD Exchange Programme between the School of Nursing and Midwifery at Trinity College and the Department of Intellectual Disability Medicine, Erasmus Medical Centre, Rotterdam, Netherlands. She holds a research Professorship at the Centre for Excellence in Ageing & Community Wellness at the University at Albany NY. Her work is widely published.

Publications and Further Research Outputs

Peer-Reviewed Publications

Brennan, D., Murphy, R., McCallion, P., McCarron, M, "What's going to happen when we're gone?" Family caregiving capacity for older people with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 2017 Journal Article, 2017 DOI

Brennan, D., Murphy, R., McCallion, P., & McCarron, M, Family Strategies for Care Giving for Older People with Intellectual Disability (ID), within 'post-institutional' Ireland, 13th Conference of the European Sociological Association, Athens, Greece, 29 Aug - 1 Sept, 2017 Conference Paper, 2017

Peklar, J., Kos, M., O'Dwyer, M.,McCarron, M., McCallion, P., Kenny, R.A., Henman, M.C., Medication and supplement use in older people with and without intellectual disability: An observational, cross-sectional study, PloS one, 2017 Journal Article, 2017 Other DOI URL TARA - Full Text

McCausland D., McCallion, P., Brennan, D., McCarron, M, Interpersonal relationships of older adults with an intellectual disability in Ireland, Journal of Applied Research in Intellectual Disabilities, 2017, p1 - 14 Journal Article, 2017 DOI

Burke, E., McCarron, M.,, An exploration of the bone health of older adults with an intellectual disability, 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017 Oral Presentation, 2017

Brennan D., McCarron, M., McCallion, P.,, Caring Capacity in the Domestic Space: Current and Future Challenge, , Irish Association of Social Workers and Social Care Ireland - National Conference, Our Lady's Hospice, Dublin, September 22nd, 2017 Invited Talk, 2017

Almutairi H., O'Dwyer, M., McCarron, M., McCallion, P., Henman, M.,, The Use Of Proton Pump Inhibitors Among Older Adults with Intellectual Disability: A Cross Sectional Observational Study, Saudi Pharmaceutical Journal, 2017 Journal Article, 2017

Burke, E., McCallion, P., McCarron, M, "Men's Bones Matter Too; Fracture risk and associated osteoporosis among older men with intellectual disability, Health SIRG 2017 , Belfast, 19th June, 2017 Poster, 2017

Burke, E., McCarron, M.,, Physical health and older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

Wormald, A., McCarron, M., McCallion, P.,, The influence of loneliness on age related decline in older people with an Intellectual Disability (ID) , IASSIDD Health Sirg, Belfast, 19th - 21st June, 2017 Poster, 2017

O'Connell J., O'Dwyer, M., Burke, E; Henman, M., McCarron, M., McCallion, P;, Drug Burden Index and Physical Function Measures in Older Adults with Intellectual Disabilities, ESCP International Symposium , Germany, 9th - 11th October, 2017 Conference Paper, 2017

O'Dwyer, M., Henman, M., McCarron, M., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M O'Connell, J., , Prevalence and Patterns of antiepileptic medication use in the treatment of epilepsy in older adults with Intellectual Disabilities, Journal of Intellectual Disability Research , 2017 Journal Article, 2017

O'Connell J., O'Dwyer, M., Henman, M., McCarron, M., , Addressing the complexity of medication use in people with Intellectual Disability, "X Irish Gerontological Society, Postgraduate Study Day in Ageing Research, Dublin, April, 2017 Oral Presentation, 2017

O'Dwyer, M., McCarron, M, Medication use and polypharmacy in older adults with intellectual disabilities, 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017 Oral Presentation, 2017

Brennan, D., Murphy, R., McCallion, P., & McCarron, M, Future Care Planning Amongst Parent and Sibling Carers with Ageing Family Member with an Intellectual Disability, Irish Gerontological Society - 65th Annual & Scientific Meeting, Wexford, 28th-30th September, 2017 Poster, 2017

O'Dwyer, C., Wormald A., McCarron, M, Mental Health, challenging behaviour and loneliness in older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

Peklar, J., Kos, M., O'Dwyer, M., McCarron, M., McCallion, P., Kenny, R., Henman, M, Medication and supplement use in older, PLOS , (1), 2017, p1 - 15 Journal Article, 2017 DOI

Wormald, A., McCarron, M., McCallion, P.,, Loneliness in older people with an Intellectual Disability, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017 Oral Presentation, 2017

Belton, A., O'Dwyer, M.,Peklar, J., Mccallion, P., Mccarron, M., & Henman, M., Medication use and health screening in an ageing adult population with Down Syndrome in Ireland: A descriptive study" for publication in the Journal of Policy and Practice in Intellectual Disabilities, Journal of Policy and Practice in Intellectual Disabilities, 2017 Journal Article, 2017

O'Dwyer, M., Peklar, J., Mulryan, N., McCallion, P., McCarron, M., & Henman, M. C., Prevalence, patterns and factors associated with psychotropic use in older adults with intellectual disabilities in Ireland, Journal of Intellectual Disability Research, 2017 Journal Article, 2017 DOI

O'Donovan, M., O'Dwyer, M., McCarron, M., McCallion P, An exploration of medication use patterns for adults with intellectual disability who transition to new living arrangements, Health SIRG 2017 , Belfast, 19th June, 2017 Poster, 2017

O'Dwyer, M., McCarron, M, Medication and Polypharmacy in older adults with intellectual disabilities, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

O'Donovan, M-A., Byrne, E., McCallion, P., McCarron, M, Measuring choice for adults with an intellectual disability - a factor analysis of the adapted daily choice inventory scale, Journal of Intellectual Disability Research, 1, (1), 2017, p1 - 14 Journal Article, 2017 URL

Burke, E., McCarron, M, Ageing and the changing needs of people with an intellectual disability, International Occupational Therapy Group from Singapore, St James Hospital, February, 2017 Invited Talk, 2017

McCarron, M., Cleary, E., McCallion, P, Health and Health-Care Utilization of the Older Population of Ireland: Comparing the Intellectual Disability Population and the General Population, Sage Journals, 39, (6), 2017, p693 - 718 Journal Article, 2017

O'Dwyer, C., McCarron, M., McCallion, P., Burke, E., Carroll, R., O'Dwyer, M O'Connell, J., , Prevalence and Associated Factors of Behaviours which Challenge Among Older Adults with Intellectual Disability in Ireland, Research in Developmental Disabilities , 2017 Journal Article, 2017

McCallion, P., Hogan, M., Santos, F H., McCarron, M., Service, K., Stemp, S., Keller, S., Fortea, J., Bishop, K., Watchman, K., Janicki, M.P., , Consensus Statement of the International Summit on Intellectual Disability and Dementia Related to End-of-life Care in Advanced Dementia, Journal of Applied Research in Intellectual Disability, 2017 Journal Article, 2017

Mac Giolla, Phadraig C., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Non-restrictive support strategies for adults with intellectual disabilities: A focus group study exploring dentists decision making and communication., Journal of Intellectual Disability Research, 2017 Journal Article, 2017

King E., O'Donovan M., Brangan, A., McCallion, P., McCarron, M, An Occupational Therapy Perspective on the Environment and Supporting Engagement for People Ageing with Intellectual Disabilities, IASSIDD Health Sirg, Belfast, 19th - 21st June, 2017 Poster, 2017

McGlinchey, E., McCarron, M, Cognitive Training with Adults with Down syndrome, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017 Oral Presentation, 2017

O'Donovan, M., McCarron, M, Transitions and choice for older people with ID , 2017 International Summit on Ageing with an Intellectual Disability, 6 Kildare Street, Dublin, 20th September, 2017 Oral Presentation, 2017

Brennan, D., McCarron, M, Family Care Giving, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017 Oral Presentation, 2017

McCarron, M., McCallion, P., Watchman, K., Janicki, M., Coppus, A., Fortea, J., Hogan, M., Reilly, E., Stemp, S, Quality Care for people with Intellectual Disability and Advanced Dementia: Guidance on Service Provision, British Medical Journal, 2017, p1 - 22 Journal Article, 2017

McCausland, D., McCarron, M, Social and community participation of older people with intellectual disabilities , 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20th September, 2017 Oral Presentation, 2017

Burke, E., McCarron, M, IDS-TILDA, An overview from the beginning, Research Study Day, Dublin, January, 2017, St John of God Invited Talk, 2017

Burke, E., McCarron, M, Bone health and older adults with intellectual disability., Research Study Day, Dublin, November, 2016, Daughters of Charity Invited Talk, 2016

O'Donovan, M., McCarron, M, Core human rights concepts in Irish health and housing policy documents: in search of equity for people with Intellectual Disability, Divisions of Population Health Sciences, Royal College of Surgeons, Dublin, 15th June, 2016 Oral Presentation, 2016

Murphy, R., Brennan, D., McCarron, M, Love labour and caring for older people with an Intellectual Disability within the family home environment, IASSIDD Congress, Melbourne, Australia, 2016 Meeting Abstract, 2016

Tuffrey-Wijne I., Wicki M., Heslop P., McCarron M., Todd S., Oliver D., de Veer A., Ahlström G., Schäper S., Hynes G., O'Farrell J., Adler J., Riese F., Curfs L, Developing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique, BioMed Central Palliative Care, 15, (36), 2016, p1 - 11 Journal Article, 2016 URL

Brennan D. Murphy R. McCallion P & McCarron M, Understanding Family Strategies the Enable long term and sustainable home environments for older people with intellectual disability, Trinity College, 2016 Report, 2016

Ramsay, H., Mulryan, N., McCallion, P., McCarron, M, Geographical barriers to mental health service care among individuals with intellectual disability in the Republic of Ireland, Journal of Policy and Practice in Intellectual Disabilities, 13, (4), 2016, p261 - 268 Journal Article, 2016 DOI

Daly, L., Hynes, G., Braken-Scally, M., Ciblis A., Kennelly, B., Keogh, B., McCarron, M., Brady, A-M., Evaluation as process: Evaluating the Genio Dementia Programme - overview and progress to date, Sonas apc ltd. 8th National Dementia Conference: New developments, Innovative practice, City West Hotel, Dublin, 16th - 17th May, 2016 Poster, 2016

Caoimhin MacGiolla, Phadraig., McCarron, M, The relationship between diet, nutrition and dentate status among older adults with disabilities, 23rd iADH Congress in Conjuction with the SCDA 28th Annual Meeting, Chicago, 17th April, 2016 Oral Presentation, 2016

People with Disabilities Entering the Third Age in, editor(s)Edurne, G., McConkey, R., Gilligan, R , Disability and Human Rights: Global Perspectives, Palgrave, 2016, pp217 - 228, [McCallion, P., McCarron] Book Chapter, 2016

King, E., Okodogbe, T., Burke, E., McCarron, M., McCallion, P., O'Donovan, MA, Activities of daily living and transition to community living for adults with intellectual disabilities, Scandinavian Journal of Occupational Therapy, 1, (1), 2016, p1 - 7 Journal Article, 2016 DOI

Daly L., Bracken-Scally M., Hynes G., Ciblis A., Keogh B., Kennelly B., McCarron M. and Brady Anne-Marie, Using Inter-level Dynamics As An Interpretive Lens When Employing The RE-AIM Framework To Evaluate The Development Of Integrated Dementia Care, Age and Ageing, Irish Gerontological Society 64th Annual and Scientific Meeting. Developing Cultures of Excellence in Ageing and Exploring the Needs of Marginalised Groups, The Malton Hotel, Killarney, 29.09.16-01.10.16, 45, (Supp 2), Oxford University Press, 2016, ppii4- Published Abstract, 2016 URL

O'Dwyer, C., McCallion, P., McCarron, M, Prevalence and Associated Factors of Challenging Behaviour in older adultes with an intellectual disability in Ireland, PSI Early Graduate Group Conference, Trinity College, 29th February, 2016 Poster, 2016

Murphy, R., Brennan, D., McCallion, P., McCarron, M, Questioning the feasibility of the implementation of contemporary policy in Ireland: The narratives of family caregivers supporting older people with an Intellectual Disability, IASSIDD Congress, Melbourne, Australia, 15-19 August, 2016 Conference Paper, 2016

Burke, E; McCallion, P., Walsh, J.B., McCarron, M., An exploration of the bone health of older adults with an intellectual disability in Ireland, Journal of Intellectual Disability Research, 2016 Journal Article, 2016 TARA - Full Text DOI

McGlinchey, E., McCarron, M., McCallion, P, Findings in relation to change in EF scores, IASSID Congress, Melbourne, Australia, 15th - 19th August, 2016 Meeting Abstract, 2016

O'Dwyer, M., Maidment, I., Bennett, K., Peklar, J., Mulryan, N., McCallion P., McCarron, M., Henman, M, Association of Anticholinergic burden with adverse effects in older people with Intellectual Disabilities in Ireland: An observational cross-sectional study, British Journal of Psychiatry, 2016, p1 - 7 Journal Article, 2016 TARA - Full Text DOI

O'Donovan, M-A., Mannian, H., McCallion, P., McCarron, M., Byrne, E, Health for all (except if you have ID?) Examining extent to which national health policy is equitable, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016 Oral Presentation, 2016

Caoimhin MacGiolla, Phadraig., McCarron, M, Why do older adults with intellectual disabilities not wear dentures, 23rd iADH Congress in conjunction with SCDA 28th Annual Meeting, Chicago, 16th April, 2016 Poster, 2016

Mulryan, N., McCarron, M, Mental Health Factors Associated with Subjective Sleep reports in an older Irish population with intellectual Disability - Results from IDS-TILDA, Journal of Policy and Practice in Intellectual Disabilities, 2016 Journal Article, 2016

Sexton, E., O'Donovan, M.A., McCallion, P., McCarron, M, A comparison of measures of self-determination and emotional wellbeing in research with older adults with and without intellectual disabilties, Journal of Intellectual & Developmental Disabilities, 2016 Journal Article, 2016 DOI

McCausland, D., McCallion, P., Cleary, E., MCCarron, M, Social Connections for Older People with Intellectual Disability in Ireland: Results from Wave 1 of IDS-TILDA, Journal of Applied Research in Intellectual Disability, 29, (1), 2016, p71 - 82 Journal Article, 2016 DOI

Supporting families with ageing members who have intellectual disability in, editor(s)Carr, A., Linehan, C., O'Reilly, G., Walsh, P. N., McEvoy, J , The Handbook of Intellectual Disability and Clinical Pshchology Practice, UK, Routledge, 2016, pp760 - 787, [McCarron, M., McCallion] Book Chapter, 2016

O'Dwyer, M; Maidment, I; Bennett K; Peklar, J; Mulryan, N; McCallion, P; McCarron, M; Henman, C;, Association of anticholinergic burden with adverse effects in older people with intellectual disabilities: An observational cross-sectional study, The British Journal of Psychiatry, 209, (6), 2016, p504 - 510 Journal Article, 2016 DOI

O'Dwyer, M., Pekler, J., McCallion, P., McCarron, M., Henman, M, Factors associated with polypharmacy and excessive polypharmacy in older people with Intellectual Disability differ from the general population; a cross-sectional observational nationwide study, British Medical Journal Open, 6, (4), 2016 Journal Article, 2016 TARA - Full Text DOI URL

Mulryan, N., McCarron, M, Sleep problems and associated health variables in Older Irish population with Down Syndrome: Results from the Intellectual Disability Supplement to the Irish Longitudinal study on Ageing, IASSIDD Congress, Melbourne, Australia, 2016 Meeting Abstract, 2016

Sexton, E; O'Donovan, M-A; McCallion, P; McCarron M, Whose quality of life? Measures of emotional wellbeing and self-determination in research with older adults with and without intellectual disabilities,Special Issue of the Journal of Intellectual and Developmental Disability on Quality of Life, , 2016 Journal Article, 2016

McCausland, D., Brennan, D., McCarron, M, Using th eWHO's ICF as a theoretical framework for the study of social participation for older people with intellectual disability, IASSID Congress, Melbourne, Australia, 15th - 19th August, 2016 Meeting Abstract, 2016

Brennan, D., Murphy, R., McCallion, P., Griffiths, M & McCarron, M, Understanding Family Strategies that enable Long Term and Sustainable Home Environments for Older People with Intellectual Disability. Final Report - September 2016, Dublin, 2016, 1-72 Report, 2016 URL TARA - Full Text

Supporting families who have ageing members with disabilities.P.N Walsh, A., Carr, G. O'Reilly, & J. McEvoy (Eds.) Handbook of Intellectual Disability and Clinical Psychology Practice. 2nd Edition. in, Handbook of Intellectual Disability and Clinical Psychology Practice, 2016, [McCarron, M., & McCallion, P.] Book Chapter, 2016

Burke, EA., McCarron, M., McCallion, P, Prevalence and predictors of osteoporosis risk among older adults with intellectual disability n Ireland, IASSIDD Congress, Melbourne, Australia, 15th - 19th August, 2016 Meeting Abstract, 2016

McCarron, M, Empowerment and inclusion of people with intellectual disability as research partners - practical strategies and not just words., Public and Patient Involvement (PPI) in Research conference, Working as partners, making a difference, 27th April , 2016, Health Research Board Invited Talk, 2016

Burke, EA., McCarron, M, Results form the IDS-TILDA study wave 2: Determinants of health among adults with an intellectual disability, Speech and Language Department Seminar, Trinity College, Dublin, 24th November, 2015 Oral Presentation, 2015

MacGiolla Phadraig C., McCarron M. , Burke E., Cleary E., McGlinchey E., McCallion P., Nunn., J., Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Journal of Public Health Dentistry, , 75, (2), 2015, p101 - 108 Journal Article, 2015 DOI

McCallion, P., Carroll, R., McCarron, M, Type II disbetes in people with intellectual disability as they age, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

Ling J, Payne S, Connaire K & McCarron M, Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model, Child: Care Health and Development, 42, (1), 2015, p51 - 59 Journal Article, 2015 DOI

McDermott, A., Burke, E., McCallion, P., McCarron, M, A descriptive quantitative study into the prevalence of constipation in people with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 25th April, 2015 Poster, 2015

O'Donovan, M-A., McCarron, M, Participants who had moved residence since wave 1 and the process involved in moving: A profile of the population and the types of challenges and supports relevant to them., Health Research Board ( Housing Committee), Dublin, 2015 Oral Presentation, 2015

O'Donovan, M-A., McCarron, M, Moving in later life: What is the impact on older people with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

Burke, EA., McCarron, M, The IDS-TILDA Study - An overview with focus on speech and language, Masterclass for speech and language master students, School of Speech and Language, Trinity College, 9th October, 2015 Oral Presentation, 2015

McCarron, M, Understanding the usefulness of Frailty Indices for People with Intellectual Disabiliaty as they age, IAAG-ER 2015 Conference, Dublin, 24-25 April, 2015 Conference Paper, 2015

Burke, EA., Carroll, R., Walsh, JB., McCallion, P., McCarron, M, Examining the risk factors for bone fragility among of older adults with an intellectual disability in Ireland, WCO-IOF -ESCEO, Milan, 23rd - 29th May, 2015 Poster, 2015

Ramsay, H., Mulryan, N., McCallion, P., McCarron, M, Geographical barriers to mental health service care among individuals with an intellectual disability in the Republic of Ireland, Journal of Policy and Practice in Intellectual Disabilities, 37, (4), 2015, p566 - 578 Journal Article, 2015

Cronin, P., Hynes, G., Breen, M., McCarron, M., McCallion, P., & O'Sullivan, L. , Between worlds: the experiences and needs of former family carers, Health & Social Care in the Community, 23, (1), 2015, p88 - 96 Journal Article, 2015 DOI TARA - Full Text

McCausland, D., McCallion, P., Cleary,E., McCarron, M, Social Connections for Older People with Intellectual Disabilities in Ireland: Results from Wave 1 of IDS-TILDA, Journal of Applied Research in Intellectual Disabilities, 29, (1), 2015, p71 - 82 Journal Article, 2015 DOI

McGlinchey, E., McCallion, P., McCarron, M, Cognitive reserve: Implications for research in dementia for people with down syndrome, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015 Poster, 2015

O'Dwyer, M., Peklar, J., Maidment, I, Bennett, K., McCallion, P., McCarron, M, Factors associated with high anticholinergic burden in ageing adults with Intellectual Disabilities: A cross-sectiontal study, Pharmacoepidemiology and Drug Safety, Boston, 24th - 26th August, (25), 2015, pp377 - 378 Published Abstract, 2015

Burke, EA., McCarron, M, The lives and needs of older people with learning disabilities in Ireland, The BILD 2015 International Ageing Well Research and Practice Conference, Aston University, Bermingham, 4th December, 2015 Invited Talk, 2015

Shivers, C., McCarron, M, Healthy eating similarities and differences among individuals with Intellectual Disabilities and the general Irish population, IAGG-ER 8th Conference, Dublin, 26th April, 2015 Poster, 2015

McCarron, M, Implications for Hospice, Palliative Care and Intellectual Disability Services, Kaleidoscope Conference Invitation, Dublin Castle , 13 May, 2015 Conference Paper, 2015

O'Donovan, M-A., McCarron, M, Moving in later life: What is the impact on older people with intellectual disability?, Sphere Network Conference, Dublin, 2015 Poster, 2015

People with disabilities entering the Third Age. In E.G. Iriarte, R. McConkey, & R Gilligan, & (Eds.) Disability and Human rights: Global perspectives. in, Disability and Human Rights: Global Perspectives, London, Palgrave McMillan, 2015, pp217 - 230, [McCallion, P., McCarron, M] Book Chapter, 2015

McCarron, M, Understanding Person Centred Dementia Care , Federation Catholic Voluntary Nursing Homes , Hallows College , 28 May, 2015 Invited Talk, 2015

Burke, EA.,, Health, well-being and community participation: IDS-TILDA, Camphill Community National Conference, Kilkenny, July, 2015 Invited Talk, 2015

O'Dwyer, M., Peklar, J., Henman, M., McCarron, M., McCallion, P, Patterns of psychotropic drug use and psychotropic polypharmacy in an ageing population with intellectual disability, 4th Year Student Colloquium, November, 2015 Oral Presentation, 2015

McCarron, M, Meeting the needs of people with intellectual disability and dementia , Dementia: Putting strategies and research into practic, Ljubljana, Slovenia , 2-4 September, 2015 Conference Paper, 2015

McCarron, M, Dementia & Ageing Services Manageables, National Federadion Voluntary Bodies, 2nd June, 2015 Oral Presentation, 2015

McCausland, D., Brennan, D., McCallion, P., McCarron, M, Challenging Community Policy for people with intellectual disabilities, 12th Conference of the European Sociological Association, Prague, 25-28 August, 2015 Conference Paper, 2015

Burke, E., McCallion, P., Walsh, JB., McCarron, M, The Bone Status of Adults with Intellectual Disability: Results from the Second Wave of IDs-TILDA, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

McCarron M, Will Older People with Intellectual Disability unlock the Determinants of  Cardiovascular Disease' Preliminary findings from IDS TILDA, Cardiovascular Nurses Scientific Conference, Killarney, 8 September, 2015 Oral Presentation, 2015

Mac Giolla, Phadraig C., Burke, E., McCallion, P., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in ireland, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

McCarron, M, A Data Driven Approach to Understanding Ageing-focused Support and Services for People with Disabilities , Department of Health, Hawkins house, Dublin 2, 5 March, 2015 Oral Presentation, 2015

McCarron M, Carroll R, Kelly C, McCallion P, Mortality Rates in the General Irish Population Compared to those with an Intellectual Disability from 2003 to 2012., Journal of applied research in intellectual disabilities, 28, (5), 2015, p406 - 413 Journal Article, 2015 DOI

Burke, S., McCarron, M, Predicting onset of Osteoporosis and anxiety in adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

McGlinchey, E., McCarron, M., Carroll, R., O'Donovan, M-A., McCallion, P, Changes in the level of personal choice in older adults in Ireland in Intellectual Disability: Results from the IDS-TILDA, IAGG-ER 8th Conference, Dublin, 24th April, 2015 Poster, 2015

Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Examining the bone health of older adults with intellectual disability, Irish Gerontological Society PhD Conference, Education Centre, Our Lady's Hopice, Harolds Cross, Dublin 6, 2015 Oral Presentation, 2015

Caoimhin MacGiolla, Phadraig., McCallion, P., Nunn, J., McCarron, M.,, Dentate status of older people in Ireland with and without Intellectual Disability, IAGG-ER 8th Conference, Dublin, 25th April, 2015 Poster, 2015

McCarron, M, Understanding dementia in persons with an intellectual disability: Service models and Good Practice, CARDI, 15 Interventions to support people with dementia, Trinity College Dublin, 23 September, 2015 Invited Talk, 2015

Burke, E., McCarron, M., Walsh, JB., McCallion, P, The feasibility of utilising quantitative ultrasound as a method of objectiviely measuring bone status among older adults with Intellectual Disability, IAGG-ER 8th Conference, Dublin, 23rd April, 2015 Poster, 2015

McCarron, M, IDS-TILDA Results in Wave 1 and Wave 2, Ability West, Galway, 15th June, 2015 Invited Talk, 2015

O'Dwyer, M., J. Peklar, N. Mulryan, P. McCallion, M. McCarron, and M. Henman, Patterns of Antiepileptic drug use in the ageing population with epilepsy and Intellectual Disability, ESCP Annual Symposium, Lisbon, 23 - 28 October, 38(2), Internatational Journal of Clinical Pharmacy , 2015, pp589 - 589 Published Abstract, 2015

McCarron, M, The Irish Context, , International Exploratory Workshop Palliative Care for People with Intellectual Disability in Europe, Zürich, 23-25 February, 2015 Oral Presentation, 2015

Burke, EA., McCarron, M, Unlocking the determinants of ageing and bone health among adults with an intellectual disability, Disability Research Seminar, Dublin, 3rd November, 2015 Invited Talk, 2015

O'Dwyer, M., Belton, A, Burke, E., Mulryan, N., Pekar, J., McCallion, P, McCarron, M., Henman, M, Antipsychotics in older people with ID: Prevalence and associated risks, IAGG-ER 8th Conference, Dublin, 25th April, 2015 Oral Presentation, 2015

Foran, S., McCarron M, Associations between use of equipment in the performance of activities of daily living and falls in older adults with intellectual disability:, 16th Healthcare Interdisplinary Research Conference, Trinity College, Dublin, 5th November, 2015 Oral Presentation, 2015

O'Donovan, M-A., McCarron, M, Transitions in living arrangement; Insights into the process of moving for older people with an intellectual disability, Department of Health: Value for Money, Dublin , 2015 Oral Presentation, 2015

McCarron, M, Palliative Care for People with Intellectual Disability in Europe: The Irish Context, International Exploratory Workshop, Zurich, 24th February, 2015 Oral Presentation, 2015

Burke, EA., McCallion, P., Walsh, JB., McCarron, M, An investigation into the bone health and bone quality among older adults with an intellectual disability in Ireland., Annual Medical Conference, Irish Osteoporosis Society , Trinity College, 31st October, edited by Dublin , 2015 Oral Presentation, 2015

Burke, EA., McCallion, P., McCarron, M., , Bone health and people with intellectual disability. A comprehensive approach to health and health care for people with intellectual disabilities as they age, IASSIDD Academy on Education, Teaching and Research, Vienna, July, 2014 Oral Presentation, 2014

O'Dwyer, M, Belton, A., Peklar, J., Maidment, I., McCallion, P., McCarron, M., Henman, M, Anticholinergic burden in older adults with intellectual disability: Relations ships with multimorbidity and adverse effects, IGS 62nd Annual and Scientific Meeting, Radisson Blu Hotel, Galway, 9 - 11 October, 2014 Poster, 2014

Shivers, C., McCarron, M., McCallion, P, Literacy and numeracy in an ageing population of individuals with intellectual and developmental disabilities, IASSID, Vienna, July, 2014 Poster, 2014

McCarron, M., O'Dwyer, M., Burke, E., McGlinchey, E., & McCallion P, Epidemiology of Epilepsy in older adults with an intellectual disability in Ireland: Associations and Service Implications, American Journal on Intellectual & Developmental Disabilities, 119, (3), 2014, p253 - 260 Journal Article, 2014 DOI

Burke, EA., McCallion, P., Walsh, JB., McCarron, M, Developing a baseline picture of the bone health status of older adults with an Intellectual disability in Ireland, WCO_IOF ESCEO Seville, March, 2014 Poster, 2014

Burke, E., McCarron, M., Carroll, R., Cleary, E., McCallion, P, Health concerns for adults with intellectual disability as they grow older, 4th Year Student Colloquium, November, 2014 Oral Presentation, 2014

McCausland, D., Carroll, R., McCarron, M., McCallion, P, Social participation for older people with intellectual disabilities living in different residential settings in Ireland: Results from wave 2 of the IDs-TILDa study on ageing, IASSID, Vienna, July, 2014 Oral Presentation, 2014

O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence and patterns of medicine use in ageing people with intellectual disability., Irish Gerontology Society, Harold's Cross, 23rd May, 2014 Oral Presentation, 2014

Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M, Similarities and differences in older life stages of people with intellectual disability compared to other citizens, Dortmund, March, 2014 Oral Presentation, 2014

O'Farrell, J., Ryan, K., McCallion, P., McCarron, M, Equality and inclusion in palliative care: Pathways at end of life for older people in an intellectual disability, 15th Healthcare Interdisciplinary Research Conference & Student Colloquium, November, 2014 Oral Presentation, 2014

McGlinchey, E., McCarron, M., McCallion, P, Cognitive reserve: Implications for research in dementia for people with down syndrome, IASSID, Vienna, July, 2014 Poster, 2014

Mac Giolla Phadraig, C., Burke, E., McCallion, P., McGlinchey, E., McCarron, M., Nunn, J, Dental attendance among older adults with intellectual disabilities in Ireland., Special Care in Dentistry, 34, (6), 2014, p265 - 272 Journal Article, 2014 DOI

McGlinchey, E., McCarron, M., McCallion, P, Developing an understanding of executive functioning in adults with down syndrome: What is its impact on the ageing brain, 15th Healthcare Interdisciplinary Research Conference & Student Colloquim, November, 2014 Oral Presentation, 2014

McCarron, M., Carroll, R., McGlinchey, E., Cleary, E., McCallion, P, Utility of a frailty index in older adults with an intellectual disability: Preliminary findings for the Irish Longitudinal Study on Ageing (IDS-TILDA), IASSID, Vienna, July, 2014 Oral Presentation, 2014

Burke. EA., McCarron, M., McCallion, M, I'm not ready yet, what people with an intellectual disability say about growing older and retirement in Ireland, Royal College of Surgeons, Dublin, June, 2014 Oral Presentation, 2014

McCallion, P., McCarron, M, Understanding the potential of re-diabetes screening to predict future type 2 diabetes among people with intellectual diabilities, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCarron, M, Unlocking the determinants of successful ageing: The intellectual disability supplement to the Irish Longitudinal study on Ageing, IASSID, Vienna, July, 2014 Oral Presentation, 2014

O'Farrell, J., McCarron, M, Exploring carers' experience of end of life for people with intellectual disabilities as they age, IASSID, Vienna, July, 2014 Oral Presentation, 2014

O'Farrell, J., McCarron, M, Palliative care for adults with intellectual disabilities in Europe, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCarron, M., Carroll, C., Kelly, C., McCallion, P, Variations in age of mortality by gender and level in intellectual disability: A population level study of mortality among people with intellectual disabilities in Ireland, IASSID, Vienna, July , 2014 Oral Presentation, 2014

McCallion, P., McCarron, M., Burke, E, A comprehensive approach to health and health care for people with intellectual disability as they age, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Mac Giolla, P., McCallion, P., McGlinchey, E., Nunn, J., Burke, E., McCarron, M, Older adults in Ireland have poorer oral heatlh outcomes if they have intellectual disabilities, GERR, November, 2014 Poster, 2014

McCarron., M, Disabilities: Unlocking the Determinants of Successful Ageing: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing, European Conference of International Association for the Scientific Study of Intellectual & Developmental Disabilities , Vienna, 14-17 July, 2014 Invited Talk, 2014

Burke, E., McCallion, P., Walsh, JB., McCarron, M, Supporting older adults with intellectual disabilities to engage in Health Screening: Lessons learned from the intellectual disability supplement to the Irish longitudinal study on ageing, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Cleary, E., McCallion, P, McCarron, M, Dual sensory impairment among older people in Ireland: Comparison between a cohort of people with intellectual disabilities and a cohort of people aged 50 years and older, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCausland, D., McCarron, M., McCallion, M., Brennan, D, Social relationships for older people with an intellectual disability , 'Somebody to love' Seminar MSc in Disability Studies, Trinity College, 25th April, 2014 Oral Presentation, 2014

McCarron, M, Carroll, R., Kelly, C., McCallion, P, To understand differing patterns of age of death by gender and level of intellectual disability for people with intellectual disability in Ireland, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCarron, M, Responding to Early onset Dementia in Persons with Down Syndrome, DSIDC 2014 Annual Conference - Young Onset Dementia, Dublin Castle , 20th November, 2014 Invited Talk, 2014

Serving an Elderly Population. In M. Agran, F. Brown, C. Hughes, C. Quirk, & D. Ryndak. Equality & Full Participation for Individuals with Severe Disabilities in, A Vision for the future, Baltimore, Paul H Brookes, 2014, pp319 - 348, [Bigby, C., McCallion, P., & McCarron, M] Book Chapter, 2014

Dunne, P., McCarron, M, When ageing in place is no longer viable - Transitions to a higher support home for persons with an intellectual disability and dementia, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCarron, M., Carroll, R., McGlinchey, E., Cleary, E., McCallion, P, Contributing toward policy inplications and emerging health and social issues, NDA, Dublin, November, 2014 Oral Presentation, 2014

McGlinchey, E., McCarron, M., McCallion, P, Examining the usefulness of measures of executive function in individuals with down syndrome: A comparative review, IASSID, Vienna, July, 2014 Poster, 2014

The challenges of palliative care policy implementation in acute care in, Giving Voice in a Multi-Voiced environment , London, MacMillian Publishers Ltd, 2014, pp133 - 134, [Hynes, G., Coghlan, D. McCarron, M] Book Chapter, 2014

Burke, E., McCallion, P., McCarron, M, Bone health and people with an intellectual disabilty, IASSID, Vienna, July, 2014 Poster, 2014

McCausland, D., McCarron, M, Social engagement, NDA, Dublin, November, 2014 Oral Presentation, 2014

Griffiths, M., McCarron, M., McCallion, P., Doherty, S., Cleary, E, Exploring the differences in carer strain in sibling and parent carers of older people with an intellectual disability in Ireland, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Shivers, C., McCarron, M., McCallion, P, Acceptability of a multimedia life stories platform in a residential home for individuals and dementia and intellectual disability, IASSID, Vienna, July, 2014 Poster, 2014

Burke, E., McCarron, M., Walsh, JB., McCallion, P, Structured feedback from older adults with an intellectual disability on the experience of attending for a heatlh assessment: Results form a pilot study, IASSID, Vienna, July, 2014 Poster, 2014

Burke, E., McCarron, M., Swinburne, J., McGlinchey, E., Carroll, R., McCallion, P, What it's like to grow older: The ageing perceptions of people with intellectual disability in Ireland. , Journal of Applied Research in Intellectual Disability, 52, (3), 2014, p205 - 219 Journal Article, 2014 DOI

Begley, C., McCarron, M., Huntley-Moore, S., Condell, S., Higgins, A, Successful research capacity building in academic nursing and midwifery in Ireland: an exemplar. , Nurse Education Today , 34, (5), 2014, p754 - 760 Journal Article, 2014 DOI TARA - Full Text

McCallion, P., Hastings, P., McCarron, M, Understanding increasing longevity for people with intellectual disability: Findings from New York state administrative data, IASSID, Vienna, July, 2014 Oral Presentation, 2014

O'Dwyer, M., Peklar, J., Maidment, I., McCallion, P., McCarron, M., Henman, M , Prevalence and factors associated with high anticholinergic burden among an Ageing Population with Intellectual Disability in Ireland, Journal of Applied Research in Intellectual Disabilities., 4th IASSID (International Association for the Scientific Study of Intellectual and Developmental Disabilities) European Congress, Vienna, July, 2014, edited by Oulette-Kuntz H, Murphy G. , 27, (4), Wiley Blackwell, 2014, pp325 - 335 Published Abstract, 2014

Successful implementation of a strategic planning process to address services system wide Dementia needs for people with an Intellectual Disability and their Caregivers in, Intellectual Disability & Dementia, Kingsley London, K Watchman, 2014, [McCarron, M., McCallion, P., Reilly, E., & Mulryan, N] Book Chapter, 2014

Wormwald, A., McCallion, P., McCarron, M, An examination of loneliness and its health effects as experienced by older people with an intellectual disability, Irish Gerontological Society, Harolds Cross, Dublin, 2014 Oral Presentation, 2014

Responding to the Challenges of Service Development to address Dementia needs for People with an Intellectual Disability in, Intellectual disability and dementia: Research into practice', London, Jessica Kingsley Publishers , 2014, pp241 - 269, [McCarron M, McCallion, P., Reilly E., Mulryan, N.,] Book Chapter, 2014 URL

McCarron, M, Buuilding longitudinal prevalence - overview, IASSID, Vienna, July , 2014 Oral Presentation, 2014

Mulryan, N., Cleary, E., Carroll, R., Lawlor, B., McCallion, P., McCarron, M, IDS-TILDA Wave II: First report of mental health variables, IASSID, Vienna, July, 2014 Oral Presentation, 2014

O'Farrell, J., McCallion, P., Ryan, K., Connaire, K., McCarron, M, Understanding equality and inclusion in palliative care: Identifying and addressing the needs of people with intellectual disability., 8th World Congress of the European Association for Palliative Care, 2014 Poster, 2014

May, P., Hynes, G., McCallion, P., Payne, S., Larkin, P., McCarron, M, Policy analysis: Palliative care in Ireland, Health Policy, 115, (1), 2014, p68 - 74 Journal Article, 2014 TARA - Full Text DOI

McCarron, M, Burke, E, McCallion, P, Swinburne J, Carroll, M, What people with an intellectual disability say about growing older and retirement in Ireland, Dortmund, March, 2014 Oral Presentation, 2014

O'Farrell, J., McCallion, P., Ryan, K., Connaire, K., McCarron M.,, Exploring end of life experiences of older adults with an intellectual disability in Ireland, Irish Gerontological Society, Harolds Cross, Dublin, 2014 Oral Presentation, 2014

Caoimhe MacGiolla, P., McCallion, P., Burke, E., McGlinchey, E., Nunn, J., McCarron, M, Dental attendance among older adults with intellectual disabilities in Ireland, IASSID, Vienna, July , 2014 Oral Presentation, 2014

Mac Giolla, Phadraig C., El-Helaali, R., Nunn, J H., Burke, E., McCallion, P., McGlinchey, E., McCarron, M , National levels of reported difficulty in tooth and denture cleaning among an ageing population with intellectual disabilities., 15, (3), 2014, p48 - 53 Journal Article, 2014 DOI

O'Dwyer, M., Peklar, J., Belton, A., McCallion, P., McCarron, M., Henman, M, Prevalence and Predictors of Multiple Medicines Use among an Ageing Population with Intellectual Disability in Ireland., Journal of Applied Research in Intellectual Disabilities., 4th IASSID (International Association for the Scientific Study of Intellectual and Developmental Disabilities) European Congress, Vienna, July, 2014, edited by Oulette-Kuntz H, Murphy G. , 27, (4), 2014, pp297- Conference Paper, 2014

McCausland, D., McCarron, M, Social engagement, HSE & DOH, June, 2014 Oral Presentation, 2014

O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, The anticholinergic burden of medicines use in an ageing population with intellectual disability in Ireland, All Ireland School of Pharmacy Conference, Trinity College, Dublin, 2014 Poster, 2014

McCarron, M, Perspectives on Ageing with Intellectual Disability, International Conference , Dortmund, 21-22 march, 2014 Oral Presentation, 2014

Burke, E., McCallion P., & McCarron, M., Advancing Years, Different Challenges: Wave 2 IDSTILDA Findings on the ageing of people with an intellectual disability, Trinity College, September, 2014, p1 - 178 Report, 2014 TARA - Full Text

Burke, E., McCarron, M., Walsh, JB., McCallion, P, Debeloping a baseline picture of the bone health status of older adults with intellectual disabilities in Ireland, IASSID, Vienna, July, 2014 Oral Presentation, 2014

Mac Giolla, P., McCarron, M, Effective skills for the maintenance of oral health in people with intellectual disability, 4th Year Student Colloquium, November, 2014 Oral Presentation, 2014

Heladi, R., MacGiolla, P., McCallion, P., Burke, E., McGlinchey, E., Nunn, J., McCarron, M, DIs-TILDA: Older adults with intellectual disabilities reported difficulty regarding oral hygiene, TCD Research Education Day, Trinity College Dublin, October, 2014 Poster, 2014

McCarron, M., McCallion, P., Reilly, E., Mulryan, N, A prospective 14-year longitudinal follow-up of dementia in persons with Down Syndrome., Journal of intellectual disability research , 58, (1), 2014, p61 - 70 Journal Article, 2014 DOI

Griffiths, C., Keenan, P., McCausland, D., Hynes, G., McCarron, M., McCallion, P, Engineering change in the culture and practices of a service for people with intellectual disability., Journal of Applied Research in Intellectual Disabilities, Pathways to Inclusion 4th International IASSIDD Europe Regional Congress, Vienna, 14th-17th July 2014, 27, (4), 2014, pp359 - 359 Conference Paper, 2014

Mulryan, N., Cleary, E., Carroll, R., Lawlor, B., McCallion, P., McCarron, M, Comparison of sleep parameters and associated factors in a matched nationally representative population sample in persons with and without intellectual disabilities, IASSID, Vienna, July, 2014 Oral Presentation, 2014

McCarron, M., McGlinchey, E., Burke, E., O'Dwyer, M., McCallion, P, Prevalence of Epilepsy in Older Adults with an Intellectual Disability in Ireland: Associations and Service Implications, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

Understanding the similarities and differences in aging with an intellectual disability: Linking Irish general population and intellectual disability datasets in, editor(s)R. Urbano , Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families , New York, Academic Press, 2013, pp206 - 233, [McCallion, P., Swinburne, J., Burke, E., McGlinchey, E., McCarron, M.] Book Chapter, 2013 DOI

Daly, L., McCarron, M., Higgins, A., McCallion, P, 'Sustaining Place' - a grounded theory of how informal carers of people with dementia manage alterations to relationships within their social worlds., Journal of Clinical Nursing, 22, (3-4), 2013, p501 - 512 Journal Article, 2013 DOI

O'Donovan, M. A., McCallion, P., & McCarron, M. , Residence and health service utilization of older people with an intellectual disability, Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, 2013 Poster, 2013

McCarron, M, A Picture of Oral Health in Older Adults with an Intellectual Disability in Ireland: Policy & Educational Implications, 3rd Research Week - International Symposium of College of Oral Medicine, Taiwan, May, 2013 Oral Presentation, 2013

Burke, E., McCallion, P., McGlinchey, E., McCarron, M., , The Ageing Perceptions of Older Adults with an Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November 2013, 2013 Conference Paper, 2013

O'Dwyer, M., Peklar, J., Henman, M., McCallion P., McCarron, M, Patterns and Prevalence of Medicines Use in an Ageing Population with Intellectual Disability in Ireland, All-Ireland Schools of Pharmacy Conference, Belfast, 2013 Poster, 2013

Burke, E., McCarron, M., McCallion, P. , The Silent Thief of Bone: Developing a baseline picture of the bone health of adults with an intellectual disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

Lambert, V., Glacken, M., McCarron, M, Using a range of methods to access children's voices. , Journal of Child Health Care, 18, (7), 2013, p601 - 616 Journal Article, 2013 TARA - Full Text DOI

McCarron, M., McGlinchey,E., Burke, E., O'Dwyer, M., McCallion, P., Epidemology of epilepsy in Older Adults with an Intellectual Disability, Irish Journal of Medical Science Volume 182 Supplement 6 DOI 10.1007/s11845-013-0985-z, 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September, 2013 Poster, 2013

McCallion, P., Burke, E., Swinburne, J., McGlinchey, E., Carroll, R., McCarron, M, The influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., The Health Well, 4, 2013, p749 - 756 Journal Article, 2013 DOI TARA - Full Text

McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Exploring the Issue of Employment for Adults with an Intellectual Disability in Ireland, Journal of applied research in intellectual disabilities, 26, (4), 2013, p335 - 343 Journal Article, 2013 DOI

McGlinchey, E., McCallion, P., Burke, E., Carroll, R., McCarron, M, Examining the area of employment in older adults with an intellectual disability in Ireland, Joyrnal of Applies Research in Intellectual Disabilities, 26, (4), 2013, p335 - 343 Journal Article, 2013

Amado, A.N., Stancliffe, R.J., McCarron, M., McCallion, P, Social Inclusion and Community Participation of Individuals with Intellectual/Developmental Disabilities, Intellectual & Developmental Disabilities. Intellectual and Developmental Disability, 51, (5), 2013, p360 - 375 Journal Article, 2013 DOI

McCarron, M, Ageing&Intellectual Disability, NTU Department of Social Work, Cheng-Chung University,Chia-Yi,Taiwan, July, 2013 Invited Talk, 2013

O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence and Patterns of Psychotropic Drug Use and Psychotropic, Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, Irish Journal of Medical Science , 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September 2013, 182, (6), 2013 Oral Presentation, 2013 DOI

McCarron, M., McCausland, D., Developing an Understanding of 'Community' for Older People with Intellectual Disability (ID): What can we learn from the Sociological and Equality Literature? , 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

McCarron, M., McCausland, D., Keenan, P., Griffiths, C., Hynes, G., McCallion, P. , A Collaborative Initiative to Implement Person Centred Practice. Report., 2013 Report, 2013

O'Dwyer, M., Peklar, J., McCarron, M., McCallion, P., Henman, M, Prevalence, patterns and indications for medicine use among an ageing population with intellectual disability in Ireland, 14th HJIRC, School of Nursing, Trinity College, Dublin, November, 2013 Poster, 2013

Griffiths C, Keenan P, McCausland D, Hynes G, McCarron M and McCallion P, My Needs, My Wants, My Aspirations. The findings of a collaborative initiative to implement person-centred care in a service for people with intellectual disability: A case study. , 13th Annual Research Conference, The Catherine McAuley School of Nursing and Midwifery, University College Cork. Ireland. , University College Cork. Ireland, 8th November 2013, 2013 Meeting Abstract, 2013

May, Peter., Hynes, Geralyn., McCallion, Philip., Payne, Sheila., Higgins, Agnes., Larkin, Phil., McCarron, Mary , Challenges in increasing regional equity in palliative care service provision in Ireland , European Journal of Palliative Care, 20, (3), 2013, p130 - 133 Journal Article, 2013

McCarron, M., Swinburne, J., McGlinchey, E., Burke, E., McCallion, P, Patterns of multimorbidity in an ageing population of people with an intellectual disability: Results from the intellectual disability supplement of the Irish Longitidinal study on Ageing (IDS-TILDA), 61st Annual and Scientific meeting of the Irish Gerontological Society, 2013 Oral Presentation, 2013

O'Dwyer ,M., Peklar, J., Henman, M., McCallion, P., McCarron, M, Patterns and Prevalence of Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, 4th Annual International College of Mental Health Pharmacy Conference, Hinckley, United Kingdom, October, 2013 Oral Presentation, 2013

McCarron, M, Keynote Speaker, DSQIID-CV Seminar Working Group, Hong Kong,China, July, 2013 Invited Talk, 2013

O'Dwyer, M., Peklar, J., Henman, M., McCallion, P, McCarron, M, Patterns ,Prevalence and Appropriateness of Medicine Use in an Ageing Population with Intellectual Disability in Ireland, Pharmaceutical Care Network Europe Working Conference, , Berlin, February, 2013 Poster, 2013

McGlinchey, E., McCallion, P., Burke, E., McCarron, M., Examining the area of Employment for Adults with an Intellectual Disability, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

McCarron, M., McCausland, D., Keenan, P., Griffiths, C., Hynes, G., McCallion, P, A Collaborative Initiative to Implement Person Centred Practice, School of Nursing & Midwifery, Trinity College Dublin, 2013 Report, 2013

Burke, E., McCallion, P., & McCarron, M., Osteoporosis and people with Down syndrome; a preliminary descriptive examination of the IDS-TILDA Wave 1 results, . Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, September, 2013 Oral Presentation, 2013

Mac Giolla Caoimhin, P; McCallion, P., Nunn, J., Burke, E., McGlinchey, E., Cleary, E., McCarron, M, Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland, Gerondontology, 13, 2013, p1 - 13 Journal Article, 2013

McCallion, P., & McCarron, M., Commentary: Deaths of people with intellectual disabilities in the UK, The Lancet, 383, 2013, p853 - 855 Journal Article, 2013 DOI

McCarron, M., Reilly, E. & Dunne, P,, Achieving Quality Environments for Person Centred Dementia Care, No, Trinity College Dublin , 2013 Book, 2013

McCausland, D., McCarron, M., McCallion, P., Brennan, D, An exploration of the experiences of community for older people with intellectual disability in Ireland, 14th Helathcare interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College, November, 2013 Oral Presentation, 2013

O'Dwyer, M., Peklar, J., Henman, M., McCallion, P, McCarron, M., Patterns, Prevalence and Indications for Medicine Use among an Ageing Population with Intellectual Disability in Ireland, 14th Healthcare Interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College Dublin, November, 2013 Meeting Abstract, 2013

May, P., Hynes, G., McCallion, P., Payne, S., Larkin, P., Higgins, A., & McCarron, M., Implementation challenges in increasing equity in palliative care in Ireland, European Journal of Palliative Care, 20, (3), 2013, p130 - 133 Journal Article, 2013

McCarron, M, Embedding the needs of people with intellectual disability within national dementia policies, Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, 2013 Oral Presentation, 2013

McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., McCallion, P, Patterns of multimorbidity in an ageing population of people with an intellectual disability: Results from the intellectual disability supplement to the Irish longitudinal study on ageing (IDS-TILDA), Irish Journal of Medical Science , 61st Annual & Scientific Meeting of the Irish Gerontological Society, Croke Park, 2013, 182, (6), 2013, pp179-296 Published Abstract, 2013 DOI TARA - Full Text

McCausland, D., McCarron, M., McCallion, P., Brennan, D, An exploration of the experiences of community for older people with intellectual disability in Ireland, 14th Helathcare interdisciplinary Research Conference & Student Colloqium, School of Nursing & Midwifery, Trinity College, November, 2013 Oral Presentation, 2013

Foran, S., McCarron, M., & McCallion, P, Expanding assessment of fear of falling among older adults with an intellectual disability, International Scholarly Research Notices , 2013, 2013, p9 Journal Article, 2013 DOI TARA - Full Text

McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Carroll, R., McCallion, P, Patterns of multimorbidity in an older population of persons with an intellectual disability: results from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA)., Research in developmental disabilities, 34, (1), 2013, p521 - 527 Journal Article, 2013 DOI TARA - Full Text

Burke, EA,. McCarron, McGlinchey, E., McCallion, P, Exploring a picture of ageing for people with an intellectual disability in Ireland, Research and practice seminar, St Michael's House, Dublin, November, 2013 Oral Presentation, 2013

Lambert, V., Glacken, M., McCarron, M, Meeting the information needs of children in hospital, Journal of child health care, 17, (4), 2013, p338-353 Journal Article, 2013 DOI TARA - Full Text

McCausland, D., Burke, E., McGlinchy, E., Swinburne, J., Cleary, E., McCarron, M., McCallion, P , Use of Transport for Older People with Intellectual Disability: Results from Wave 1 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA), Irish Journal of Medical Science, 61st Annual&Scientific Meeting of the Irish Gerontological Society, Croke Park, 20-21 September 2013, 182, (6), 2013 Poster, 2013

O'Dwyer, M., Peklar, J., Henman, M., McCallion, M., McCarron, M., Patterns and Prevalence of Polypharmacy in an Ageing Population with Intellectual Disability in Ireland, Doctoral Colloquium of the Annual Interdisciplinary Research Conference, School of Nursing and Midwifery, Trinity College Dublin, 2013 Oral Presentation, 2013

Griffiths, M., McCallion, P., & McCarron, M., Sibling Caregivers of Adults Aging with Intellectual or Developmental Disabilities, Special Interest Group on Aging with an Intellectual Disability, International Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston,MA, September, 2013 Oral Presentation, 2013

McCallion P, Burke E, Swinburne J, McGlinchey E, Carroll R & McCarron M, Influence of environment, predisposing, enabling and need variables on personal health choices of adults with intellectual disability., Health, 5, (4), 2013, p749 - 756 Journal Article, 2013 DOI TARA - Full Text

McCarron, M. & McCallion, P, Understanding roles in the Community: Findings from the Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

McGlinchey, E., McCallion, P., Swinburne,J., Carroll, R., McCarron, M., Behavioural health of older adults with an Intellectual Disability: Findings from the Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

Burke, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., I'm Not Ready Yet: What people with an Intellectual Disability say about growing older and retirement in Ireland., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

McCallion, P., Burke, E., McCarron, M., Hopes for the Future: The impact of caring for a family member with an Intellectual Disability who is ageing., IASSID World Congress, Halifax, Canada, July 2012, 2012 Meeting Abstract, 2012

Mulryan, N., Lawlor, B., McCallion, P., McCarron, M., Depressive Symptomatology and Sleep Patterns in an Older Irish Population with Intellectual Disability., IASSID World Congress, Halifax, Canada, July 2012, 2012 Meeting Abstract, 2012

Meeting the End of Life Needs of Older Adults with Intellectual Disabilities in, editor(s)E. Chang & A. Johnson , Contemporary and Innovative Practice in Palliative Care. , Rijeka, Croatia: Intech, 2012, pp255 - 270, [McCallion, P., McCarron, M., Fahey-McCarthy, E., & Connaire, K.] Book Chapter, 2012

Hynes G, Coghlan D, McCarron M, Developing Practice in Healthcare: The contribution of Building to Negotiating the Tensions among practical, Professional and Organisational Knowing., International Journal of Action Research, 8, (2), 2012, p159 - 184 Journal Article, 2012 DOI

Hynes G, Stokes A, McCarron M. , Informal care-giving in advanced chronic obstructive pulmonary disease:, Informal care-giving in advanced chronic obstructive pulmonary disease: Lay knowledge and experience, 21, (7-8), 2012, p1068 - 1077 Journal Article, 2012 DOI

Hynes G, Coghlan D & McCarron M, Participation as a multi-voiced process: Action research in the acute hospital environment. , Action Research , 10, 2012, p293 - 312 Journal Article, 2012 DOI

McCarron, M., Reilly, E., Mulryan, N. & McCallion, P., A Prospective Fourteen-year Longitudinal follow-up of Dementia in persons with Down Syndrome., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

Hynes G, Stokes A, McCarron M, Informal care-giving in advanced chronic obstructive pulmonary disease: lay knowledge and experience., Journal of clinical nursing, 21, (7-8), 2012, p1068-77 Journal Article, 2012 DOI

Glacken, M., Higgins, A., Sharek, D., McCann, E., Sheerin, F., Breen, M. & McCarron, M. , Older LGBT People's Pathways to Coping and Support. , All Ireland Gerontological Nurses Association 4th Annual Conference, Silver Springs Hotel, Cork, 7th June, 2012 Conference Paper, 2012

McCarron., M, Swinburne, J., McCallion, P., , IASSID World Congress Key Note Speaker: Building Longitundinal prevalence figures: Findings from IDS-TILDA, IASSID World Congress, Halifax, Canada, July , 2012 Meeting Abstract, 2012

Foran. S, McCallion. P, McCarron, M., Fear of falling in older people with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

McCallion, P., Swinburne, J., Burke, E., McGlinchey,E., Carroll, R., McCarron, M., Health Care Utilisation by Adults with an Intellectual Disability Ageing in Ireland., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

McGlinchey, E., McCallion, P., Swinburne, J., Carroll, R., McCarron, M., Life Long Learning and Employment in Older Irish Adults with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July, 2012 Meeting Abstract, 2012

Mulryan, N., Lawlor, B., McCallion, P., McCarron, M., Prevalence of Mental Health Issues in Older Adults with an Intellectual Disability., IASSID World Congress, Halifax, Canada, July 2012, 2012 Meeting Abstract, 2012

McCarron, M., Swinburne. J., Burke. E., McGlinchey, E., & McCallion, P, Physical health and multiple morbidity in Irish people with an intellectual disabiltiy as they age., IASSID World Congress, Halifax, Canada, July , 2012 Meeting Abstract, 2012

McCarron , M. , Understanding Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Communication , IASLT Adult Intellectual Disability , St. John of Gods Service Stillorgan Dublin, October, 2011, St. John of Gods Service Stillorgan Dublin Invited Talk, 2011

Burke, EA., McCarron, M., Swinburne, J., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., McCallion, P, Solcial connectedness and social participation of older adults with an intellectual disability in Ireland 2011: First results from IDS-TILDA, Irish Nurses and Midwives Organisation Education Day,, Dublin, November, 2011 Oral Presentation, 2011

McCarron M. , Working with generalist health care and palliative care services to support people with ID as they age. . , The 20th Roundtable of the IASSID Special Interest Research Group on Ageing with an Intellectual Disability, Trinity College Dublin, September, 2011, IASSID Special Interest Research Group on Ageing Invited Talk, 2011

Lambert V, Glacken M, McCarron M, Employing an ethnographic approach: key characteristics, Nurse Researcher, 19, (1), 2011, p17 - 24 Review Article, 2011 DOI TARA - Full Text

McCarron , M. , Toward a 21st Century Model of Supports for Persons with Disabilities. , International Conference Active Citizenship & Disability, Centre for Disability Law and Policy National University of Ireland Galway, October, 2011 Invited Talk, 2011

Lambert V, Glacken M, McCarron M, Communication between children and health professionals in a child hospital setting: a Child Transitional Communication Model., Journal of advanced nursing, 67, (3), 2011, p569-82 Journal Article, 2011 DOI

McCarron M. Breen, M., Cronin, P. , Hynes, G., McCallion, P., Between Worlds: The Experiences and Needs of Former Family Carers. School of Nursing & Midwifery, Trinity College Dublin, 2011 Report, 2011 TARA - Full Text

Cecily Begley, Mary McCarron, Sylvia Huntley-Moore, Developing Research Capacity in Academic Faculty, INMED Conference, Flexner 100 years on - a return to core principles,, Trinity College Dublin, 18-20 May, 2011 Meeting Abstract, 2011

McCarron M. & McCallion, P. , The first wave findings of the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA). , , 2nd International Conference. Building a Picture of Ageing in Persons with Intellectual Disability: Future Directions for Ageing Well. , Trinity College Dublin, September, 2011 Meeting Abstract, 2011

Hynes, G., Coghlan, D., McCarron, M., The Heteroglot of Practice in an Action Research Project. 26th European Group of Organizational Studies Colloquium, Lisbon, July 2010, 2010 Meeting Abstract, 2010

McCarron, M., McCallion, P., Fahey-McCarthy, E., Connaire, K., Dunn-Lane, J., Supporting persons with down syndrome and advanced dementia: Challenges and care concerns, Dementia, 9, (2), 2010, p285-298 Journal Article, 2010 DOI

McCarron M, McCallion P, Fahey-McCarthy E, Connaire K, The Role and Timing of Palliative Care in Supporting Persons with Intellectual Disability and Advanced Dementia., Journal of Applied Research in Intellectual Disabilities, 24, (3), 2010, p189 - 198 Journal Article, 2010 DOI

McCarron, M., McCallion, P., Fahey-McCarthy, E., & Connaire, K. , Staff Perceptions of Essential Pre-requisits Underpinning End-of-Life Care for Persons with Intellectual Disabilitiy and Advanced Dementia, Journal of Policy & Practice in Intellectual Disabilities, 7, (2), 2010, p143 - 152 Journal Article, 2010 DOI

Hynes, G., McCarron, M., Coghlan, D, ddressing Heteroglot in Action Research. Annual Nursing and Midwifery Research Conference. Faculty of Nursing and Midwifery, RCSI, RCSI Dublin, February 2010, 2010 Meeting Abstract, 2010

Fahey-McCarthy, E., McCarron, M., Connaire, K., McCallion, P., , Developing an Education Intervention for Staff Supporting Persons With an Intellectual Disability and Advanced Dementia, 6, (4), 2009, p267- Journal Article, 2009 DOI

Lambert, V., Glacken, M., McCarron, M., A protection-participation dichotomy: communicating with children in healthcare. 1st International Children's Conference. Children and Young People in a Changing World., Queens University Belfast., 23rd-24th April 2009, 2009 Meeting Abstract, 2009

Dementia nurse specialists in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B ] Book Chapter, 2009

The Test for Severe Impairment. in, editor(s)NY: Springer. , Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities. , 2009, [Mulryan, N., Tyrrell, J., Cosgrave, M., Reilly, E. McCallion, P., & McCarron, M. ] Book Chapter, 2009 DOI

Hynes, G., Stokes, A., McCarron, M, Informal Care-giving in Advanced Chronic Obstructive Pulmonary Disease (COPD): Current Experiences in the Irish Context, Irish Thoracic Society Meeting Limerick. 2009: November, 2009 Meeting Abstract, 2009

Begley C, McCarron M, Huntley-Moore S., Research capacity building in academic nursing and midwifery, 10th Annual Research Conference, School of Nursing and Midwifery, Trinity College Dublin, November, 2009, pp14 - 14 Oral Presentation, 2009

Fealy, G., McCarron, M., O'Neill, D., McCallion, P., Clarke, M., Small, V., O'Driscoll, A., & Cullen, A. , Effectiveness of gerontologically informed nursing assessment and referral interventions for older persons attending the emergency department: systematic review, Journal of Advanced Nursing, 65, 2009, p934-945. Journal Article, 2009 TARA - Full Text DOI

Dementia (in people with intellectual disability) in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B (Ed)] Book Chapter, 2009

Older people with intellectual disabilities in, Oxford Handbook of Learning and Intellectual Disability Nursing, Oxford University Press, 2009, [Barr, O & Gates, B (Ed)] Book Chapter, 2009

McCarron, M, Fahey-McCarthy, E., Connaire, K., McCallion, P , Role and Timing of Palliative Care in Supporting persons with Intellectual Disability and Advanced Dementia. , Embracing the Challenge: Citizenship and Dementia. , The Dementia Services Development Centre Northern Ireland. Stormont Hotel. , 6th -8th May 2008, 2008 Meeting Abstract, 2008

Lambert, V., Glacken, M., McCarron, M, Communicating with Children in Health Care: Children as Human Becoming and/or Human Beings, 2nd International Conference. Re-presenting Childhood and Youth,, University of Sheffield , 08-JUL, 2008 Meeting Abstract, 2008

Neenan, K .,McCarron, M, Connaire, K., Cox, K, Day in Day out. Echoes of Hospice Day Care. 7th Annual Kaleidoscope Conference Pearls and Promises: The changing face of Palliative Care Practice. , Dublin Castle, 11TH -12TH June 2008, 2008 Meeting Abstract, 2008

Lambert, V., Glacken, M. and McCarron, M., , Getting to grips with Ethnography., 3rd Symposium on Current Developments in Ethnographic Research in the Social and Management Sciences, University of Liverpool. , 03-SEP, 2008 Meeting Abstract, 2008

Lambert, V., Glacken, M., McCarron, M, Visible-ness?: The nature of communication for children admitted to a specialist paediatric hospital in the Republic of Ireland, Journal of Clinical Nursing, 17, 2008, p3092 - 3102. Journal Article, 2008 DOI

Neenan K Mc Carron M Connaire K Cox K , Challenges encountered while researching end of life care in a specialist Palliative Care Hospice Day Service in the Republic of Ireland. Royal College of Surgeons in Ireland., Annual International Nursing and Midwifery Research Conference, Royal College of Surgeons in Ireland, 20th-21st Feb, 2008 Meeting Abstract, 2008

Begley C, McCarron M, Huntley-Moore S , Developing research capacity in academic nursing and midwifery National Association for the Integration of Teaching and Learning , Bologna and staff development conference, Trinity College Dublin, 2008, 9-10 Report, 2008

Lambert, V, Glacken, M, McCarron, M, 'Visible-ness': the nature of communication for children admitted to a specialist children's hospital in the Republic of Ireland., Journal of clinical nursing, 17, (23), 2008, p3092-3102 Journal Article, 2008 TARA - Full Text DOI

Hynes, G. & McCarron, M., Identifying Palliative Care Needs of Patients with COPD. , Irish Journal of Medical Science, , 177, 2008 Journal Article, 2008

Lambert, V., Glacken, M., McCarron, M., , The challenge of communicating with children in a technological age, 10th International Paediatric and Child Health Nursing Conference, Darwin, Northern Territory, Australia , 30-APR-08 -02-MAY-08, 2008 Meeting Abstract, 2008

Hynes, G., Stokes, A., McCarron, M, Informal Care-giving in Advanced COPD: Lay knowledge and experience, Ireland, Trinity College Dublin, 2008 Report, 2008

Lambert, V., Glacken, M. and McCarron, M., Communicating with Children in Health Care: A Sociological Perspective. 9th Annual Interdisciplinary Research Conference.Transforming Healthcare through Research Education and Technology, School of Nursing and Midwifery Studies. Trinity College Dublin. , 05-NOV, 2008 Meeting Abstract, 2008

Nurse Roles in Supporting Aging Persons with Mental Health Problems in, , Mental Health, Intellectual Disabilities, and the Aging Process, 2008, pp223-237 , [Mccarron, M., Griffiths, C.] Book Chapter, 2008 DOI

McCarron, M, Fahey-McCarthy, E., Connaire, K., McCallion, P , Palliative Care and Persons with Intellectual Disability and Dementia: Recent Innovations and Developments. , 7th Annual Kaleidoscope Conference Pearls and Promises: The changing face of Palliative Care Practice, Dublin Castle , 11TH -12TH June 2008, 2008 Meeting Abstract, 2008

Lambert,V., Glacken, M. & McCarron, M, , Visible-ness": The degree to which children are included or excluded in the communication process. Participatory Methods Seminar, Researching Children's Worlds: Sharing Knowledge to Improve Action. Training Event,, Galway , 08-FEB-08 -08-FEB-08, 2008 Meeting Abstract, 2008

Neenan K Mc Carron M Connaire K Cox K , Day by Day Patients' experiences of Hospice Day Care., School of Nursing and Midwifery Trinity College Dublin 8th Annual Interdisciplinary Research Conference Transforming Healthcare through Research, Education and Technology , 7th - 9th Nov 2007, 2007 Meeting Abstract, 2007

McCarron M, Nolan, L., McCallion, P. and Murphy-Lawless, J, Loss of Place-Understanding Dementia Related Stigma from and Irish Perspective, 17th Alzheimer's Europe Conference -Estoril Spain , Estoril Spain , 9th -12th May 2007, 2007 Meeting Abstract, 2007

Neenan K Mc Carron M Connaire K Cox K , Precious Moments in Hospice Day Care , The 8th International Conference, The Social Context of Death, Dying and, Bath UK., 12-15 September 2007, 2007 Meeting Abstract, 2007

McCarron, M, McCallion, P, End-of-life care challenges for persons with intellectual disability and dementia: making decisions about tube feeding., Intellectual and developmental disabilities, 45, (2), 2007, p128-131 Journal Article, 2007 DOI

Supporting Families who have Aging Members with Disabilities. in, Walsh, P.N., Carr, A.,O'Reilly, G. ,& McEvoy, J. , The Handbook of Intellectual Disability and Clinical Psychology Practice, London: Routledge., 2007, pp867 - 899, [McCarron, M., & McCallion, P. ] Book Chapter, 2007

McCallion P., & McCarron M, Perspective on Quality of Life in Dementia Care. , Intellectual and Developmental Disabilities, 45, (1), 2007, p56 - 59 Journal Article, 2007 DOI

Neenan K Mc Carron M Connaire K Cox K , Precious Moments in Hospice Day Mortality , Supplement vol 12 , 2007 Meeting Abstract, 2007

Lambert, V., Glacken, M. & McCarron, M, Being overshadowed: one aspect of the process of communication between children and health care professionals in a paediatric hospital setting, RCN International Nursing Research Conference, Dundee, Scotland. , 01-MAY-07 -04-MAY-07, 2007 Meeting Abstract, 2007

McCarron, M. & McCallion, P. , ) End of Life Care Challenges for Persons with Intellectual Disability and Dementia: Making Decisions About Tube Feeding, Intellectual and Developmental Disabilities, 45(2) , 2007, p128-131. Journal Article, 2007 DOI

Lambert, V. Glacken, M. & McCarron, M, Being at or brought to the forefront: one dimension of the nature of communication for children admitted to a specialist paediatric hospital in the Republic of Ireland., 3rd International Congress on Pediatric Nursing. Children and Young Peoples Nursing: Looking Forward, Athens, Greece. , 24-AUG-07 -25-AUG-07, 2007 Meeting Abstract, 2007

McCallion, P., & McCarron, M. , ). Dementia and Carer Burnout: Usefulness of the MBI. IASSID , Europe Conference, Maastricht, Holland, 2006 Conference Paper, 2006

Nolan, L. McCarron, M., McCallion, P. and Muprhy-Lawless, J., , 'Stigma in dementia' - reality or myth, supportive or non-supportive? , Irish Journal of Medical Science - Conference Proceedings of 55th Annual Scientific Meeting of the Irish Gerontological Society,, 176, (S6), , 2006, pppS256 - S257. Conference Paper, 2006

McCarron, M., McCallion, P., Reilly, E., & McLaughlin, M. , Encouraging earlier assessment of dementia, IASSID Europe Conference, Maastricht, Holland., 2006 Conference Paper, 2006

Nolan, L., McCarron, M., McCallion, P. and Murphy-Lawless, J. , Presentation of the findings of Stigma in dementia: an exploratory study', The Right to be Heard, The Alzheimer Society of Ireland, Annual National Conference 2006, Sligo Park Hotel, 18th November , 2006 Conference Paper, 2006

McCarron, M., McCallion, P., & McLaughlin, M, A Memory Clinic for Persons with Intellectual Disabilities and Dementia, 15th Alzheimer's Europe Conference, Killarney, Ireland., 2005, 2005 Conference Paper, 2005

McCarron, M., & McCallion, P, Pain scale for persons with intellectual disabilities and dementia., 15th Alzheimer's Europe Conference, Killarney, Ireland, 2005 Conference Paper, 2005

McCarron M, Gill M, McCallion P, Begley C. , Health co-morbidities in ageing persons with Down Syndrome and Alzheimber's dementia., Journal of Intellectual Disability Research, 49, (7), 2005, p560 - 566 Journal Article, 2005 URL DOI

McCallion, P., Maniccia, D., Bashant, J., & McCarron, M. , Systematic Literature Review and a Meta-Analysis of Intervention Effectiveness Findings Addressing Quality of life for Nursing Home Residents with Dementia., Gerontological Society of America Annual Scientific Meeting, Orlando, Florida., 2005 Conference Paper, 2005

McCarron, M., Assessment of Dementia in Persons with Intellectual Disability: Challenges and Opportunities, The Frontline of Learning Disability, 64, (Winter), 2005, p24 - 27 Journal Article, 2005

McCallion, P., Maniccia, D., Bashant, J., & McCarron, M. , Systematic literature review and a meta-analysis of intervention effectiveness findings. , 15th Alzheimer's Europe Conference, Killarney, Ireland., 2005 Conference Paper, 2005

McCarron, M., McCallion, P., & McLaughlin, M, Findings from a Memory Clinic for Persons with Intellectual Disabilities and Dementia., Gerontological Society of America Annual Scientific Meeting, Orlando, Fl., 2005, 2005 Conference Paper, 2005

McCarron, M, & McCallion, P, A Revised Stress and Coping Framework , Journal of Policy and Practice in Intellectual Disabilities, 2, 2005, p139 - 148 Journal Article, 2005 DOI

McCallion, P., McCarron, M., & Force, L.T. , A Measure of Subjective Burden for Dementia Care: The Caregiving Difficulty Scale-Intellectual Disability, Journal of Intellectual Disability Research, 49, (5), 2005, p365 - 371 Journal Article, 2005 DOI

McCarron, M., McCallion, P., O'Brien, J. & Lane J. , Risk factors and impact on survival of tube feeding in persons with Down syndrome and dementia. , 15th Alzheimer's Europe Conference, Killarney, Ireland. , 2005 Conference Paper, 2005

McCallion, P., Nickle, T., & McCarron, M., A comparison of reports of caregiver burden between foster family care providers and staff caregivers of persons in other settings, Dementia, 4, (3), 2005, p401 - 412 Journal Article, 2005 DOI

McCarron, M., McCallion, P., Fleming, S., Bourke, E., An Investigation of Dependency Levels of Ageing Persons with Intellectual Disability (ID) and the Implications from a Care and Resource Perspective, Dublin, December , 2004 Report, 2004

McCallion, P., & McCarron, M, Assessment of Dementia in Persons with Developmental Disabilities, National Alzheimer's Disease Education Conference, Philadelphia, PA., 2004 Conference Paper, 2004

McCallion, P., & McCarron, M., Aging and Intellectual disabilities: A review of recent literature., Current Opinion in Psychiatry, 17, (5), 2004, p349 - 352 Journal Article, 2004 DOI

McCarron, M., McCallion, P., & Fleming, S , Dependency levels among aging persons with Intellectual Disability (ID) and their care and resource implications, Gerontological Society of America Annual Scientific Meeting, Washington, DC, 2004 Conference Paper, 2004

McCallion, P., McCarron, M., & Fleming, S, The Pain Symptom Checklist for Persons With Intellectual Disabilities and Advanced Dementia., Gerontological Society of America Annual Scientific Meeting, Washington, DC., 2004 Conference Paper, 2004

Fleming, S., McCarron, M., Bourke, E., & McCallion, P. , Dependency levels among aging persons with Intellectual Disability (ID) and their care and resource implications. Conference Proceedings, 5th Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2004 Conference Paper, 2004

McCarron, M., & McCallion, P, Staff caregivers of persons with intellectual disabilities (ID) and dementia. A revised stress and coping framework, World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004 Conference Paper, 2004

Kirley A, Lowe N. Mullins C, McCarron M, Daly G, Waldman I, Fitzgerald M, Gill M, Hawi Z, Phenotype studies of the DRD4 gene polymorphisms in ADHD: Assocaition with opportional defiant disorder and positive family history., American Journal Of Medical Genetics Part B-Neuropsychiatric Genetics, 131B, (1), 2004, p38 - 42 Journal Article, 2004 URL DOI

Intellectual disabilities and dementia in, editor(s)K. Doka , Living with Grief: Alzheimer's disease, Washington, DC, Hospice Foundation of America, 2004, pp67 - 84, [McCallion, P., & McCarron, M. ] Book Chapter, 2004

McCallion, P., & McCarron, M., Best practice in end of life care for persons with intellectual disability (ID) and dementia., World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004 Conference Paper, 2004

McCarron, M., & McCallion, P, Longitudinal follow-up of persons with Down syndrome (DS) and Dementia: Risk factors and impact on survival of tube feeding, World Congress International Association for the Scientific Study of Intellectual Disabilities, Montpellier, France., 2004 Conference Paper, 2004

McCarron, M. , Alzheimer's Dementia in persons with Down syndrome. , Centennial Conference of the Irish Association of Directors of Nursing and Midwifery, Tullamore. , 2004 Conference Paper, 2004

McCarron, M., Fleming, S., Bourke, E., & McCallion, P, ). Pain in Persons with Intellectual Disabilities and Advanced Dementia: Development and validation of a pain assessment instrument. Conference Proceedings,, , 5th Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2004 Conference Paper, 2004

Nurses Roles in Supporting Aging Persons with Intellectual Disability and Mental Health Problems: Challenges and Opportunities for Care in, editor(s)P. Davidson, V. Prasher, & M.P. Janicki , Mental Health, Intellectual Disabilities and the Aging Process., London, Blackwell, 2003, [McCarron M. & Griffiths, C] Book Chapter, 2003

McCallion, P., & McCarron, M, Quality of Life as a Guide to Program Development in Dementia Care: Issues in Definition and Measurement, Gerontological Society of America Annual Scientific Meeting, San Diego, CA., 2003 Conference Paper, 2003

McCallion, P., & McCarron, M, Burden experiences among staff caregivers of persons with ID and dementia., International Roundtable on Aging and Developmental Disabilities, Volos, Greece., 2003 Conference Paper, 2003

McCarron, M., Gill, M., McCallion, P. Lawlor, B., & Begley, C, Alzheimer's dementia in persons with Down syndrome, Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2003 Conference Paper, 2003

Kirley A, Lowe N, Hawi Z, Mullins C, Daly G, Waldman I, McCarron M, O'Donnell D, Fitzgerald M, Gill M, Association of the 480 bp DAT1 allele with methylphenidate response in a sample of Irish children with ADHD., American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics, 121B, (1), 2003, p50-4 Journal Article, 2003

McCarron M, Lawlor BA, Responding to the challenges of ageing and dementia in intellectual disability in Ireland., Aging & mental health, 7, (6), 2003, p413-7 Journal Article, 2003 DOI

McCarron, M., & McCallion, P. , Programming Models in Dementia Care: Lessons from the Intellectual Disabilities Care Field, Gerontological Society of America Annual Scientific Meeting, San Diego, CA., 2003 Conference Paper, 2003

McCallion, P., & McCarron, M. , Objective and subjective burden: Empowering staff to address dementia challenges, National Alzheimer's Disease Education Conference, Chicago, Il., 2003 Conference Paper, 2003

McCallion, P., & McCarron, , Subjective burden among staff caregivers of persons with ID and dementia., Annual International Research Conference, School of Nursing and Midwifery Studies, Trinity College Dublin, 2003 Conference Paper, 2003

McCarron, M., & McCallion, P., Dementia and Persons with Developmental/ Learning Disabilities: Caring and Being Cared For. , Special Olympics Scientific Symposium, Belfast, N. Ireland., 2003 Conference Paper, 2003

A. Kirley, Z. Hawi, G. Daly, M. McCarron, C. Mullins, N. Millar, I. Waldman, M. Fitzgerald and M. Gill, Dopaminergic system genes in ADHD: toward a biological hypothesis, Neuropsychopharmacology, 27, (4), 2002, p607-619 Journal Article, 2002 DOI TARA - Full Text

McCallion, P., & McCarron, M., Objective and Subjective Burdens/ Difficulties Working with Persons with Intellectual Disabilities and Dementia, Alzheimer's Disease International Conference, Barcelona, Spain., 2002 Conference Paper, 2002

M. McCarron, M. Gill, B. Lawlor and C. Begly, A pilot study of the reliability and validity of the Caregiver Activity Survey - Intellectual Disability (CAS-ID), Journal of Intellectual Disability Research, 46, (8), 2002, p605-612 Journal Article, 2002 URL DOI

McCallion, P., & McCarron, M. , Subjective burdens/difficulties working with persons with intellectual disabilities and dementia, IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

McCarron, M, Gill, M, Lawlor, B, Tyrrell, J, Cosgrave, M, Begley, C. , The Influence of Alzheimer's dementia on Time Spent Caregiving in persons with Down syndrome., IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

Lawlor, B, McCarron, M, Cosgrave, M, Tyrrell, J, Gill, M, , Responding to dementia care needs in persons with Intellectual Disability., IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

McCarron M, Gill M, Lawlor B, Begley C. , Time spent caregiving for persons with the dual disability of Down syndrome and Alzheimer's dementia: Preliminary findings. , Journal of Learning Disabilities, 6, (3), 2002, p263 - 279 Journal Article, 2002 DOI

Tyrrell J, McCarron M, Cosgrave M, Gill M, Lawlor B. , A longitudinal study of 289 people with Down's syndrome: results at year three., IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

McCarron, M, Gill, M, Tyrrell J, Cosgrave M, Lawlor B, ApoE e4 is a risk factor for dementia and premature death: Findings from a longitudinal study on persons with Down's syndrome:, World Genetics Conference. Brussels. , 2002 Conference Paper, 2002

Building Supports for Women with Intellectual Disabilities Across the Lifespan: A Nursing Perspective with Practical Considerations in, editor(s)P.N. Walsh, & T. Heller , Health of Women with Intellectual Disabilities, London, Blackwell, 2002, pp190 - 203, [McCarron M. and Service K. P. ] Book Chapter, 2002

McCarron, M, Cosgrave, M, Tyrrell, J, Gill, M, Lawlor, B, Association between Age at Onset of Dementia and Age of Menopause in Women with Down's Syndrome. , IASSID Europe Conference, Dublin, Ireland., 2002 Conference Paper, 2002

Z. Hawi, D. Foley, A. Kirley, M. McCarron, M. Fitzgerald and M. Gill, Dopa decarboxylase gene polymorphisms and attention deficit hyperactivity disorder (ADHD): no evidence for association in the Irish population, Molecular Psychiatry, 6, (4), 2001, p420 - 424 Journal Article, 2001 URL TARA - Full Text DOI URL URL

McCarron, M, Gill, M, Lawlor, B, Begley, C. , A pilot study of Reliability and Validity of the Caregiving Activity Survey-Intellectual Disability (CAS-ID), 11TH IASSID International Roundtable on Aging and Intellectual Disabilities. Luxembourg. , 2001 Conference Paper, 2001

Kirley, A., Hawi, Z.Dr., McCarron, M., (...), Fitzgerald, M., Gill, M., A review of attention deficit hyperactivity disorder and dopamine system candidate, American Journal of Medical Genetics - Neuropsychiatric Genetics, 105, (7), 2001, p634 Journal Article, 2001

J. Tyrrell, M. Cosgrave, M. McCarron, J. McPherson, J. Calvert, A. Kelly, M. McLaughlin, M. Gill and B. A. Lawlor, Dementia in people with Down's syndrome, International journal of geriatric psychiatry, 16, (12), 2001, p1168-1174 Journal Article, 2001 URL DOI

McCarron, M, Gill, M, Lawlor, B, Begley, C. , The social and economic impact of caring for persons with the dual disability of Alzheimer's dementia and Down syndrome, Transforming Healthcare Through Research, Education &Technology Research Conference. Trinity College, Dublin. Ireland. , 2001 Conference Paper, 2001

Lawlor BA, McCarron M, Wilson G, McLoughlin M, Temporal lobe-oriented CT scanning and dementia in Down's syndrome., International journal of geriatric psychiatry, 16, (4), 2001, p427-9 Journal Article, 2001 DOI

McCarron, M , The impact of caring for persons with a dual disability of Down syndrome and Alzheimer's dementia, 4th Annual Irish Conference Dementia Care- Journal of Dementia Care and DSIDC, Dublin, Ireland., 2001 Conference Paper, 2001

McCarron, M., Tyrell, J., Cosgrave, M., Lawlor, B., Gill, M.J., Influence of APO-E alleles on risk for dementia in Down's syndrome., American Journal Medical Genetics, 96, (4), 2000, p178- Journal Article, 2000

McCarron, M , Alzheimer's Dementia in persons with Down syndrome: Implications for carers and service delivery, Annual Nurse Managers Association (Intellectual Disability) -Limerick. Ireland. , 2000 Conference Paper, 2000

McCarron M, Tyrell J, Cosgrave M,et al , Influence of APO-E alleles on risk for dementia in Down's syndrome, World Genetics Conference. Paris., 2000 Conference Paper, 2000

Low JN, Storey EJ, McCarron M, Wardell JL, Ferguson G, Glidewell C, , Conformational preferences in 2-nitrophenylthiolates: interplay between intra- and intermolecular forces; structures of (E)-1-(4-methyl-2-nitrobenzenethiolato)-2-phenylethene, S-(2-nitrophenyl)-benzenecarbothiolate and 1-(2-nitrophenylthio)-2,5-pyrrolidinedione, Acta crystallographica. Section B, Structural science, 56, (1), 2000, p58 - 67 Journal Article, 2000 TARA - Full Text

Cosgrove, M., Tyrrell, J., McCarron, M., Gill, M., Lawlor, B., A Five Year Follow up Study of Dementia in Persons with Down's Syndrome: Early Symptoms and Patterns of Deterioration., Irish Journal of Psychological Medicine 17(1) 5-11., 17, (1), 2000, p5 - 11 Journal Article, 2000

McCarron, M , Alzheimer's dementia and Down syndrome: Emerging Challenges for Professional Caregivers', An Bord Altranais Annual Mental Handicap Seminar - Dublin, Ireland. , 2000 Conference Paper, 2000

Hawi Z, McCarron M, Kirley A, et al., No association of the dopamine DRD4 receptor (DRD4) gene polymorphism with attention deficit hyperactivity disorder (ADHD) in the Irish population., World Genetics Conference. Paris., 2000 Conference Paper, 2000

McCarron, M , Adults' Dementia Care Challenges and needs: are we meeting them?, 'Annual Conference of Social Workers in Intellectual Disability- Dundalk. Ireland., 2000 Conference Paper, 2000

Z. Hawi, M. McCarron, A. Kirley, G. Daly, M. Fitzgerald and M. Gill, No association of the dopamine DRD4 receptor (DRD4) gene polymorphism with attention deficit hyperactivity disorder (ADHD) in the Irish population, American Journal of Medical Genetics Part A, 96, (3), 2000, p268 - 272 Journal Article, 2000 DOI URL URL

Cosgrove, M., Tyrrell, J., McCarron, M. , Gill, M., Lawlor, B, Age at onset of dementia and age of menopause in women with Down's syndrome., . Journal of Intellectual Disability Research, 43, (6), 1999, p461 - 465 Journal Article, 1999 DOI

McCarron, M, Issues in Caring for Persons with the dual diagnosis of Alzheimer's dementia and Down syndrome. , Alzheimer's Down syndrome Conference. Trinity Centre for Health Sciences, St. James's Hospital, Dublin, Ireland., 1999 Conference Paper, 1999

McCarron, M. , Some Issues in Caring for persons with the dual diagnosis of Alzheimer's dementia and Down's syndrome, Journal of Learning Disability for Nursing Health and Social Care, 3, (3), 1999, p123 - 129 Journal Article, 1999

McCarron, M. , Down's syndrome and dementia, 2nd Annual Irish Conference Dementia Care- Journal of Dementia Care and DSIDC, Dublin, Ireland. , 1999 Conference Paper, 1999

Cosgrave M, Tyrrell J, McCarron M, Gill M, Lawlor, BA, Determinants of aggression, and adaptive and maladaptive behaviour in older people with Down's syndrome with and without dementia., Journal of Intellectual Disability Research, 43, (5), 1999, p393 - 399 Journal Article, 1999 DOI

Cosgrave MP, McCarron M, Anderson M, Tyrrell J, Gill M, Lawlor BA, Cognitive decline in Down syndrome: a validity/reliability study of the test for severe impairment., American journal of mental retardation : AJMR, 103, (2), 1998, p193-7 Journal Article, 1998 DOI

McCarron, M , Alzheimer's Dementia and Down's Syndrome, All Hallows Conference Centre, Drumcondra, Dublin. Ireland. , 1998 Conference Paper, 1998

McCarron M, Reflections of a Life in Residential Care., Frontline, Summer, 1990 Review Article, 1990

Non-Peer-Reviewed Publications

McCarron, M; Burke, E;, Engaged Research Report, Mansion House Dublin, 13th January, 2017, Campus Engage Invited Talk, 2017

McCarron, M, Pushing the Boundaries in Research and Service Transformation, Clinical Leadership Programme for staff from ID services forum day , Dublin, 31st May, 2017, Leadership and Innovation Centre for Nursing and Midwifery Invited Talk, 2017

McCarron, M;, Ageing and Intellectual Disabilty: Lessons learned from IDS TILDA, Faculty of Psychiatry of Intellectual Disability Annual Conference , Dublin, 6th October, 2017, Royal College of Psychiatrists Invited Talk, 2017

McCarron, M, Alzheimer's Dementia and Down syndrome: Awareness, Hope and Service Transformation, Session 9 GBHI Conference, Barcelona, 2017 Invited Talk, 2017

McCarron, M, NI Conference on Dementia, Belfast, 8th March, 2017, Alzheimers Society Invited Talk, 2017

McCarron, M, Dementia in People with Down syndrome, All-Party Oireachtas Group on Dementia, Kildare Street, 15th June , 2017, Dementia Committee Invited Talk, 2017

McCarron, M, Last days of life conference, Cardiff, 1st March, 2017 Invited Talk, 2017

McCarron, M;, IDS-TILDA Ageing in Intellectual Disability, Faculty of Psychiatry of Intellectual Disability Annual Conference , Dublin, 6th October, 2017, Royal College of Psychiatrists Invited Talk, 2017

McCarron, M, Ageing with an Intellectual Disability in Ireland, 2017 International Summit on Ageing with an Intellectual Disability, TBSI Dublin, 20/09/17, 2017 Oral Presentation, 2017

McCarron, M, Health conditions associated with ageing in people with Down syndrome, New Horizons in Down's Syndrome, Kildare Street, Dublin, 1st February, 2017, Royal College Physicians of Ireland Invited Talk, 2017

McCarron, M, Down Syndrome & Dementia. Findings from a longitudinal research study, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

McCarron, M, The needs of people living with Down's Syndrome and dementia, Meeting of The All-Party Oireachtas Group on Dementia, Leinster House , 15th June, 2017, The Alzheimer Society of Ireland Invited Talk, 2017

McCarron, M, Overview of IDS-TILDA, Ageing and Older Adults with Learning Disabilities Conference, Edinburgh, 9th June, 2017 Oral Presentation, 2017

McCarron, M., Burke, E, To ensure 'nothing about us without us', Engaged Research: Society& Higher Education Working Together to Address Grand Societal Challenges, Mansion House, Dublin, 13th January, 2017, Irish Research Council & Campus Engage Invited Talk, 2017

McCarron, M, Older Persons: The Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing , Comparative Joint Seminar: Matched presentations across the life-cycle from Ireland and US/Canada, Ashling Hotel, Dublin, 16th October, 2017, The American Association on Intellectual and Developmental Disabilities (AAIDD); National Federation of Voluntary Bodies; St. Michael's House and KARE Invited Talk, 2017

McCarron, M, Understanding Dementia in Persons with Down Syndrome: Implications for Hospics, Palliatve Care and Intellectual Disability Services, Intellectual Disabilities and Palliative Care Working together, Milford Care Centre, Limerick, 5th May, 2016 Invited Talk, 2016

McCarron, M.,, Empowering the RNID - Future Proofing the Undergraduate Programme for Changing Models of Service Delivery , INMO - Registered Nurse Intellectual Disability Section, Dublin, 22nd November, 2016 Invited Talk, 2016

Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Bracken-Scally, M., McCarron, M, Evaluation of the Genio Dementia Programme 2014-16 'Memory Matters' Initiative Implemented by the Carlow/Kilkenny Service Provider Forum: Early Findings. , School of Nursing and Midwifery, , Trinity College Dublin, 2016 Report, 2016

Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Ciblis, A., Bracken-Scally, M., McCarron, M, ). Evaluation of the Genio Dementia Programme 2014-16 Cork Integrated Dementia Care Across Settings (Cork-IDEAS) Initiative: Early Findings., School of Nursing and Midwifery, , Trinity College Dublin, 2015 Report, 2015

Brady, A-M., Hynes, G., Keogh, B., Daly, L., Kennelly, B., Bracken-Scally, M., Ciblis, A., McCarron, M. , Evaluation of the Genio Dementia Programme 2014-16 Community Outreach Dementia Project Leitrim: Early Findings, School of Nursing and Midwifery, , Trinity College Dublin, 2015 Report, 2015

O'Dwyer, M., McCarron, M., McCallion, P, Henman, M, Prevalence and factors associated with high anticholinergic burden in ageing people with Intellectual Disabilities in Ireland, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015 Poster, 2015

McDermott, A., Burke, E., Carroll, R., McCallion, P., McCarron, M, Examining the prevalence of constipation in older adults with an intellectual disability, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

Burke, EA., McCarron, M., Walsh, J B., McCallion, P, An examination of the bone status of adults with Intellectual Disability, results from the second wave of IDS-TILDA, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

McCarron, M., Caroll, R., Burke, E., O'Dwyer, M, Frailty indices for people with Intellectual Disability as they age, Faculty of Health Sciences Research Day, Trinity College, Dublin, 16th September, 2015 Poster, 2015

Burke, S., Carroll, R., Burke, E., McCallion, P., McCarron, M, Predicting onset of Osteoporosis and anxiety in adults with Intellectual Disability, Faculty of Health Sciences Research Day, Trinity College, 16th September, 2015 Poster, 2015

McCarron, M, Building longitudinal prevalence - Introduction to IDS-TILDA, HSE & DOH, June, 2014 Oral Presentation, 2014

Burke, E., McCarron, M, A Preliminary examination of the bone healt of older adults with intellectual disability in Ireland - IDS-TILDA Wave 1, Tung Wah Group Visit, Trinity College, Dublin, May, 2014 Oral Presentation, 2014

Burke, E., McCallion, P., Walsh, JB., McCarron, , Bone health and the older adult with Intellectual Disability in Ireland - preliminary results from IDS-TILDA, HSE & DOH, June , 2014 Oral Presentation, 2014

McCarron, M, Emerging issues and policy impact, HSE & DOH, Dublin, June, 2014 Oral Presentation, 2014

O,Donovan, M-A., McCarron, M, Social Issues - Living transitions, HSE &DOH, Dublin, June, 2014 Oral Presentation, 2014

O'Donovan, M-A., McCarron, M, Sovial Issues - Living transitions, NDA, Dublin, November, 2014 Oral Presentation, 2014

O'Dwyer, M., McCarron, M, Medication and policy implication, HSE & DOH, June, 2014 Oral Presentation, 2014

McCarron, M, Role and impact on health and social issues, HSE & DOH, November, 2014 Oral Presentation, 2014

Burke, E., McCarron, M, A Changing health profile, NDA, Dublin, November, 2014 Oral Presentation, 2014

McCausland, D., McCarron, M, A study of social participation for older people with an Intellectual Disability in Ireland, Tung Wah Group Visit, Trinity College, Dublin, May , 2014 Oral Presentation, 2014

Burke, EA., McCarron, M, The intellectual disability supplement to the Irtish Longitudinal study on ageing; Research among older adults with intellectual disability., 4th Year RNID Student Nurses, Trinity College, Dublin, 2014 Oral Presentation, 2014

McCallion P, McCarron M,, Deaths of people with intellectual disabilities in the UK, 383, (9920), 2014, p853 - 855 Journal Article, 2014 DOI

Burke, EA., McCallion, P., McCarron, M, Osteoporosis and people with Down syndrome: A preliminary descriptive examination of the IDS-TILDA Wave 1 results (Winning entry), Annual Roundtable - Special Interest Group on Aging with an Intellectual Disability, Internation Association for the Scientific Study of Intellectual & Developmental Disabilities, Boston, September, 2013 Oral Presentation, 2013

McCarron, M., McCallion, P., Reilly, E., A 46 year old man with Down Syndrome and Advanced Dementia: Nutrional and Hydration Challenges., Journal of Policy and Practice in Intellectual Disabilities, 2012 Journal Article, 2012

Higgins, A., Sharek, D., McCann, E., Sheerin, F., Glacken, M., Breen, M., and McCarron, M., Visible Lives: Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland, Dublin, Gay and Lesbian Equality Network, 2011, 1, 212 Report, 2011

Higgins A, Sharek D, McCann E, Glacken M, Breen M, McCarron M, Sheerin F, Visible Lives Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland, Dublin, Gay and Lesbian Equality Network (GLEN), 2011, 1-191 Report, 2011 TARA - Full Text

McCarron. M., Swinburne. J., Burke, E., McGlinchey, E., Mulryan, N., Andrews, V., Foran, S., & McCallion. P., Growing Older with an Intellectual Disability in Ireland 2011; First Results from the The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing., 2011 Report, 2011

Timmins, F. Glacken, M., Grogan, A. McCarron, M. Keilthy, P. and McDaid, O., National Consultation With Service Users And Healthcare Providers Regarding Home Care Nursing Services For People With State-Acquired HCV. , Dublin, 2010 Report, 2010

Mc Carron M Neenan K Connaire K Mc Conville U, Stepping Stones: The role of hospice day care in the care of patients with terminal illness., Dublin, 2010 Report, 2010 TARA - Full Text

McCarron, M , Caring for Persons with Intellectual Disabilities; From student Nurse to International Research and Leadership. 5th Positive Choices Conference University College Cork April 24th 2009 , April 24th 2009 , 2009 Invited Talk, 2009

McCarron, M , Supporting Persons with advanced and terminal dementia. 1st North Mayo Dementia 28th February 2009 , 28th February 2009 , 2009 Invited Talk, 2009

McCarron M. & McCallion, P. , Plenary Paper - The first wave findings of the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA), 2009 Working Paper, 2009

McCarron, M , Developing a Strategic Plan to Address the Needs of person with Intellectual Disability and Dementia. Brothers of Charity Service, Bawnmore Limerick. (May 20th) Workshop. , May 20th 2008, 2008 Invited Talk, 2008

Fahey-McCarthy, E., McCarron, M. Connaire, K, McCallion, P , Supporting Persons with Intellectual Disability and Dementia. Fusing the Horizons of Intellectual Disability, Palliative and Person Centred Dementia Care. An Introductory Education and Training Programme., (Including Trainers Manual, CD ROMS, Student Reflective work book. , 2008 Report, 2008

McCarron, M , Supporting persons with Advanced Dementia: Palliation and End of Life Care. Older People With Learning Disability and Dementia Conference. Dementia Services Development Centre Northern Ireland. Armagh City Hotel. April 9th. (Paper), April 9th 2008, 2008 Invited Talk, 2008

McCarron, M , Ageing and Dementia: Opportunities and Challenges in Care. Transforming Learning Disability Nursing Practice to Address Health Inequalities. 5th Annual National Network for Learning Disability Nurses. Trinity College Dublin. Plenary Paper. , 2008 Invited Talk, 2008

McCarron, M , Dementia Assessment and Care Approaches in Persons with an Intellectual Disability. The Irish Psychological Society (1 Day Workshop) Ardilaun Hotel Galway , 27th March 2008, 2008 Invited Talk, 2008

McCarron, M , An Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing. The Irish College of Psychiatrists Spring Meeting. Grand Hotel Malahide. , April 4th 2008, 2008 Invited Talk, 2008

McCarron, M., Fahey-McCarthy, E., Connaire, K, McCallion, P , Supporting Persons with Intellectual Disability and Dementia. Fusing the Horizons of Intellectual Disability, Palliative and Person Centred Dementia Care, 2008 Report, 2008

McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Care and Service Provision. International Conference The Way Forward: Choice and Challenges. COPE Foundation. Sliver Springs Hotel Cork. (May 2007)., May 2007, 2007 Invited Talk, 2007

McCarron, M , Caring for Persons with Advanced Dementia: Developing Commissioning Strategies. Facing End of Life Conference. NHS North East. Middlesbrough. UK. (February). , NHS North East. Middlesbrough. UK., February 2007, 2007 Invited Talk, 2007

McCarron, M , Ageing and Dementia in Persons with Intellectual Disability. A Workshop. Irish Nurses Organisation Dublin. (March 2007). , March 2007, 2007 Invited Talk, 2007

McCarron, M , How can we promote health and well-being in persons with Down syndrome who are deeply forgetful and living with Dementia? New Ideas-New approaches Supporting Innovation in Services and Supports to people with Intellectual Disability. National Federation of Voluntary Bodies. (, Silver Springs Hotel. Kilkenny, 23rd and 24th of Oct, 2007 Invited Talk, 2007

McCarron, M , Dementia in Persons with Intellectual Disability; Understanding Critical End of Life Care. Palliative Care in Persons with Intellectual Disability Conference. Peamount Intellectual Disability Service. Newcastle. Dublin. (March 2007), Newcastle. Dublin., March 2007, 2007 Invited Talk, 2007

McCarron, M , Challenges and Opportunities -Developing Services for the Future. Learning Disability & Dementia Forum. Belfast Health and Social Care Trust. , 10th October 2007, 2007 Invited Talk, 2007

McCarron, M , How can we promote health and well-being in persons with Down syndrome who are deeply forgetful and living with Dementia? New Ideas-New approaches Supporting Innovation in Services and Supports to people with Intellectual Disability. National Federation of Voluntary Bodies., Silver Springs Hotel. Kilkenny, 23rd and 24th of Oct, 2007 Invited Talk, 2007

McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Understanding Person Centred Dementia Care. (A Workshop) Brothers of Charity Galway. Days Hotel (June 2007). , June 2007, 2007 Invited Talk, 2007

McCarron, M , Ageing and Dementia in Persons with Intellectual Disability: Opportunities and Challenges in Care and Service Provision. International Conference The Way Forward: Choice and Challenges. COPE Foundation. Sliver Springs Hotel Cork. (May 2007)., May 2007, 2007 Invited Talk, 2007

McCarron, M , Palliative Care: Important Care Considerations when supporting people with Advanced Dementia. Developing Supports for People with Intellectual Disabilities and Dementia. St. John of God Hospitaller Services. Stillorgan. (4th October 2007), 4th October, 2007 Invited Talk, 2007

McCarron, M , Enhancing Quality of Life for Older people with a Disability in Ireland. National Conference. Session Chair -Connectedness, Companionship, Recreational Activities. Croke Park Conference Centre (May 2007), May 2007, 2007 Invited Talk, 2007

Nolan, L., McCarron, M., McCallion, P., & Murphy-Lawless, J., Perceptions of Stigma in Dementia: An exploratory study, Dublin, The Alzheimer Society of Ireland, September, 2006 Report, 2006

Lambert V, Using a range of methods to access children's voices, Health4Life, Dublin City University, May, 2006 Conference Paper, 2006

McCarron, M., McCallion, P., & McLaughlin, M., Overview of dementia issues in intellectual disability , The Frontline of Learning Disability, 64, (Winter), 2005, p14 - 15 Journal Article, 2005

McCarron, M., McCallion, P., Fleming, S., & Bourke, E., An Investigation of Dependency Levels of Ageing Persons with Intellectual Disability (ID) and the Implications from a Care and Resource Perspective, Dublin, School of Nursing & Midwifery, Trinity College Dublin, 2005 Report, 2005

McCallion, P., & McCarron, M. , Environmental modification and dementia: key recommendations., The Frontline of Learning Disability, 64, (Winter), 2005, p28 - 29 Journal Article, 2005

McCallion, P., & McCarron, M., Some resources on intellectual disability and dementia., The Frontline of Learning Disability, 64, (Winter), 2005, p29 - 29 Journal Article, 2005

McCarron M, Alzheimer's Dementia in Persons with Intellectual Disability: Common Questions and Concerns - Information Booklet, 2003, - Miscellaneous, 2003

McCarron M, McCallion, P & Service, K, Day to day care activities for persons with ID and dementia. A two cd-rom training package produced in conjunction with the NYS Developmental Disabilities Planning Council. , 2002, - Miscellaneous, 2002

McCarron M, Assisting people with a Mental Handicap Cope with the loss of Family and Friends. , Frontline, 1996 Review Article, 1996

McCarron, M & O'Reilly, O, Reflections and Visons. Report on European Year of Older People and Solidarity between Generations, Conference Proceedings, 1993 Review Article, 1993

Research Expertise

Description

An international expert in the field of ageing and intellectual disability, Professor McCarron is the Principal Investigator for the first ever Longitudinal study on Ageing in Persons with Intellectual Disability (IDS-TILDA) to be conducted in Ireland or in the EU and the only study to date with the potential to compare the ageing process in people with intellectual disability with other groups. This study is a Supplement to The Irish Longitudinal study on Ageing (TILDA). Leading a research team focused upon ageing, dementia end of life and palliative care Professor McCarron's work, funded by the Health Research Board, the Irish Hospice Foundation, The Atlantic Philanthropies nationally known service providers and other funders has been at the forefront of: - Longitudinally following the incidence of dementia symptoms in a population of persons with Down syndrome - Addressing cost and quality of life issues in dementia care and end of life care considerations for persons with intellectual disabilities and dementia - Award winning approaches to environmental Design and dementia - Extending Palliative to persons with advanced and terminal dementia and other non-malignancies such as COPD, - Assessing the policy impact of funded interventions - Building capacity for assessment of symptoms of dementia including the development of specialist memory clinic services - Supporting a randomized trial of Vitamin E as a protective agent for persons with Down syndrome - Building evidence-based day-to-day care management and service re-design practices. Her work is widely published.

Projects

  • Title
    • St Ita's moving to community Settings
  • Summary
    • Residents of St Josephs in St Ita's Portrane moving to community settings. Understanding the changes in their lives
  • Date From
    • Aug 2017
  • Date To
    • March 2018
  • Title
    • P PALS
  • Summary
    • People with Intellectual Disaility - Physical Activity Leaders
  • Funding Agency
    • EIT Health
  • Date From
    • Jan 2018
  • Date To
    • Dec 2018
  • Title
    • National Indicators of Positive Ageing for People with Intellectual Disabilty
  • Funding Agency
    • DOH
  • Date From
    • 01/01/2018
  • Date To
    • 01/09/2019
  • Title
    • Health Assessment and People with Intellectual Disability
  • Funding Agency
    • EIT Health
  • Date From
    • October 2017
  • Date To
    • January 2018
  • Title
    • Knowledge Transfer Exchange
  • Summary
    • Activities associated with the Palliative Care research Network work package. Identifying and addressing the needs of people with intellectual disability
  • Funding Agency
    • AALPHC
  • Date From
    • June 2017
  • Date To
    • October 2017
  • Title
    • ProACT (Intergrated Technology Ecosystems for ProACTive Patient Centred Care)
  • Summary
    • PI: Dr. John Dinsmore. TCD Team: Prof. Mary McCarron, Dr. Anne-Marie Brady, Dr. Joan Cahill. Development of proactive integrated care technology ecosystems to support multimorbidity disease management (including detection of early onset cognitive decline/dementia) in an ageing population. Involves 12 partners across 6 EU member states. Trial sites in Ireland, Belgium and Italy. Award secured August 2015.
  • Funding Agency
    • European Commission - Horizon 2020 under Call SC1-PHC25-2015
  • Date From
    • 01/01/2016
  • Date To
    • 01/07/2019
  • Title
    • WayFinding
  • Summary
    • PI: Dr. John Dinsmore. To pilot a smart watch navigation application for people with intellectual disability/mild cognitive impairment
  • Funding Agency
    • TCD Faculty of Health Sciences Award - Dean's Research Initiative Fund
  • Date From
    • 01/05/2016
  • Date To
    • 01/02/2017
  • Title
    • Our Voices
  • Summary
    • Our Impact (Knowledge Exchange and Dissemination Scheme Wave 3)
  • Funding Agency
    • HRB
  • Date From
    • December 2017
  • Date To
    • November 2018
  • Title
    • ASSISTID (Assistive Technologies for People with Intellectual Disability and Autism
  • Summary
    • PI: Prof. Brian Harvey. Core TCD Team: Prof. Mary McCarron, Dr. John Dinsmore. Study Title: Assistive Technology Development for Autism and Intellectual Disability. Role: TCD PI (presently supporting TCD applicants in the process of targeting fellows and pushing submissions with one successful and 4 applications in progress) Proportion direct to TCD will be determined in 2016. To date 2 DOCTRID ASSISTID Fellows at €171,832 per fellow have been secured under the programme
  • Funding Agency
    • European Commission - Marie Curie FP7 Co-Fund
  • Date From
    • 15/05/2014
  • Date To
    • 15/05/2019
  • Title
    • Wave III An Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing TILDA. Wave III
  • Summary
    • An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
  • Funding Agency
    • Health Research Board & Department of Health
  • Date From
    • Nov 2015
  • Date To
    • Dec 2018
  • Title
    • Understanding the contributors to better integration and community participation by persons with severe and profound intellectual disability
  • Summary
    • A Time to Move On from Congregated Settings: A Strategy for Community Inclusion (HSE, 2011) recommends a model of community inclusion to support people with an intellectual disability currently living in congregated settings to move to dispersed housing in ordinary communities. However, there is insufficient data on how successful community inclusion and community participation may be achieved for people with severe and profound intellectual disability. As a means of filling this gap, the research team, working with Inclusion Ireland conducted in-depth interviews with carers and service managers of older people with severe and profound intellectual disability to discern best practices, develop training and capacity building, and inform public policy.
  • Funding Agency
    • Irish Research Council
  • Date From
    • January 2015
  • Date To
    • December 2016
  • Title
    • The last months of life of people with LD living in Wales over a 12 month period.
  • Summary
    • Stuart Todd
  • Funding Agency
    • Dunhill Medical trust grant NISCHR (WAG)
  • Date From
    • 2015
  • Date To
    • 2016
  • Title
    • BEADS
  • Summary
    • Brain Exercise for Adults with Down Syndrome
  • Funding Agency
    • Down Syndrome Ireland
  • Date From
    • July 2015
  • Date To
    • March 2017
  • Title
    • Understanding family strategies that enable long term and sustainable home environments for older people with an Intellectual Disability
  • Summary
    • The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) is the first and most extensive such study to be conducted in Ireland or in the EU, and it is recognised internationally as pioneering in this field. This study provides the definitive and most nationally representative sample of older people with an ID. Within this study the now completed "Carer's Self-Completion Questionnaire" has a sample of 62 carers of older people with an ID living within family settings. The key methodology employed in this study entailed qualitative focus groups and interviews with these families. All focus group discussions were transcribed and data inputted into NVIVO with data analysed and mined to extract key themes and concepts. Objectives: . Describe the decision making process within families caring for an older person with an ID 1. Describe strategies for long term care planning within families 2. Describe patterns of transfer of care (parent to sibling, sibling to sibling etc) 3. Describe key family, economic, environmental, and social factors influencing strategies for long term family care . Illuminate barriers and enablers for families with an older person with ID 1. Identify pressure points for these families 2. Identify strategies, supports and enablers which sustain older people with ID within the family and community setting including the role of caregiving networks and supportive neighbours and communities . Identify best practice for supporting families with an older person with ID 1. Identify gaps between family experiences and the aspirations of contemporary ID social policy 2. Articulate the perceptions of families with regard to future policy 3. Propose models of support that facilitate family engagement and capacity in sustaining older people with an ID within the community
  • Funding Agency
    • National Disability Authority
  • Date From
    • March 2015
  • Date To
    • March 2016
  • Title
    • Genio Dementia Programme
  • Summary
    • An Evaluation for the Genio Dementia Programme
  • Date From
    • 2014
  • Date To
    • 2016
  • Title
    • End of Life Care
  • Summary
    • palliative and end of life care for older adults with intellectual disability in Ireland, through a social justice lens, in association with the IDS-TILDA study
  • Funding Agency
    • AIIHPC
  • Date From
    • Jan 13
  • Date To
    • Dec 16
  • Title
    • Effective family support models during the transition of adults with intellectual disabilities into old age
  • Funding Agency
    • Research & Development office Belfast
  • Date From
    • May 2013
  • Date To
    • May 2016
  • Title
    • Shaping the Future of Intellectual Disability Nursing in Ireland.
  • Funding Agency
    • Health Services Executive Ireland/Trinity College Dublin.
  • Date From
    • November 2013
  • Date To
    • April 2015
  • Title
    • Wave II An Intellectual Disability Supplement to the Irish Longitundinal Study on Ageing TILDA. Wave II.
  • Summary
    • An Intellectual Disability Supplement to The Irish Longitudinal McCarron M (PI), McCallion, P
  • Funding Agency
    • Health Research Board & Department of Health
  • Date From
    • November 2012
  • Date To
    • October 2015
  • Title
    • Getting the Message to the people that Matter; Innovation in Research Dissemination.
  • Funding Agency
    • IRCHSS Award
  • Date From
    • December 2011
  • Date To
    • May 2012
  • Title
    • A collaborative initiative to implement person-centred practice in residential care settings for children and adults with intellectual disability.
  • Summary
    • McCarron M(PI), McCallion, P., Keenan, P., Griffiths, C., Rolfe G.
  • Funding Agency
    • Stewarts Hospital
  • Date From
    • October 2011
  • Date To
    • February 2013
  • Title
    • Evaluation of the Programme to support Palliative and Hospice Care in the Republic of Ireland
  • Funding Agency
    • Atlantic Philanthropies
  • Date From
    • March 2010
  • Date To
    • March 2011
  • Title
    • What are the respite needs and experiences of family's caring for a child with a life-limiting condition requiring palliative care?
  • Summary
    • Ling, J-Doctoral Student and HRB Clinical Research Fellow McCarron, M (Principal Supervisor)
  • Funding Agency
    • Health Research Board
  • Date From
    • October 2010
  • Date To
    • September 2013
  • Title
    • The Post-Caring Experience: An Assessment of the Needs of former Family Carers.
  • Funding Agency
    • IRCHSS and Care Alliance
  • Date From
    • Dec 2009
  • Date To
    • Dec 2010
  • Summary
    • Identifying the experiences and needs of older Lesbian, Gay, Bisexual and Transgender (LGBT) people in Ireland and recommending positive ageing strategies and actions to promote their full participation and inclusion in Irish society
  • Funding Agency
    • GLEEN
  • Date From
    • Nov 2009
  • Date To
    • Dec 2010
  • Title
    • National Consultation with Service Users and Healthcare Providers regarding Home Nursing Services for People with State Acquired Hepatitic C Virus (HCV)
  • Summary
    • Timmins, F, (PI) Glacken, M, Grogan, A. Frazer, K., McCarron, M
  • Funding Agency
    • HSE
  • Date From
    • May 2008
  • Date To
    • November 2008
  • Title
    • An Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing TILDA - Wave 1
  • Summary
    • Background & Aim: In Ireland and elsewhere there is for the first time a sizeable and growing population of older persons with intellectual disabilities (ID). This is an incredible success but also a tremendous challenge; we know little about their ageing and there is much concern that mortality is higher, health problems are greater, access to services and health promotion is poorer and quality of life is often compromised. A comprehensive longitudinal study of ageing (TILDA) is about to begin in Ireland. Use of the electoral register as a sampling frame will unintentionally exclude many people with ID. Use of the National Intellectual Disability Database will offer an historic and critical opportunity to create a supplemental longitudinal follow-up of ageing in persons with ID. Approach: Sample: There will be two samples; (1) a stratified convenience pilot sample of 50 persons with ID aged 40-70 years, (2) approximately 800 persons over age 40 randomly selected from the HRB ID database with an over-sample of those over 55 and those 40-49 living at home or independently. Measures: Measures will address health, cognitive status, activities of daily living, living situations, social life and overall quality of life. Measures will be comparable to these being used in the larger TILDA study and yet will address unique issues. Analysis: For the pilot sample analysis will focus upon usability of instruments and instrument reliability and validity issues. When the finalized protocol is then administered to the first wave sample of the longitudinal study, a descriptive statistical picture of the life experiences of adult persons of ID will be developed as well as comparisons between important subgroups and with the general population findings of TILDA. Implications: The study will provide the first comprehensive picture of ageing in persons with ID and prepare for longitudinal investigation of that ageing.
  • Funding Agency
    • Health Research Board & Department of Health
  • Date From
    • October 2008
  • Date To
    • September 2012
  • Title
    • Developing respiratory practice to address palliative care needs of patients with chronic obstructive pulmonary disease (COPD): exploring the lay carer expert knowledge and experience.
  • Summary
    • Hynes, G -Doctoral Student McCarron, M (PI) Cox, K
  • Funding Agency
    • Irish Hospice Foundation
  • Date From
    • August 2007
  • Date To
    • October 2008
  • Title
    • An investigation of the Role of Hospice Day Care in the Care of Patients with Life Limiting Illness
  • Summary
    • McCarron, M, (PI), Neenan, K, (Doctoral Student), Ryan, F, McCann, M, Connaire, K, Cox, K,
  • Funding Agency
    • Irish Cancer Society
  • Date From
    • September 2006
  • Date To
    • September 2008
  • Title
    • Expanding Palliative Care to Meet the Needs of Persons with COPD
  • Summary
    • Hynes, G, -Doctoral Student McCarron, M (PI) Cox, K.
  • Funding Agency
    • Health Research Board
  • Date From
    • June 2006
  • Date To
    • September 2009
  • Title
    • Stigma and Alzheimer's disease
  • Summary
    • A qualitative study of the expereince of stigma by persons with dementia and their families
  • Funding Agency
    • Alzheimer's Society of Ireland
  • Date From
    • March 2006
  • Date To
    • September 2006
  • Title
    • A palliative care model for supporting persons with intellectual disabilities (ID) and dementia (AD)
  • Summary
    • Development of and effectiveness testing for an evidence-based training module to foster earlier application of palliative care principles in care of persons with intelelctual disabilities and dementia.
  • Funding Agency
    • Health Research Board
  • Date From
    • June 2005
  • Date To
    • May 2007
  • Title
    • Cost effectiveness and Quality of Life in Service Delivery for Persons with the dual disability of Down syndrome (DS) Alzheimer's Dementia (AD).
  • Summary
    • Responding to dementia needs is a new challenge for intellectual disability service providers and particularly pressing when consumers present with Down syndrome. New models of service are called for and are being attempted. This study will assess the relative cost and impacts on quality of life of four different care options: community and campus based group homes, aging settings and dementia specific settings.
  • Funding Agency
    • Health Research Board
  • Date From
    • Sept 2004
  • Date To
    • Sept 2007
  • Title
    • An investigation of dependency levels of ageing persons with Intellectual Disability (ID)
  • Summary
    • McCarron, M (PI), McCallion, P, Fleming, S.
  • Funding Agency
    • HSE Peamount Intellectual Disabilities Service
  • Date From
    • January 2004
  • Date To
    • July 2006
  • Title
    • Clinical Nursing Research Fellow, Investigating the 'influence of Alzhjeimer's Dementia on Time Spent Caregiving for persons Down syndrome and Alzheimer's dementia'
  • Summary
    • MCarron, M (PI and Doctoral Student), Begley, C Gill M.
  • Funding Agency
    • Health Research Board
  • Date From
    • Nov 1999
  • Date To
    • Oct 2002
  • Title
    • Seed funding to explore the impact of caring for persons with the dual disability of Alzheimer's Dementia and Down Syndrome
  • Summary
    • McCarron, M (PI)
  • Funding Agency
    • All-Ireland Research Fellowship grant from An Bord Altranais and the National Board of Nursing
  • Date From
    • Nov 1998
  • Date To
    • Nov 1999
  • Title
    • Best and most cost effective day service models to support the transition of adults with intellectual disabilities (ID) into old age.
  • Summary
    • PI: Laurence Taggart, McCarron M, McCallion P
  • Funding Agency
    • Ulster University & Northern Ireland Research & Development Office
  • Date From
    • 2012
  • Date To
    • 2015
  • Title
    • Effective family support models during the transition of adults with intellectual disabilities into old age
  • Summary
    • Co. P.I McCallion, P., McCarron, M
  • Funding Agency
    • Research and Development Office, Belfast
  • Date From
    • Nov 2012
  • Title
    • A Participatory action research pilot study to enhance long term care planning for older people with an Intellectual Disability (ID) in Ireland and their families
  • Summary
    • This is a 'bolt-on' project to IDS-TILDA, which builds on the NDA funded project "Understanding Family Strategies that Enable Long Term and Sustainable Home Environments for Older People with an Intellectual Disability".
  • Funding Agency
    • IRC
  • Date From
    • 2017
  • Date To
    • 2018
  • Title
    • National Key indicators of Positive Ageing for People with ID.
  • Summary
    • the National Positive ageing inticators will be used to assess the level of progress being made through the implementation of the strategy to improve the lives of older people over time.
  • Title
    • A Participatory action research pilot study to enhance long term care planning for older people with an Intellectual Disability (ID) in Ireland and their families
  • Summary
    • This is a 'bolt-on' project to IDS-TILDA, which builds on the NDA funded project "Understanding Family Strategies that Enable Long Term and Sustainable Home Environments for Older People with an Intellectual Disability".
  • Funding Agency
    • IRC
  • Date From
    • 01/03/2017
  • Date To
    • 01/03/2018
  • Title
    • National Key Indicators of Positive Ageing for People with ID
  • Summary
    • A bolt on study to IDS TILDA to develop National Key Indicators of Positive Ageing for People with ID
  • Funding Agency
    • Department of Health
  • Date From
    • 08/03/17
  • Title
    • Family strategies that enable long term and sustainable home environments for older people with ID
  • Funding Agency
    • NDA

Keywords

Aged care nursing; Ageing & Intellectual Disability - Changing Service Needs; Ageing & Intellectual Disability Issues; Ageing, Health and Intellectual Disability ; Dementia in people with Down's syndrome; Mental health nursing; Palliative Care and Dementia; Palliative care nursing; People with Down Syndrome & Alzheimer's Disease

Recognition

Awards and Honours

Chair in Ageing and Intellectual Disability 2014

Elected as Trinity Fellow 11th April 2011

Clinical Fellowship in Nursing and Midwifery by the Health Research Board 1999

Memberships

Member of the National Steering Committee for the National Dementia Office HSE, Project is to develop a Dementia Post-Diagnostic Support Pathway 21st June 2017 – 21st June 2018

Member and active participant in Trinity Consortium on Aging.

International Association for the Scientific Study of Intellectual Disability (IASSID). Member of the Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group. Chair for the 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia. Volos, Greece.

International Association for the Scientific Study of Intellectual Disability (IASSID) (member)

Member of the Special Interest Group (SIRG) on Aging and of the Nursing Special Interest Group.

Chair for the 2003 Roundtable Session on International Service Delivery for Persons with Intellectual Disability and Dementia. Volos, Greece.

Guest Reviewer, Irish Journal of Psychological Medicine , Journal of Intellectual Disability Research American Journal of Mental Retardation.

International Down Syndrome Special Interest Group (member)

Professional Advisory Group Alzheimer's Europe Conference 2005 (member)

Inclusion Ireland (Advisor on Ageing related issues in persons with Intellectual Disability)

Strategic Planning Group on Older People with Disabilities (member) Report submitted to the Department of Health and Children 2004.

National Federation of Voluntary bodies representative on the National Steering Group on Dementia set up by the Health Service Executive (HSE) 2008

Member of the National Working Group on Extending Palliative Care to Persons with Advanced Dementia set up the Irish Hospice Foundation. 2008

Member of the National Federation of Voluntary bodies Research Committee 2008

External Member on the Residential Care Standards for Older People by the Health Information Quality Authority (HIQA) at St. Patricks Hospital Cashel. 2008

Expert Panel European Association of Palliative Care Taskforce on Palliative Care/End of life Care for People with Intellectual Disabilities 2012 – present